Pediatric Palliative Care Programs in Children's Hospitals: A Cross-Sectional National Survey

PEDIATRICS ◽  
2013 ◽  
Vol 132 (6) ◽  
pp. X10-X10
Keyword(s):  
Palliative Care ◽  
National Survey ◽  
Pediatric Palliative Care ◽  
Children's Hospitals ◽  
Cross Sectional ◽  
Children’S Hospitals

Pediatric Palliative Care Programs in Children's Hospitals: A Cross-Sectional National Survey

PEDIATRICS ◽  
2013 ◽  
Vol 132 (6) ◽  
pp. 1063-1070 ◽  
Author(s):  
C. Feudtner ◽  
J. Womer ◽  
R. Augustin ◽  
S. Remke ◽  
J. Wolfe ◽  
...  
Keyword(s):  
Palliative Care ◽  
National Survey ◽  
Pediatric Palliative Care ◽  
Children's Hospitals ◽  
Cross Sectional ◽  
Children’S Hospitals

scholarly journals Pediatric palliative care in Canada in 2012: a cross-sectional descriptive study

CMAJ Open ◽  
2016 ◽  
Vol 4 (4) ◽  
pp. E562-E568 ◽  
Author(s):  
K. Widger ◽  
D. Davies ◽  
A. Rapoport ◽  
C. Vadeboncoeur ◽  
S. Liben ◽  
...  
Keyword(s):  
Palliative Care ◽  
Descriptive Study ◽  
Pediatric Palliative Care ◽  
Cross Sectional

scholarly journals Correlations Between Hospitals’ Social Media Presence and Reputation Score and Ranking: Cross-Sectional Analysis (Preprint)

2017 ◽  
Author(s):  
Justin D Triemstra ◽  
Rachel Stork Poeppelman ◽  
Vineet M Arora
Keyword(s):  
Social Media ◽  
Correlation Coefficients ◽  
Children's Hospitals ◽  
Cross Sectional ◽  
Cross Sectional Analysis ◽  
Children’S Hospitals ◽  
Reputation Score ◽  
The Us ◽  
Social Media Presence ◽  
Sectional Analysis

BACKGROUND The US News and World Report reputation score correlates strongly with overall rank in adult and pediatric hospital rankings. Social media affects how information is disseminated to physicians and is used by hospitals as a marketing tool to recruit patients. It is unclear whether the reputation score for adult and children’s hospitals relates to social media presence. OBJECTIVE The objective of our study was to analyze the association between a hospital’s social media metrics and the US News 2017-2018 Best Hospital Rankings for adult and children’s hospitals. METHODS We conducted a cross-sectional analysis of the reputation score, total score, and social media metrics (Twitter, Facebook, and Instagram) of hospitals who received at least one subspecialty ranking in the 2017-2018 US News publicly available annual rankings. Regression analysis was employed to analyze the partial correlation coefficients between social media metrics and a hospital’s total points (ie, rank) and reputation score for both adult and children’s hospitals while controlling for the bed size and time on Twitter. RESULTS We observed significant correlations for children’s hospitals’ reputation score and total points with the number of Twitter followers (total points: r=.465, P<.001; reputation: r=.524, P<.001) and Facebook followers (total points: r=.392, P=.002; reputation: r=.518, P<.001). Significant correlations for the adult hospitals reputation score were found with the number of Twitter followers (r=.848, P<.001), number of tweets (r=.535, P<.001), Klout score (r=.242, P=.02), and Facebook followers (r=.743, P<.001). In addition, significant correlations for adult hospitals total points were found with Twitter followers (r=.548, P<.001), number of tweets (r=.358, P<.001), Klout score (r=.203, P=.05), Facebook followers (r=.500, P<.001), and Instagram followers (r=.692, P<.001). CONCLUSIONS A statistically significant correlation exists between multiple social media metrics and both a hospital’s reputation score and total points (ie, overall rank). This association may indicate that a hospital’s reputation may be influenced by its social media presence or that the reputation or rank of a hospital drives social media followers.

A cross-sectional pilot study of compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care providers in the United States

2018 ◽  
Vol 17 (03) ◽  
pp. 269-275 ◽  
Author(s):  
Samuel M. Kase ◽  
Elisha D. Waldman ◽  
Andrea S. Weintraub
Keyword(s):  
United States ◽  
Palliative Care ◽  
Pilot Study ◽  
Compassion Fatigue ◽  
Compassion Satisfaction ◽  
Clinical Situation ◽  
The United States ◽  
Pediatric Palliative Care ◽  
Care Providers ◽  
Cross Sectional

AbstractObjectiveCompassion fatigue (CF) is secondary traumatic distress experienced by providers from contact with patients' suffering. Burnout (BO) is job-related distress resulting from uncontrollable workplace factors that manifest in career dissatisfaction. Compassion satisfaction (CS) is emotional fulfillment derived from caring for others. The literature on BO in healthcare providers is extensive, whereas CF and CS have not been comprehensively studied. Because of ongoing exposure to patient and family distress, pediatric palliative care (PPC) providers may be at particular risk for CF. We conducted a cross-sectional pilot study of CF, BO, and CS among PPC providers across the United States.MethodThe Compassion Fatigue and Satisfaction Self-Test for Helpers and a questionnaire of professional and personal characteristics were distributed electronically and anonymously to PPC physicians and nurses. Logistic and linear regression models for CF, BO, and CS as a function of potential risk factors were constructed.ResultsThe survey response rate was 39%, primarily consisting of female, Caucasian providers. The prevalence of CF, BO, and CS was 18%, 12%, and 25%, respectively. Distress about a “clinical situation,” physical exhaustion, and personal loss were identified as significant determinants of CF. Distress about “coworkers,” emotional depletion, social isolation, and “recent involvement in a clinical situation in which life-prolonging activities were not introduced” were significant determinants of BO. Physical exhaustion, personal history of trauma, “recent involvement in a clinical situation in which life-prolonging activities were not introduced,” and not discussing distressing issues were significant predictors of lower CS scores.Significance of resultsCF and BO directly influence the well-being and professional performance of PPC providers. To provide effective compassionate care to patients, PPC providers must be attentive to predictors of these phenomena. Further work is needed to explore additional causes of CF, BO, and CS in PPC providers as well as potential interventions.

scholarly journals Approaching the Necessity of Pediatric Palliative Care in Colombia: A challenge for the Health System. A Retrospective Cross Sectional Study.

2020 ◽  
Author(s):  
Susana Orrego Villegas ◽  
Karine Maria Posada España ◽  
Silvia Librada Flores ◽  
Juliana Lopera Solano
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Pediatric Population ◽  
Cross Sectional Study ◽  
Pediatric Palliative Care ◽  
Cross Sectional ◽  
Public And Private ◽  
Attention Model ◽  
Private Politics ◽  
Clinic Practice

Abstract Background: Pediatric Palliative Care (PPC) focuses on achieving quality of life and control the symptoms for children during the sickness process, also provide support to the family in order to relief suffering and give response to needs assessment. In Colombia, this subspecialty does not exist, as a result of not having clinic practice guides and information about the population who benefit under 18 years of age. This study is to approach the necessity of PPC in our country, defining a methodology to characterize and estimate prevalence of pediatric population who may need special care in order to develop an attention model. Methods: A retrospective descriptive study was conducted among 80,926 members between 0 and 18 years of age who has a private health insurance in Colombia between January 1, 2016 and December 31, 2018. Data was obtained from the insurance transactional database. Patients were grouped based on the Association for children with life threatening conditions and their families (ACT) of the Royal College of Pediatrics four classifications plus perinatal group. Results were processed and analyzed using descriptive statistical functions in Microsoft Excel. Results: 1,694 patients (2,09%) were eligible to enter a PPC program according to their IDC-10 diagnoses based on ACT plus Perinatal Group classification. Approximately 54% were male, 57.97% were considered early childhood, 26.56% childhood and 15,47% adolescence. With regards to ACT classification and Perinatal Group; 55.55% of patients had diagnosis from Perinatal Group (55.55%) followed by group 4 (23.2%) and group 1 non-cancer (9.68%). Conclusion: Being able to identify patients in need of PPC programs early may increase it being utilize at the time of diagnosis and not wait till the end of life. This might also help alleviate misconception of PPC only being offered during the end of life period. This study should help with the development of public and private politics aimed to promote the creation of PPC programs in developing countries.

Congenital Cardiothoracic Surgeons and Palliative Care: A National Survey Study

2019 ◽  
Vol 36 (1) ◽  
pp. 17-21 ◽  
Author(s):  
Emily Morell ◽  
Jess Thompson ◽  
Satish Rajagopal ◽  
Elizabeth D. Blume ◽  
Rachna May
Keyword(s):  
Palliative Care ◽  
Heart Disease ◽  
National Survey ◽  
Survey Study ◽  
Inpatient Setting ◽  
Provider Attitudes ◽  
Cross Sectional ◽  
Palliative Care Consultation ◽  
Care Consultation ◽  
Cardiothoracic Surgeon

Background: The majority of children with advanced heart disease in the inpatient setting die in an intensive care unit under 1 year of age following multiple interventions. While pediatric cardiology and palliative care provider attitudes have been described, little is known about pediatric cardiothoracic surgeon attitudes toward palliative care in children with advanced heart disease. Objective: To describe perspectives of pediatric cardiothoracic surgeons regarding palliative care in pediatric heart disease. Design: Cross-sectional web-based national survey. Results: Of the 220 surgeons who were e-mailed the survey, 36 opened the survey and 5 did not meet inclusion criteria (n = 31). Median years of practice was 23.5 (range: 12-41 years), and 87.1% were male. Almost all (90%) reported that they had experience consulting palliative care. While 68% felt palliative care consultation was initiated at the appropriate time, 29% felt it occurred too late. When asked the appropriate timing for palliative care consultation in hypoplastic left heart syndrome, 45% selected “at time of prenatal diagnosis” and 30% selected “when surgical and transcatheter options have been exhausted.” Common barriers to palliative care involvement included the perception of “giving up” (40%) and concern for undermining parental hope (36%). Conclusions: While a majority of pediatric cardiothoracic surgeons are familiar with palliative care, there is variation in perception of appropriate timing of consultation. Significant barriers to consultation still exist, including concern that parents will think they are “giving” up, undermining parental hope, and influence of palliative care on the medical care team’s approach.

Challenges in the Provision of Pediatric Palliative Care in Mexico: A Cross-Sectional Web-Based Survey

2021 ◽  
pp. 082585972110627
Author(s):  
Elena Solveig Grüneberg ◽  
Jorge Ramos-Guerrero ◽  
Tania Pastrana
Keyword(s):  
Palliative Care ◽  
Working Conditions ◽  
Work Experience ◽  
Healthcare Professionals ◽  
Pediatric Palliative Care ◽  
Snowball Sampling ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Middle Income ◽  
Web Based

Objective: An enormous need for pediatric palliative care (PPC) has been reported, especially in low- and middle-income countries (LMICs). However, the access to PPC is limited. This study identifies the current challenges in the provision of PPC and their severity from the perspective of healthcare professionals. Method: We conducted a web-based descriptive cross-sectional survey among healthcare professionals treating children in need of palliative care in Mexico in 2019. We used convenience sampling and snowball sampling to acquire participants. Results: Seventy healthcare professionals from Mexico participated. Participants were 64.3% female, on average 45.8 (SD = 10.9) years old, had an average of 15.84 (SD = 10.4) years of work experience and worked in 15 states. The three most severe barriers reported were: (1) Few teams and/or networks of out-of-hospital/domestic support; (2) Absence of training centres and continuing medical/paramedical education in PPC; and (3) Lack of legal, labor, and economic protection for parents who must stop working to be with their children. The barriers related to a lack of awareness and commitment, a lack of support, legal factors, and working conditions were rated highest. Participants considered increased awareness and better knowledge of PPC for all as the top priority, and particularly emphasized the need for better education and training of health professionals. Conclusion: We have identified several barriers to successful palliative care (PC) provision for children. Primarily, these are lack of awareness and commitment, especially of the health authorities and the medical professions, lack of personal and financial support, legal factors, and working conditions. The need to change and improve care exists at the policy level, the health professional level, and the public societal level.

scholarly journals The Most Important Aspects for a Good Death: Perspectives from Parents of Children with Cancer

2021 ◽  
Vol 58 ◽  
pp. 004695802110285
Author(s):  
Ji Yoon Kim ◽  
Bu Kyung Park
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Linear Regression Analysis ◽  
Living Will ◽  
Good Death ◽  
Pediatric Palliative Care ◽  
Children With Cancer ◽  
Cross Sectional ◽  
Cancer Data

A good death is an important concept in pediatric palliative care. To improve the quality of pediatric palliative care, it is imperative to identify which domain is most important for a good death among children with cancer and their parents. This study aimed to (1) assess the essential domains for a good death from the perspectives of parents whose children have cancer using the Good Death Inventory (GDI) and (2) examine which characteristics are associated with the perception of a good death. An anonymous cross-sectional questionnaire was administered to 109 parents of children with cancer. Data were collected using a validated Korean version of the GDI. Descriptive statistics, t-test, and ANOVA were used to identify the preferred GDI domains. Multiple linear regression analysis was performed to identify factors associated with the GDI scores. The most essential domains for a good death included “maintaining hope and pleasure” and “being respected as an individual.” The factors most strongly associated with the perception of a good death were end-of-life plan discussion with parents or others and parental agreement with establishing a living will. Encouraging families to discuss end-of-life care and establish a living will in advance can improve the quality of death among children with cancer.

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