scholarly journals Burden and social support in informal caregivers of people undergoing kidney dialysis: a mixed study

2021 ◽  
Vol 74 (3) ◽  
Author(s):  
Ingrid Fernanda de Oliveira Vieira ◽  
Ana Cláudia Mesquita Garcia ◽  
Tábatta Renata Pereira Brito ◽  
Rogério Silva Lima ◽  
Denismar Alves Nogueira ◽  
...  

ABSTRACT Objectives: to analyze the burden and the social support of the informal caregivers of people undergoing kidney dialysis. Methods: mixed study, based on the Theory of Stress and Overload, using instruments of sociodemographic characterization, the Social Support Survey from the Medical Outcomes Study, Zarit’s Burden Scale, and guiding questions. Analysis of data used statistical and thematic inferences. Results: 55 caregivers were evaluated, most were women, from 31 to 50 years old, married, and having worked in care for more than three years. A high level of affective and material support was observed, with a light overload on the caregiver. The central theme of the discourses was: “Experiences of the caregiver: between the burden of responsibility and the search for meaning”. Conclusions: a small overload was found in the participants, with a high median in the dimensions of affective and emotional support, in the relations between positive social interactions and the burden of the caregivers, in addition to the duality or responsibility and the meaning of care.

Author(s):  
Cathy D. Sherbourne ◽  
Anita L. Stewart

2018 ◽  
Author(s):  
Anne E. Kazak ◽  
Wei-Ting Hwang ◽  
Fang Fang Chen ◽  
Martha A. Askins ◽  
Olivia Carlson ◽  
...  

2015 ◽  
Vol 12 (1) ◽  
pp. 38-49
Author(s):  
Luz Marina Bautista Rodríguez ◽  
María Mercedes Ramírez Ordoñez ◽  
Gloria Esperanza Zambrano Plata

Objetivo Describir el apoyo social percibido por adultos con enfermedad diabética que asisten a instituciones prestadoras de servicios de salud del primer nivel de atención en la ciudad de Cúcuta. Metodología Estudio cuantitativo, descriptivo, exploratorio y transversal. La muestra estuvo constituida por 346 pacientes con diabetes tipo 2 que asistían a consulta o control y a quienes se les aplicó el cuestionario Medical outcomes study- social support survey (MOS-SSS), que permite conocer la red familiar y extra familiar y medir las cuatro dimensiones del apoyo social. Resultados El 71,09% de los pacientes diabéticos tipo 2 poseía un tamaño de red media, conformado entre 2 y 5 personas. Los participantes percibieron un alto apoyo de tipo emocional en un 65,6%, instrumental (78,3%), afectivo (75.2%) e interacción social positiva (65,2%). Conclusión El 75,5% de los pacientes consideraron como alto el apoyo social recibido en sus diversos componentes. Estos tipos de apoyo permiten fortalecer la relación del paciente, su familia o cuidadores y los profesionales de la salud, ofreciendo espacios para mejorar y f tar acciones de cuidado, información y educación sobre la enfermedad y su manejo.


2012 ◽  
Vol 5 (1) ◽  
pp. 142-150 ◽  
Author(s):  
Nora Helena Londoño Arredondo

Perceived social support is considered to be a variable of great importance in the health – disease continuum. Perceived social support refers to one’s confidence that social support or resources are available if needed. The objectives of this research study were to (1) translate and culturally adapt the Medical Outcomes Study – Social Support Survey (MOS; Sherbourne y Stewart, 1991) for the Colombian population, and (2) validate the Colombian version of the MOS. The survey instrument measures perceived social support and was developed for a study of outcomes in patients with chronic disease. The sample consisted of 179 participants (36.7% men and 63.3% women), mean age 38.4 (SD =15.2, range 17 to 86 years) recruited from different cities in Colombia. The results indicated a favorable Cronbach's alpha between components ranging from .921 to .736. A confirmatory analysis was conducted, obtaining a favorable structure for both 4 and 3 factors.


2017 ◽  
Vol 16 (8) ◽  
pp. 753-761 ◽  
Author(s):  
Lyne Chamberlain

Background: Rehospitalization of heart failure patients is often considered the result of inadequate self-care yet only one study documents superior outcomes with better self-care. Aims: If inadequate self-care is related to hospitalizations, then hospitalized heart failure patients should have lower self-care skills than non-hospitalized patients. The purpose of this study was to evaluate perceived social support and self-care characteristics of patients hospitalized with an exacerbation of heart failure. The self-care of heart failure index (SCHFI) and medical outcomes study of social support (MOS-SS) were the key instruments used in the research. Methods and results: This descriptive study used t tests and multiple regression to analyze the data. Results were compared with non-hospitalized heart failure patients in another study. Perceived social support ( t=−4.007, df=211, P<0.001) and self-care maintenance ( t=−3.343, df=220, P<0.002) scores were lower in the hospitalized participants than the comparison group. Self-care confidence was the only variable significantly related to perceived social support ( β=0.210, t=2.210, P<0.30). Conclusions: This study supports the premise that heart failure rehospitalizations are related to inadequate self-care.


Author(s):  
Wan Mohd Rushidi Wan Mahmud ◽  
Amir Awang ◽  
Mahmood Nazar Mohamed

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