scholarly journals Effect that an educational program for cystic fibrosis patients and caregivers has on the contamination of home nebulizers

2014 ◽  
Vol 40 (2) ◽  
pp. 119-127 ◽  
Author(s):  
Adriana Della Zuana ◽  
Doroti de Oliveira Garcia ◽  
Regina Célia Turola Passos Juliani ◽  
Luiz Vicente Ribeiro Ferreira da Silva Filho
Keyword(s):  
Cystic Fibrosis ◽  
Educational Intervention ◽  
Educational Program ◽  
Positive Impact ◽  
Biochemical Tests ◽  
Patient Age ◽  
Selective Media ◽  
Sterile Saline ◽  
Patient Âgé ◽  
Cleaning And Disinfection

OBJECTIVE: To describe the pathogens found in home nebulizers and in respiratory samples of cystic fibrosis (CF) patients, and to evaluate the effect that a standardized instruction regarding cleaning and disinfection of nebulizers has on the frequency of nebulizer contamination. METHODS: We included 40 CF patients (22 males), all of whom used the same model of nebulizer. The median patient age was 11.2 ± 3.74 years. We collected samples from the nebulizer mouthpiece and cup, using a sterile swab moistened with sterile saline. Respiratory samples were collected by asking patients to expectorate into a sterile container or with oropharyngeal swabs after cough stimulation. Cultures were performed on selective media, and bacteria were identified by classical biochemical tests. Patients received oral and written instructions regarding the cleaning and disinfection of nebulizers. All determinations were repeated an average of two months later. RESULTS: Contamination of the nebulizer (any part) was detected in 23 cases (57.5%). The nebulizer mouthpiece and cup were found to be contaminated in 16 (40.0%) and 19 (47.5%), respectively. After the standardized instruction had been given, there was a significant decrease in the proportion of contaminated nebulizers (43.5%). CONCLUSIONS: In our sample of CF patients, nebulizer contamination was common, indicating the need for improvement in patient practices regarding the cleaning and disinfection of their nebulizers. A one-time educational intervention could have a significant positive impact.

Knowledge of Cystic Fibrosis in Patients and Their Parents

PEDIATRICS ◽  
1986 ◽  
Vol 77 (2) ◽  
pp. 229-235
Author(s):  
Terry Nolan ◽  
Katharine Desmond ◽  
Roberta Herlich ◽  
Susan Hardy
Keyword(s):  
Cystic Fibrosis ◽  
Socioeconomic Status ◽  
Male Sterility ◽  
Educational Level ◽  
Detailed Knowledge ◽  
Patient Knowledge ◽  
Parental Age ◽  
Patient Age ◽  
Parent Knowledge ◽  
Patient Âgé

A standardized questionnaire was used to assess knowledge about cystic fibrosis in 28 patients with cystic fibrosis (aged 10 to 21 years) and in the parents of 25 of these patients. Knowledge of disease pathophysiology and treatment was generally comprehensive and detailed; knowledge of the genetics was fair. However, there were conspicuous deficits in the awareness of reproductive risks and of male sterility. Significant predictors of patient knowledge were patient age, sex, and educational level and parental age. Predictors of parent knowledge were Shwachman score, socioeconomic status, and sex of responding parent. Patients rely heavily on parents for information about cystic fibrosis. More than one third of both patients and parents sought more information about the disease and its implications.

scholarly journals Effect of Educational Program on Prophylactic Antiemetics Prescribing Practice

2019 ◽  
pp. 59-66
Keyword(s):  
Educational Intervention ◽  
Educational Program ◽  
Positive Impact ◽  
Prescribing Pattern ◽  
Medical City ◽  
Prescribing Practice ◽  
Observational Group ◽  
Post Operative Nausea ◽  
Practice Methods ◽  
Interventional Group

Background: Post-operative nausea and vomiting (PONV) continues to be among the main concerns after general anesthesia, impacting approximately 30% of all postoperative patients. PONV is still reported by patients as their most distressing post-surgical outcome even surpassing that of pain. In spite of the presence of PONV prophylaxis guidelines and the availability of multimodal and novel anti-emetics, it is clear that these guidelines are poorly applied with insufficient prescription of pre-emptive anti-emetics. This study aimed at evaluating the effect of educational intervention with general surgeons and anesthesiologists on prophylactic antiemetic prescribing practice. Methods: An interventional study was carried out at Al-Sader Medical City/ Al-Najaf province/ Iraq. In the observational phase of the study, patients were selected from the general surgery ward to observe the baseline prescribing pattern of the prophylactic anti-emetics and PONV incidence among them. After implementing the educational program, another group (interventional group) of patients was taken to see if there was any alteration in the practice of pre-emptive anti-emetics prescription and the incidence of PONV. Results: Two groups each of 50 patients were enrolled, namely, observational group and interventional group. In the observational group, only 7 patients (14%) received preoperative prophylactic anti-emetics compared to 24 patients (48%) in the interventional group, (P<0.001). No statistically relevant difference was observed in the use of post-operative anti-emetics. The incidence of PONV within the first 24 hours was significantly lower among the interventional patients’ group, (28%) versus (54%) before the educational intervention, (P<0.05). Conclusion: This study revealed that the educational program done by the researcher has a positive impact on the prescription of pre-operative prophylactic anti-emetics with subsequent reduction in PONV incidence.

scholarly journals Nebulizer Care and Inhalation Technique in Children with Cystic Fibrosis

Children ◽  
2020 ◽  
Vol 7 (10) ◽  
pp. 153
Author(s):  
Argyri Petrocheilou ◽  
Athanasios G. Kaditis ◽  
Evgenia Troupi ◽  
Ioanna Loukou
Keyword(s):  
Cystic Fibrosis ◽  
Direct Observation ◽  
Great Majority ◽  
Inhalation Technique ◽  
Time Intervals ◽  
Patient Age ◽  
Medication Delivery ◽  
Patient Âgé ◽  
Regular Review

Nebulizers are used by the great majority of cystic fibrosis patients for delivery of cornerstone treatments. Inhalation technique and adequate disinfection and maintenance are important for optimizing medication delivery. In this study, inhalation technique and nebulizer disinfection/maintenance were assessed in cystic fibrosis patients by direct observation in clinic and completion of a scoring sheet. A total of 108 patients were recruited. The maximum inhalation technique score was attained by 30.5% and adequate inhalation technique score by 74.08% of patients. The inhalation technique score was best with the vibrating mesh nebulizer (p = 0.038), while patient age and number of nebulized medications did not affect ITS significantly (p > 0.05). Nebulizer disinfection/maintenance score was excellent in only 31.48%. Most families kept the nebulizer clean and used appropriate disinfection method, but only half of them replaced the nebulizer and nebulizer cup at the recommended time intervals. Nebulizer disinfection/maintenance score was positively affected by a number of nebulized medications and negatively by years of equipment use (p = 0.009 and p = 0.001, respectively). Even though inhalation technique and disinfection/maintenance practices were found to be adequate in a large proportion of cases, there is still a need for regular review and education. The type of nebulizer was associated with improved inhalation technique, but more data are required before making specific recommendations.

scholarly journals Interpretation of Sweat Sodium Results—The Effect of Patient Age

1989 ◽  
Vol 26 (1) ◽  
pp. 38-43 ◽  
Author(s):  
J M Kirk ◽  
A Westwood
Keyword(s):  
Cystic Fibrosis ◽  
Retrospective Study ◽  
Reference Ranges ◽  
Older Children ◽  
Patient Age ◽  
Age Related ◽  
Patient Âgé ◽  
Sweat Sodium ◽  
Sweat Tests

In a retrospective study of sweat tests performed on 650 patients, sweat sodium was shown to increase with age in children without cystic fibrosis. The clearest separation of children with and without cystic fibrosis was in the youngest infants, while the highest proportion of repeatedly equivocal results was in the older children. Applying age-related reference ranges did not resolve the equivocal cases without also missing some cases of cystic fibrosis.

scholarly journals Effectiveness of a Family-Caregiver Training Program in Home-Based Pediatric Palliative Care

Children ◽  
2021 ◽  
Vol 8 (3) ◽  
pp. 178
Author(s):  
Lourdes Chocarro González ◽  
Manuel Rigal Andrés ◽  
Julio C. de la Torre-Montero ◽  
Marta Barceló Escario ◽  
Ricardo Martino Alba
Keyword(s):  
Palliative Care ◽  
Training Program ◽  
Educational Intervention ◽  
Educational Program ◽  
Positive Impact ◽  
Pediatric Palliative Care ◽  
Initial Assessment ◽  
Positive Trend ◽  
Theoretical Evaluation ◽  
Home Based

Background: Pediatric palliative cares involve the whole family, along with the interdisciplinary pediatric palliative care (PPC) team. The commitment of the PPC team and the engagement of the family at different levels can play a key role in advancing a better quality of life in children and families. Method: A descriptive pre-post educational intervention study was carried out. The creation of a training program (with the term “school” used to denote this effort) strives to prepare caretakers to master the skills as well as provide support for the care of children with serious conditions requiring palliative through home-based initiatives. The analysis includes aspects of learning and satisfaction with the activity in a final sample of 14 families who had one child enrolled into a home-based palliative care program. Results: After the educational intervention in our school, the mean score of the theoretical evaluation was 9.14 points (SD 0.96), showing improvement with respect to the initial assessment, (mean diff. of +0.98 points). Although the analysis of all conceptual areas demonstrates a trend towards a positive impact of the intervention, feeding-related instruction saw the highest level of improvement, with a mean difference of +1.43 points. All enrolled parents expressed having a very positive experience during their participation in the educational program. Conclusions: The educational program showed a positive trend in the acquisition of knowledge and skills, resulting in a positive impact on the self-perception of their abilities. This psycho-educational space allowed them to share their experience of daily care for a child with complex needs with other families, showing them that they were not alone and that they could help each other.

Gestion orthopédique d’une ankylose de l’ATM chez l’enfant

2020 ◽  
Vol 54 (4) ◽  
pp. 407-418
Author(s):  
Pamela Villalon-Pooley ◽  
Camila Hernandez-Veliz ◽  
Maria Fernanda Pinto-Chavez ◽  
Pierre Bourdiol
Keyword(s):  
Patient Age ◽  
Patient Âgé

Parmi les fractures cranio-faciales, celles affectant le condyle mandibulaire font partie des fractures les plus souvent rencontrées chez le patient en âge pédiatrique. L’évolution sans traitement peut produire une ankylose temporo-mandibulaire entraînant troubles fonctionnels et asymétrie de la croissance cranio-faciale. Le traitement traditionnellement chirurgical est d’un pronostic généralement réservé. Dans cet article est présenté le cas d’un patient, âgé de quatre ans, atteint d’ankylose fibreuse de l’articulation temporo-mandibulaire gauche, suite probable d’une fracture du col du condyle non-diagnostiquée. La libération fonctionnelle de la fibro-ankylose articulaire a été l’objectif de la première étape thérapeutique. Celle-ci a été suivie, à l’âge de sept ans, d’une distraction articulaire obtenue au moyen de butées occlusales controlatérales disposées côté droit. Ceci a produit un ajustement de la croissance dento-alvéolaire assurant à la fois un rattrapage du déficit de croissance unilatéral de départ et une néoformation condylienne par remodelage de l’articulation temporo-mandibulaire gauche. Quatre années après la mise en route de la phase orthopédique initiale, la fonction articulaire restaurée et l’équilibre facial obtenu restent stables chez ce jeune patient

Hemmkörperentwicklung bei Hämophilie-Patienten nach Präparate wechsel

2012 ◽  
Vol 32 (S 01) ◽  
pp. S39-S42 ◽  
Author(s):  
S. Kocher ◽  
G. Asmelash ◽  
V. Makki ◽  
S. Müller ◽  
S. Krekeler ◽  
...  
Keyword(s):  
Risk Factors ◽  
Risk Factor ◽  
Observational Study ◽  
Retrospective Observational Study ◽  
Frequent Change ◽  
Patient Age ◽  
Treatment Regimens ◽  
Patient Âgé ◽  
The Relationship ◽  
Observation Period

SummaryThe retrospective observational study surveys the relationship between development of inhibitors in the treatment of haemophilia patients and risk factors such as changing FVIII products. A total of 119 patients were included in this study, 198 changes of FVIII products were evaluated. Results: During the observation period of 12 months none of the patients developed an inhibitor, which was temporally associated with a change of FVIII products. A frequent change of FVIII products didn’t lead to an increase in inhibitor risk. The change between plasmatic and recombinant preparations could not be confirmed as a risk factor. Furthermore, no correlation between treatment regimens, severity, patient age and comorbidities of the patients could be found.

Hämophilie-Zentrum Bonn 1980 – 2009

2011 ◽  
Vol 31 (S 01) ◽  
pp. S4-S10 ◽  
Author(s):  
I. Besmens ◽  
H.-H. Brackmann ◽  
J. Oldenburg
Keyword(s):  
Young Patients ◽  
Severe Form ◽  
Coagulation Disorder ◽  
Care Providers ◽  
Long Distance ◽  
Patient Age ◽  
Patient Âgé ◽  
Number Of Patients ◽  
Clotting Disorder ◽  
Regional Character

SummaryThe Bonn Haemophilia Care Center provides patient care on a superregional level. The centre’s large service area is, in part, due to the introduction of haemophilia home treatment and related to this the individualized prophylaxis in children and adults by Egli and Brack-mann in Bonn in the early 1970s, that represented a milestone in German haemophilia therapy. Epidemiologic patient data from the two selected time points, 1980 and 2009, are evaluated to illustrate the change in the composition of the patient clientele. In 1980 a total of 639 patients were treated at the Bonn Haemophilia Center. 529 patients exhibited a severe form and 110 a non-severe form of the respective clotting disorder. In 2009 the Bonn Haemophilia Center took care for a total of 837 patients. There were 445 patients who suffered from a severe form of the considered clotting disorder while 392 showed a non-severe course. The number of less severely affected patients has increased significantly in 2009. Patients in 1980 were predominantly suffering from a severe form and most had to travel more than 150 km from their homes to the treatment center. In 2009 the number of patients living a medium-long distance from the care provider has significantly increased while the number of patients living more than 150km from the center has decreased. Comparing 2009 to 1980 a growth of the center’s regional character becomes apparent, especially when patient age and severity of the coagulation disorder are taken into consideration. The regional character was more strongly pronounced with milder disease severity and lower patient age. Due to the existence of well established primary haemophilia care in CCCs in Germany, the trend for the recent years is that the proportion of young patients that choose haemophilia care providers closer to their homes is increasing.

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