scholarly journals Impressions of Interfaith Chaplain’s Activities among Patients in a Palliative Care Unit: A Semi-Structured Interview-Based Qualitative Study

2020 ◽  
Vol 251 (2) ◽  
pp. 91-96
Author(s):  
Yusuke Hiratsuka ◽  
Maho Aoyama ◽  
Taiko Kaneta ◽  
Kento Masukawa ◽  
Keita Tagami ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Structured Interview ◽  
Palliative Care Unit

scholarly journals A Qualitative Study Using Semi-Structured Interviews: Comparing the Views of Palliative Care Unit Patients and Clinicians on Corneal Donation Discussions

2022 ◽  
Author(s):  
Chirag Patel ◽  
Gregory B Crawford
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
South Australia ◽  
Corneal Opacity ◽  
Structured Interview ◽  
Palliative Care Unit ◽  
Attitudes And Beliefs ◽  
Structured Interviews ◽  
Face To Face ◽  
Corneal Donation

Abstract Background: Blindness from corneal opacity accounts for 12% of cases of blindness worldwide. There is a severe shortage of corneas for donation worldwide for transplantation and research purposes. One group of individuals who could potentially be donors are those who die within the inpatient palliative care unit. The aims of the study were to 1. determine the frequency of corneal donation discussion; 2. determine whether inpatient palliative care unit patients and clinicians were aware of the potential for corneal donation discussions and 3. explore the attitudes and beliefs of inpatient palliative care unit patients and clinicians about corneal donation. Methods: An exploratory qualitative study was designed where inpatient palliative care unit patients and clinicians were invited to a semi-structured interview. A total of 46 face to face interviews were undertaken involving inpatient palliative care unit patients (20) and clinicians (26) in three major inpatient palliative care units in South Australia. Results: Very few patient participants were asked about corneal donations during their time in palliative care. Most inpatient palliative care unit clinicians did not bring up the topic as they felt other areas of care took precedence. Inpatient palliative care unit patients thought if inpatient palliative care unit clinicians did not raise the topic, then it was not important. Conclusions: Findings suggest that patients are receptive to discussing corneal donations, but few discussions are occurring. There were some differences between patient and clinician views, such as preference about who raises the possibility of donation and when the discussion might occur.

scholarly journals Music in palliative care: a qualitative study with patients suffering from cancer

2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Sandrine Pommeret ◽  
Jan Chrusciel ◽  
Catherine Verlaine ◽  
Marilene Filbet ◽  
Colombe Tricou ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Positive Emotions ◽  
Well Being ◽  
Palliative Care Unit ◽  
Care Process ◽  
Adaptation Period ◽  
Structured Interviews ◽  
Patient Interviews ◽  
Loss Of Autonomy

Abstract Background The palliative care unit is an emotionally challenging place where patients and their families may feel at loss. Art can allow the expression of complex feelings. We aimed to examine how cancer patients hospitalized in the palliative care unit experienced a musical intervention. Methods We conducted a qualitative study based on semi-structured interviews. The study took place in a palliative care unit from 18 January 2017 to 17 May 2017. Two artists performed in the palliative care unit once a week from 9:30 am to 5:30 pm. The data from patient interviews were analysed based on an inductive approach to the verbatim accounts. Results The accounts we gathered led us to weigh the positive emotions engendered by this musical intervention against the potential difficulties encountered. The artists opened a parenthesis in the care process and brought joy and well-being to the palliative care unit. Patients also encountered difficulties during the intervention: reference to an altered general state, to loss of autonomy; a sense of the effort required, of fatigue; an adaptation period; reference to the end of life, to death; a difficulty in choosing songs. Conclusions Although music appeared to benefit the patients, it sometimes reminded them of their altered state. The difficulties experienced by patients during the experience were also related to physical exhaustion. Additional studies are needed to determine the benefits of music for patients and their families in the palliative care unit.

scholarly journals What Makes a Good Palliative Care Physician? A Qualitative Study about the Patient’s Expectations and Needs when Being Admitted to a Palliative Care Unit

PLoS ONE ◽  
2016 ◽  
Vol 11 (7) ◽  
pp. e0158830 ◽  
Author(s):  
Eva K Masel ◽  
Anna Kitta ◽  
Patrick Huber ◽  
Tamara Rumpold ◽  
Matthias Unseld ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Care Physician ◽  
Palliative Care Unit ◽  
Palliative Care Physician

Prevalence and predictors of major depressive disorder in bereaved caregivers at 6 and 13 months

2018 ◽  
Vol 17 (03) ◽  
pp. 300-305
Author(s):  
Seon-Young Kim ◽  
Seung-Jeon Kim ◽  
Jae-Min Kim ◽  
Sung-Wan Kim ◽  
Il-Seon Shin ◽  
...  
Keyword(s):  
Palliative Care ◽  
Major Depressive Disorder ◽  
Depressive Disorder ◽  
Multivariate Logistic Regression Analysis ◽  
Structured Interview ◽  
Palliative Care Unit ◽  
Type Result ◽  
Multivariate Logistic Regression ◽  
Major Depressive ◽  
Type Method

AbstractObjectiveDepressive symptoms are common in bereaved caregivers; however, there have been few prospective studies using a structured interview. This study investigated the prevalence and preloss predictors of major depressive disorder (MDD) in bereaved caregivers of patients in a palliative care unit.MethodThis prospective cohort study collected caregiver sociodemographic and psychological data before the death of a palliative care unit patient, including MDD, care-burden, coping style, and hopeful attitude. Postloss MDD was assessed 6 and 13 months after death, and a multivariate logistic regression analysis was conducted to identify its predictors.ResultOf 305 caregivers contacted, 92 participated in this study. The prevalence of preloss MDD was 21.8%; the prevalences of postloss MDD were 34.8% and 24.7% at 6 and 13 months, respectively. Preloss MDD predicted postloss MDD at 6 months (odds ratio [OR] = 5.38, 95% confidence interval [CI95%] = 1.29, 22.43); preloss nonhopeful attitude and unemployment status of caregivers predicted postloss MDD at 13 months (OR = 8.77, CI95% = 1.87, 41.13 and OR = 7.10, CI95% = 1.28, 39.36, respectively).Significance of resultsApproximately 35% of caregivers suffered from MDD at 6 months postloss, but the prevalence of MDD decreased to about 25% at 13 months. Preloss MDD significantly predicted postloss MDD at 6 months, whereas hopeful attitude and unemployment at baseline were significantly associated with postloss MDD at 13 months.

On the palliative care unit.

2016 ◽  
Vol 34 (2) ◽  
pp. 179-179
Author(s):  
Peter A. Selwyn
Keyword(s):  
Palliative Care ◽  
Palliative Care Unit

Dificuldades do Profissional Enfermeiro ao Cuidar de Pacientes Pediátricos Portadores de Câncer/ Difficulties of the Professional Nurse when Taking Care of Pediatric Patients with Cancer

1970 ◽  
Vol 4 (3) ◽  
pp. 41-47
Author(s):  
Renata Pinto Ribeiro ◽  
Teresa Francisca Moraes Pinto ◽  
Clarissa Santos Carvalho Ribeiro ◽  
Valdinéa Luiz Hertel
Keyword(s):  
Qualitative Study ◽  
Pediatric Patients ◽  
Structured Interview ◽  
Coping Mechanisms ◽  
Emotional Involvement ◽  
Children With Cancer ◽  
Professional Nurse ◽  
Patients With Cancer ◽  
Oncological Diseases ◽  
Taking Care

Objetivo: O objetivo desse estudo foi de identificar as dificuldades do profissional enfermeiro frente à criança com câncer, verificar se há preparo adequado para atender às necessidades de uma criança com doenças oncológicas; e qual a forma de enfrentamento utilizada pelo profissional diante das dificuldades encontradas, no atendimento a essa criança. Metodologia: Trata-se de uma pesquisa qualitativa, objetivando identificar quais dificuldades o profissional de enfermagem enfrenta no cuidado de criança com câncer e de seus familiares, os mecanismos de enfrentamento dessas dificuldades no atendimento dos mesmos e se há preparo adequado dos mesmos para atender as necessidades dessas crianças. Os sujeitos foram quatro enfermeiras que cuidam ou já cuidaram de crianças com câncer no Hospital Bom Pastor – Varginha/MG. A coleta de dados foi desenvolvida por uma entrevista semiestruturada. Resultados: Constatou-se que as dificuldades são: cuidar de criança em estado grave, seus pais e o envolvimento emocional. Aos meios de enfrentamento referem à oração e a distração. Quanto ao preparo do profissional referem despreparo para atuar nesta área. Conclusão: Conclui-se que há falta de preparo aos profissionais, embora os mesmos cuidem com humanização dessas crianças.  Palavras-chave: Enfermeiro; Crianças; Câncer.   ABSTRACT: Objective: The aim of this study was to identify the difficulties of the professional nurse when taking care of a child with cancer, check the adequate preparation to meet the needs of children with oncological diseases; and what form of coping with the situation the professionals used when taking care of this child. Methodology: This was a qualitative study , aiming to identify the difficulties the professional faces in the care of children with cancer and their families , the coping mechanisms of these difficulties in the care  and if there is adequate preparation thereof to meet the needs of these children. The subjects were four nurses who care or have cared for children with cancer at Good Shepherd Hospital – Varginha/MG. Data collection was carried out by a semi - structured interview. Results: It was found that the difficulties are care of a child in serious condition, his parents and the emotional involvement. Means of coping relate to prayer and distraction. As to their preparation, professionals refer as being unprepared to act in this area. Conclusion: We concluded that there is lack of preparation of professionals, although they take care of these children in a humanistic way  Keywords: Nurse; children; Cancer.

Sign in / Sign up

Export Citation Format

Share Document