scholarly journals Music in palliative care: a qualitative study with patients suffering from cancer

2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Sandrine Pommeret ◽  
Jan Chrusciel ◽  
Catherine Verlaine ◽  
Marilene Filbet ◽  
Colombe Tricou ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Positive Emotions ◽  
Well Being ◽  
Palliative Care Unit ◽  
Care Process ◽  
Adaptation Period ◽  
Structured Interviews ◽  
Patient Interviews ◽  
Loss Of Autonomy

Abstract Background The palliative care unit is an emotionally challenging place where patients and their families may feel at loss. Art can allow the expression of complex feelings. We aimed to examine how cancer patients hospitalized in the palliative care unit experienced a musical intervention. Methods We conducted a qualitative study based on semi-structured interviews. The study took place in a palliative care unit from 18 January 2017 to 17 May 2017. Two artists performed in the palliative care unit once a week from 9:30 am to 5:30 pm. The data from patient interviews were analysed based on an inductive approach to the verbatim accounts. Results The accounts we gathered led us to weigh the positive emotions engendered by this musical intervention against the potential difficulties encountered. The artists opened a parenthesis in the care process and brought joy and well-being to the palliative care unit. Patients also encountered difficulties during the intervention: reference to an altered general state, to loss of autonomy; a sense of the effort required, of fatigue; an adaptation period; reference to the end of life, to death; a difficulty in choosing songs. Conclusions Although music appeared to benefit the patients, it sometimes reminded them of their altered state. The difficulties experienced by patients during the experience were also related to physical exhaustion. Additional studies are needed to determine the benefits of music for patients and their families in the palliative care unit.

scholarly journals A Qualitative Study Using Semi-Structured Interviews: Comparing the Views of Palliative Care Unit Patients and Clinicians on Corneal Donation Discussions

2022 ◽  
Author(s):  
Chirag Patel ◽  
Gregory B Crawford
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
South Australia ◽  
Corneal Opacity ◽  
Structured Interview ◽  
Palliative Care Unit ◽  
Attitudes And Beliefs ◽  
Structured Interviews ◽  
Face To Face ◽  
Corneal Donation

Abstract Background: Blindness from corneal opacity accounts for 12% of cases of blindness worldwide. There is a severe shortage of corneas for donation worldwide for transplantation and research purposes. One group of individuals who could potentially be donors are those who die within the inpatient palliative care unit. The aims of the study were to 1. determine the frequency of corneal donation discussion; 2. determine whether inpatient palliative care unit patients and clinicians were aware of the potential for corneal donation discussions and 3. explore the attitudes and beliefs of inpatient palliative care unit patients and clinicians about corneal donation. Methods: An exploratory qualitative study was designed where inpatient palliative care unit patients and clinicians were invited to a semi-structured interview. A total of 46 face to face interviews were undertaken involving inpatient palliative care unit patients (20) and clinicians (26) in three major inpatient palliative care units in South Australia. Results: Very few patient participants were asked about corneal donations during their time in palliative care. Most inpatient palliative care unit clinicians did not bring up the topic as they felt other areas of care took precedence. Inpatient palliative care unit patients thought if inpatient palliative care unit clinicians did not raise the topic, then it was not important. Conclusions: Findings suggest that patients are receptive to discussing corneal donations, but few discussions are occurring. There were some differences between patient and clinician views, such as preference about who raises the possibility of donation and when the discussion might occur.

scholarly journals Protective and Risk Factors of Italian Healthcare Professionals during the COVID-19 Pandemic Outbreak: A Qualitative Study

2021 ◽  
Vol 18 (2) ◽  
pp. 453
Author(s):  
Amalia De Leo ◽  
Eloisa Cianci ◽  
Paolo Mastore ◽  
Caterina Gozzoli
Keyword(s):  
Risk Factors ◽  
Qualitative Study ◽  
Extrinsic Motivation ◽  
Healthcare Professionals ◽  
Well Being ◽  
Organizational Level ◽  
Emotional Impact ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
Interpersonal Level

The COVID-19 pandemic put the Italian health system under great stress. The sudden reorganization of work practices and the emotional impact of the large number of the victims had many consequences on the well-being of the healthcare professionals (HCPs) involved in managing the crisis. In the available literature, most studies have focused on the risk aspects while only few studies also take into account protective factors. For this reason, it was decided to conduct, within psycho-sociological perspective, a qualitative study with the aim to explore in depth the protective and risk factors as experienced by HCPs who worked in the Italian healthcare system during the COVID-19 outbreak. A total of 19 semi-structured interviews were conducted with HCPs–9 nurses and 10 physicians (7M and 12F) with an average age of 43 (SD = 13.4)–selected using snowball sampling. Considering three different levels of analysis the results highlight the protective and risk factors: personal history level (intrinsic/ethical motivation and flexible role versus extrinsic motivation and static role), interpersonal level (perception of supportive relationships with colleagues, patients, and family versus bad relationships), and organizational level (good leadership and sustainable work purpose versus absence of support from management and undefined or confused tasks).

scholarly journals Nurses’ performance in palliative care: spiritual care in the light of Theory of Human Caring

2022 ◽  
Vol 75 (1) ◽  
Author(s):  
Carla Braz Evangelista ◽  
Maria Emília Limeira Lopes ◽  
Solange Fátima Geraldo da Costa ◽  
Patrícia Serpa de Souza Batista ◽  
Marcella Costa Souto Duarte ◽  
...  
Keyword(s):  
Palliative Care ◽  
Content Analysis ◽  
Qualitative Study ◽  
Spiritual Care ◽  
Structured Interviews ◽  
Spiritual Dimension ◽  
Nurses Role ◽  
Theory Of Human Caring ◽  
Process Elements ◽  
Human Caring

ABSTRACT Objectives: to analyze nurses’ role in assisting patients in palliative care, with emphasis on the spiritual dimension, in the light of Theory of Human Caring. Methods: this is an exploratory, qualitative study, carried out in a hospital in João Pessoa, Paraíba, between August and December 2019, with 10 nurses. For data collection, semi-structured interviews were used. For analysis, we opted for content analysis. Results: the spiritual dimension of care is contemplated by several religious and spiritual practices. These are respected and encouraged by nurses, although there is difficulty in providing care for the spiritual dimension. Final Considerations: nurses have attitudes consistent with Jean Watson’s Theory and apply the Caritas Process elements during assistance to patients’ spiritual dimension in palliative care.

scholarly journals “How Long Can I Carry On?” The Need for Palliative Care in Parkinson’s Disease: A Qualitative Study from the Perspective of Bereaved Family Caregivers

2020 ◽  
Vol 10 (4) ◽  
pp. 1631-1642
Author(s):  
Herma Lennaerts-Kats ◽  
Anne Ebenau ◽  
Maxime Steppe ◽  
Jenny T. van der Steen ◽  
Marjan J. Meinders ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Interpretative Phenomenological Analysis ◽  
Healthcare Professionals ◽  
Structured Interviews ◽  
Practice Nurses ◽  
Bereaved Family

Background: Family caregivers provide the majority of care for people with Parkinson’s disease (PD) in the palliative care phase. For many this is a demanding experience, affecting their quality of life. Objective: We set out to map the experiences of bereaved family caregivers during the period of informal care in the palliative care phase as well as after the death of their loved one with PD. Methods: Ten bereaved family caregivers participated in this qualitative study. Semi-structured interviews were conducted and interpretative phenomenological analysis was used executed. Results: We identified four main themes. 1) Feeling like a professional caregiver: while caring for a person with PD, the family caregivers took over many roles and tasks of the person with PD. 2) Healthcare professionals do not always know what PD really means: most interviewees had negative experiences with knowledge and understanding of PD of, especially, (practice) nurses. 3) Being on your own: many respondents had felt highly responsible for their loved one’s care and lacked time and space for themselves. Grief and feelings of guilt were present during the caregiving period and after death. 4) Being behind the times: to provide palliative care in line with patients’ preferences and to feel prepared for the palliative care phase of PD, proactive palliative care planning was considered important. However, the interviewees told that this was most often not provided. Conclusion: These findings indicate that caring for a person with PD in the palliative care phase is a demanding experience for family caregivers. They experience psychological problems for many years before and after the death of the person with PD. Increasing healthcare professionals’ awareness of family and bereaved caregivers’ needs may mitigate these long-term detrimental effects.

scholarly journals The impact of sleep disturbances on care home residents with dementia: the SIESTA qualitative study

2020 ◽  
Vol 32 (7) ◽  
pp. 839-847
Author(s):  
Lucy Webster ◽  
Kingsley Powell ◽  
Sergi G. Costafreda ◽  
Gill Livingston
Keyword(s):  
Qualitative Study ◽  
Sleep Disturbance ◽  
Sleep Disturbances ◽  
Care Home ◽  
Well Being ◽  
Structured Interviews ◽  
Topic Guide ◽  
Disturbed Sleep ◽  
Risk Of Falls ◽  
The Impact

ABSTRACTObjectives:Nearly 40% of care home residents who are living with dementia also have symptoms of disturbed sleep. However, the impact of these disturbances is relatively unknown and is needed to indicate whether interventions are warranted; therefore, we aimed to investigate the impact.Design:One-to-one semi-structured interviews.Settings:Four UK care homes.Participants:We interviewed 18 nurses and care assistants about residents with sleep disturbances.Measurements:We used a topic guide to explore staff experience of sleep disturbance in residents with dementia. The interviews were audio recorded and transcribed and then analyzed thematically by two researchers independently.Results:Staff described that sleep disturbances in most, but not all, residents impacted negatively on the resident, other residents, staff, and relatives. Residents became more irritable or agitated if they had slept badly. They slept in the daytime after a bad night, which then increased their chances of being awake the following night. For some, being sleepy in the day led to falls, missing medication, drinks, and meals. Staff perceived hypnotics as having low efficacy, but increasing the risk of falls and drowsiness. Other residents were disturbed by noise, and staff described stress when several residents had sleep disturbance. Some of the strategies reported by staff to deal with sleep disturbances such as feeding or providing caffeinated tea at night might be counterproductive.Conclusions:Sleep disturbances in care home residents living with dementia negatively affect their physical and psychological well-being. These disturbances also disturb other residents and increase stress in staff.

scholarly journals Knowledge, Attitudes and Expectations of Physicians with Respect to Palliative Care in Ecuador: A Qualitative Study

2020 ◽  
Vol 17 (11) ◽  
pp. 3906 ◽  
Author(s):  
Viviana Dávalos-Batallas ◽  
Vinita Mahtani-Chugani ◽  
Carla López-Núñez ◽  
Víctor Duque ◽  
Fatima Leon-Larios ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health Policy ◽  
Qualitative Study ◽  
Health Services ◽  
Human Resources ◽  
Thematic Analysis ◽  
Medical Professional ◽  
Structured Interviews ◽  
Unequal Distribution

Background: The worldwide need for palliative care is high, especially in mid- income countries like Ecuador, where the percentage of patients receiving such care is very small due to the scarcity of infrastructure and specialized personnel and to the unequal distribution in the country. The objective of this study is to explore the knowledge, attitudes and expectations related to palliative care of the physicians in Ecuador. Methods: A qualitative study based on 28 semi-structured interviews, from March 2014 to November 2016, with physicians working in four cities in Ecuador recruited through the snowball technique. Thematic analysis was developed supported by the ATLAS.ti software. Results: Five core themes were identified: (1) training, (2) health policy, (3) professionals’ activities, (4) health services and (5) development of palliative care in Ecuador. Conclusions: Strategies are needed which intensify the training of medical professional in palliative care, as well as avail the human resources and materials for providing it.

scholarly journals Emociones positivas del alumnado de Educación Secundaria en las prácticas de baloncesto en Educación Física (Positive emotions of the students of Secondary Education in the practices of basketball in Physical Education)

Retos ◽  
2020 ◽  
pp. 556-564
Author(s):  
Felipe Nicolás Mujica Johnson ◽  
Ana Concepción Jiménez Sánchez
Keyword(s):  
Physical Education ◽  
Positive Emotions ◽  
Qualitative Methodology ◽  
Motor Task ◽  
Well Being ◽  
Subjective Well Being ◽  
Structured Interviews ◽  
Psychological States ◽  
Sports Culture ◽  
Alternative Teaching

  La investigación de las emociones en Educación Física se debe a la necesidad de comprender los diferentes significados que dichos estados psicológicos pueden representar. El objetivo de esta investigación fue interpretar la percepción y atribución del alumnado sobre las emociones positivas para el bienestar subjetivo durante la práctica de baloncesto en Educación Física, en función del tipo de tarea motriz, el género y el centro educativo. Para aproximarse al fenómeno emocional, se ha decidido utilizar una metodología cualitativa. Participaron 20 alumnas y 24 alumnos pertenecientes a dos centros educativos de la Comunidad de Madrid. Los datos fueron recogidos por medio de entrevistas semi-estructuradas y diarios personales, los cuales se sometieron a un análisis de contenido deductivo-inductivo con ayuda del programa informático Atlas.ti 7.5. Los resultados muestran 18 códigos o atribuciones emocionales que se refieren a la alegría, el entusiasmo, la seguridad y la diversión. Según el tipo de tarea motriz, el género y el centro educativo se identificaron diferencias y similitudes, destacando el rol de la competencia y la relación con una cultura deportiva de baloncesto en cada centro educativo. Se concluye que, para promover el bienestar subjetivo del alumnado en las prácticas de baloncesto en Educación Física, podría ser adecuado aplicar modelos de enseñanza alternativos del deporte, estrategias adaptativas y un clima de logro orientado a la tarea. Abstract: Investigation of emotions in Physical Education is due to the need to understand the different meanings that these psychological states can represent. The objective of this research was to interpret the perception and attribution of the students about the positive emotions for the subjective well-being during the practice of basketball in Physical Education, depending on the type of motor task, gender and educational center. To approach the emotional phenomenon, it has been decided to use a qualitative methodology. 20 girls and 24 boys from two educational centers in the Community of Madrid participated. The data was collected through semi-structured interviews and personal diaries, which have been subjected to a deductive-inductive content analysis with the help of the Atlas.ti 7.5 software. The results indicated 18 emotional codes or attributions found for joy, enthusiasm, security and fun. According to the type of motor task, gender and educational center, differences and similarities are identified, highlighting the role of competition and the relationship with a basketball sports culture in each educational center. It is concluded that, to promote the subjective well-being of the students in the practices of basketball in Physical Education, it could be appropriate to apply alternative teaching models of sport, adaptive strategies and a climate of achievement oriented to the task.

scholarly journals Designing Online Interventions in Consideration of Young People’s Concepts of Well-Being: Exploratory Qualitative Study (Preprint)

2018 ◽  
Author(s):  
Megan Winsall ◽  
Simone Orlowski ◽  
Gillian Vogl ◽  
Victoria Blake ◽  
Mariesa Nicholas ◽  
...  
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Positive Emotions ◽  
Social Connectedness ◽  
Image Data ◽  
Well Being ◽  
Physical And Mental Health ◽  
Online Interventions ◽  
And Control

BACKGROUND A key challenge in developing online well-being interventions for young people is to ensure that they are based on theory and reflect adolescent concepts of well-being. OBJECTIVE This exploratory qualitative study aimed to understand young people’s concepts of well-being in Australia. METHODS Data were collected via workshops at five sites across rural and metropolitan sites with 37 young people from 15 to 21 years of age, inclusive. Inductive, data-driven coding was then used to analyze transcripts and artifacts (ie, written or image data). RESULTS Young adults’ conceptions of well-being were diverse, personally contextualized, and shaped by ongoing individual experiences related to physical and mental health, along with ecological accounts acknowledging the role of family, community, and social factors. Key emerging themes were (1) positive emotions and enjoyable activities, (2) physical wellness, (3) relationships and social connectedness, (4) autonomy and control, (5) goals and purpose, (6) being engaged and challenged, and (7) self-esteem and confidence. Participants had no difficulty describing actions that led to positive well-being; however, they only considered their own well-being at times of stress. CONCLUSIONS In this study, young people appeared to think mostly about their well-being at times of stress. The challenge for online interventions is to encourage young people to monitor well-being prior to it becoming compromised. A more proactive focus that links the overall concept of well-being to everyday, concrete actions and activities young people engage in, and that encourages the creation of routine good habits, may lead to better outcomes from online well-being interventions.

scholarly journals Solidarity, Vulnerability and Mistrust: How Context, Information and Government Affect the Lives of Women in Times of Zika

2019 ◽  
Author(s):  
Ana Rosa Linde Arias ◽  
Maria Roura ◽  
Eduardo Siqueira
Keyword(s):  
Public Health ◽  
Qualitative Study ◽  
Well Being ◽  
The United States ◽  
Epidemiological Surveillance ◽  
Sources Of Information ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
Public Health Response ◽  
Individual Level

Abstract Background and Objectives The public health response to Zika outbreak has mostly focused on epidemiological surveillance, vector control, and individual level preventative measures. This qualitative study employs a social-ecological framework to examine how macro (historical, legislative, political, socio-economic factors), meso (sources of information, social support, social mobilization) and micro level factors (individual actions, behavioral changes) interacted to influence the response and behavior of women with respect to Zika in different contexts. Methods A qualitative study was carried out. Women were recruited through the snowball sampling technique from various locations in Brazil, Puerto Rico, and the United States. They were of different nationalities and ethnicities. Data were collected through semi-structured interviews. The data transcripts were analyzed using thematic analysis. Results Women in this study deemed the information provided as insufficient, which led them to actively reach out and access a variety of media sources. Social networks played a vital role in sharing information but also resulted in the spread of hoaxes or rumors. Participants in our research perceived socio-economic inequities but focused on how to remedy their microenvironments. They did not engage in major social activities. Lack of trust in governments placed women in vulnerable situations by preventing them to follow the guidance of health authorities. These impacts were also a result of the response tactics of health and government administrations in their failed attempts to ensure the well-being of their countries’ populations. Conclusions Our findings call for a broad spectrum of public health interventions that go beyond individual level behavioral change campaigns, to more comprehensively address the broader meso and macro level factors that influence womens’ willingness and possibility to protect themselves.

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