scholarly journals A Qualitative Study Using Semi-Structured Interviews: Comparing the Views of Palliative Care Unit Patients and Clinicians on Corneal Donation Discussions

2022 ◽  
Author(s):  
Chirag Patel ◽  
Gregory B Crawford
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
South Australia ◽  
Corneal Opacity ◽  
Structured Interview ◽  
Palliative Care Unit ◽  
Attitudes And Beliefs ◽  
Structured Interviews ◽  
Face To Face ◽  
Corneal Donation

Abstract Background: Blindness from corneal opacity accounts for 12% of cases of blindness worldwide. There is a severe shortage of corneas for donation worldwide for transplantation and research purposes. One group of individuals who could potentially be donors are those who die within the inpatient palliative care unit. The aims of the study were to 1. determine the frequency of corneal donation discussion; 2. determine whether inpatient palliative care unit patients and clinicians were aware of the potential for corneal donation discussions and 3. explore the attitudes and beliefs of inpatient palliative care unit patients and clinicians about corneal donation. Methods: An exploratory qualitative study was designed where inpatient palliative care unit patients and clinicians were invited to a semi-structured interview. A total of 46 face to face interviews were undertaken involving inpatient palliative care unit patients (20) and clinicians (26) in three major inpatient palliative care units in South Australia. Results: Very few patient participants were asked about corneal donations during their time in palliative care. Most inpatient palliative care unit clinicians did not bring up the topic as they felt other areas of care took precedence. Inpatient palliative care unit patients thought if inpatient palliative care unit clinicians did not raise the topic, then it was not important. Conclusions: Findings suggest that patients are receptive to discussing corneal donations, but few discussions are occurring. There were some differences between patient and clinician views, such as preference about who raises the possibility of donation and when the discussion might occur.

A qualitative study using semi-structured interviews of palliative care patients’ views on corneal donation and the timing of its discussion

2018 ◽  
Vol 32 (8) ◽  
pp. 1428-1437
Author(s):  
Lucy Walker ◽  
Karen Neoh ◽  
Hazel Gilkes ◽  
Clare Rayment
Keyword(s):  
Palliative Care ◽  
Sampling Method ◽  
Healthcare Professionals ◽  
Corneal Transplantation ◽  
Structured Interviews ◽  
Illness Trajectory ◽  
Face To Face ◽  
Donor Shortage ◽  
Corneal Donation ◽  
Sight Restoration

Background: Corneal transplantation can lead to sight restoration, but globally there is a donor shortage. Many palliative care patients can donate their corneas but think they are ineligible due to comorbidities. Healthcare professionals are reluctant to broach the topic, but studies have shown that relatives would be upset if they were not offered this chance. There is no existing research involving patients. Aim: To understand the views and feelings of patients in palliative care settings towards corneal donation and explore their opinions regarding the timing of its discussion. Design: This is an exploratory study based at one UK palliative care unit. A census sampling method was used. Nine participants took part in semi-structured interviews and thematic analysis was undertaken. Results: Themes found included altruistic motivation and the value of sight. Family views were important, but the influence on final decisions varied. The timing of discussion relative to the illness trajectory was important; patients want to be able to engage fully in conversations and had concerns about not being able to think clearly when closer to death. Participants also associated discussion of donation as an indication of a poor prognosis. Patients prefer face-to-face discussions with someone whom they had a close rapport. Many had misconceptions about eligibility. Conclusion: This is the first study to engage directly with palliative care patients and to establish their views on the timing of corneal donation discussions. Patients are willing to discuss donation, and further exploration of patient views in this area should be undertaken.

scholarly journals Impressions of Interfaith Chaplain’s Activities among Patients in a Palliative Care Unit: A Semi-Structured Interview-Based Qualitative Study

2020 ◽  
Vol 251 (2) ◽  
pp. 91-96
Author(s):  
Yusuke Hiratsuka ◽  
Maho Aoyama ◽  
Taiko Kaneta ◽  
Kento Masukawa ◽  
Keita Tagami ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Structured Interview ◽  
Palliative Care Unit

scholarly journals Music in palliative care: a qualitative study with patients suffering from cancer

2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Sandrine Pommeret ◽  
Jan Chrusciel ◽  
Catherine Verlaine ◽  
Marilene Filbet ◽  
Colombe Tricou ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Positive Emotions ◽  
Well Being ◽  
Palliative Care Unit ◽  
Care Process ◽  
Adaptation Period ◽  
Structured Interviews ◽  
Patient Interviews ◽  
Loss Of Autonomy

Abstract Background The palliative care unit is an emotionally challenging place where patients and their families may feel at loss. Art can allow the expression of complex feelings. We aimed to examine how cancer patients hospitalized in the palliative care unit experienced a musical intervention. Methods We conducted a qualitative study based on semi-structured interviews. The study took place in a palliative care unit from 18 January 2017 to 17 May 2017. Two artists performed in the palliative care unit once a week from 9:30 am to 5:30 pm. The data from patient interviews were analysed based on an inductive approach to the verbatim accounts. Results The accounts we gathered led us to weigh the positive emotions engendered by this musical intervention against the potential difficulties encountered. The artists opened a parenthesis in the care process and brought joy and well-being to the palliative care unit. Patients also encountered difficulties during the intervention: reference to an altered general state, to loss of autonomy; a sense of the effort required, of fatigue; an adaptation period; reference to the end of life, to death; a difficulty in choosing songs. Conclusions Although music appeared to benefit the patients, it sometimes reminded them of their altered state. The difficulties experienced by patients during the experience were also related to physical exhaustion. Additional studies are needed to determine the benefits of music for patients and their families in the palliative care unit.

scholarly journals Telling Our Stories: Resilience during Resettlement for African Skilled Migrants in Australia

2021 ◽  
Vol 18 (8) ◽  
pp. 3954
Author(s):  
Lillian Mwanri ◽  
Leticia Anderson ◽  
Kathomi Gatwiri
Keyword(s):  
Cultural Values ◽  
South Australia ◽  
Qualitative Inquiry ◽  
Structured Interviews ◽  
Face To Face ◽  
Health And Wellbeing ◽  
African Migrants ◽  
Cultural Expectations ◽  
The Social ◽  
Resilience Factors

Background: Emigration to Australia by people from Africa has grown steadily in the past two decades, with skilled migration an increasingly significant component of migration streams. Challenges to resettlement in Australia by African migrants have been identified, including difficulties securing employment, experiences of racism, discrimination and social isolation. These challenges can negatively impact resettlement outcomes, including health and wellbeing. There has been limited research that has examined protective and resilience factors that help highly skilled African migrants mitigate the aforementioned challenges in Australia. This paper discusses how individual and community resilience factors supported successful resettlement Africans in Australia. The paper is contextualised within a larger study which sought to investigate how belonging and identity inform Afrodiasporic experiences of Africans in Australia. Methods: A qualitative inquiry was conducted with twenty-seven (n = 27) skilled African migrants based in South Australia, using face-to-face semi-structured interviews. Participants were not directly questioned about ‘resilience,’ but were encouraged to reflect critically on how they navigated the transition to living in Australia, and to identify factors that facilitated a successful resettlement. Results: The study findings revealed a mixture of settlement experiences for participants. Resettlement challenges were observed as barriers to fully meeting expectations of emigration. However, there were significant protective factors reported that supported resilience, including participants’ capacities for excellence and willingness to work hard; the social capital vested in community and family support networks; and African religious and cultural values and traditions. Many participants emphasised their pride in their contributions to Australian society as well as their desire to contribute to changing narratives of what it means to be African in Australia. Conclusions: The findings demonstrate that despite challenges, skilled African migrants’ resilience, ambition and determination were significant enablers to a healthy resettlement in Australia, contributing effectively to social, economic and cultural expectations, and subsequently meeting most of their own migration intentions. These findings suggest that resilience factors identified in the study are key elements of integration.

scholarly journals Nurses’ performance in palliative care: spiritual care in the light of Theory of Human Caring

2022 ◽  
Vol 75 (1) ◽  
Author(s):  
Carla Braz Evangelista ◽  
Maria Emília Limeira Lopes ◽  
Solange Fátima Geraldo da Costa ◽  
Patrícia Serpa de Souza Batista ◽  
Marcella Costa Souto Duarte ◽  
...  
Keyword(s):  
Palliative Care ◽  
Content Analysis ◽  
Qualitative Study ◽  
Spiritual Care ◽  
Structured Interviews ◽  
Spiritual Dimension ◽  
Nurses Role ◽  
Theory Of Human Caring ◽  
Process Elements ◽  
Human Caring

ABSTRACT Objectives: to analyze nurses’ role in assisting patients in palliative care, with emphasis on the spiritual dimension, in the light of Theory of Human Caring. Methods: this is an exploratory, qualitative study, carried out in a hospital in João Pessoa, Paraíba, between August and December 2019, with 10 nurses. For data collection, semi-structured interviews were used. For analysis, we opted for content analysis. Results: the spiritual dimension of care is contemplated by several religious and spiritual practices. These are respected and encouraged by nurses, although there is difficulty in providing care for the spiritual dimension. Final Considerations: nurses have attitudes consistent with Jean Watson’s Theory and apply the Caritas Process elements during assistance to patients’ spiritual dimension in palliative care.

scholarly journals “How Long Can I Carry On?” The Need for Palliative Care in Parkinson’s Disease: A Qualitative Study from the Perspective of Bereaved Family Caregivers

2020 ◽  
Vol 10 (4) ◽  
pp. 1631-1642
Author(s):  
Herma Lennaerts-Kats ◽  
Anne Ebenau ◽  
Maxime Steppe ◽  
Jenny T. van der Steen ◽  
Marjan J. Meinders ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Interpretative Phenomenological Analysis ◽  
Healthcare Professionals ◽  
Structured Interviews ◽  
Practice Nurses ◽  
Bereaved Family

Background: Family caregivers provide the majority of care for people with Parkinson’s disease (PD) in the palliative care phase. For many this is a demanding experience, affecting their quality of life. Objective: We set out to map the experiences of bereaved family caregivers during the period of informal care in the palliative care phase as well as after the death of their loved one with PD. Methods: Ten bereaved family caregivers participated in this qualitative study. Semi-structured interviews were conducted and interpretative phenomenological analysis was used executed. Results: We identified four main themes. 1) Feeling like a professional caregiver: while caring for a person with PD, the family caregivers took over many roles and tasks of the person with PD. 2) Healthcare professionals do not always know what PD really means: most interviewees had negative experiences with knowledge and understanding of PD of, especially, (practice) nurses. 3) Being on your own: many respondents had felt highly responsible for their loved one’s care and lacked time and space for themselves. Grief and feelings of guilt were present during the caregiving period and after death. 4) Being behind the times: to provide palliative care in line with patients’ preferences and to feel prepared for the palliative care phase of PD, proactive palliative care planning was considered important. However, the interviewees told that this was most often not provided. Conclusion: These findings indicate that caring for a person with PD in the palliative care phase is a demanding experience for family caregivers. They experience psychological problems for many years before and after the death of the person with PD. Increasing healthcare professionals’ awareness of family and bereaved caregivers’ needs may mitigate these long-term detrimental effects.

scholarly journals Knowledge, Attitudes and Expectations of Physicians with Respect to Palliative Care in Ecuador: A Qualitative Study

2020 ◽  
Vol 17 (11) ◽  
pp. 3906 ◽  
Author(s):  
Viviana Dávalos-Batallas ◽  
Vinita Mahtani-Chugani ◽  
Carla López-Núñez ◽  
Víctor Duque ◽  
Fatima Leon-Larios ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health Policy ◽  
Qualitative Study ◽  
Health Services ◽  
Human Resources ◽  
Thematic Analysis ◽  
Medical Professional ◽  
Structured Interviews ◽  
Unequal Distribution

Background: The worldwide need for palliative care is high, especially in mid- income countries like Ecuador, where the percentage of patients receiving such care is very small due to the scarcity of infrastructure and specialized personnel and to the unequal distribution in the country. The objective of this study is to explore the knowledge, attitudes and expectations related to palliative care of the physicians in Ecuador. Methods: A qualitative study based on 28 semi-structured interviews, from March 2014 to November 2016, with physicians working in four cities in Ecuador recruited through the snowball technique. Thematic analysis was developed supported by the ATLAS.ti software. Results: Five core themes were identified: (1) training, (2) health policy, (3) professionals’ activities, (4) health services and (5) development of palliative care in Ecuador. Conclusions: Strategies are needed which intensify the training of medical professional in palliative care, as well as avail the human resources and materials for providing it.

scholarly journals Nurses perception of pharmaceutical care practice: A qualitative approach

2020 ◽  
Vol 19 (4) ◽  
pp. 87-892
Author(s):  
Zelal Kharaba ◽  
Rozina Kousar ◽  
Yassen Alfoteih ◽  
Saira Azhar ◽  
Shujaat Ali Khan ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Pharmaceutical Care ◽  
Healthcare System ◽  
Distribution System ◽  
Care Practice ◽  
Patient Counseling ◽  
Structured Interviews ◽  
Face To Face ◽  
Care Services ◽  
Awareness Programs

Purpose: To evaluate the perception of nurses regarding pharmaceutical care services in the healthcare system of Khyber Pakhtunkhwa (KPK) Province of Pakistan.Methods: This qualitative study was implemented by conducting semi-structured interviews. For data collection, interviews (face-to-face) were conducted after developing an interview guide. The interviewees were 18 nurses and were interviewed at their nursing stations in hospitals.  Interviews were continued until the data reached a saturation point. The respondents signed a written consent form before the start of the interview.Results: From the thematic content analysis, five major themes were extracted as stated here: (a) incognizance of pharmaceutical care; (b) collaboration of nurses and pharmacists; (c) improper distribution system; (d) lack of provision of patient counseling; and (e) pharmacist’s role in reducing prescribing errors.Conclusion: Based to the findings, Pakistani nurses have poor knowledge of pharmaceutical care, thus highlighting the need for organizing pharmaceutical care awareness programs for nurses. On the other hand, nurses have a positive perception of pharmacists’ roles in the healthcare system and want to work with them. Keywords: Perception, Pharmaceutical care, Qualitative study, Nurse, Patient care

Psychotherapy supervision conducted by videoconferencing: a qualitative study of users’ experiences

1998 ◽  
Vol 4 (1_suppl) ◽  
pp. 33-35 ◽  
Author(s):  
Deede Gammon ◽  
Tore Sørlie ◽  
Svein Bergvik ◽  
Tordis Sørensen Høifødt
Keyword(s):  
Qualitative Study ◽  
Therapeutic Relationship ◽  
Structured Interview ◽  
Psychiatry Residents ◽  
Mutual Trust ◽  
Psychotherapy Supervision ◽  
Face To Face ◽  
Wide Range

Psychiatry residents in Norway have 70 hours of mandatory psychotherapy supervision to develop insights into the therapeutic relationship. Six supervision pairs (six candidates and two supervisors) conducted five videoconferencing-based supervision sessions (384kbit/s) and five face-to-face sessions alternating weekly for 10 sessions. Following completion of the 10 sessions for candidates and supervisor B, and the 50 sessions for supervisor A, all subjects completed a semi-structured interview within two weeks. The eight subjects reported a wide range of experiences and attitudes. The results suggested that the quality of supervision can be satisfactorily maintained by using videoconferencing for up to half of the 70 hours required. The precondition for this estimate is that the pair in question have met face to face and established a relationship characterized by mutual trust and respect. Further studies, which include supervision pairs not having previously established relationships, are needed in order to indicate the generality of this precondition. The most obvious implication of this study is the potential for implementing decentralized models for recruiting and educating psychiatrists.

scholarly journals Penerimaan dan Penyelarasan Fatwa Muzakarah Jawatankuasa Fatwa Majlis Kebangsaan bagi Hal Ehwal Ugama Islam Malaysia oleh Negeri-Negeri

2018 ◽  
Vol 4 (1) ◽  
pp. 33-66
Author(s):  
Mohd Nasran Mohamad ◽  
Zulfaqar Mamat
Keyword(s):  
State Level ◽  
Structured Interview ◽  
The State ◽  
National Council ◽  
Structured Interviews ◽  
Knowledge And Skills ◽  
Purposive Sampling ◽  
Face To Face ◽  
The Press ◽  
Two Bodies

The question of acceptance by the states for fatwa issued by the Discourse Of The National Council of Fatwa Committee Pertaining Islamic Religious Affairs (MJFK) is often raised in the press. Fatwa difference between the two bodies are often hotly discussed issue. The goal of this study was to examine the views of those who directly involved in the discussions and production process at the MJFK level or at the state level about the acceptance and coordination of MJFK fatwa by the states. This study is qualitative study used face to face interviews and the method of this interviews is semi-structured interview. Eleven participants in the study (PK) samples who are chosen as purposive sampling from the members of the MJFK and Mufti Department of the States. The study found that fatwa issued by MJFK are referred   by the states, mostly are accepted but there are some issues that are not accepted due to the power of the state to accept or reject the fatwa of MJFK according to its priority. In addition, there are also differences due to ijtihad factors among the members, the differences in the existing policies in the state and administrative problems in the Mufti Department of the States. Several efforts have been drafted by the Department of Islamic Development Malaysia (JAKIM) as the secretariat of MJFK and Mufti Department of the States to improve the coordination about fatwa as well as to improve the management system, increase the numbers of meetings, upgrade the officers knowledge and skills and broaden understanding of fatwa among the members and society. Keywords: Fatwa, standardisation of fatwa, ijtihad, MJFK Abstrak Persoalan mengenai penerimaan negeri-negeri terhadap fatwa yang dikeluarkan Muzakarah Jawatankuasa Fatwa Majlis Kebangsaan Bagi Hal Ehwal Ugama Islam Malaysia (MJFK) seringkali ditimbulkan dalam akhbar. Aspek perbezaan fatwa antara keduanya seringkali menjadi isu yang hangat dibincangkan. Matlamat kajian ini ialah untuk meneliti pandangan mereka-mereka yang terlibat secara langsung dalam proses perbincangan dan penghasilan fatwa di peringkat MJFK maupun di peringkat negeri mengenai penerimaan dan penyelarasan fatwa MJFK oleh negeri-negeri. Ia dijalankan secara kualitatif melibatkan kaedah temubual separa berstruktur (semi structured interviews) terhadap sebelas peserta kajian (PK) yang telah dipilih secara sampel bertujuan (purposive sampling) dari kalangan ahli-ahli MJFK dan Jabatan Mufti Negeri-Negeri. Hasil kajian mendapati rujukan terhadap fatwa MJFK sememangnya dibuat oleh negeri-negeri, kebanyakannya diterima tetapi terdapat sesetengah isu yang tidak diterima disebabkan kuasa yang ada pada negeri untuk menerima atau menolak fatwa MJFK mengikut keperluannya. Selain itu, berlaku juga perbezaan disebabkan faktor ijtihad di kalangan ahli-ahli, perbezaan dalam dasar sedia ada di negeri dan masalah pentadbiran fatwa di negeri-negeri. Beberapa usaha telah dirangka oleh Jabatan Kemajuan Islam Malaysia (JAKIM) selaku urusetia MJFK bersama Jabatan Mufti untuk meningkatkan penyelarasan fatwa seperti menambahbaik sistem pengurusan fatwa, memperbanyakkan mesyuarat penyelarasan, meningkatkan pengetahuan dan kemahiran pegawai-pegawai fatwa serta meluaskan kefahaman fatwa kepada ahli-ahli muzakarah dan masyarakat. Kata Kunci: Fatwa, penyelarasan fatwa, ijtihad, MJFK

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