scholarly journals Comics in and of the Moment. The COVID19 pandemic: a graphic narrative.

Author(s):  
monica lalanda

ABSTRACT FOR GRAPHIC SUBMISSION TO:“COMICS IN AND OF THE MOMENT”. THE COMICS GRIDMónica LalandaBack in March 2020, when it became obvious that we were heading a big global disaster, I created a folder called Coronavirus Graphic Medicine. Since it was a unprecedented health care crisis, I expected a huge amount of art material related directly to the illness, the symptoms, the medical care, tests, treatments…I saw it as a great oportunity to confirm the use of such fabulous communication tool. Everytime I came accross a comic, infographic or cartoon in social media (mostly twitter and Instagram), I’d save it in my folder. I concentrated on work created in spanish but also foreign ones without any text.Within weeks, I was already surprised that the amount of graphic outpour was huge but there was little in terms of “proper” graphic medicine. As I continued to look into it in more detail, analysing all these amazing pieces, I could see that the illness itself was not the main character of the story, the protagonists of the covid-19 crisis were not the patients or the disease. It was clear that there was little contact with the patients, either locked in ther own rooms or in hospitals with no visitors. Covid-19 victims were surprisingly not the real issue. This in itself is very meaningful. .The illustrators also drew a lot about death but little about the dead ones, creamated without witnesses and buried almost in solitute . As the vignettes continued to enter my folder, I could see that somehow they were able to give an amazing narrative of the pandemia, there was hardly any graphic medicine but more of a story about a whole society going through a unique and damaging common experience. A kind of social graphic medicine of some sort. The suffering of a whole society rather than the illness of the individuals.They fitted into various themes that were obviouly catching the artists’ imagination. In my on-going analysis I ended up creating subfolders that allowed me to clasify and study them in a more logical way. These were the issues that gave way to more pieces:- Health care providers as heroes- Health care providers as victims of the system- Coping with the confinement.- The virus itself (anthopromorphism)- Death- “The curve”- Face masks- Timely themes (schools, Halloween, christmas…)- Information for people to avoid illness- vaccinesNow that things have settled, there is a new and different creation with a kind of retrospective eye. Yet again graphic medicine as such is missing. I’ve recently being invited to write the introduction of an anthology of comics about the pandemia where some of the best spanish comic creators have produced their own pieces about covid19. I notice a tendency to search for answers, to look into our society and our communities with some queries, to measure the effect of social inequalities or the importance of belonging, there is a concern about the psicological effect of those deaths that we were not allowed to mourn, the oportunity to value small things that we never noticed before. I almost sense a call to forget the ugly and to rebuild a new society upon the old ashes. It’s surprising the change in tone. Deep pesimism mixed with cheerful expectations.I’d like to create a comic reflecting on the analysis of all those hundreds of cartoons and comics that I’ve been looking at for over a year.My own work during the pandemia has been mostly graphic medicine as such and here is a link to some of it:https://monicalalanda.com/

2021 ◽  
pp. 152483992110654
Author(s):  
Kathryn West ◽  
Karen R. Jackson ◽  
Tobias L. Spears ◽  
Brian Callender

In this descriptive case series, we detail the theoretical basis, methodology, and impact of a small-scale pilot implementation of graphic medicine workshops as an innovative approach to well-being and resilience in the age of COVID-19 and increasing awareness of racial injustice. The data provided in this article are anecdotal and based on participation in the workshops. Images created during the workshops are also shared as examples of the types of reflection that graphic medicine can enable. The workshops themselves were designed collaboratively and are based on the theoretical principles of graphic medicine, narrative medicine, and racial and social justice. They were conducted as part of a larger wellness initiative and were offered to health care-focused faculty at our academic medical institution. Our findings suggest that this was a beneficial activity which helped participants to reflect and reconsider their experiences with the COVID-19 pandemic and surging awareness of racial injustice. Reflections also showed that drawings were correlated with ProQOL scores and may, in larger numbers, also help to mitigate or bring attention to issues of burnout in frontline providers. Drawings shared show the tremendous impact of COVID-19 and the simultaneous chaos and emptiness of practicing during dual pandemics. Our workshops engaged about 20 frontline health care providers and other health care faculty and highlight the utility of graphic medicine as a tool for building resilience and encouraging self-reflection. Further study is necessary, as is more rigorous analysis of the relationship between the graphics created and the ability to recognize and mitigate burnout.


2021 ◽  
Vol 9 (4) ◽  
pp. 12-24
Author(s):  
George Horvath

A frequently repeated adage, attributed to a wide range of authors and orators, holds that a serious crisis should never be allowed to go to waste. The moment in which we find ourselves renders this adage particularly timely. Responses to one of the defining crises of our age—the COVID–19 pandemic—have mostly been reactive. This includes the responses of multiple actors involved with telehealth. Congress, federal regulators, state legislatures, state regulators, private insurers, and health care providers, confronting the challenges of the pandemic, have responded by making ad hoc adjustments to the regulation and use of telehealth. Moving the conversation beyond this reactive posture, Professor Deborah Farringer’s article, A Telehealth Explosion: Using Lessons from the Pandemic to Shape the Future of Telehealth Regulation, surveys the history of telehealth regulation, the pandemic-era adjustments, and recent proposals for the future finds an opportunity instead. The article seeks to put a crisis to good use—taking “advantage of the momentum that the COVID–19 public health emergency has created”—to inform the creation of “a comprehensive and integrative approach” to telehealth regulation. I find it possible to read A Telehealth Explosion in two ways: as an article with narrow aims and as an article with much broader aims. Parts I and II present these two readings. In Part III, I situate the broader reading within the context of earlier expansions of federal regulation of the health care enterprise to pose the question of how likely it is that the current crisis can be put to the good use that Professor Farringer seeks.


2020 ◽  
Vol 38 (1) ◽  
pp. 62-67
Author(s):  
Tong Li ◽  
Xianbo Pei ◽  
Xiaoli Chen ◽  
Shuqin Zhang

Background: Understanding the preferences for end-of-life (EOL) care is imperative in providing quality care to patients with life-threatening illness. However, it is difficult for patients, families, and health-care providers to initiate EOL conversations in China. An easy-to-use tool that could help health-care providers initiate EOL discussions is the Heart to Heart Card Game (HHCG), originally designed for Chinese Americans. Objective: To evaluate the EOL preferences among Chinese patients with cancer using the HHCG. Methods: We conducted a descriptive study to assess EOL preferences using HHCG among patients at the oncology chemoradiotherapy department of a Chinese tertiary hospital. Results: We recruited 58 patients in total of which 40 (69%) patients completed HHCG. The most frequently selected card was “I want my family to get along,” followed by “I don’t want to be a burden to my family,” and “I want to maintain my dignity.” Among the 3 cards selected, social needs were rated as the most important (36.7%), followed by spiritual needs (35.8%), physical needs (20.0%), and financial needs (7.5%). The evaluation of the HHCG revealed that more than 70% of the participants highly valued HHCG. Conclusion: The HHCG can be used as a communication tool to encourage EOL discussions between cancer patients and health-care providers in China. Moreover, Chinese patients with cancer attach significant importance to their family and maintaining dignity at the EOL.


JMIR Cancer ◽  
10.2196/11556 ◽  
2019 ◽  
Vol 5 (1) ◽  
pp. e11556 ◽  
Author(s):  
Janneke Noordman ◽  
Jeanine A Driesenaar ◽  
Inge R van Bruinessen ◽  
Johanneke EA Portielje ◽  
Sandra van Dulmen

2020 ◽  
Vol 16 (1) ◽  
Author(s):  
Elizabeth Beddard-Huber ◽  
Gina Gaspard ◽  
Kathleen Yue

The Serious Illness Conversation Guide (SICG) has been shown to be an effective communication tool used by health care professionals when interacting with patients facing a life-limiting illness. However, Ariadne Labs, the originators of the tool, have not tested it with First Nations and Indigenous Peoples. In this project, the British Columbia Centre for Palliative Care and the First Nations Health Authority in British Columbia (BC), Canada collaborated to adapt the SICG to be more culturally safe for First Nations and Indigenous Peoples. Multiple feedback strategies were employed. Feedback was received from 35 older adults, Elders, and community members from two First Nations communities plus approximately 80 nurses serving in First Nations communities across BC. Key areas of focus for feedback on the clinical tool included setting up the conversation, involving family, closing the conversation, and using principles of health literacy to reduce power differences. Three questions were added in response to feedback received. By creating a safe space for dialogue, it is hoped that health care providers and family members will develop a deeper understanding of what is important to the person with a life-limiting illness. These conversations promote patient-centred health care that aligns with patient values and wishes. Findings from this project directly informed modification of the tool to support a more culturally safe conversation. Further research will inform whether this tool is culturally safe for all seriously ill people.


2021 ◽  
Vol 8 (2) ◽  
pp. 31-37
Author(s):  
Sachin Desai

This article attempts to describe a case study of a person living with dementia, a senior citizen, who is staying with her children at home, who are her caregivers. We will critically evaluate and analyse the strengths and weaknesses of the services that have been provided to her by the Health Care Providers and will highlight the topic of Person-centred Care provided to her by her caregivers. We will be highlighting her case scenario wherein we will enlist and elaborate the details, about dementia care from the moment of receiving the diagnosis to challenges faced both by the people living with dementia (PLWD) and their caregivers, in providing care. In this article, we will compare the details about the various studies and findings in discussion and compare the caregiving practices in India and the UK.


2018 ◽  
Author(s):  
Janneke Noordman ◽  
Jeanine A Driesenaar ◽  
Inge R. van Bruinessen ◽  
Johanneke E.A. Portielje ◽  
Sandra van Dulmen

BACKGROUND Effective patient-provider communication is an important condition to deliver optimal care and it supports patients in coping with their disease. The complex and emotionally loaded setting of oncology care challenges both health care providers (HCPs) and patients in reaching effective communication. ListeningTime is developed for elderly patients with cancer and their oncological HCPs to help them (better) prepare the clinical encounter and overcome communication barriers. ListeningTime is a Web-based preparatory communication tool including modeling videos and has an audio-facility to listen back to recorded encounters. OBJECTIVE This study aims to evaluate the usability, perceived usefulness, and actual use of ListeningTime, through the eyes of elderly patients with cancer and their oncological HCPs. If highly rated, the ultimate goal is to make ListeningTime publicly available. METHODS First, members of a panel of elderly cancer survivors and patients (age ≥65 years) were approached to evaluate ListeningTime through a Web-based questionnaire. The usability and perceived usefulness were assessed. Second, ListeningTime was evaluated in real-life practice through a pilot study in 3 Dutch hospitals. In these hospitals, elderly patients with cancer and their oncological HCPs were approached to evaluate ListeningTime through a similar Web-based questionnaire, measuring the perceived usefulness. In addition, we examined log files and user statistics to get insight into how the program was used. RESULTS A total of 30 cancer survivors or patients from the patient panel, and 17 patients and 8 HCPs from the hospitals, evaluated ListeningTime. Overall, both panel members and hospital patients were positive about the ListeningTime website, audio-facility, and video fragments. Some patients suggested improvements with respect to the actors’ performances in the video fragments and believed that ListeningTime is mainly suitable for non experienced patients. HCPs were also positive about ListeningTime; they valued the video fragments for patients and the audio-facility for patients and themselves. However, providers did not relisten their own recorded encounters. Patients did use the audio-facility to relisten their encounters. CONCLUSIONS ListeningTime was highly rated, both by patients and their oncological HCPs. As a result, the video fragments of ListeningTime are now made publicly available for elderly patients with cancer through the Dutch website “kanker.nl.”


2006 ◽  
Vol 24 (32) ◽  
pp. 5154-5159 ◽  
Author(s):  
Barbara Hoffman ◽  
Ellen Stovall

From the moment of diagnosis, a cancer survivor faces serious life-altering decisions. Survivors who are informed about their options and who feel they have personal control over decision making generally perceive a higher quality of life than those who feel less informed and less in control. Health care providers are in a unique position to define a survivor's cancer care and to guide a survivor through treatment and post-treatment care. By implementing survivorship care plans and directing their patients to survivorship resources, health care providers can advocate for survivors and teach them to be effective self-advocates.


2020 ◽  
pp. 002073142098149
Author(s):  
David U. Himmelstein ◽  
Steffie Woolhandler

We review recently published studies of U.S. health policy and the nation’s health care system. Even prior to the COVID-19 pandemic, health inequalities were widening and care was inequitably distributed. Although the Affordable Care Act’s coverage expansion improved access to care and timely cancer diagnoses, a large proportion of U.S. residents continued to avoid medical care due to concerns about costs, and access to mental health services remains particularly inadequate. Yet more evidence of private insurers’ profit-driven misbehaviors and of corruption among medical leaders continues to emerge. Misguided incentives and lax regulation encourages nominally nonprofit health care providers to mimic for-profits’ misconduct, and rapacious investors own and control an increasing share of physicians’ practices. Pharmaceutical firms wield outsize political influence and devote far more funds to rewarding investors than to research and development effort. Yet despite vigorous efforts by pharma and other commercial interests to denigrate national health insurance, polls indicate that the COVID-19 pandemic has led to increasing support for such reform.


2021 ◽  
Author(s):  
Christine Fekete ◽  
Caroline Debnar ◽  
Anke Scheel-Sailer ◽  
Armin Gemperli

Abstract Background: Evidence suggests that the socioeconomic status (SES) affects individuals' health service utilization. Spinal cord injury is a condition that often leads to physical impairments and enhanced health care needs. It therefore presents an informative and yet under-researched case in point to investigate social inequalities in health service utilization. This study aims to describe associations between SES and health service utilization in adults with spinal cord injury from Switzerland.Methods: We use cross-sectional data from 1,294 participants of the Swiss Spinal Cord Injury Cohort Study community survey 2017. SES was operationalized with education, household income, perceived financial hardship, subjective status, and granting of supplementary financial benefits. Health service utilization was assessed with information on visits to 13 different health care providers and four health care institutions (inpatient stays, outpatient clinics, emergency departments, specialized spinal cord centers) during the past 12 months. The dichotomized outcomes on service utilization (visited vs. not visited) were regressed on SES indicators, including adjustments for sociodemographics, lesion characteristics, and health status. Results: Persons with higher SES reported higher likelihood for specialist, dentist, and dental hygienist visits and reported utilizing a larger number of different care providers. Further, specific SES indicators were associated with certain care provider visits (i.e., higher education and subjective status: higher odds for pharmacist visits; higher income: higher odds for natural healer visits; higher subjective status: higher odds for chiropractor visits; supplementary benefit granting: higher odds for general practitioner and home care service visits). We found statistically non-significant trends towards lower likelihood for inpatient stays, outpatient clinic and emergency department visits and enhanced likelihood for specialized spinal cord-center visits in higher SES groups. Conclusions: This study generally supports the claim that basic health care provision is guaranteed for all patients with spinal cord injury in Switzerland, independently of their SES. However, social inequalities were still observed for the utilization of specific providers, such as oral health care providers. Given that oral health is key for health maintenance in persons with spinal cord injury, specific interventions to enhance regular dental check-ups in lower SES groups are highly recommended.


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