scholarly journals Inclusive practice, personhood and co-production to promote person centred care for people living with dementia: A review on approaches of two countries regarding care of people living with dementia

2021 ◽  
Vol 8 (2) ◽  
pp. 31-37
Author(s):  
Sachin Desai

This article attempts to describe a case study of a person living with dementia, a senior citizen, who is staying with her children at home, who are her caregivers. We will critically evaluate and analyse the strengths and weaknesses of the services that have been provided to her by the Health Care Providers and will highlight the topic of Person-centred Care provided to her by her caregivers. We will be highlighting her case scenario wherein we will enlist and elaborate the details, about dementia care from the moment of receiving the diagnosis to challenges faced both by the people living with dementia (PLWD) and their caregivers, in providing care. In this article, we will compare the details about the various studies and findings in discussion and compare the caregiving practices in India and the UK.

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1279.1-1279
Author(s):  
Z. Rutter-Locher ◽  
J. Galloway ◽  
H. Lempp

Background:Rheumatological diseases are common in Sub-Saharan Africa [1] but specialist healthcare is limited and there are less than 150 rheumatologists currently serving 1 billion people in Sub-Saharan Africa [2]. Rheumatologists practising in the UK NHS are likely to be exposed to migrant patients. There is therefore, an unmet need for health care providers to understand the differences in rheumatology healthcare provision between Sub-Saharan Africa and the UK and the barriers which migrants face in their transition of rheumatology care.Objectives:To gain an understanding of the experiences of patients with rheumatological conditions, about their past healthcare in Sub-Saharan Africa and their transition of care to the UK.Methods:A qualitative study using semi-structured interviews was conducted. Participants were recruited from two rheumatology outpatient clinics in London. Thematic analysis was applied to identify key themes.Results:Seven participants were recruited. Five had rheumatoid arthritis, one had ankylosing spondylitis and one had undifferentiated inflammatory arthritis. Participants described the significant impact their rheumatological conditions had on their physical and emotional wellbeing, including their social and financial implications. Compared to the UK, rheumatology healthcare in Sub-Saharan Africa was characterised by higher costs, limited access to specialists, lack of investigations and treatments, the use of traditional medicines and poor communication by clinicians. Barriers to transition of rheumatology care to the UK were: poor understanding of rheumatological conditions by the public and primary care providers, lack of understanding of NHS entitlements by migrants, fear of data sharing with immigration services and delayed referral to specialist care. Patient, doctor and public education were identified by participants as important ways to improve access to healthcare.Conclusion:This study has described, for the first time, patients’ perspectives of rheumatology health care in Sub-Saharan Africa and the transition of their care to the UK. These initial findings allow healthcare providers in the UK to tailor management for this migrant population and suggests that migrants need more information about their NHS entitlements and specific explanations on what non-clinical data will be shared with immigration services. To increase access to appropriate care, a concerted effort by clinicians and public health authorities is necessary to raise awareness and provide better education to patients and migrant populations about rheumatological conditions.References:[1]G. Mody, “Rheumatology in Africa-challenges and opportunities,” Arthritis Res. Ther., vol. 19, no. 1, p. 49, 2017.[2]M. A. M. Elagib et al., “Sudan and Sweden Active Rheumatoid Arthritis in Central Africa: A Comparative Study Between,” J. Rheumatol. J. Rheumatol. January, vol. 43, no. 10, pp. 1777–1786, 2016.Acknowledgments:We are grateful to the patients involved in this study for their time and involvement.Disclosure of Interests:None declared


2022 ◽  
Vol 9 (1) ◽  
pp. 56-57
Author(s):  
Jane Shulman ◽  
David Kenneth Wright

How can health care providers (HCPs) working with 2SLGBTQ+ patients enact a whole person care approach during the SARS-CoV-2 pandemic and its aftermath, and in such desperate times, is it even reasonable to expect them to? In this presentation, a nurse/nursing educator and a health care researcher/frequent patient discuss their observations and experiences of whole person care during the SARS-CoV-2 pandemic. The conversation highlights that in the immediate chaos early on, and in the face of exhaustion, trauma, and burnout as the pandemic progressed, attending to the whole personhood of patients was/is paramount for HCPs and for the people they treat. The presenters reflect on the amplified significance of a whole person approach for 2SLGBTQ+ people who may have had negative health care experiences in the past, and may fear that they will not receive equitable care in the chaotic context of a pandemic. A whole person care approach is perhaps most necessary when it is also most difficult. In a period of such profound distress, a deeper sense of connectedness to patients may help HCPs manage feelings of helplessness they are likely to encounter, and surely helps the people they treat. The goal of this presentation is to begin a discussion about the ways that whole person approaches benefit 2SLGBTQ+ patients as well as their HCPs, with the hope that it will spark ideas for attendees to develop in their own practices.


2021 ◽  
pp. 009539972110478
Author(s):  
Aute Kasdorp ◽  
Leonie Schakel

This case study investigates interactions between inspectors and regulatee representatives during regulatory conversations. We study how health care inspectors pursue voluntary cooperation from internal supervisors of health care providers to alter organizational management practices. We identify ambiguity as a central characteristic of the regulatory conversations. We observe several discrepancies as inspectors display hierarchical behavior incongruent with the horizontal relationship they aim for—and incongruent with the relationship style that internal supervisors expect. Analyzing these discrepancies in terms of relationship types and associated relational signals helps explain and prevent suboptimal communication and reduced acceptance of regulators’ demands by regulatees.


2016 ◽  
Vol 11 (1) ◽  
pp. 10-17
Author(s):  
Renae Ellen Bomar ◽  
Thalia Mulvihill

Context: Clinical experiences give the student athletic trainer the opportunity to relate and apply didactic information to a real-world setting. During these experiences student athletic trainers are supervised by certified, licensed health care providers working in a variety of settings (eg, hospital, physical therapy clinic, doctor's office). It is important to note the responsibilities these health care professionals (preceptors) take on when choosing to become a preceptor. Not only are they completing their normal, job-related tasks of patient care and administrative duties, but they are also responsible for the education and evaluation of student athletic trainers. Objective: This case study takes an in-depth look at a National Collegiate Athletic Association (NCAA) Division II athletic training program's (ATP) preceptor training model and provides an example of how 1 program is developing its preceptors under the new Commission on Accreditation of Athletic Training Education (CAATE) policies. It is meant to lay the foundation for further research in preceptor development by providing a description of training and development practices. This case study can be used as a guide to other ATPs and compared to other institutions to identify the best practices for preceptor development. Because the policies are new and little research has been done on preceptor development, this is the first step in creating effective evidence-based practices. Design: Ethnographic case study. Setting: One-on-one, in-person, semistructured interviews were conducted, audio recorded, and transcribed verbatim. A review of relevant (eg, training manuals) preceptor training documents was completed. Member checks were done as necessary for accuracy. Participants: One male, veteran off-campus preceptor, 1 female, novice on-campus preceptor, and the ATP clinical education coordinator participated. Participants were part of an NCAA Division II ATP located in Indiana. Results and Conclusions: The findings suggested that this program's preceptor training used various pedagogical designs and provided strong support to those involved.


2019 ◽  
Vol 25 (4) ◽  
pp. 506-532 ◽  
Author(s):  
Nadine Henriquez ◽  
Kathryn Hyndman ◽  
Kathryn Chachula

Research has identified the need for improved cultural competence of health care providers regarding the lesbian, gay, bisexual, transgender, and queer (LGBTQ) community’s needs. This article articulates the teaching approach and methodology of an unfolding LGBTQ family case study for undergraduate nursing students. This method provided a forum for exploration of personal biases and gender-affirming techniques, and addressed the challenges of aging for a transgender woman and family within the context of societal stigma and discrimination. Students gained knowledge concerning shifts in family structures and understanding of the nurses’ role encouraging inclusiveness and equitable access in health care settings, advocating for vulnerable populations, and addressing specific health concerns for transgender older adults. Student responses demonstrated increased knowledge of family diversity, and critical thought regarding the intersectionality of discrimination and aging. The findings revealed the case study methodology facilitated student understanding of the unique health and social issues for LGBTQ older adults within a family context.


1996 ◽  
Vol 1 (3) ◽  
pp. 179-182 ◽  
Author(s):  
Peggy Foster

Health promotion activities are actively encouraged in most countries, including the UK. Meanwhile many health care providers and health experts are becoming increasingly concerned about the growing evidence of significant health inequalities between social groups in the UK, and in particular the strong association between relative deprivation and poor health. In 1995, a report for the British government entitled ‘Variations in health: What can the Department of Health and the NHS do?’, identified the need for the Department of Health and the NHS to play a key role in coordinating and implementing public health programmes intended to reduce inequalities in health. Examination of existing evidence on the effectiveness of health promotion and prevention programmes designed to improve the health status of the most vulnerable groups in society reveals very little evidence to support current enthusiasm for adopting public health strategies in order to reduce variations in health status between the affluent and the poor. Alternative and potentially more effective health care responses to inequalities in health status need to be considered.


Author(s):  
Suruchi Singh ◽  
Satish Kumar Sharma

As the lockdown situation progressed in COVID-19 pandemic, national pharmacy role players became major front line workers for maintaining accessibility of health care utilities. Pharmacists have been handling in-house deliveries of essentials, reducing burden on health care, along with attending patients with other ailments. Since pharmacists are representatives directly associated with public health concerns, there is need for disseminating awareness in pharmacists to maintain the health conditions of the people living in the pandemic situation. Pharmacy Colleges and representatives of public health interests were subjected to systematic literature review regarding publicly reported pharmacist positions. It is concluded that respondents having much experience are intended to perceive a pharmacist's position as being essential to health care providers relative to the individuals who have less experience. The findings of this research can be beneficial for educating pharmacists in order to achieve the goal of keeping the people healthy in the pandemic situations.


Author(s):  
monica lalanda

ABSTRACT FOR GRAPHIC SUBMISSION TO:“COMICS IN AND OF THE MOMENT”. THE COMICS GRIDMónica LalandaBack in March 2020, when it became obvious that we were heading a big global disaster, I created a folder called Coronavirus Graphic Medicine. Since it was a unprecedented health care crisis, I expected a huge amount of art material related directly to the illness, the symptoms, the medical care, tests, treatments…I saw it as a great oportunity to confirm the use of such fabulous communication tool. Everytime I came accross a comic, infographic or cartoon in social media (mostly twitter and Instagram), I’d save it in my folder. I concentrated on work created in spanish but also foreign ones without any text.Within weeks, I was already surprised that the amount of graphic outpour was huge but there was little in terms of “proper” graphic medicine. As I continued to look into it in more detail, analysing all these amazing pieces, I could see that the illness itself was not the main character of the story, the protagonists of the covid-19 crisis were not the patients or the disease. It was clear that there was little contact with the patients, either locked in ther own rooms or in hospitals with no visitors. Covid-19 victims were surprisingly not the real issue. This in itself is very meaningful. .The illustrators also drew a lot about death but little about the dead ones, creamated without witnesses and buried almost in solitute . As the vignettes continued to enter my folder, I could see that somehow they were able to give an amazing narrative of the pandemia, there was hardly any graphic medicine but more of a story about a whole society going through a unique and damaging common experience. A kind of social graphic medicine of some sort. The suffering of a whole society rather than the illness of the individuals.They fitted into various themes that were obviouly catching the artists’ imagination. In my on-going analysis I ended up creating subfolders that allowed me to clasify and study them in a more logical way. These were the issues that gave way to more pieces:- Health care providers as heroes- Health care providers as victims of the system- Coping with the confinement.- The virus itself (anthopromorphism)- Death- “The curve”- Face masks- Timely themes (schools, Halloween, christmas…)- Information for people to avoid illness- vaccinesNow that things have settled, there is a new and different creation with a kind of retrospective eye. Yet again graphic medicine as such is missing. I’ve recently being invited to write the introduction of an anthology of comics about the pandemia where some of the best spanish comic creators have produced their own pieces about covid19. I notice a tendency to search for answers, to look into our society and our communities with some queries, to measure the effect of social inequalities or the importance of belonging, there is a concern about the psicological effect of those deaths that we were not allowed to mourn, the oportunity to value small things that we never noticed before. I almost sense a call to forget the ugly and to rebuild a new society upon the old ashes. It’s surprising the change in tone. Deep pesimism mixed with cheerful expectations.I’d like to create a comic reflecting on the analysis of all those hundreds of cartoons and comics that I’ve been looking at for over a year.My own work during the pandemia has been mostly graphic medicine as such and here is a link to some of it:https://monicalalanda.com/


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