scholarly journals Safety Accidents and Coping Experiences among Family Caregivers Caring for Community-Dwelling Persons Living with Dementia

2021 ◽  
Vol 23 (4) ◽  
pp. 352-360
Author(s):  
Ji Yeon Lee ◽  
Ha Rim Lee ◽  
Kyung Hee Lee
Keyword(s):  
Family Caregivers ◽  
Qualitative Content Analysis ◽  
Community Dwelling ◽  
Information And Communications Technology ◽  
Face To Face ◽  
Community Environment ◽  
Care Services ◽  
Care Recipients ◽  
Safety Accident ◽  
And Coping

Purpose: The purpose of this study was to understand experiences in safety accidents and coping among family caregivers of persons living with dementia.Methods: Data were collected through face-to-face interviews with 10 family caregivers who are the main caregivers of community-dwelling persons living with dementia. Inductive qualitative content analysis was conducted to reveal themes.Results: Three major themes emerged in this study: 1) various safety accident experiences, 2) coping with safety accidents, and 3) concern for the prevention of safety accidents. Family caregivers experienced various risks when caring for their care recipients with reduced cognitive function and trying to cope with a tailored method for persons living with dementia. However, family caregivers eventually recognized that none of the methods were perfect for preventing dangers and looked forward to the emergence of new methods to ensure a safe environment.Conclusion: Dementia care services and tailored information and communications technology (ICT) should be provided to promote the safety of persons living with dementia and their family caregivers in the community environment.

scholarly journals Health-care Workforce Training to Effectively Support Family Caregivers of Seniors in Care

2020 ◽  
Vol 23 (2) ◽  
pp. 160-171
Author(s):  
Rachel Fisher ◽  
Jasneet Parmar ◽  
Wendy Duggleby ◽  
Peter George J. Tian ◽  
Wonita Janzen ◽  
...  
Keyword(s):  
Health Care ◽  
Family Caregivers ◽  
Health Care Professionals ◽  
Health Care Services ◽  
Well Being ◽  
Workforce Training ◽  
Community Dwelling ◽  
Canadian Health Care System ◽  
Care Services ◽  
Qualitative Thematic Analysis

Introduction Family caregivers (FCGs) play an integral, yet often invisible, role in the Canadian health-care system. As the population ages, their presence will become even more essential as they help balance demands on the system and enable community dwelling seniors to remain so for as long as possible. To preserve their own well-being and capacity to provide ongoing care, FCGs require support to the meet the challenges of their daily caregiving responsibilities. Supporting FCGs results in better care provision to community-dwelling seniors receiving health-care services, as well as enhancing the quality of life for FCGs. Although FCGs rely upon health-care professionals (HCPs) to provide them with support and services, there is a paucity of research pertaining to the type of health workforce training (HWFT) that HCPs should receive to address FCG needs. Programs that train HCPs to engage with, empower, and support FCGs are required. Objective To describe and discuss key findings of a caregiver symposium focused on determining components of HWFT that might better enable HCPs to support FCGs. Methods A one-day symposium was held on February 22, 2018 in Edmonton, Alberta, to gather the perspectives of FCGs, HCPs, and stakeholders. Attendees participated in a series of working groups to discuss barriers, facilitators, and recommendations related to HWFT. Proceedings and working group discussions were transcribed, and a qualitative thematic analysis was conducted to identify key themes. Results Participants identified the following topic areas as being essential to training HCPs in the provision of support for FCGs: understanding the FCG role, communicating with FCGs, partnering with FCGs, fostering FCG resilience, navigating healthcare systems and accessing resources, and enhancing the culture and context of care. Conclusions FCGs require more support than is currently being provided by HCPs. Training programs need to specifically address topics identified by participants. These findings will be used to develop HWFT for HCPs.

scholarly journals ACTIONS TAKEN BY STROKE FAMILY CAREGIVERS TO POTENTIALLY PREVENT SURVIVORS’ HOSPITAL READMISSIONS IN CHINA

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S288-S288
Author(s):  
Hairui Yu ◽  
Jennifer Perion ◽  
Victoria Steiner ◽  
Linda Pierce
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Hospital Readmissions ◽  
Structured Interview ◽  
Stroke Survivors ◽  
Physically Active ◽  
Face To Face ◽  
Care Recipients ◽  
Qualitative Descriptive ◽  
Male Caregivers

Abstract Stroke is a leading cause of death in China; its level of burden on the Chinese population is greater than the global average. Family caregiving plays an essential role in prevention and management of stroke. The purpose of this qualitative descriptive study was to identify actions family caregivers of stroke survivors in China take to prevent hospital readmissions. Using purposive sampling, adult family caregivers (n=10) were enrolled from Huai’an city in Jiangsu province who provided care for a survivor in community settings for six months or longer. Caregivers were asked questions in a face-to-face, semi-structured interview with content validity established by experts in the field. Audiotaped interviews were transcribed/translated into English and the narrative data analyzed using Colaizzi’s approach to content analysis. Seven female and three male caregivers with an average age of 55 years indicated actions that comprised six themes. These themes are: 1) Encouraging care recipients to be physically active, 2) Balancing a healthy diet with pleasurable foods, 3) Monitoring the physical health of care recipients and preventing injuries, 4) Developing personal and intimate strategies to motivate care recipients, 5) Providing emotional support and maintaining optimism, and 6) Gaining knowledge through relationships with doctors but desiring communication with other caregivers. Recognizing these actions taken by stroke family caregivers may improve education programs aimed at preventing hospital readmissions and be applicable throughout the world. Findings may also guide healthcare professionals who can advocate with Chinese local, provincial, and central health commissions on stroke survivors and their family caregivers’ behalf.

scholarly journals A Qualitative Exploration of the Needs of Community-Dwelling Patients Living with Moderate Dementia

2021 ◽  
Vol 18 (17) ◽  
pp. 8901
Author(s):  
Tzu-Pei Yeh ◽  
Hsing-Chia Chen ◽  
Wei-Fen Ma
Keyword(s):  
Home Care ◽  
Service Providers ◽  
Care Service ◽  
Home Care Services ◽  
Community Dwelling ◽  
End Of Life Decisions ◽  
Face To Face ◽  
Care Services ◽  
Moderate Dementia ◽  
Qualitative Exploration

Few studies have focused on developing a better understanding of the needs of patients with moderate-stage dementia. This study aimed to explore the needs of people living with moderate dementia and receiving home-care services from a local mental hospital. The study adopted a descriptive qualitative approach with purposive sampling to recruit patients with moderate dementia and receiving home-care services. Data were collected by face-to-face interviews and content analysis was used to interpret the experiences in the dialogue data. The results showed that the needs of people living with moderate dementia receiving home-care services contained four themes: the demand for company and care, the wish to recall familiar images, the need of reaffirming life purpose and value through reflection and reminiscence, and the desire for making autonomous end-of-life decisions. In addition to daily care, people living with moderate dementia crave companionship, expect meaningful exchanges of experiences to share their life, and have demands to have a voice in going through the final stage of life. The participants tended to focus more on issues related to the connections between living and dying. The results provide caregivers and home-care service providers with some insights into offering better care for people living with moderate dementia.

scholarly journals Assessment of Rwandan diabetic patients’ needs and expectations to develop their first diabetes self-management smartphone application (Kir’App)

2019 ◽  
Vol 10 ◽  
pp. 204201881984531 ◽  
Author(s):  
Claudine B. Kabeza ◽  
Lorenz Harst ◽  
Peter E. H. Schwarz ◽  
Patrick Timpel
Keyword(s):  
Qualitative Content Analysis ◽  
Diabetes Education ◽  
Information Provision ◽  
Smartphone Application ◽  
Self Management ◽  
Diabetic Patients ◽  
Face To Face ◽  
And Coping ◽  
Study Participants

Background: Knowledge of and coping with diabetes is still poor in some communities in Rwanda. While smartphone applications (or apps) have demonstrated improving diabetes self-care, there is no current study on the use of smartphones in the self-management of diabetes in Rwanda. Methods: The main objective of this study was to assess the needs and expectations of Rwandan diabetic patients for mobile-health-supported diabetes self-management in order to develop a patient-centred smartphone application (Kir’App). Results: Convenience sampling was used to recruit study participants at the Rwanda Diabetes Association. Twenty-one patients participated in semi-structured, in-depth, face-to-face interviews. Thematic analysis was performed using Mayring’s method of qualitative content analysis. Conclusions: The study included 21 participants with either type 1 (female = 5, male = 6) or type 2 (female = 6, male = 4) diabetes. Participants’ age ranged from 18 to 69 years with a mean age of 35 and 29 years, respectively. Eight main themes were identified. These were (a) diabetes education and desired information provision; (b) lack of diabetes knowledge and awareness; (c) need for information in crisis situations; (d) required monitoring and reminder functions; (e) information on nutrition and alcohol consumption; (f) information on physical activity; (g) coping with burden of disease, through social support and network; (h) app features. This study provides recommendations that will be used to design the features of the first Rwandan diabetes self-management smartphone application (Kir’App). The future impact of the application on the Rwandan diabetic patients’ self-management capacity and quality of life will be evaluated afterwards.

scholarly journals Caregiving Through the Pandemic: Exploring the Impacts of COVID-19 on Caregivers and Their Caregiving Experiences

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 185-185
Author(s):  
Alexa Balmuth
Keyword(s):  
Older Adults ◽  
High Risk ◽  
Family Caregivers ◽  
Survey Data ◽  
Coping Behaviors ◽  
Unique Role ◽  
Personal Lives ◽  
Time Points ◽  
Care Recipients ◽  
And Coping

Abstract In the midst of the COVID-19 pandemic, many caregivers have been tasked with a unique role; not only to keep themselves safe and healthy, but also to protect and find new ways to aid their care recipients, many of whom are older adults at relatively high risk for severe complications from COVID-19. These challenging circumstances have driven caregivers to quickly adapt as they continue to manage their personal lives and caregiving responsibilities. Utilizing three waves of survey data from the MIT AgeLab Caregiver Panel, this presentation will examine the attitudes, experiences and worries of family caregivers at several time points along the course of the COVID-19 pandemic, as well as caregivers’ preparations and coping behaviors along the way. Differences between caregiving situations will also be discussed.

scholarly journals FEASIBILITY OF CARRES MODULES TO REDUCE POTENTIALLY AVOIDABLE HOSPITALIZATIONS IN PERSONS WITH COGNITIVE DEFICITS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S288-S288
Author(s):  
Victoria Steiner ◽  
Linda Pierce ◽  
Carol Bryan
Keyword(s):  
Family Caregivers ◽  
Cognitive Deficits ◽  
Family Caregiving ◽  
Hospital Readmissions ◽  
Well Being ◽  
Community Dwelling ◽  
Care Recipient ◽  
Wide Audience ◽  
Avoidable Hospitalizations ◽  
Care Recipients

Abstract Family caregiving is an essential, yet understudied, factor that can hasten, delay, or prevent hospital readmissions in individuals with cognitive deficits. This 3-month feasibility study examined 18 Internet-based educational CARREs (Communicate, Assist, Recognize & Report Events) Modules for family caregivers that address care recipients’ potentially avoidable hospitalization (PAH) conditions, e.g. UTI. This study determined: 1) caregivers’ perceptions about the use of the CARREs Modules, 2) caregivers’ self-reported value of the Modules, and 3) potential outcomes for caregivers and care recipients. Community-dwelling family caregivers were recruited from local support/education programs and assigned 6-8 Modules based on their care recipients’ needs. Links to online surveys were emailed at baseline, and 30 and 90 days post-enrollment. Descriptive statistics were performed on these data. Twenty potential subjects were screened but five were ineligible and three refused to participate. The remaining 12 subjects were primarily White females caring for a husband or parent. Subjects completed all the Modules they were assigned and did not experience any difficulties answering the survey questions. Subjects reported completing the Modules at least moderately increased their knowledge (67%), not being burdened by completing the Modules (67%), and very likely to participate again (58%). Many subjects stated the Modules taught them new things about preventing hospital readmissions in their care recipient (75%) and improved their well-being as a caregiver (83%). In collaboration with a home care agency, the investigators plan to implement and test a sustainable, “real-world” educational intervention incorporating the CARREs Modules that reaches a wide audience of family caregivers.

scholarly journals The Experiences of Caregivers of Persons Living with Dementia in Jamaica during COVID-19

2021 ◽  
Vol 7 ◽  
pp. 233372142110433
Author(s):  
Marissa Stubbs ◽  
Ishtar Govia ◽  
Janelle N. Robinson ◽  
Rochelle Amour ◽  
Emily Freeman
Keyword(s):  
Family Caregivers ◽  
Economic Status ◽  
Direct Costs ◽  
Family Carers ◽  
Face To Face ◽  
Care Recipients ◽  
Health Fairs ◽  
Depth Interview ◽  
Ethical Approval ◽  
Cross National

This article provides descriptive insights of the experiences of family caregivers of persons living with dementia during the COVID-19 pandemic. Data were generated as part of a qualitative cross-national project to explore the costs and consequences of providing unpaid dementia care. Participants in Jamaica, who were recruited using community gatekeepers, information booths at health fairs, conferences, and other outreach events, were contacted by telephone to discuss their experiences of the pandemic. When face-to-face in-depth interview data collection was suspended due to the pandemic, ethical approval was received to contact all research participants who were informal unpaid family caregivers, both those whose care recipients had died and those who were active caregivers ( N = 19). Participants in this study were the 10 active family caregivers ( n F = 8; aged 45+; 60% from high socio-economic status). Their updates and reflections during these calls were documented in fieldnotes and analyzed for key themes. Data showed that the pandemic has illustrated the direct costs, both financial and otherwise, that informal dementia carers bear in Jamaica. It also intensified pre-existing challenges faced by family carers. We provide recommendations for sustainable support for family carers.

scholarly journals Family caregivers’ support for older adults in Nigeria

New Vistas ◽  
2021 ◽  
Vol 7 (2) ◽  
Author(s):  
Barbara Member Jika
Keyword(s):  
Family Caregivers ◽  
Health Care Services ◽  
Coping Mechanism ◽  
Review Of Literature ◽  
Daily Lives ◽  
Loved One ◽  
Care Services ◽  
Care Workers ◽  
And Coping ◽  
Support Family

A scoping review of literature was explored for a better understanding of the lived experiences of family caregivers for elderly in Nigeria. Unlike professional caregivers such as medical doctors, nurses and trained care workers, informal caregivers, often family members, or friends, also provide care to individuals with a variety of conditions including cancer, dementia, and advanced age. Family Caregivers of elderly with chronic illness in Nigeria, are exposed to burden associated with caregiving activities. This could involve the delivery of complex health care services alongside Activities of Daily Living (ADL). Despite the satisfaction and fulfillment that comes with caring for a loved one, family caregivers often experience negative psychological, behavioural, and physiological effects on their daily lives and health. creating awareness and understanding the burden and coping mechanism of this population is crucial to making decisions at all levels, which best support family caregivers.

Toward establishing telepsychology guideline: Turning the challenges of COVID-19 into opportunity (Preprint)

2020 ◽  
Author(s):  
Mohammed M. J. Alqahtani
Keyword(s):  
Mental Health ◽  
Health Care Services ◽  
Task Force ◽  
Healthcare Services ◽  
Psychological Services ◽  
Face To Face ◽  
Care Services ◽  
Governance Model ◽  
Provision Of Services ◽  
Temporary Response

BACKGROUND The COVID-19 pandemic has obstructed the classical practices of psychological assessment and intervention via face-to-face interaction. Patients and all health professionals have been forced to isolate and become innovative to continue receiving and providing exceptional healthcare services while minimizing the risk of exposure to, or transmission of, COVID-19. OBJECTIVE This document is proposed initially as a guide to the extraordinary implementation of telepsychology in the context of the COVID-19 pandemic and to extend its implementation to use fundamentally as the main guideline for telepsychology services in Saudi Arabia and other Arabic communities. METHODS A professional task force representing different areas of professional psychology reviewed, summarized, and documented methods, policies, procedures, and other resources to ensure that the recommendations and evidence reviews were valid and consistent with best practices. RESULTS The practice of telepsychology involves the consideration of legal and professional requirements. This paper provides a guideline and recommendations for procedural changes that are necessary to address psychological services as we transition to telepsychology, as well as elucidates and demonstrates practical telepsychology frameworks, procedures, and proper recommendations for the provision of services during COVID-19. It adds a focused examination and discussion related to factors that could influence the telemedicine guideline, such as culture, religion, legal matters, and how clinical psychologists could expand their telepsychology practice during COVID-19 and after, seeking to produce broadly applicable guidelines for the practice of telepsychology. Professional steps in practical telemedicine were illustrated in tables and examples. CONCLUSIONS Telepsychology is not a luxury or a temporary response. Rather, it should be considered part of a proactive governance model to secure a continuity of mental health care services. Arabic communities could benefit from this guideline to telepsychology as an essential protocol for providing mental health services during and after the COVID-19 pandemic.

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