scholarly journals ACTIONS TAKEN BY STROKE FAMILY CAREGIVERS TO POTENTIALLY PREVENT SURVIVORS’ HOSPITAL READMISSIONS IN CHINA

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S288-S288
Author(s):  
Hairui Yu ◽  
Jennifer Perion ◽  
Victoria Steiner ◽  
Linda Pierce
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Hospital Readmissions ◽  
Structured Interview ◽  
Stroke Survivors ◽  
Physically Active ◽  
Face To Face ◽  
Care Recipients ◽  
Qualitative Descriptive ◽  
Male Caregivers

Abstract Stroke is a leading cause of death in China; its level of burden on the Chinese population is greater than the global average. Family caregiving plays an essential role in prevention and management of stroke. The purpose of this qualitative descriptive study was to identify actions family caregivers of stroke survivors in China take to prevent hospital readmissions. Using purposive sampling, adult family caregivers (n=10) were enrolled from Huai’an city in Jiangsu province who provided care for a survivor in community settings for six months or longer. Caregivers were asked questions in a face-to-face, semi-structured interview with content validity established by experts in the field. Audiotaped interviews were transcribed/translated into English and the narrative data analyzed using Colaizzi’s approach to content analysis. Seven female and three male caregivers with an average age of 55 years indicated actions that comprised six themes. These themes are: 1) Encouraging care recipients to be physically active, 2) Balancing a healthy diet with pleasurable foods, 3) Monitoring the physical health of care recipients and preventing injuries, 4) Developing personal and intimate strategies to motivate care recipients, 5) Providing emotional support and maintaining optimism, and 6) Gaining knowledge through relationships with doctors but desiring communication with other caregivers. Recognizing these actions taken by stroke family caregivers may improve education programs aimed at preventing hospital readmissions and be applicable throughout the world. Findings may also guide healthcare professionals who can advocate with Chinese local, provincial, and central health commissions on stroke survivors and their family caregivers’ behalf.

scholarly journals FEASIBILITY OF CARRES MODULES TO REDUCE POTENTIALLY AVOIDABLE HOSPITALIZATIONS IN PERSONS WITH COGNITIVE DEFICITS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S288-S288
Author(s):  
Victoria Steiner ◽  
Linda Pierce ◽  
Carol Bryan
Keyword(s):  
Family Caregivers ◽  
Cognitive Deficits ◽  
Family Caregiving ◽  
Hospital Readmissions ◽  
Well Being ◽  
Community Dwelling ◽  
Care Recipient ◽  
Wide Audience ◽  
Avoidable Hospitalizations ◽  
Care Recipients

Abstract Family caregiving is an essential, yet understudied, factor that can hasten, delay, or prevent hospital readmissions in individuals with cognitive deficits. This 3-month feasibility study examined 18 Internet-based educational CARREs (Communicate, Assist, Recognize & Report Events) Modules for family caregivers that address care recipients’ potentially avoidable hospitalization (PAH) conditions, e.g. UTI. This study determined: 1) caregivers’ perceptions about the use of the CARREs Modules, 2) caregivers’ self-reported value of the Modules, and 3) potential outcomes for caregivers and care recipients. Community-dwelling family caregivers were recruited from local support/education programs and assigned 6-8 Modules based on their care recipients’ needs. Links to online surveys were emailed at baseline, and 30 and 90 days post-enrollment. Descriptive statistics were performed on these data. Twenty potential subjects were screened but five were ineligible and three refused to participate. The remaining 12 subjects were primarily White females caring for a husband or parent. Subjects completed all the Modules they were assigned and did not experience any difficulties answering the survey questions. Subjects reported completing the Modules at least moderately increased their knowledge (67%), not being burdened by completing the Modules (67%), and very likely to participate again (58%). Many subjects stated the Modules taught them new things about preventing hospital readmissions in their care recipient (75%) and improved their well-being as a caregiver (83%). In collaboration with a home care agency, the investigators plan to implement and test a sustainable, “real-world” educational intervention incorporating the CARREs Modules that reaches a wide audience of family caregivers.

scholarly journals Benefits finding among Chinese family caregivers of stroke survivors: a qualitative descriptive study

BMJ Open ◽  
2020 ◽  
Vol 10 (10) ◽  
pp. e038344
Author(s):  
Yong-Xia Mei ◽  
Beilei Lin ◽  
Weihong Zhang ◽  
Dong-Bin Yang ◽  
Shan-Shan Wang ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Healthy Lifestyle ◽  
Chinese Family ◽  
Stroke Survivors ◽  
Chinese Community ◽  
Structured Interviews ◽  
Research Reporting ◽  
Positive Attitudes ◽  
Qualitative Descriptive ◽  
Caregiver Burdens

ObjectivesThe caregiving experience includes both caregiver burdens and benefits finding. However, the benefits obtained by family caregivers of stroke survivors in Chinese community dwellings are unknown. The objective of this study was to explore the benefits experienced by family caregivers of stroke survivors in Chinese community dwellings.DesignA qualitative descriptive design was used, fulfilling the consolidated criteria for the Standards for Reporting Qualitative Research reporting guidelines. Semi-structured interviews were conducted with 20 family caregivers of stroke survivors. The interviews were audiotaped, transcribed and analysed. Thematic analysis was performed to analyse the interview transcripts.Setting and participantsHome interviews were conducted with family caregivers of stroke survivors in two communities in Zhengzhou, China.ResultsThe family caregivers of stroke survivors experienced various benefits from caregiving. There were both internal benefits (increases in knowledge and skills, the development of positive attitudes, and the development of a sense of worthiness and achievement) and external benefits (family growth and gains in social support), which interact to create a healthy lifestyle.ConclusionOur findings provide a comprehensive perspective in understanding the benefits perceived by family caregivers of stroke survivors. This study provides insights into interventions focused on identifying benefits finding in six domains that may help reduce negative emotions and promote the mental health of caregivers.

Protective preparation: a process central to family caregivers of persons with mild cognitive impairment

2017 ◽  
Vol 30 (3) ◽  
pp. 375-384 ◽  
Author(s):  
Ching-Lin Wang ◽  
Li-Min Kuo ◽  
Yi-Chen Chiu ◽  
Hsiu-Li Huang ◽  
Huei-Ling Huang ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiving ◽  
Healthcare Providers ◽  
Theory Approach ◽  
Face To Face ◽  
The Family ◽  
The Impact

ABSTRACTBackground:To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.Methods:A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.Results:One core theme emerged: “protective preparation.” This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.Conclusions:Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.

Cyberbullying—A Shrouded Crime: Experiences of South African Undergraduate Students

2020 ◽  
Vol 20 (2) ◽  
pp. 370-386
Author(s):  
Roshini Pillay ◽  
Glenda Sacks
Keyword(s):  
South African ◽  
Undergraduate Students ◽  
Structured Interview ◽  
Emotional Impact ◽  
Snowball Sampling ◽  
Descriptive Case Study ◽  
Face To Face ◽  
The Social ◽  
Social Media Platforms ◽  
Qualitative Descriptive

Crimes in the 21st century using technology as a medium are complex and evolving rapidly. One such crime that is difficult to define is cyberbullying, which extorts an emotional impact on the victim. This qualitative, descriptive case study considers the experiences of 10 undergraduate students regarding what they self-disclosed as cyberbullying. Snowball sampling was used, and the data collected using face-to-face interviews were analyzed using content analysis. The research instrument used was a semi-structured interview schedule. Findings revealed that nine of the participants knew the identity of the bully. Some of the social media platforms used for the cyberbullying included Facebook, Mxit, and WhatsApp, whereby the types of bullying included harassment, flaming, and denigration. Some gender differences were evident in the verbalized emotions of the sample and the support systems the female participants used. This study can serve as a catalyst for further research and interventions for the development of strategies and educational programs to manage this type of bullying.

scholarly journals A Systematic Review of Interventions That Reduce Family Caregiving Time

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 269-269
Author(s):  
Eric Jutkowitz ◽  
Joseph Gaugler ◽  
Zachary Baker
Keyword(s):  
Systematic Review ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Family Care ◽  
Care Gap ◽  
Health Trends ◽  
Care Recipients ◽  
Multicomponent Interventions ◽  
Published Research

Abstract Due to multiple long-term sociodemographic and health trends contributing to the impending family care gap, there likely is no single policy or intervention that could increase the number of family caregivers in the U.S. to the levels required to fill such a gap. However, the amount of time that a family caregiver spends providing assistance is potentially mutable. Given the pressing concerns of the family care gap, identifying interventions or approaches that could reduce existing caregiving time is of considerable importance. This presentation provides the results of a systematic review of published research to identify the effects of interventions on the amount of time family caregivers spend on their caregiving tasks. Pharmaceutical approaches directed to care recipients, technology interventions, case management, multicomponent interventions, and care settings all appeared to reduce caregiving time. Improved operationalization, study design, and similar factors will help guide future intervention research to reduce caregiving time.

scholarly journals Exploring Clinical Supervision Model employed by Qualified Nursing Staff at Mbarara Regional Referral Hospital and its Contribution to Students’ Competencies

2021 ◽  
Author(s):  
◽  
Mark Opio
Keyword(s):  
Clinical Supervision ◽  
Nurse Practitioners ◽  
Nursing Staff ◽  
Professional Growth ◽  
Structured Interview ◽  
Self Directed Learning ◽  
Face To Face ◽  
Qualitative Descriptive ◽  
Directed Learning ◽  
Supervision Model

Background. Clinical supervision is an instructional face-to-face interaction between the supervisor and the supervisee which enables the supervisee to perform his/her job better. There is a various model which is being used in the supervision of students which includes coaching, mentorship, preceptorships, and individualized model when used leads to the acquisition of knowledge, skills, improve performance and students competencies. The purpose of the study was to explore clinical supervision models employed by qualified nursing staff at MRRH and their contribution to students’ competencies Methodology. A qualitative descriptive design was employed in this study. The purposive sampling method was used to recruit 9 participants. Data collection was done by in-depth interview method using a semi-structured interview guide. Inductive content analysis was used to generate the themes and categories. Results. The study findings revealed three themes that emerged as the participants’ descriptions of the clinical supervision model. These themes included coaching, self-directed learning, and individualized learning. Conclusion and Recommendation. The supervisory model used by the qualified staff in this study was coaching; mentoring, self-directed learning that enhances professional growth and skills competencies as well as promoting the relationship between the supervisor and the supervisee. The use of supervisory models in clinical practice should be emphasized so that nurse practitioners use them to provide the best learning to approach that enables students to achieve competencies. Integration of supervisory models in the nurse curriculum so that they know the importance of when they qualify and utilize them during the supervision of students to maximized learning in a clinical setting.

scholarly journals Factors related to adverse mental health condition of demented family caregivers: A study in West Bengal, India

2019 ◽  
Vol 82 (4) ◽  
pp. 373-388
Author(s):  
Ipsita Basu ◽  
Susmita Mukhopadhyay
Keyword(s):  
Mental Health ◽  
Psychological Distress ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Health Condition ◽  
Health Conditions ◽  
Mental Health Condition ◽  
Related Factors ◽  
Mental Health Conditions ◽  
Care Recipients

Abstract Dementia caregiving is a unique and the caregivers faces extreme challenges which affect care-giver’s mental health adversely. Family caregiving towards elderly individuals with dementia is becoming widespread. The study aims to evaluate the mental health status of dementia family caregivers and some related factors that affect their mental health condition. Present cross sectional study includes a total of 134 family caregivers. Socio-demographic and caregiving related data were collected using pre-tested questionnaires. Standardized questionnaires were used to collect data on caregivers’ mental health traits (measured in terms of level of stress and anxiety), level of psychosocial distress, support they provided and the care recipient’s behavioural symptoms associated with dementia. Mean age of the caregivers was 61.64 years (SD 13.89) while the care recipients were above 70 years of age. Mean age of care recipients was 75.46±7.26 years. Alzheimer’s type of dementia was the most common type found among them. Higher level of stress and anxiety was prevalent among the caregivers. Level of education, being a spouse, psychological distress has strong relationship with caregivers’ mental health condition. Behavioural abnormalities of care recipients were also responsible for poor mental health conditions of caregivers. Family caregiving is becoming the most suitable option nowadays and it associated with caregivers’ psychological distress and other health issues. Present study also revealed distressed mental health conditions of caregivers. Since care recipients remain dependent mostly on their family care-givers, it is necessary that caregivers should be fit mentally as well as physically. Therefore, proper support and management is needed for caregivers in near future.

scholarly journals Changes in Family Caregiver Roles and Interactions During the COVID-19 Pandemic

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 935-935
Author(s):  
Rajean Moone ◽  
Elizabeth Lightfoot Kamal Abdi Suleiman ◽  
Courtney Kutzler ◽  
Jacob Otis ◽  
Kenneth Turck ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Assisted Living ◽  
Family Members ◽  
Virus Transmission ◽  
Structured Interview ◽  
Mitigation Strategies ◽  
Care Recipient ◽  
Federal State ◽  
Care Recipients ◽  
State And Local

Abstract Family caregivers provide the majority of support for older adults and people with disabilities in the U.S. The onset of the COVID-19 pandemic forced radical changes in duties and relationships between family caregivers and care recipients. These changes can be attributed to fears of virus transmission as well as federal, state and local government mitigation strategies resulting in social distancing and quarantining limiting caregiving interactions. This qualitative investigation conducted 55 Zoom interviews over summer 2020 with family caregivers to explore their changing roles and duties during the pandemic. Researchers utilized a semi-structured interview guide to explore caregiver experiences with COVID-19. The average age of the caregiver participants was 59 and the average age of the care recipients for whom they provided care was 74. All participants provided unpaid care for family members. Interviews were conducted in English (n=40), Spanish (n=5), Somali (n=5) and Korean (n=5). Care recipients resided in a facility (nursing home, memory care, ICF-DD, or other assisted living) (70%) with the caregiver (20%), and in a separate independent setting (10%). Data from each interview were coded into themes by two researchers. Themes that emerged from the analyses included concerns about care recipient mental and physical health deterioration, lack of communication from formal providers, change in relationships with other family members, and future concerns. Implications for additional research and practice are included.

scholarly journals The Experiences of Caregivers of Persons Living with Dementia in Jamaica during COVID-19

2021 ◽  
Vol 7 ◽  
pp. 233372142110433
Author(s):  
Marissa Stubbs ◽  
Ishtar Govia ◽  
Janelle N. Robinson ◽  
Rochelle Amour ◽  
Emily Freeman
Keyword(s):  
Family Caregivers ◽  
Economic Status ◽  
Direct Costs ◽  
Family Carers ◽  
Face To Face ◽  
Care Recipients ◽  
Health Fairs ◽  
Depth Interview ◽  
Ethical Approval ◽  
Cross National

This article provides descriptive insights of the experiences of family caregivers of persons living with dementia during the COVID-19 pandemic. Data were generated as part of a qualitative cross-national project to explore the costs and consequences of providing unpaid dementia care. Participants in Jamaica, who were recruited using community gatekeepers, information booths at health fairs, conferences, and other outreach events, were contacted by telephone to discuss their experiences of the pandemic. When face-to-face in-depth interview data collection was suspended due to the pandemic, ethical approval was received to contact all research participants who were informal unpaid family caregivers, both those whose care recipients had died and those who were active caregivers ( N = 19). Participants in this study were the 10 active family caregivers ( n F = 8; aged 45+; 60% from high socio-economic status). Their updates and reflections during these calls were documented in fieldnotes and analyzed for key themes. Data showed that the pandemic has illustrated the direct costs, both financial and otherwise, that informal dementia carers bear in Jamaica. It also intensified pre-existing challenges faced by family carers. We provide recommendations for sustainable support for family carers.

scholarly journals Safety Accidents and Coping Experiences among Family Caregivers Caring for Community-Dwelling Persons Living with Dementia

2021 ◽  
Vol 23 (4) ◽  
pp. 352-360
Author(s):  
Ji Yeon Lee ◽  
Ha Rim Lee ◽  
Kyung Hee Lee
Keyword(s):  
Family Caregivers ◽  
Qualitative Content Analysis ◽  
Community Dwelling ◽  
Information And Communications Technology ◽  
Face To Face ◽  
Community Environment ◽  
Care Services ◽  
Care Recipients ◽  
Safety Accident ◽  
And Coping

Purpose: The purpose of this study was to understand experiences in safety accidents and coping among family caregivers of persons living with dementia.Methods: Data were collected through face-to-face interviews with 10 family caregivers who are the main caregivers of community-dwelling persons living with dementia. Inductive qualitative content analysis was conducted to reveal themes.Results: Three major themes emerged in this study: 1) various safety accident experiences, 2) coping with safety accidents, and 3) concern for the prevention of safety accidents. Family caregivers experienced various risks when caring for their care recipients with reduced cognitive function and trying to cope with a tailored method for persons living with dementia. However, family caregivers eventually recognized that none of the methods were perfect for preventing dangers and looked forward to the emergence of new methods to ensure a safe environment.Conclusion: Dementia care services and tailored information and communications technology (ICT) should be provided to promote the safety of persons living with dementia and their family caregivers in the community environment.

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