scholarly journals Participatory action research and co-researching as a tool for situating youth knowledge at the centre of research

Author(s):  
Staci B. Martin ◽  
Jessica H. Burbach ◽  
Lulis Lares Benitez ◽  
Irisa Ramiz

Too often youth from vulnerable communities see themselves talked about in academic research, but are rarely involved as co-researchers or co-authors of research. The purpose of this article is to share our reflections on engaging youth, their experiences and their perspectives on the multi-levels of impact of participatory action research methodologies, such as community-based action research or youth participatory action research. This article discusses more broadly how our participatory methodologies have impacted our co-researchers and ourselves. In it, we provide additional details about our past research projects, as well as theorizing those details in terms of how critical theory serves as a tool within participatory methodologies. We reflect on the experiences engaging participatory methodologies in two different contexts and examine the collective impacts, comparing and contrasting the findings. We draw on our field research: one researcher worked with co-researchers from Kakuma Refugee Camp, Kenya, and the other worked alongside youth co-researchers from an alternative secondary school in the USA. Two of our co-authors are also co-researchers, and they offer a deeper insight into how these methodologies impacted their lives.

Author(s):  
Margaret Greenfields

This chapter discusses the methods, processes, and outcomes of a Comic Relief-funded three-year community development and advocacy programme undertaken with Refugee and Asylum-Seeking Women (RASW) in London. It focuses on how the use of participatory action research and training delivered by RASW can challenge and inform the way in which ‘professionals’ deliver health and legal services to vulnerable communities. The project, undertaken during 2012–15 by Independent Academic Research Services, a London-based charity, was co-designed with participant beneficiaries with the explicit aim of generating institutional change and increased gender sensitivity in the treatment of RASW, both through harnessing research findings to drive policy and practice change and by allowing women themselves to articulate the problems they currently face in terms of accessing appropriate support.


BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e049564
Author(s):  
Mary Abboah-Offei ◽  
Akosua Gyasi Darkwa ◽  
Andrews Ayim ◽  
Adelaide Maria Ansah-Ofei ◽  
Delanyo Dovlo ◽  
...  

IntroductionWith rapid urbanisation in low-income and middle-income countries, health systems are struggling to meet the needs of their growing populations. Community-based Health Planning and Services (CHPS) in Ghana have been effective in improving maternal and child health in rural areas; however, implementation in urban areas has proven challenging. This study aims to engage key stakeholders in urban communities to understand how the CHPS model can be adapted to reach poor urban communities.Methods and analysisA Participatory Action Research (PAR) will be used to develop an urban CHPS model with stakeholders in three selected CHPS zones: (a) Old Fadama (Yam and Onion Market community), (b) Adedenkpo and (c) Adotrom 2, representing three categories of poor urban neighbourhoods in Accra, Ghana. Two phases will be implemented: phase 1 (‘reconnaissance phase) will engage and establish PAR research groups in the selected zones, conduct focus groups and individual interviews with urban residents, households vulnerable to ill-health and CHPS staff and key stakeholders. A desk review of preceding efforts to implement CHPS will be conducted to understand what worked (or not), how and why. Findings from phase 1 will be used to inform and co-create an urban CHPS model in phase 2, where PAR groups will be involved in multiple recurrent stages (cycles) of community-based planning, observation, action and reflection to develop and refine the urban CHPS model. Data will be managed using NVivo software and coded using the domains of community engagement as a framework to understand community assets and potential for engagement.Ethics and disseminationThis study has been approved by the University of York’s Health Sciences Research Governance Committee and the Ghana Health Service Ethics Review Committee. The results of this study will guide the scale-up of CHPS across urban areas in Ghana, which will be disseminated through journal publications, community and government stakeholder workshops, policy briefs and social media content. This study is also funded by the Medical Research Council, UK.


2017 ◽  
Vol 16 (3) ◽  
pp. 319-338 ◽  
Author(s):  
Florence Nyemba ◽  
Minna Mayer

This article is based on a dialog with Professor Marja-Liisa Swantz, a distinguished participatory action research expert whose work has contributed immensely in the fields of development studies, women's studies, health, and technology internationally. Drawing from her experiences, the conversation provides an insight into how one can grow from a novice researcher to a very distinguished intellectual by staying focused and with a clear grasp of one's aspirations. We also learn from this dialog how participatory action research emerged as the most significant research style that argues in favor of involving participants as research partners in the knowledge production process.


Autism ◽  
2020 ◽  
Vol 24 (5) ◽  
pp. 1246-1259 ◽  
Author(s):  
Gary Yu Hin Lam ◽  
Emily Holden ◽  
Megan Fitzpatrick ◽  
Linda Raffaele Mendez ◽  
Karen Berkman

Past research has largely focused on the negative aspects of well-being of autistic young adults during the post-school transition. Research that meaningfully includes autistic individuals and captures their perspectives of positive well-being is essential for stakeholders to better understand how to provide services that respond to the needs and wants of the autistic community. In the current study, 14 autistic young adults in a post-school transition program participated in a Photovoice project and used photos to express their ideas about well-being. A participatory action research approach was used to support participants’ active engagement in the research processes and to encourage meaningful expression of their first-person perspectives. Results revealed an account of well-being reflecting expressions of individuality and growth, the significance of having close relationships, and a sense of connection with the community. This study has implications for research and practice that promotes well-being among the autistic community using approaches that are ethically informed and inclusive of autistic voices. Lay abstract Past research has mainly focused on autistic people’s deficits and poor outcomes compared to other groups of people. Little is known about their positive life experiences, and how to support them to achieve a higher quality of life. It is important to include autistic individuals in research so that they can influence how their voices are represented in a meaningful way and how the research results will be useful to them. In this study, a university researcher collaborated with 14 autistic young adults in a post-school transition program to design and run the research, collect and analyze the data, and use the results to create a presentation to the community. Specifically, the participants took photos in daily life and discussed their ideas about what a good life means to them. Results showed that these young adults described themselves as uniquely and different, but they were eager to learn and adapt. They also valued their relationships with their families, friends, and animals around them, as well as the community at large. This research shows that autistic individuals have important perspectives to share and knowledge to contribute when they are given the opportunities to participate in different aspects of research. The findings will be useful in developing services and influencing policies that promote well-being among autistic adults.


2014 ◽  
Vol 34 (4) ◽  
Author(s):  
Andrea Gossett Zakrajsek ◽  
Mansha Mirza ◽  
Nathan Kai-Cheong Chan ◽  
Tom Wilson ◽  
Mark Karner ◽  
...  

<p><span>Despite preference for community-based living, large numbers of people with psychiatric disabilities live in nursing homes throughout the US. Community-based services for this population are limited by public policy and service system barriers. This paper summarizes these barriers and presents the second phase of a participatory action research project jointly developed by university-based researchers and two Centers for Independent Living. A qualitative case study methodology was used to understand the experiences of three individuals with psychiatric disabilities reintegrating into the community from nursing homes. Findings revealed themes of social isolation, participation in virtual communities, variability of impairment experiences and unmet needs for community supports. In addition to thematic findings, action products were generated for the benefit of community partners. These products included national best practice resources and a needs assessment survey tool. Study findings and products point to specific systems change and policy recommendations to better support community reintegration for this population. These recommendations are discussed in light of U.S. healthcare reform and broader disability advocacy efforts.</span></p>


Author(s):  
Joanna Ochocka ◽  
Elin Moorlag ◽  
Rich Janzen

The purpose of this article is twofold: to explore the entry process in community-based research when researching sensitive topics; and to suggest a framework for entry that utilises the values of participatory action research (PAR). The article draws on a collaborative community-university research study that took place in the Waterloo and Toronto regions of Ontario, Canada, from 2005–2010. The article emphasises that community entry is not only about recruitment strategies for research participants or research access to community but it is also concerned with the ongoing engagement with communities during various stages of the research study. The indicator of success is a well established and trusted community-researcher relationship. This article first examines this broader understanding of entry, then looks at how community research entry can be shaped by an illustrative framework, or guide, that uses a combination of participatory action research (PAR) values and engagement strategies. Key words: research entry, community engagement, participatory action research, mental health and cultural diversity


Author(s):  
Marjorie Mayo

Governments have supported popular education initiatives in the past. And so have community organisations and social movements. But the spaces for popular education have been shrinking in recent times, as part of the impact of neo-liberal globalisation. Public services have been increasingly subjected to pressures from market forces, pressures that have impacted on community-based education and lifelong learning. Despite these wider pressures, educators have continued to find spaces and places for popular education and participatory action research, however, working across sectors in a variety of contexts. The chapter includes examples of innovatory approaches in both formal settings and informal settings (such as libraries and community centres) including examples from both Northern and Southern American contexts.


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