scholarly journals (…) Obrałam sobie cel, by żyć i mieć nad tym życiem kontrolę – zachowania w chorobie przyjmowane przez chorych na SM w celu utrzymania niezależnego funkcjonowania

Author(s):  
Kamila Smyczek
Keyword(s):  

Przedmiotem rozważań zawartych w artykule są zachowania w chorobie podejmowane przez osoby chore na stwardnienie rozsiane (SM). W artykule przez powyższe rozumie się szereg świadomie realizowanych przez osobę chorą powiązanych ze sobą zachowań, mających pomóc jej w utrzymaniu względnie niezależnego funkcjonowania społecznego. W toku analizy podjęto próbę odpowiedzi na poniższe pytania: jakiego rodzaju zachowania wypracowują osoby chore? jakie są motywacje wpływające na kontynuowanie (bądź zaprzestanie) przyjętych zachowań? jakie zachowania osoby chorujące na stwardnienie rozsiane uznają za „korzystne”, a jakie za „ryzykowne” dla swojego stanu zdrowia? Dociekania zawarte w tekście odnoszą się do subiektywnych znaczeń nadawanych chorobie, dlatego ich teoretyczną wykładnię stanowi koncepcja „zachowań w chorobie” (illness behaviour) autorstwa Davida Mechanica. W celu dotarcia do owych subiektywnych interpretacji i znaczeń, jakie chorzy nadają swojemu SM, zastosowano metodę jakościową, przeprowadzono 30 wywiadów swobodnych z osobami chorymi na SM (postać remisyjno-rzutowa). Ich opinie, opisy wdrażanych działań, przeżytych doświadczeń, emocji i znaczeń, jakie im przypisują, stanowiły przedmiot analizy. Złożoność choroby (SM), nieznajomość jej przyczyn oraz niepewność dotycząca jej przebiegu były czynnikami wpływającymi na to, co osoby chore rozumieją przez „względnie niezależne funkcjonowanie społeczne”, oraz na to, jakie stosują zachowania w chorobie.

2003 ◽  
Author(s):  
Winfried Rief ◽  
Daniel Ihle ◽  
Florian Pilger
Keyword(s):  

2020 ◽  
pp. 003329412094560
Author(s):  
Jennifer Murray ◽  
Brian Williams

If illness behaviour is to be fully understood, the social and behavioural sciences must work together to understand the wider forms in which illness is experienced and communicated with individuals and society. The current paper synthesised literature across social and behavioural sciences exploring illness experience and communication through physical and mental images. It argues that images may have the capacity to embody and influence beliefs, emotions, and health outcomes. While four commonalities exist, facilitating understandings of illness behaviour across the fields (i.e., understanding the importance of the patient perspective; perception of the cause, sense of identity with the illness, consequences, and level of control; health beliefs influencing illness experience, behaviours, and outcomes; and understanding illness beliefs and experiences through an almost exclusive focus on the written or spoken word), we will focus on exploring the fourth commonality. The choice to focus on the role of images on illness behaviour is due to the proliferation of interventions using image-based approaches. While these novel approaches show merit, there is a scarcity of theoretical underpinnings and explorations into the ways in which these are developed and into how people perceive and understand their own illnesses using image representations. The current paper identified that the use of images can elucidate patient and practitioner understandings of illness, facilitate communication, and potentially influence illness behaviours. It further identified commonalities across the social and behavioural sciences to facilitate theory informed understandings of illness behaviour which could be applied to visual intervention development to improve health outcomes.


1988 ◽  
Vol 152 (3) ◽  
pp. 418-420 ◽  
Author(s):  
Gillian Caradoc-Davies

A man presenting with factitious alcohol abuse and its alleged complications is described. It is argued that chronic factitious disorders are more logically viewed as part of that spectrum of conditions where there is abnormal illness behaviour, including somatoform disorders and other related conditions, than as separate nosological or diagnostic entities.


2013 ◽  
Vol 24 (2) ◽  
pp. 275-282 ◽  
Author(s):  
Edward Callus ◽  
Elisabeth M. W. J. Utens ◽  
Emilia Quadri ◽  
Cristian Ricci ◽  
Mario Carminati ◽  
...  

AbstractObjectives: The purpose of this study was to investigate whether the objective medical parameters related to congenital heart disease and patients’ ratings of cardiac disease severity were related to psychological well-being and illness behaviour during the pre-operative period.Methods: A total of 143 patients (63 male patients; 16–73 years old) with congenital heart disease evaluated the severity of their cardiac condition using a numerical rating scale ranging from 0, indicating the least severe condition, to 100, indicating the most severe condition. Psychological well-being was assessed using the Psychological General Well-Being Index (total score ≤60 indicating severe distress) and illness behaviour using the Illness Behavior Questionnaire.Results: Pre-operative psychological well-being was not related to the objective medical parameters reflecting cardiac disease severity. In contrast, total psychological well-being scores correlated significantly with patients’ subjective ratings of disease severity (p < 0.001). When compared with the reference values from the Italian population, the mean scores of the patients on psychological well-being were similar. As regards the Illness Behavior Questionnaire, the scores on denial were higher and those on hypochondria were lower compared with other hospitalised patients.Conclusions: This study shows that the perception of cardiac disease severity, and not the medical parameters in congenital heart disease, is related to the patients’ pre-operative psychological state. Thus, more importance needs to be given to assessing the patients’ pre-operative perception and psychological state independently of cardiac severity. Targeted interventions with regard to the cardiac condition are recommended.


2003 ◽  
Vol 54 (5) ◽  
pp. 405-414 ◽  
Author(s):  
Winfried Rief ◽  
Daniel Ihle ◽  
Florian Pilger

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