scholarly journals Assessing How Health Information Needs of Individuals With Colorectal Cancer Are Met Across the Care Continuum: an International Cross-Sectional Survey

2020 ◽  
Author(s):  
Hallie Dau ◽  
Abdollah Safari ◽  
Khalid Saad El Din ◽  
Helen McTaggart-Cowan ◽  
Jonathan M. Loree ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Health Information ◽  
Information Needs ◽  
P Value ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Care Continuum ◽  
Nutrition And Diet ◽  
Health Related ◽  
Survey Responses

Abstract Background: Studies evaluating health information needs in colorectal cancer (CRC) lack specificity in terms of study samples involving patients. We assessed how health information needs of individuals with CRC are met across the care continuum.Methods: We administered an international, online based survey. Participants were eligible for the study if they: 1) were 18 years of age or older; 2) received a diagnosis of CRC; and 3) were able to complete the online health survey in English, French, Spanish, or Mandarin. We grouped participants according to treatment status. The survey comprised sections: 1) demographic and cancer characteristics; 2) health information needs; and 3) health status and quality of life. We used multivariable regression models to identify factors associated with having health information needs met and evaluated impacts on health-related outcomes.Results: We analyzed survey responses from 1,041 participants including 258 who were currently undergoing treatment and 783 who had completed treatment. Findings suggest that information needs regarding CRC treatments were largely met. However, we found unmet information needs regarding psychosocial impacts of CRC. This includes work/employment, mental health, sexual activity, and nutrition and diet. We did not identify significant predictors of having met health information needs, however, among participants undergoing treatment, those with colon cancer were more likely to have met health information needs regarding their treatments as compared to those with rectal cancer (0.125; 95% CI, 0.00 to 0.25; p-value = 0.051). Conclusions: Our study provides a comprehensive assessment of health information needs among individuals with CRC across the care continuum.

scholarly journals Assessing how health information needs of individuals with colorectal cancer are met across the care continuum: An international cross-sectional survey

2020 ◽  
Author(s):  
Hallie Dau ◽  
Abdollah Safari ◽  
Khalid Saad El Din ◽  
Helen McTaggart-Cowan ◽  
Jonathan M. Loree ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Health Information ◽  
Information Needs ◽  
P Value ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Care Continuum ◽  
Nutrition And Diet ◽  
Health Related ◽  
Survey Responses

Abstract Background: Studies evaluating health information needs in colorectal cancer (CRC) lack specificity in terms of study samples involving patients. We assessed how health information needs of individuals with CRC are met across the care continuum.Methods: We administered an international, online based survey. Participants were eligible for the study if they: 1) were 18 years of age or older; 2) received a diagnosis of CRC; and 3) were able to complete the online health survey in English, French, Spanish, or Mandarin. We grouped participants according to treatment status. The survey comprised sections: 1) demographic and cancer characteristics; 2) health information needs; and 3) health status and quality of life. We used multivariable regression models to identify factors associated with having health information needs met and evaluated impacts on health-related outcomes.Results: We analyzed survey responses from 1,041 participants including 258 who were currently undergoing treatment and 783 who had completed treatment. Findings suggest that information needs regarding CRC treatments were largely met. However, we found unmet information needs regarding psychosocial impacts of CRC. This includes work/employment, mental health, sexual activity, and nutrition and diet. We did not identify significant predictors of having met health information needs, however, among participants undergoing treatment, those with colon cancer were more likely to have met health information needs regarding their treatments as compared to those with rectal cancer (0.125; 95% CI, 0.00 to 0.25; p-value = 0.051).Conclusions: Our study provides a comprehensive assessment of health information needs among individuals with CRC across the care continuum.

scholarly journals Assessing how health information needs of individuals with colorectal cancer are met across the care continuum: An international cross-sectional survey

2020 ◽  
Author(s):  
Hallie Dau ◽  
Abdollah Safari ◽  
Khalid Saad El Din ◽  
Helen McTaggart-Cowan ◽  
Jonathan M. Loree ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Health Information ◽  
Information Needs ◽  
P Value ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Care Continuum ◽  
Nutrition And Diet ◽  
Health Related ◽  
Survey Responses

Abstract Background: Studies evaluating health information needs in colorectal cancer (CRC) lack specificity in terms of study samples involving patients. We assessed how health information needs of individuals with CRC are met across the care continuum.Methods: We administered an international, online based survey. Participants were eligible for the study if they: 1) were 18 years of age or older; 2) received a diagnosis of CRC; and 3) were able to complete the online health survey in English, French, Spanish, or Mandarin. We grouped participants according to treatment status. The survey comprised sections: 1) demographic and cancer characteristics; 2) health information needs; and 3) health status and quality of life. We used multivariable regression models to identify factors associated with having health information needs met and evaluated impacts on health-related outcomes.Results: We analyzed survey responses from 1,041 participants including 258 who were currently undergoing treatment and 783 who had completed treatment. Findings suggest that information needs regarding CRC treatments were largely met. However, we found unmet information needs regarding psychosocial impacts of CRC. This includes work/employment, mental health, sexual activity, and nutrition and diet. We did not identify significant predictors of having met health information needs, however, among participants undergoing treatment, those with colon cancer were more likely to have met health information needs regarding their treatments as compared to those with rectal cancer (0.125; 95% CI, 0.00 to 0.25; p-value = 0.051).Conclusions: Our study provides a comprehensive assessment of health information needs among individuals with CRC across the care continuum.

scholarly journals Assessing how health information needs of individuals with colorectal cancer are met across the care continuum: an international cross-sectional survey

BMC Cancer ◽  
2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Hallie Dau ◽  
Abdollah Safari ◽  
Khalid Saad El Din ◽  
Helen McTaggart-Cowan ◽  
Jonathan M. Loree ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Health Information ◽  
Information Needs ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Care Continuum ◽  
Nutrition And Diet ◽  
Health Related ◽  
Survey Responses ◽  
Multivariable Regression Models

Abstract Background Studies evaluating health information needs in colorectal cancer (CRC) lack specificity in terms of study samples involving patients. We assessed how health information needs of individuals with CRC are met across the care continuum. Methods We administered an international, online based survey. Participants were eligible for the study if they: 1) were 18 years of age or older; 2) received a diagnosis of CRC; and 3) were able to complete the online health survey in English, French, Spanish, or Mandarin. We grouped participants according to treatment status. The survey comprised sections: 1) demographic and cancer characteristics; 2) health information needs; and 3) health status and quality of life. We used multivariable regression models to identify factors associated with having health information needs met and evaluated impacts on health-related outcomes. Results We analyzed survey responses from 1041 participants including 258 who were currently undergoing treatment and 783 who had completed treatment. Findings suggest that information needs regarding CRC treatments were largely met. However, we found unmet information needs regarding psychosocial impacts of CRC. This includes work/employment, mental health, sexual activity, and nutrition and diet. We did not identify significant predictors of having met health information needs, however, among participants undergoing treatment, those with colon cancer were more likely to have met health information needs regarding their treatments as compared to those with rectal cancer (0.125, 95% CI, 0.00 to 0.25, p-value = 0.051). Conclusions Our study provides a comprehensive assessment of health information needs among individuals with CRC across the care continuum.

scholarly journals Generic health literacy of adolescents in Germany: Results of a nationwide cross-sectional survey

2021 ◽  
Vol 31 (Supplement_3) ◽  
Author(s):  
S Jordan ◽  
OM Domanska ◽  
AK Loer
Keyword(s):  
Health Literacy ◽  
Health Information ◽  
Online Survey ◽  
Demographic Factors ◽  
Age Group ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Effective Interventions ◽  
Health Related ◽  
Socio Demographic Factors

Abstract Background For developing effective interventions to promote health literacy in adolescence, differentiated data on the distribution of health literacy levels is required, but still lacking for this age group in many countries. The study aims to measure the distribution of generic health literacy (GHL) among adolescents addressing cognitive, behavioural, communicative and motivational dimensions of GHL. Methods We conducted a representative nationwide cross-sectional online survey among 14-17-year-olds living in Germany (n = 1,235). Data on GHL were collected from 09.2019-12.2019 using the “Measurement of Health Literacy Among Adolescents”-Questionnaire (MOHLAA-Q). It was specially developed for this age-group and consists of a total of 29 items in four subscales: A: “Difficulties in Dealing with Health-Related Information”, B: “Health-Related Communication Skills”, C: “Attitudes toward One's Own Health & Health Information” and D: “Health-Related Knowledge”. We also collected data on socio-demographic factors. Bivariate and multiple logistic regression analyses were carried out. Results About half of the 14-17-year-olds reported many (8.4%) or some difficulties (42.2%) in dealing with health information. We observed low communication-related skills in 28.1% of adolescents. Regarding the attitude towards their own health and health information, 56.8% of respondents had a rather “partly passive/partly active” attitude and 8.8% had a “passive” attitude. 22.7% of the adolescents had a low level of health-related knowledge. All socio-demographic factors apart from age showed significant differences in each of the scales: by family affluence in all scales, by gender and by educational level in 3 scales and by migration background in 1 scale. Conclusions The results indicate a need for promoting GHL among adolescents. The differences in the four scales suggest that all dimensions of GHL should be addressed, but also considering socio-demographic factors at the same time.

scholarly journals Associations of Health Literacy, Social Media Use, Self-efficacy and Health Information Seeking Intentions among Chinese Social Media Users (Preprint)

2020 ◽  
Author(s):  
Zhaomeng Niu ◽  
Bo Li ◽  
Jessica Willoughby ◽  
Ze Li ◽  
Rongting Zhou
Keyword(s):  
Social Media ◽  
Health Literacy ◽  
Health Information ◽  
Self Efficacy ◽  
Behavioral Intentions ◽  
Media Use ◽  
Cross Sectional Survey ◽  
Social Media Use ◽  
Cross Sectional ◽  
Health Related

BACKGROUND Empirical research has demonstrated that people frequently use social media for gathering and sharing online health information. Health literacy, social media use, and self-efficacy are important factors that may influence people’s health behaviors online. OBJECTIVE This study aims to examine the associations between health literacy, health-related social media use, self-efficacy and health behavioral intentions online. METHODS We conducted a cross-sectional survey of Chinese adults aged 18 and above (N = 449) to examine predictors of health-related behavioral intentions online including health literacy, social media use, and self-efficacy. Hayes’ PROCESS macro was used to analyze the mediation and moderation models. RESULTS Two moderated mediation models were constructed. Self-efficacy mediated the effects of health literacy (Bindirect=0.213, 95% CI: 0.101 to 0.339) and social media use (Bindirect=0.023, 95% CI: 0.008 to 0.045) on health behavioral intentions on social media. Age moderated the effects of health literacy on self-efficacy (P=.029), while previous experience moderated the effects of social media use on self-efficacy (P<.001). CONCLUSIONS Health literacy and health-related social media use influenced health behavioral intentions on social media via their prior effects on self-efficacy. The association between health literacy and self-efficacy was stronger among younger respondents, whereas the association between health-related social media use and self-efficacy was stronger among those who previously had positive experiences with health information on social media. Health practitioners should target self-efficacy among older population and increase positive media experience related to health. CLINICALTRIAL

scholarly journals What You Don’t Know Might Hurt You: Cost Variations for Fecal Immunochemical Tests in Primary Care Practices

2021 ◽  
Author(s):  
Jennifer Coury ◽  
Katrina Ramsey ◽  
Rose Gunn ◽  
Jon Judkins ◽  
Melinda Davis
Keyword(s):  
Colorectal Cancer ◽  
Primary Care ◽  
P Value ◽  
Fecal Occult Blood ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Effective Manner ◽  
Care Practices ◽  
Primary Care Practices ◽  
The Cost

Abstract Background Colorectal cancer (CRC) screening can improve health outcomes, but screening rates remain low across the US. Fecal immunochemical testing (FIT) is an effective way to screen more people for colorectal cancer, but barriers exist to implementation in clinical practice. Little research examines the impacts of cost on FIT selection and implemention. Methods We administered a multi-modal, cross-sectional survey to 252 primary care practices to assess readiness and implementation of direct mail fecal testing programs, including the cost and types of FIT used. We analyzed the range of costs for the tests, and identified practice and test procurement factors. We examined the distributions of practice characteristics for FIT use and costs answers using the non-parametric Wilcoxon rank-sum test. We used Pearson's chi-squared test of association and interpreted a low p-value (e.g. <0.05) as evidence of association between a given practice characteristic and knowing the cost of FIT or fecal occult blood test (FOBT). Results Among the 84 practice survey responses, more than 10 different types of FIT/FOBTs were in use; 76% of practices used one of the five most common FIT types. Only 40 practices (48%) provided information on the cost of their FIT/FOBTs. Thirteen (32%) of these practices received the tests for free while 27 (68%) paid for their tests; median reported cost of a FIT was $3.04, with a range from $0.83 to $6.41 per test. Costs were not statistically significant different by FIT type. However, practices who received FITs from vendors were more likely to know the cost (p = 0.0002) and, if known, report a higher cost (p = 0.0002). Conclusions Our findings indicate that most practices without lab or health system supplied FITs are spending more to procure tests. Cost of FIT may impact the willingness of practices to distribute FITs in clinic-based encounters as well as through population outreach strategies, such as mailed FIT. Differences in the ability to obtain FIT tests in a cost-effective manner could have far reaching consequences for addressing colorectal cancer screening disparities in primary care practices.

The use of online health related information by medical students and their trust in the retrieved information

2019 ◽  
Author(s):  
Reza Khajouei ◽  
Zahra Karbasi ◽  
Moghaddameh Mirzaee ◽  
Arefeh Ameri ◽  
Leila Ahmadian
Keyword(s):  
Medical Students ◽  
Online Education ◽  
Health Information ◽  
The Internet ◽  
Cross Sectional Survey ◽  
Chi Square ◽  
Cross Sectional ◽  
Related Information ◽  
Health Related ◽  
Use Of The Internet

Abstract Background The Internet plays an important role in attaining health related information and its importance is growing worldwide. The majority of Internet users are university students. However, their use of the Internet for health information has not been well studied. The objective of this study was to examine the use of the Internet by medical students to search for health information. Methods This cross-sectional survey was performed on a sample of 400 Medicine, Dentistry and Pharmacology students selected from three faculties. The data were collected using a valid and reliable questionnaire designed based on the review of the published literature and advice of a panel of experts. Data were analyzed by SPSS 20 using Chi-square and Logistic regression.Results In this study 261 (65.2%) students used the Internet to search for health information. Most of them (n=175, 67%) somewhat trusted the reliability of information on the Internet. Women used the Internet to search for health information 1.74 times than men (p=0.016) and Medicine students 1.7 times than Pharmacology students (p=0.04). The majority of 20-30 years old students believed that using Internet had no effect on their visits to physicians(p=<0.0001). It reduced the number of visits in all students older than 30. Conclusions The content of online resources needs to be monitored in terms of its credibility for using by students especially those involved in health care domain. Based on our findings most students somewhat trusted the online health information. This is promising for the universities to plan for investment on online education and materials.

scholarly journals Designing a portal to patient-centered care? Let�s start with the patient. A cross-sectional survey. (Preprint)

2017 ◽  
Author(s):  
Steve Alfons Van den Bulck ◽  
Rosella Hermens ◽  
Karin Slegers ◽  
Bert Vandenberghe ◽  
Geert Goderis ◽  
...  
Keyword(s):  
Decision Making ◽  
Health Information ◽  
Shared Decision Making ◽  
Information Needs ◽  
Patient Portal ◽  
Shared Decision ◽  
Cross Sectional Survey ◽  
Patient Centered ◽  
Cross Sectional ◽  
Centered Care

BACKGROUND In recent literature, patient portals are considered as important tools for the delivery of patient-centered care. Yet, it is not clear how patients would conceptualize a patient portal and which health information needs they have when doing so. OBJECTIVE 1) To investigate health information needs, expectations and attitudes towards a patient portal. 2) To assess if determinants such as patient characteristics, health literacy and empowerment status can predict two different variables, namely the importance people attribute to obtaining health information when using a patient portal and the expectations concerning personal healthcare when using a patient portal. METHODS A cross-sectional survey was performed in the Flemish population on what patients prefer to know about their digital health data and on their expectations and attitudes towards using a patient portal to access their Electronic Health Record. People were invited to participate in the survey through newsletters, social media and magazines. We used a questionnaire including demographics, health characteristics, health literacy, patient empowerment and patient portal characteristics. RESULTS We received 433 completed surveys. The health information needs included features such as being notified when one’s health changes (93.7%, 371/396), being notified when physical parameters rise to dangerous levels (93.7%, 370/395), to see connections between one’s symptoms/diseases/biological parameters (85.2%, 339/398), to view the evolution of one’s health in function of time (84.5%, 333/394) and to view information about the expected effect of treatment (88.4%, 349/395). Almost 90% (369/412) of respondents were interested in using a patient portal. Determinants of patients’ attachment to obtaining health information on a patient portal were 1) age between 45 and 54 years (P = .047); 2) neutral (P = .030) or interested attitude (P = .008) towards shared decision-making; 3) commitment to question the physicians’ decisions (P = .030). (R2 = .122) Determinants of patients’ expectations on improved healthcare by accessing a patient portal were 1) lower education level (P = .040); 2) neutral (P = .030) or interested attitude (P = .008) towards shared decision-making; 3) problems in understanding health information (P = .037). (R2 = .106) CONCLUSIONS The interest in using a patient portal is considerable in Flanders. People report they would like to receive alerts or some form of communication from a patient portal in case they need to take action to manage their health. Determinants such as education, attached importance to shared decision-making, difficulties in finding relevant health information and the attached importance to questioning the decisions of physicians need to be taken into account in the design of a patient portal.

scholarly journals What You Don’t Know Might Hurt You: Cost Variations for Fecal Immunochemical Tests in Primary Care Practices

2021 ◽  
Author(s):  
Jennifer Coury ◽  
Katrina Ramsey ◽  
Rose Gunn ◽  
Jon Judkins ◽  
Melinda Davis
Keyword(s):  
Colorectal Cancer ◽  
Primary Care ◽  
P Value ◽  
Fecal Occult Blood ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Effective Manner ◽  
Care Practices ◽  
Primary Care Practices ◽  
The Cost

Abstract BackgroundColorectal cancer (CRC) screening can improve health outcomes, but screening rates remain low across the US. Fecal immunochemical testing (FIT) is an effective way to screen more people for colorectal cancer, but barriers exist to implementation in clinical practice. Little research examines the impacts of cost on FIT selection and implementation. MethodsWe administered a multi-modal, cross-sectional survey to 252 primary care practices to assess readiness and implementation of direct mail fecal testing programs, including the cost and types of FIT used. We analyzed the range of costs for the tests, and identified practice and test procurement factors. We examined the distributions of practice characteristics for FIT use and costs answers using the non-parametric Wilcoxon rank-sum test. We used Pearson's chi-squared test of association and interpreted a low p-value (e.g. <0.05) as evidence of association between a given practice characteristic and knowing the cost of FIT or fecal occult blood test (FOBT). ResultsAmong the 84 practice survey responses, more than 10 different types of FIT/FOBTs were in use; 76% of practices used one of the five most common FIT types. Only 40 practices (48%) provided information on the cost of their FIT/FOBTs. Thirteen (32%) of these practices received the tests for free while 27 (68%) paid for their tests; median reported cost of a FIT was $3.04, with a range from $0.83 to $6.41 per test. Costs were not statistically significant different by FIT type. However, practices who received FITs from vendors were more likely to know the cost (p=0.0002) and, if known, report a higher cost (p=0.0002).ConclusionsOur findings indicate that most practices without lab or health system supplied FITs are spending more to procure tests. Cost of FIT may impact the willingness of practices to distribute FITs in clinic-based encounters as well as through population outreach strategies, such as mailed FIT. Differences in the ability to obtain FIT tests in a cost-effective manner could have far reaching consequences for addressing colorectal cancer screening disparities in primary care practices.

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