scholarly journals Psychometric Comparison of the Performance of Quality of Life Assessment Instruments in Dermatology—the DLQI, Skindex-16, and Skindex-17—in a Brazilian Population.

2021 ◽  
Author(s):  
Marilia Formentini Scotton Jorge ◽  
Ioana Bittencourt Mourão ◽  
Ticiane Dionisio Sousa ◽  
Camila Fernandes Pollo ◽  
Silmara Meneguin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Life Quality ◽  
Physical Symptoms ◽  
Life Assessment ◽  
Response Theory ◽  
Psychometric Performance ◽  
Brazilian Sample ◽  
Adult Age

Abstract Background: The DLQI (Dermatology Life Quality Index) is the most commonly used instrument for evaluating the quality of life in dermatology. Skindex was developed as a multidimensional instrument with successive versions published, the most recent being Skindex-16 and Skindex-17, both derived from Skindex-29 through different techniques. This study aimed to compare the three instruments—the DLQI, Skindex-16, and Skindex-17—according to their psychometric performance to refine the assessment of the quality of life among dermatological patients.Methods: A methodological study compared the psychometric performance of the DLQI, Skindex-16 (Sk-16), and Skindex-17 (Sk-17) instruments among adults with dermatoses that were classified according to characteristic physical symptoms and psychological or social domains. Analyses were performed to assess internal consistency, correlation, test-retest reproducibility, and responsiveness according to classical psychometry and to test discrimination and difficulty according to the item response theory.Results: The sample consisted of 229 patients predominantly women (71%) of adult age (average 45 years) and intermediate phototypes (III and IV = 73%). The analyses of internal consistency for the instruments resulted in Cronbach-α coefficients >0.80. There was adequate test-retest reproducibility and responsiveness for all dimensions of the instruments. The IRT (Iten Response Theory) analysis indicated adequate ordering and discrimination (a >1.0) for all items of the DLQI, Sk-16, and Sk-17; four items of Sk-16 did not adequately adhere to the TRI model (p <0.01 ). The items with the greatest discrimination were q3 (domestic activities) and q5 (leisure activities) in the DLQI; F2 (desire to be with people) and E6 (annoyance) in Sk-16; and S4 (irritated skin), P5 (relationship), and P6 (autonomy of tasks) in Sk-17. The Sk-16 and Sk-17 instruments presented more items that registered mild impacts on the quality of life (b <-0.5).Conclusions: The DLQI, Sk-16, and Sk-17 presented adequate psychometric performance for the assessment of health-related quality of life in a Brazilian sample. The multidimensional instruments (Sk-16 and Sk-17) were more sensitive to mild impacts on quality of life.

The Keloid Intervention Benefit Inventory 21: A New Assessment Tool for the Quality of Life of Patients with Auricular Keloids

2021 ◽  
Author(s):  
Daniel Häussler ◽  
Stefanie Hüttemann ◽  
Christel Weiß ◽  
Nicole Karoline Rotter ◽  
Haneen Sadick
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Social Impact ◽  
Assessment Tool ◽  
Clinical Symptoms ◽  
Physical Symptoms ◽  
Medical Intervention ◽  
Medical Interventions ◽  
Before And After

Abstract Purpose The assessment of the quality of life (QoL) of patients with chronic diseases before and after medical interventions has gained increasing importance in recent decades. Particularly for patients with visible keloid scars in the head and neck region, standardized measurement tools are either absent or have been shown to be insufficient. The aim of the present study was to create a new standardized questionnaire that is specific to auricular keloid patients and reflects their clinical symptoms and QoL. Methods The Keloid Intervention Benefit Inventory 21 (KIBI-21) questionnaire was developed in two stages. First, a group of experts identified a pool of 26 questions and modified and supplemented the items through a comparison with existing QoL assessments so that they related to keloid-specific clinical symptoms and the QoL of patients with auricular keloids before and after a medical intervention. This questionnaire was distributed to 27 outpatients who had undergone medical interventions for visible auricular keloids. Second, a sequential statistical analysis was conducted. This included a single-item assessment and reduction, analysis for internal consistency, construct validity, and divergence validity as well as a factor analysis. The analyses were performed for the entire questionnaire and for the items in the subcategories General Health, Physical Symptoms, Self-Esteem, and Social Impact. Results The final version of this newly validated and standardized KIBI questionnaire consisted of 21 items, of which each item was assigned to only one subscale. The questionnaire showed a Cronbach's α of 0.84 with a good internal consistency. In the item correlation validity, strong associations were found in all subscales, except for the Social Impact Subscale. Conclusion The keloid-specific QoL questionnaire KIBI-21 proved to be a reliable and reproducible instrument to assess the QoL and clinical symptoms in patients suffering from auricular keloids before and after a medical treatment.

scholarly journals Evaluation of a Novel Quality of Life Scale for Schoolchildren with Nonstrabismic Binocular Vision Anomalies

2020 ◽  
Vol 2020 ◽  
pp. 1-7
Author(s):  
Jiali Hu ◽  
Guokun Wang ◽  
Zhe Zhou ◽  
Yan Sun ◽  
Qingling Zhang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Binocular Vision ◽  
Discriminant Validity ◽  
Life Quality ◽  
Life Assessment ◽  
Average Score ◽  
Control Group ◽  
Quality Of Life Scale ◽  
Life Scale

Background. The professional Quality of Life Scale (QLS) can provide a valuable reference for the diagnosis of visual function anomalies. In the present study, we aimed to design a novel QLS to specially quantify the life quality of schoolchildren with nonstrabismic binocular vision anomalies (NSBVAs) in China. Methods. The novel QLS, named QOL-CVF20, was established based on classical vision-related scales and the administration of the questionnaire to 116 schoolchildren with NSBVAs and 100 healthy schoolchildren in China. The diagnostic reference value between QOL-CVF20 and VF-14 was evaluated on the questionnaires to 240 schoolchildren with NSBVAs and 238 healthy schoolchildren. Results. All the subjects could complete the QOL-CVF20 questionnaires independently. QOL-CVF20 had good structural validity, content validity, and discriminant validity, when it was applied in Chinese schoolchildren. The average score of the NSBVA group was significantly lower than that of the control group (49.0±6.9 vs. 69.7±6.7, respectively; P<0.01). Moreover, the average score of cured NSBVA schoolchildren after treatment (61.8±22.6) was significantly improved (P<0.01). Receiver operating characteristic curve analysis showed that QOL-CVF20 reflected strong separation between the NSBVA and healthy groups (AUC=0.901). Meanwhile, QOL-CVF20 could detect individuals with NSBVAs with specificity of 0.847 and sensitivity of 0.846. The critical value of 58.50 in QOL-CVF20 could be effectively applied for quality of life assessment in schoolchildren with NSBVAs. Conclusions. QOL-CVF20 could quantify the life quality of schoolchildren with NSBVAs and might be served as a valuable reference for early diagnosis and clinical evaluation of NSBVAs.

Skin Cancer and Quality of Life: Assessment With the Dermatology Life Quality Index

2004 ◽  
Vol 30 (4) ◽  
pp. 525-529 ◽  
Author(s):  
John S. Rhee ◽  
B. Alex Matthews ◽  
Marcy Neuburg ◽  
Timothy L. Smith ◽  
Mary Burzynski ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Skin Cancer ◽  
Dermatology Life Quality Index ◽  
Quality Index ◽  
Life Quality ◽  
Life Assessment ◽  
Quality Of Life Assessment ◽  
Life Quality Index

scholarly journals A qualidade de vida de estudantes que ingressam na universidade na meia-idade

2019 ◽  
Vol 87 (217) ◽  
Author(s):  
Denise Raposo
Keyword(s):  
Quality Of Life ◽  
Human Development ◽  
Middle Age ◽  
Life Quality ◽  
Adult Age ◽  
The University ◽  
Superior Education ◽  
In Virtue Of ◽  
Educational Field

Os estudos acerca do desenvolvimento humano na idade adulta e no envelhecimento têm instigado o interesse de teóricos do assunto, em virtude do aumento do tempo de vida da população. Constata-se, no campo educacional, entre os anos de 1996 e 2003, um crescimento do número de pessoas que ingressaram na universidade na meia-idade. Com base no interesse em dar continuidade ao estudo sobre a entrada na universidade, o presente artigo tem como objetivo discutir a qualidade de vida de estudantes que ingressam na universidade após os 45 anos de idade; para tanto, foram revisados os estudos de Baltes (1970, 1977, 1990, 1995, 1997, 1999) e Neri (1985, 1991, 1993, 1995, 2002). A metodologia utilizada foi ancorada na abordagem qualitativa. Os resultados revelam que os respondentes antes de ingressarem no ensino superior vivenciaram um período de estabilidade e que, após selecionarem suas metas e otimizarem suas capacidades de reserva, apresentaram melhorias na qualidade de vida. Conclui-se, com base nos argumentos relatados pelos estudantes, que o desenvolvimento deve ser visto sob vários prismas – biológicos, psicológicos, sociais – e num processo de interação. Palavras-chave: idade adulta; desenvolvimento humano; qualidade de vida. Abstract The studies concerning human development in the adult age and aging have instigated the interest of theoreticians, in virtue of the increase of life expectancy of the population. It is evidenced, in the educational field, between 1996 and 2003, a growth of the number of people who had entered the university in middle age. On the basis of the interest in continuing the study on university entrance, the present article aims at arguing the quality of life of students who entered the university after the age of 45; therefore, the studies of Baltes (1970, 1977, 1990, 1995, 1997, 1999) and Neri (1985, 1991, 1993, 1995, 2002) were revised. The used methodology was anchored in the qualitative approach. The results reveal that, before entering superior education, the respondents had deeply lived a period of stability and that, after selecting their goals and optimizing their capacities of reserve, had presented improvements in their life quality. One concluded, on the basis of the students’ arguments, that the development must be seen under some conditions biological, psychological, social and in a process of interaction. Keywords: adult age; human development; quality of life.

scholarly journals Validation of a Filipino Translation of the Children's Dermatology Life Quality Index Text Version

2020 ◽  
Vol 54 (3) ◽  
Author(s):  
Paula Karina N. Gonzales-Carait ◽  
Rowena F. Genuino ◽  
Katrina Angela Z. Reyes ◽  
Belen L. Dofitas
Keyword(s):  
Quality Of Life ◽  
Construct Validity ◽  
Internal Consistency ◽  
Skin Disease ◽  
Dermatology Life Quality Index ◽  
Quality Index ◽  
Skin Diseases ◽  
Life Quality ◽  
Internal Consistency Reliability

Background. Skin diseases that are longstanding or highly symptomatic can have devastating consequences in the quality of life of children. There is a need to have a validated Filipino translation of a dermatology quality of life tool for young patients with skin diseases. Objectives. To assess the validity and reliability of the Indeks ng Kalidad ng Buhay Pang-dermatolohiya ng mga Bata (IKPaB), a Filipino translation of the Children’s Dermatology Life Quality Index (CDLQI). Methods. This cross-sectional study was conducted among children aged 4 to 16 years at a tertiary hospital outpatient department. The IKPaB was pretested and revised using focus group discussion until it was approved by the original developers for validation. Face validity was determined through cognitive debriefing interviews. Construct validity was determined by comparing IKPaB scores of participants with skin disease and without skin disease using Mann-Whitney U test. Criterion validity was determined by comparing IKPaB with a validated Filipino-translated PedsQL as the criterion, using Spearman rank correlation. Internal consistency reliability was determined using Cronbach’s coefficient. Multiple regression was used to correlate age, sex and disease duration. Results. The IKPaB was assessed to be comprehensible, clear, and culturally appropriate. Among 288 participants, it showed satisfactory construct validity (U = 8849, Z= 0.87; P = 0.89) and internal consistency reliability (α = 0.89), with a negative but weak correlation with the PedsQL® (rho= -0.300, P = 0.000). Conclusion. The IKPaB is a valid and reliable Filipino translation of CDLQI. We recommend further validation for use in clinical practice and research.

Nepali Linguistic Validation of the Velopharyngeal Insufficiency Effects on Life Outcomes Instrument: VELO-Nepali

2020 ◽  
Vol 57 (8) ◽  
pp. 967-974 ◽  
Author(s):  
Michael M. Lindeborg ◽  
Pramila Shakya ◽  
Bhawani Pradhan ◽  
Shiba Kala Rai ◽  
Kabita Bhattarai Gurung ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Concurrent Validity ◽  
Discriminant Validity ◽  
Life Assessment ◽  
Velopharyngeal Insufficiency ◽  
Cognitive Interviews ◽  
Life Outcomes ◽  
Low Middle Income Countries

Objective: To translate and validate the velopharyngeal insufficiency (VPI) effects on life outcomes (VELO) instrument into Nepali, and test its internal consistency and validity. Design: Quality-of-life instrument translation and validation. Setting: Community served by Nepal’s craniofacial referral hospital. Participants: Twenty-three postpalatoplasty children with VPI, 19 family guardians of VPI cases, and 29 non-VPI controls. Interventions: The VELO instrument was translated to Nepali by 2 independent bilingual translators, reconciled, backward-translated, compared, and modified using patient cognitive interviews. All VPI children, guardians, and controls completed the VELO-Nepali. Main Outcome Measure(s): The VELO internal consistency was evaluated using Cronbach α coefficient. Concurrent validity and discriminant validity were assessed using 2-sample t test: assuming unequal variances. Results: The VELO was translated and optimized using cognitive interviews. The VELO-Nepali demonstrated excellent internal consistency, with Cronbach α coefficients of 0.93, 0.94, and 0.90 for VPI cases, guardians of VPI cases, and non-VPI controls, respectively. The VELO-Nepali exhibited strong discriminant validity between VPI cases ([Formula: see text] = 45.4, standard deviation [SD] = 22.1) and non-VPI controls ([Formula: see text] = 84.9, SD = 12.3), ( P < .001). The VELO-Nepali showed strong concurrent validity with similarities in VPI case scores ([Formula: see text] = 45.4, SD = 22.1), and guardian scores ([Formula: see text] = 52.9, s = 22.8; P = .473). Conclusion: The translated VELO-Nepali demonstrates strong internal consistency, discriminant validity, and concurrent validity, and can assess quality of life for Nepali VPI patients. This instrument represents the first VPI quality of life assessment validated in Nepali, and supports the feasibility of its implementation in other low- and low-middle-income countries.

scholarly journals The Evolution of Quality of Life Assessment and Use in Dermatology

Dermatology ◽  
2019 ◽  
Vol 235 (3) ◽  
pp. 167-174 ◽  
Author(s):  
Pavel V. Chernyshov
Keyword(s):  
Quality Of Life ◽  
Skin Diseases ◽  
Life Quality ◽  
Life Assessment ◽  
Core Outcome Sets ◽  
The Moment ◽  
Development And Validation ◽  
The Impact ◽  
Selection Of

The creation of the Dermatology Life Quality Index (DLQI) questionnaire facilitated many studies on the impact of skin diseases on patients’ quality of life (QoL). Many national and international guidelines recommend QoL assessment in dermatology, and some of them contain detailed recommendations on treatment goals and changes of treatment approaches based on DLQI score banding and minimal clinically important difference. The methodology of QoL in strument development and validation is constantly becoming more rigorous. Initiatives on selection of core outcome sets for skin diseases are focused on clinical trials but may also be beneficial for clinicians. There are various benefits of using QoL information in clinical practice, but experience of this is very limited at the moment. QoL assessment in dermatology is a rapidly developing field with a gradual shift from theory to practice.

Quality of Life Assessment in Turkish Patients with Schizophrenia and Their Relatives

2004 ◽  
Vol 95 (1) ◽  
pp. 197-206 ◽  
Author(s):  
Köksal Alptekin ◽  
Berna Binnur Akdede ◽  
Yildiz Akvardar ◽  
Songül çelikgün ◽  
N. Sinem Dilşen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Life Quality ◽  
Life Assessment ◽  
World Health ◽  
World Health Organization Quality ◽  
Control Subjects ◽  
Health Organization ◽  
And Control ◽  
Turkish Patients

Quality of life of first-degree relatives living in the same household with patients having schizophrenia has not been sufficiently explored. 30 patients with schizophrenia (16 women, 14 men), diagnosed using DSM–IV criteria, 31 of their relatives (15 women, 16 men), and 34 control subjects (21 women, 13 men) were included in the study. The mean age of the patients, their relatives, and the control subjects were 39.8 ± 10.9, 58.1 ± 12.5 and 37.3 ± 17.0, respectively. The World Health Organization Quality of Life–Brief Form was administered to all subjects. Quality of life was worse for the patient group than for their relatives and control subjects, but relatives of the patients and control subjects were not significantly different on Quality of life. Quality of life was negatively correlated with the severity of psychopathology and extrapyramidal side effects induced by antipsychotic drugs in the patients.

scholarly journals Using the Dermatology Life Quality Index to Assess How Breast Radiodermatitis Affects Patients’ Quality of Life

2019 ◽  
Vol 13 ◽  
pp. 117822341983554 ◽  
Author(s):  
Laura Curr Beamer ◽  
Marcia Grant
Keyword(s):  
Quality Of Life ◽  
Principal Component Analysis ◽  
Internal Consistency ◽  
Dermatology Life Quality Index ◽  
Quality Index ◽  
Life Quality ◽  
Principal Component ◽  
Component Analysis ◽  
Life Quality Index

Purpose: The purpose of this study is to report the initial validation process for using the Dermatology Life Quality Index (DLQI) for radiodermatitis of the breast. Methods: This is an additional analysis of a study designed to report a longitudinal study in skin-related and global quality of life in women with breast radiodermatitis. A total of 40 participants completed the DLQI instrument weekly while receiving external radiotherapy of the female breast. At week 5 on treatment, 31 (78%) participants provided narrative feedback on how each DLQI item affected her life. Agreement between participant DLQI numerical ratings and narrative feedback on items was assessed. Construct validity was estimated using principal component analysis (PCA). Internal consistency of the DLQI was assessed using Cronbach alpha. Results: Percentage of agreement between participant DLQI ratings and narratives ranged from 71% to 98%. Each participant responded “no” to the work and study item leading to zero variance and removal from our analyses. Principal component analysis supported the inclusion of all of the remaining items. The DLQI with nine remaining items demonstrated moderately good internal consistency (α = .69). Conclusions: The results of our examination of the DLQI when used for breast radiodermatitis are promising. Next steps include additional larger studies among more diverse populations.

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