The Keloid Intervention Benefit Inventory 21: A New Assessment Tool for the Quality of Life of Patients with Auricular Keloids

2021 ◽  
Author(s):  
Daniel Häussler ◽  
Stefanie Hüttemann ◽  
Christel Weiß ◽  
Nicole Karoline Rotter ◽  
Haneen Sadick
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Social Impact ◽  
Assessment Tool ◽  
Clinical Symptoms ◽  
Physical Symptoms ◽  
Medical Intervention ◽  
Medical Interventions ◽  
Before And After

Abstract Purpose The assessment of the quality of life (QoL) of patients with chronic diseases before and after medical interventions has gained increasing importance in recent decades. Particularly for patients with visible keloid scars in the head and neck region, standardized measurement tools are either absent or have been shown to be insufficient. The aim of the present study was to create a new standardized questionnaire that is specific to auricular keloid patients and reflects their clinical symptoms and QoL. Methods The Keloid Intervention Benefit Inventory 21 (KIBI-21) questionnaire was developed in two stages. First, a group of experts identified a pool of 26 questions and modified and supplemented the items through a comparison with existing QoL assessments so that they related to keloid-specific clinical symptoms and the QoL of patients with auricular keloids before and after a medical intervention. This questionnaire was distributed to 27 outpatients who had undergone medical interventions for visible auricular keloids. Second, a sequential statistical analysis was conducted. This included a single-item assessment and reduction, analysis for internal consistency, construct validity, and divergence validity as well as a factor analysis. The analyses were performed for the entire questionnaire and for the items in the subcategories General Health, Physical Symptoms, Self-Esteem, and Social Impact. Results The final version of this newly validated and standardized KIBI questionnaire consisted of 21 items, of which each item was assigned to only one subscale. The questionnaire showed a Cronbach's α of 0.84 with a good internal consistency. In the item correlation validity, strong associations were found in all subscales, except for the Social Impact Subscale. Conclusion The keloid-specific QoL questionnaire KIBI-21 proved to be a reliable and reproducible instrument to assess the QoL and clinical symptoms in patients suffering from auricular keloids before and after a medical treatment.

EFFECTIVENESS OF KNEE BRACES IN THE TREATMENT OF KNEE OSTEOARTHRITIS : AN EVIDENCE BASED CASE REPORT

2021 ◽  
Author(s):  
Muhammad Sobri Maulana
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Knee Osteoarthritis ◽  
Clinical Symptoms ◽  
Physical Symptoms ◽  
Degenerative Joint Disease ◽  
Joint Disease ◽  
Serious Adverse Events ◽  
Knee Braces

Introduction: Osteoasthritis is a degenerative joint disease characterized by boney inflammation. Thetreatment goals are to reduce physical symptoms and to improve quality of life through exercises,biomechanical interventions, and pharmacological management.Objectives: To find out the effectiveness of knee braces compared to no treatment or otherconservative treatment for improving the quality of life in patients with knee osteoarthritis.Methods: Literatures were taken from OVIDMedline®, EBMreviews®, and Cochrane®. Threesystematic reviews were selected and critically appraised using standard criteria for interventionresearch.Results: Two systematic reviews had acceptable validity, while another systematic review neededfurther improvement for the methodological quality. High heterogeneity was shown from all reviews.Knee braces is considered as applicable based on the appraisal. One systematic review did notrecommend the use of knee braces for patients without any specific conditions.Discussion: All results stated that knee braces could improve clinical symptoms and quality of lifewithout any serious adverse events. The superiority of knee braces compared to other conservativetreatment and/or no treatment still remained as a question due to inconclusive evidences. Differenttypes of knee braces showed different effectiveness to different types of osteoarthritis, which may alsocontributed to high heterogeneity.Conclusion: 1) In patients with knee osteoarthritis, the use of knee braces can improve thequality of life. 2) It is inconclusive whether knee braces are more effective to improve thequality of life of patients with knee osteoarthritis compared to other conservative treatment.

scholarly journals Psychometric Comparison of the Performance of Quality of Life Assessment Instruments in Dermatology—the DLQI, Skindex-16, and Skindex-17—in a Brazilian Population.

2021 ◽  
Author(s):  
Marilia Formentini Scotton Jorge ◽  
Ioana Bittencourt Mourão ◽  
Ticiane Dionisio Sousa ◽  
Camila Fernandes Pollo ◽  
Silmara Meneguin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Life Quality ◽  
Physical Symptoms ◽  
Life Assessment ◽  
Response Theory ◽  
Psychometric Performance ◽  
Brazilian Sample ◽  
Adult Age

Abstract Background: The DLQI (Dermatology Life Quality Index) is the most commonly used instrument for evaluating the quality of life in dermatology. Skindex was developed as a multidimensional instrument with successive versions published, the most recent being Skindex-16 and Skindex-17, both derived from Skindex-29 through different techniques. This study aimed to compare the three instruments—the DLQI, Skindex-16, and Skindex-17—according to their psychometric performance to refine the assessment of the quality of life among dermatological patients.Methods: A methodological study compared the psychometric performance of the DLQI, Skindex-16 (Sk-16), and Skindex-17 (Sk-17) instruments among adults with dermatoses that were classified according to characteristic physical symptoms and psychological or social domains. Analyses were performed to assess internal consistency, correlation, test-retest reproducibility, and responsiveness according to classical psychometry and to test discrimination and difficulty according to the item response theory.Results: The sample consisted of 229 patients predominantly women (71%) of adult age (average 45 years) and intermediate phototypes (III and IV = 73%). The analyses of internal consistency for the instruments resulted in Cronbach-α coefficients >0.80. There was adequate test-retest reproducibility and responsiveness for all dimensions of the instruments. The IRT (Iten Response Theory) analysis indicated adequate ordering and discrimination (a >1.0) for all items of the DLQI, Sk-16, and Sk-17; four items of Sk-16 did not adequately adhere to the TRI model (p <0.01 ). The items with the greatest discrimination were q3 (domestic activities) and q5 (leisure activities) in the DLQI; F2 (desire to be with people) and E6 (annoyance) in Sk-16; and S4 (irritated skin), P5 (relationship), and P6 (autonomy of tasks) in Sk-17. The Sk-16 and Sk-17 instruments presented more items that registered mild impacts on the quality of life (b <-0.5).Conclusions: The DLQI, Sk-16, and Sk-17 presented adequate psychometric performance for the assessment of health-related quality of life in a Brazilian sample. The multidimensional instruments (Sk-16 and Sk-17) were more sensitive to mild impacts on quality of life.

scholarly journals Quality of Life and Social Impact in Patiens with Laryngeal Tumors after Radiotherapy

2020 ◽  
Vol 71 ◽  
pp. 149-161
Author(s):  
Adriana NEAGOS ◽  
Cristian OLTEANU ◽  
Daniela MANUC ◽  
Oana Roxana BITERE ◽  
Mihail Dan COBZEANU ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Life ◽  
Social Impact ◽  
Sleep Problems ◽  
Statistical Significance ◽  
Important Place ◽  
Before And After ◽  
Laryngeal Tumors ◽  
Eortc Qlq

Malignant laryngeal tumor occupies an important place among ENT malignancies, representing 26% of head and neck cancers. The control of the disease and especially the quality of life are parameters often overlooked. The term "quality of life", has social impact too. The aim of this retrospective, observational study, is to evaluate the quality of life of patients with laryngeal tumors and the social impact in patients after the radiotherapy or radiochemotherapy. The group of study included 52 patients, diagnosed with histopathologically confirmed laryngeal tumors. The evaluation of the quality of life was done before and after surgery and during the radiotherapy and chemotherapy, weekly, for 8 weeks. The tools used to assess the quality of life, were the questionnaires EORTC QLQ-30 version 3.0, and EORTC QLQ 35. EORTC QLQ-30 version 3.0 showed a low score on scales such fatigue, pain and sleep problems, from the beginning of therapy. The symptoms that appeared during the treatment, with statistical significance were: fatigue, nausea / vomiting, pain and appetite problems. EORTC QLQ-35 signals from the beginning of therapy problems with the senses, voice, social life, cough, which increase in severity as the radiation dose increases. At the end of treatment, pain scales, senses, social life and dry mouth were affected. In conclusion, the patients with laryngeal tumors present an important degradation of the quality of life and social integration after the treatment and radiotherapy or chemoradiotherapy, situation that we must take into account in the therapeutic plan.

The influence of clinical stage, race, and gender on factors which impact quality of life in multiple myeloma.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e24126-e24126
Author(s):  
Meghan Luhowy ◽  
Katrina Binion ◽  
Tiffany Warfield ◽  
Rebecca Bosley ◽  
Elizabeth Krauss ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Myeloma ◽  
Social Impact ◽  
Financial Burden ◽  
Social Systems ◽  
Clinical Stage ◽  
Specific Treatment ◽  
Physical Symptoms ◽  
Patient Reported

e24126 Background: Multiple myeloma (MM) is unique among hematologic malignancies as an incurable disease. Patients are affected long-term by the disease symptoms as well as psychological, financial burden, and social impact, which may affect overall quality of life (QOL). The current literature related to QOL in MM is largely limited to a single clinical stage, impact concurrent with a specific treatment regimen, or focused on a single QOL factor. Changes in impact on QOL based on longitudinal follow up during the disease course have not been readily assessed. Here, we evaluated patient-reported QOL measures utilized by one time validated questionnaires. Methods: The study enrolled 100 participants in a sequential manner from the Myeloma Clinic at UMGCC with a diagnosis of plasma cell disorders at various stages: MGUS, smoldering myeloma, or multiple myeloma: newly diagnosed, maintenance, relapsed. Participants provided verbal responses to a series of questions listed in Table. Questions aligned with three main domains: physical symptoms and function, mental health, and social systems. The following is an interim analysis of the first 50 patients. Results: This sample of myeloma patients (N=50; males n=26), felt their QOL was impacted by myeloma symptoms (70%). More African American participants reported impact from financial burden (6, 50%) in comparison to Caucasian and other races (10, 26%). Interestingly, males reported less impact on sexual intimacy (3, 15%) than females (6, 43%). Females also reported more impact from financial burden (10, 42%) compared to males (6, 23%). Conclusions: Changes to impact on QOL as a function of clinical MM stage, race, and/or gender will be fully evaluated. Planned analyses include correlation statistics by age and social demographics to determine patterns in patient-reported outcomes. Finally, second interviews with current participants will be conducted to determine changes to impact across the same QOL variables over time.[Table: see text]

scholarly journals Introduction to verification of the GOHAI instrument for measuring the oral health-related quality of life in patients with dentures using the Serbian preliminary version: A pilot study

2015 ◽  
Vol 72 (12) ◽  
pp. 1055-1062 ◽  
Author(s):  
Zeljka Popovic ◽  
Ivanka Gajic ◽  
Kosovka Obradovic-Djuricic ◽  
Dragoslav Milosevic
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Pilot Study ◽  
Correlation Coefficient ◽  
Internal Consistency ◽  
High Reliability ◽  
Physical Symptoms ◽  
Average Score ◽  
Preliminary Version

Background/Aim. Quality of life related to health should be seen as a multidimensional concept that, in addition to the physical symptoms associated with a disease and treatment, should include physical, psychological and social functioning of a person. The primary objective of this study was to use the Serbian preliminary version of the Geriatric Oral Health Assessment Index (GOHAI) questionnaire in oder to examine the consistency, reliability and stability, as well as an introduction to the verification tool. Methods. The GOHAI questionnaire with 6-level Likert scale, translated into Serbian, including the relevant oral health characteristics (oral hygiene, required dentures, number of teeth extracted), was filled by five specialists in prosthodontics for 30 randomly selected respondents, before and after the dental prosthetic treatment. Subsequently, in order to measure the reliability of the questionnaire, 27 patients were reinterviewed. Results. The value of Cronbach's Alpha Coefficient (Cr?) before the treatment was 0.878, and after the treatment it was 0.788 confirming the internal consistency and stability of the questionnaire. The validity of discriminatory properties of the GOHAI was confirmed by the Spearman's correlation coefficient (r), which was highly significantly associated with oral health characteristics, confirming the high reliability of the measurement. The results of test-retest analysis measured by the individual Pearson's correlation coefficient (r) were in the range of 0.34-0.97, and for the total score r was 0.927, while the Kappa coefficient was 0.63. The correlation analysis of the GOHAI score before the treatment showed that for 10 questions there was a statistically significant correlation of the score with the answers to the questions, and for 6 questions Spearman?s r was ? 0.7. After the treatment a highly significant correlation of the GOHAI was shown with the answers to 10 questions, while for 5 questions the Spearman?s r was > 0.6. The GOHAI average score before the treatment was 19.44 ? 11.12, and after the treatment 2.77 ? 3.83, where the lower value indicates better quality of life. Conclusion. The results of this pilot study confirm internal consistency and stability of the Serbian preliminary version of the GOHAI questionnaire and the causal relation between the quality of life and the characteristics of oral health of the patients with dentures. Accordingly, instrument verification is recommended.

The Validity of the Smart Management Strategy for Health Assessment Tool-Life (SAT-Life) in General Population

2020 ◽  
Author(s):  
Young Ho Yun ◽  
Jin-ah Sim
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
General Population ◽  
Internal Consistency ◽  
Management Strategy ◽  
Assessment Tool ◽  
Health Assessment ◽  
Depression Score ◽  
South Korean

Abstract This study aimed to determine the reliability and validity of the life version of the Smart Management Strategy for Health Assessment Tool (SAT-Life) for the general South Korean population. We recruited 1,200 respondents using an equal-probability sampling method from March to May 2018. A life version of the Smart Management Strategy for Health Assessment Tool (SAT-Life) Cronbach’ α was used to determine the reliability of the 30-item SAT-Life. Comparisons with the Self-Reported Health Status (SRHS), Short Form-12 (SF-12), McGill Quality of Life Questionnaire (MQOL), Patient Health Questionnaire-9 (PHQ-9), and Satisfaction with Life Scale (SWLS) were conducted for establishing the discriminant and concurrent validity. Three sets of SAT-Life demonstrated a high reliability with good internal consistency (Cronbach’ α 0.86 for SAT-Core, 0.88 for SAT-Preparation, and 0.86 for SAT-Implementation). The total scores of the three SAT differentiated well between the before-maintenance group versus the maintenance group for achieving goals in the participants, and between the group with high depression score versus that with lower depression score in the general population. These SAT-Life scores were positively associated with health status and physical and mental quality of life (QOL). The scores of the SAT-Life were correlated with social support and spiritual well-being measured using the MQOL, and life satisfaction measured using SWLS. The 30-item SAT-Life had a satisfactory internal consistency and validity for the general South Korean population. Further validation should be carried out in a cohort study across different cultures, including an assessment of sensitivity.

scholarly journals Analysis Regarding Quality of Life of Menopausal Women on Clinical Disorders during Menopausal Period, on Sukomanunggal Sub-District Surabaya in 2019

2019 ◽  
Vol 15 (2) ◽  
pp. 111
Author(s):  
Salmon Charles Siahaan ◽  
Hendera Henderi ◽  
Ardelia C V ◽  
Ridzal W ◽  
Azyvati KP
Keyword(s):  
Quality Of Life ◽  
Social Relations ◽  
Clinical Symptoms ◽  
Psychological Symptoms ◽  
Physical Symptoms ◽  
Menopausal Woman ◽  
Cross Sectional ◽  
Menopausal Women ◽  
Spearman Correlation Test

Abstract: Approximately 70% of women in the peri period and post menopause experience vasomotor complaints, depression, psychological and somatic complaints. The severity of the symptoms will be different for each woman. This research was conducted to find out whether the clinical symptoms that appear in menopausal women will cause disruption to quality of life. This study was conducted on menopausal women at Geriatric Poly at Simomulyo Health Center Surabaya in March - April 2019 using cross sectional method. Questionnaire was used to measure clinical symptoms in menopausal women and the QOLWHO-BREF questionnaire to assess the quality of life of menopausal women. Menopausal women in this study were at the age of 60.89 + 6.55 years. Menarche at the age of 12.49 + 1.74 years and Menopause at 49.41 + 4.88 years. For the BMI category mean at 24.33 + 4.02 kg / m2. Based on contraception used, it was found that most of women used combination pills (36.8%). Menopausal complaints consist of physical complaints and psychological complaints, for the major complaints from physical are complaints regarding bone and joint pain (86.5%) and for major complaints from psychological factor is a decrease in sexual desire (72.9%). The category of the amount of variety clinical symptoms that appear in each woman, it was found that at most of menopausal women felt 3 complaints (67.6%; 13.24 + 1.76). For the quality of life (WHOQOL) results, the overall quality of life criteria is in the very bad and bad category with the environmental domain being the lowest (3.04 + 10.93) and the better category compare than the other is the social relations domain (29.82 + 4.74) . The results of data analysis through the Spearman correlation test showed that there was a relationship between the number of complaints with a decrease in quality of life (Z = 3.15433; p = 0.00164) and it was found that menopausal women with complaints of menopause affected the decrease quality of life (Z = -4.30769; p <0.00001). Based on this study it was found that the factors that significantly influence the quality of life of a menopausal woman are clinical symptoms that appear both from physical symptoms and psychological symptoms. appears also has a significant effect on decreasing the quality of life of a menopausal woman Keyword: Menopause, clinical symtoms, quality of life

scholarly journals IMPACT OF THE GYNECOLOGICAL INTERVENTIONS ON THE PATIENTS' QUALITY OF LIFE

2021 ◽  
pp. 70-71
Author(s):  
Ekaterine Isakidi ◽  
Otar Vasadze
Keyword(s):  
Quality Of Life ◽  
Social Relations ◽  
Accurate Determination ◽  
Medical Intervention ◽  
World Health ◽  
Rank Test ◽  
Before And After ◽  
The Impact

Goal:The final goal of the medical intervention is to improve the patient's quality of life.This descriptive study evaluates the impact of the gynecological interventions on the patient's quality of life.As well as it evaluates the quality of life based on objective and subjective criteria, the identification and determination of which is very important for the accurate determination of the patient's quality of life before and after the medical intervention. Methods: The questionnaire developed by the World Health Organization (WHOQOL-BREF) consisting of 26 questions and evaluating 4 dimensions of quality of life: physical health, mental state, social relations and the environment, was used in this study.It should be noted that the questionnaire was translated into Georgian within the frame of this study. The Data Statistics Program was implemented through SPSS 24.The Wilcoxon signed-rank test was used. Results: The study was conducted in 2020 in three medical institutions in 2 stages, before and after the gynecological interventions. 225 patients were interviewed in the first stage and 188 patients in the second stage. 27.1% (61) of the study participants were patients aged 18- 35, 51.6% (116) were aged 35-54, and 21.3% (48) were patients aged 55 and older

scholarly journals Anxiety, Depression and Perception of the Quality of Life in the Patient with HIV/AIDS

2018 ◽  
Vol 6 (11) ◽  
Author(s):  
Arturo Salazar Campos ◽  
Andrómeda I. Valencia Ortiz
Keyword(s):  
Quality Of Life ◽  
Social Impact ◽  
Physical Symptoms ◽  
Anxiety And Depression ◽  
Psychological Variables ◽  
Mortality And Morbidity ◽  
Treatment And Prevention ◽  
Cd4 Lymphocyte ◽  
Hiv Aids

Infection with human immunodeficiency virus (HIV) or acquired immunodeficiency syndrome (AIDS) as a complication is now considered a chronic disease and, although mortality and morbidity have been significantly reduced, the psychosocial impact of the disease generates painful consequences in the patient reflected in anxiety and depression. The concept of quality of life is global, multidisciplinary, and involves objective and subjective aspects. Health-related quality of life involves functioning and physical symptoms, psychological factors and social aspects. The interest of this review lies in the social impact of HIV, not only in relation to the economic and political repercussions for treatment and prevention, but also in the identification of variables related to the improvement of the quality of life of people with HIV. There is a great interest in the study of quality of life of patients with HIV / AIDS, and research has shown that there is a relationship between quality of life and psychological variables such as anxiety and depression, as well as biological parameters such as CD4 lymphocyte levels and the viral load that could perhaps be considered in health decisions and in interventions that promote protection and welfare factors. The implementation of interventions aimed at improving the quality of life of patients with HIV / AIDS throughout the evolutionary period of infection is very important.

scholarly journals Impact of Intense Pulsed Light Therapy on the Quality of Life of Rosacea Patients

2018 ◽  
Vol 72 (1) ◽  
pp. 9-15
Author(s):  
Inese Kolontaja-Zaube ◽  
Ināra Ančupāne ◽  
Andra Dērveniece ◽  
Aija Žileviča ◽  
Ilze Ķikuste
Keyword(s):  
Quality Of Life ◽  
Side Effects ◽  
Clinical Symptoms ◽  
Light Therapy ◽  
Life Assessment ◽  
Life Questionnaire ◽  
Pulsed Light ◽  
Quality Of Life Assessment ◽  
Before And After

Abstract Rosacea is a chronic inflammatory skin disorder affecting predominantly adult patients. The aim of the current investigation was to evaluate clinical response by using quality of life assessment before and after an IPL (intensive pulsed light) therapy course for patients sufferring from rosacea treated in the outpatient clinic “Health and Aesthetics” in Rīga during a one-year period (in 2016). All patients presented with typical clinical symptoms of rosacea on the face — acneiform papules, pustules, telangiectasia, centrofacial erythema, and complaints about flushing and burning. In the current study, 100 rosacea patients treated with IPL therapy were selected. Each patient filled in the quality of life questionnaire before and after two courses of IPL therapy. The interval between IPL therapy sessions was one month. The results reflected comprehensive benefit from IPL therapy for all rosacea patients. No serious side effects from IPL therapy were detected. Side effects like mild eythema after procedure (75%), mild oedema (10%), vesiculation (3%), and hyperpigmentation (8%) were completely resolved within four weeks after completion of treatment. In all patients, quality of life assessment showed a statistically significant increase after two courses of IPL therapy.

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