scholarly journals Understanding the Needs of People With Rare Dementias and Recommendations for Improving Post-diagnostic Care: ‘There Is No Such Thing as One Size Fits All’

2021 ◽  
Author(s):  
Clarissa Giebel ◽  
Jacqueline Cannon ◽  
Sandra Smith ◽  
Anna Pearson
Keyword(s):  
Focus Groups ◽  
Thematic Analysis ◽  
Service Providers ◽  
Lewy Body Dementia ◽  
Alzheimer’S Dementia ◽  
Active Member ◽  
Alzheimer's Dementia ◽  
North West ◽  
Complex Needs ◽  
The North

Abstract People with rare dementias such as Lewy Body dementia show different symptoms to those with Alzheimer’s dementia. Due to the large proportion of people with Alzheimer’s dementia, most services are designed to support their needs and often neglect those of people with rarer dementias. The aim of this study was to understand the needs of people with rare dementias and their families to develop targeted support. Two care professional focus groups were held in the North West of England. Focus groups lasted up to 60 minutes and were subsequently transcribed and analysed via thematic analysis. One former carer for her husband with a rare dementia was an active member of the project team and helped design the interview schedule, interpret and disseminate the findings. 18 dementia care professionals took part. Thematic analysis generated six themes: (1) Complex needs unsupported; (2) Reluctance to approach services; (3) Lack of service adaptation to both people living with dementia and carers; (4) Lack of communication between service providers; (5) Environment of service provision; (6) Funding issues. As opposed to suggesting new types of social activities, focus groups identified significant barriers in approaching and using post-diagnostic for those affected by a rare dementia, as well as inequalities in access to care services. There are various personal and service barriers for people with rarer dementias and unpaid carers to accessing and using post-diagnostic services. Future implementation work needs to adapt services and identify ways in which to overcome barriers in approaching services.

scholarly journals Veteran families with complex needs: a qualitative study of the veterans’ support system

2022 ◽  
Vol 22 (1) ◽  
Author(s):  
Angela M. Maguire ◽  
Julieann Keyser ◽  
Kelly Brown ◽  
Daniel Kivlahan ◽  
Madeline Romaniuk ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Focus Groups ◽  
Social Services ◽  
Support System ◽  
Care Coordination ◽  
Service Providers ◽  
Systems Of Care ◽  
Full Time ◽  
Complex Needs ◽  
Health And Wellbeing

Abstract Background Families with complex needs face significant challenges accessing and navigating health and social services. For veteran families, these challenges are exacerbated by interactions between military and civilian systems of care, and the density of the veterans’ non-profit sector. This qualitative study was designed to gather rich, detailed information on complex needs in veteran families; and explore service providers’ and families’ experiences of accessing and navigating the veterans’ support system. Methods The study comprised participant background questionnaires (n = 34), focus groups with frontline service providers (n = 18), and one-on-one interviews with veteran families (n = 16) in Australia. The semi-structured focus groups and interviews were designed to gather rich, detailed information on four study topics: (i) health and wellbeing needs in veteran families; (ii) service-access barriers and facilitators; (iii) unmet needs and gaps in service provision; and (iv) practical solutions for improving service delivery. The study recruited participants who could best address the focus on veteran families with complex needs. The questionnaire data was used to describe relevant characteristics of the participant sample. The focus groups and interviews were audio-recorded, transcribed, and a reflexive thematic analysis was conducted to identify patterns of shared meaning in the qualitative data. Results Both service providers and families found the veterans’ support system difficult to access and navigate. System fragmentation was perceived to impede care coordination, and delay access to holistic care for veteran families with complex needs. The medico-legal aspects of compensation and rehabilitation processes were perceived to harm veteran identity, and undermine health and wellbeing outcomes. Recovery-oriented practice was viewed as a way to promote veteran independence and self-management. Participants expressed a strong preference for family-centred care that was informed by an understanding of military lifestyle and culture. Conclusion The health and wellbeing needs of veteran families intensify during the transition from full-time military service to civilian environments, and service- or reintegration-related difficulties may emerge (or persist) for a significant period of time thereafter. Veteran families with complex needs are unduly burdened by care coordination demands. There is a pressing need for high-quality implementation studies that evaluate initiatives for integrating fragmented systems of care.

scholarly journals Well-being innovation platform projects of the North-West University: Evaluative perceptions of community participants

2021 ◽  
Vol 17 (1) ◽  
Author(s):  
Lebogang Sebeco ◽  
Johan Zaaiman
Keyword(s):  
Higher Education ◽  
Focus Groups ◽  
Community Engagement ◽  
Higher Education Institutions ◽  
Well Being ◽  
Evaluation Framework ◽  
Community Members ◽  
North West ◽  
Profile Model ◽  
The North

Community engagement referred to approaches in which communities were involved in activities that positively impacted their lives. Currently, higher education institutions have community engagement high on their agenda. This article focussed on how this engagement ought to be managed through the responses of community members to such an intervention. It presented community members’ evaluative perceptions on the North-West University’s (NWU) well-being innovation (WIN) platform projects in the Vaalharts community. This research was qualitative and a case study design was followed. Through interviews and focus groups, the perceptions of participants of the WIN platform projects were obtained. The data used stemmed from empirical research by the Human Sciences Research Council (HSRC) and the researchers. Although this study could reach only a limited number of project participants, they provided valuable insights into the ways they had experienced the projects. Guided by the Context–Focus–Profile model, a comprehensive evaluation framework was constructed for the interview and focus groups’ schedules. The findings indicated that the community members had positive perceptions of the projects, which had contributed most especially to skills and self-development. However, as members of a poor community, such people are vulnerable. To ensure that they feel respected and that projects fit their needs to ensure long-lasting benefits, the way in which community engagement was conducted was important. Recommendations for improvement emerging from this study focussed on collaboration, communication, monitoring and recruitment. This article thereby contributed to the debate about higher education institutions’ involvement in community engagement and demonstrated the value of using the Context–Focus–Profile model for evaluation purposes.

NGOs Interventions in The Care Provided to Internally Displaced Persons (IDPS): The Case of Community Initiative for Sustainable Development (COMINSUD) In the North West Region, Cameroon

2021 ◽  
Vol 2 (4) ◽  
Author(s):  
Mukum Cenotar Engwari ◽  
Achu Frida Njiei
Keyword(s):  
Urban Areas ◽  
Service Providers ◽  
Research Work ◽  
Field Work ◽  
Primary Data ◽  
Internally Displaced ◽  
North West ◽  
Health Aid ◽  
The North ◽  
West Region

This research work examines the activities of COMINSUD; a Non-Governmental organisation responsible for the distribution of food and health aid to the Internally Displaced People (IDP) in Cameroon North West region as a result of socio-economic and political instability in the country’s Anglophone regions. A qualitative and quantitative approach was used to collect primary data with the help of interviews, observation, questionnaires and focus group discussions. Field work results indicates that though COMINSUD provides considerable support for IDPs who have access to the organization’s services in urban centers, those in remote rural and inaccessible areas with poor topography and dense forest lack access to these vital support services; unless they move to urban areas to meet the service providers. Consequently, vast majority of IDPs living in poor and deplorable conditions are deprived from these services as a result of both natural and man-made conditions that affect movement from these enclave areas. To ensure adequate supplies of food and health aid to the vulnerable masses, there is need for government and its agencies to provide an enabling environment and infrastructure including security to protect service providers from the extremes of war in the region.

Comparison of Caregiver Burden among patients with Lewy Body Dementia and Alzheimer's Dementia

2017 ◽  
pp. 1
Author(s):  
Mehmet Naharci ◽  
Hasan Oztin ◽  
mit Cintosun ◽  
Ahmet Ozturk ◽  
Senay Oguz ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Lewy Body ◽  
Lewy Body Dementia ◽  
Alzheimer’S Dementia ◽  
Alzheimer's Dementia

Social Inclusion as Freedom for Persons Living with Mental Illness

2019 ◽  
Vol 38 (1) ◽  
pp. 23-35
Author(s):  
Phyllis Montgomery ◽  
Amy Wuest ◽  
Cheryl Forchuk ◽  
Tracy Smith-Carrier ◽  
Momodou S. Jeng (Mo) ◽  
...  
Keyword(s):  
Social Capital ◽  
Mental Illness ◽  
Focus Groups ◽  
Social Services ◽  
Thematic Analysis ◽  
Social Inclusion ◽  
Community Integration ◽  
Complex Needs ◽  
Health And Social Services

This study describes the meaning of social inclusion to persons living with mental illness and poverty. Participants were recruited from health and social services where they completed the Community Integration Questionnaire (CIQ). From this sample, 46 participants attended one of three focus groups that corresponded with their self-reported CIQ scores. Thematic analysis showed that regardless of their CIQ scores, participants described freedom as both a liberating process for, and outcome of, social inclusion; freedom allows for the accumulation of health and social capital commensurate with one’s complex needs, and freedom represents success in the construction life surrounded by affirming others.

scholarly journals Offenders’ perceptions of the UK prison smoking ban

2019 ◽  
Vol 15 (2) ◽  
pp. 114-125 ◽  
Author(s):  
Stephanie Dugdale ◽  
Heather Semper ◽  
Rachel Povey ◽  
Sarah Elison-Davies ◽  
Glyn Davies ◽  
...  
Keyword(s):  
Focus Groups ◽  
Thematic Analysis ◽  
Design Methodology ◽  
Leisure Activities ◽  
Smoking Ban ◽  
Content Type ◽  
The North ◽  
Prison Environment ◽  
The Uk ◽  
Smoking Behaviours

Purpose Despite overall reductions in levels of smoking in the UK, rates of offender smoking remain high. In 2016, it was announced that prisons in England and Wales would gradually introduce a smoking ban. The purpose of this paper is to explore offenders’ perceptions around the upcoming smoking ban. Design/methodology/approach A total of eight focus groups were conducted in four prisons across the North of England. Both smoking and non-smoking offenders participated in the focus groups, and thematic analysis was used to explore the findings. Findings Themes generated from the data were “freedom and rights”, “the prison environment” and “guiding support”. Participants discussed how the smoking ban was viewed as a punishment and restricted their freedom, with perceptions as to why the ban was being implemented centring around others trying to control them. Participants expressed concerns around the financial implications of the smoking ban on already stretched prison resources. Participants also recommended improving the nicotine replacement therapy on offer, and increasing the range of leisure activities within the prison to prepare for the smoking ban. Originality/value Overall, it was apparent that participants’ awareness of the smoking ban was generally poor. It is recommended that offenders need to be made more aware of the smoking cessation support they will receive and given the opportunity to ask questions about the smoking ban. Increasing offenders’ awareness of the ban may reduce stress associated with a perceived lack of choice around their smoking behaviours.

scholarly journals Children in Care: Exploitation, Offending and the Denial of Victimhood in a Prosecution-led Culture of Practice

2019 ◽  
Vol 50 (5) ◽  
pp. 1551-1569
Author(s):  
Julie Shaw ◽  
Sarah Greenhow
Keyword(s):  
Social Work ◽  
Focus Groups ◽  
Structured Interviews ◽  
Youth Justice ◽  
Standard Practice ◽  
North West ◽  
The North ◽  
Innovative Practice ◽  
Criminal Exploitation ◽  
Children In Care

Abstract The following article reports upon recent research, which explored the perceptions of professionals of the issues that affect the sexual and criminal exploitation of children in care, along with a discussion of the effectiveness of current responses to these issues and the challenges that professionals face. The study utilised focus groups and semi-structured interviews to gain the perspectives of thirty-six participants from across a range of agencies involved in children’s social work and youth justice from an area in the north-west of England. The findings echoed previous research by suggesting that for a number of reasons connected to their ‘looked-after’ status and deficiencies within the care system, children are particularly vulnerable to exploitation. Although attempts are being made to develop co-ordinated responses to safeguarding, there is still a long way to go in terms of focusing on vulnerability instead of a prosecution-led approach when offending occurs as a result of exploitation. It is argued how in order to ensure that good, innovative practice becomes ‘standard’ practice; further legislation is required in tandem with a greater degree of education surrounding exploitation and the dynamics inherent in these offences.

932 Delivering Excellence in Orthopaedic Training - A Five Year Qualitative Study of Characteristics Valued by Trainees Voting for Trainer of The Year

2021 ◽  
Vol 108 (Supplement_6) ◽  
Author(s):  
R Ali ◽  
R Wharton ◽  
L Li ◽  
J Waterman
Keyword(s):  
Thematic Analysis ◽  
Qualitative Data ◽  
Training Programme ◽  
Educational Goals ◽  
Systematic Analysis ◽  
North West ◽  
The North ◽  
Orthopaedic Training ◽  
Training Opportunities ◽  
Insight Into

Abstract Background Previous studies have described attributes of successful trainers. Dean et al’s (2017) systematic analysis found 12 commonly cited positive characteristics in medical literature. This paper and Nisar et al’s (2011) study which had a more exhaustive list of desirable qualities in surgical trainers formed the basis of our thematic analysis to identify trainer characteristics/behaviours valued by trainees on an orthopaedic training programme. Method We evaluated qualitative data from votes on the North West Thames rotation for Trainer of the Year over a 5-year period (2016-2020). We applied thematic analysis to identify 15 characteristics commonly cited by trainees in their nominations and logged how frequently each characteristic was raised. Results The five most popular qualities possessed by nominees are 1) prioritisation of training needs and endeavouring to create more training opportunities for trainees 2) being a source of support 3) willingness to allow trainees to operate 4) setting and facilitating the achievement of educational goals/targets 5) providing appropriate levels of supervision. All 15 valued characteristics and their frequency of mention are listed in the table presented. Conclusions To the best of our knowledge this is the only study which focuses exclusively on desirable qualities orthopaedic specialist trainees’ value in their trainers. ‘Advocating for trainees’ is a valued quality, also highlighted in ASIT’s 2018 analysis of the Silver Scalpel Award nominations, which is not otherwise well described in the literature. We hope our work will allow aspiring orthopaedic trainers insight into what trainee’s value most in a surgical mentor.

Role flexibility among telemedicine service providers in the north-west and west of Ireland

2005 ◽  
Vol 11 (1_suppl) ◽  
pp. 62-64 ◽  
Author(s):  
A Macfarlane ◽  
P Clerkin ◽  
A W Murphy
Keyword(s):  
Service Providers ◽  
Care Providers ◽  
Framework Analysis ◽  
Telemedicine Service ◽  
North West ◽  
The North ◽  
Semistructured Interviews ◽  
Positive Effect ◽  
West Of Ireland

A recent review of telemedicine services in the north-west and west of Ireland identified 11 telemedicine services, most of which were in the early stages of implementation. A qualitative approach was used to review them. Semistructured interviews were conducted with a multidisciplinary group of primary- and secondary-care providers (n = 21) who were involved with either synchronous or asynchronous telemedicine services. Data were analysed according to the principles of framework analysis. Participants described the ways in which they were flexible about their workload, professional identities and roles to facilitate the organization and delivery of telemedicine services, and to ensure that services ran smoothly. While the positive effect of product champions and members of a wider supportive network or alliance on the conception and development of telemedicine services must be acknowledged, questions remain about associated long-term implementation and sustainability.

SEM and TEM observations of sperm development in the testis of the freshwater fish Oreochromis mossambicus

1990 ◽  
Vol 48 (3) ◽  
pp. 58-59
Author(s):  
Daryl A. Cornish ◽  
George L. Smit
Keyword(s):  
Morphological Characteristics ◽  
Oreochromis Mossambicus ◽  
Breeding Cycle ◽  
Limited Information ◽  
North West ◽  
The North ◽  
Sem And Tem ◽  
Sperm Development ◽  
Ultrastructural Characteristics ◽  
The University

Oreochromis mossambicus is currently receiving much attention as a candidater species for aquaculture programs within Southern Africa. This has stimulated interest in its breeding cycle as well as the morphological characteristics of the gonads. Limited information is available on SEM and TEM observations of the male gonads. It is known that the testis of O. mossambicus is a paired, intra-abdominal structure of the lobular type, although further details of its characteristics are not known. Current investigations have shown that spermatids reach full maturity some two months after the female becomes gravid. Throughout the year, the testes contain spermatids at various stages of development although spermiogenesis appears to be maximal during November when spawning occurs. This paper describes the morphological and ultrastructural characteristics of the testes and spermatids.Specimens of this fish were collected at Syferkuil Dam, 8 km north- west of the University of the North over a twelve month period, sacrificed and the testes excised.

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