scholarly journals فاعلیة برنامج إرشادی لتحسین جودة الحیاة لأسر الأطفال ذوی الاحتیاجات الخاصة Effectiveness of counseling program in improvement of the quality of life for families of children with special needs

2019 ◽  
Vol 8 (1) ◽  
pp. 33-61
Author(s):  
عید أبو حمزة ◽  
سجى یونس
2020 ◽  
Vol 2 (2) ◽  
pp. 35-53
Author(s):  
Lilia Osipova

Home is a significant environment for any child with or without special needs and one of the important environments where occupational therapy is aimed to bring improvement if necessary in terms of quality of life. The current descriptive qualitative study was designed to find out parental perceptions about occupational therapies provided in their own environments with their children with special needs. The participants of the study were five parents whose children with different special needs were getting private in-house occupational therapy services provided by the researcher at the moment of the study. The data for this study was collected through semi-structured interviews. Interviews were designed to understand how parents perceive in-house Occupational Therapy Services.    The findings of the study suggest significant improvements in the quality of life of their children with special needs, thus no one could specifically differ occupational therapy interventions in-home and in other professional settings. It is obvious because of the lack of settings in Armenia with Occupational Therapies and lack of information about the profession in general. Future research is recommended to be conducted between two different groups with Occupational Therapies in-home and other settings, with a larger group and more specific issues. Findings revealed that in-home services are convenient in many different aspects for parents of children with special needs and it should be considered for future practices. 


Author(s):  
Iveta Kokle-Narbuta

The current research aims to analyse the importance of family education in improving life quality of children with special needs. Nowadays our society aim for sustainable development which means equal rights and possibilities for all the citizens but reality shows a different situation, especially it concerns children with special needs. Family education could be one of possible ways how to improve the quality of life. In the current article the author looks on family education as a solution of some problems which have children with special needs through the prism of inclusive environment and sustainable development.


2021 ◽  
Vol VI (I) ◽  
pp. 15-22
Author(s):  
Noreena Kausar ◽  
Bushra Bibi ◽  
Sadia Bint Raza

The study was designed with the objective to examine the perceived social support (PSS) as a moderator between parental perceived stress (PPS) and quality of life (QOL) among parents having children with special needs. A sample of 300 parents was selected through purposive sampling from special education schools and health care centres of Lalamusa, Kharian, Gujrat and Gujranwala, Pakistan. Parental Perceived Stress Scale (PPSS), MultiDimensional Scale of Perceived Social Support (MDSPSS) and quality of life was measured through the Urdu version of the Quality of Life Questionnaire (Parent Version of QOLA) were administered to collect the data. Findings illustrated that PPS, QOL and PSS had statistically significant relationships (p < .001) with each other. Further, PPS is a significant moderator between PPS and QOL among targeted parents. On the basis of findings, it is concluded that there is an intense need of providing awareness and social support to empower parents for coping with stresses.


PAMBUDI ◽  
2019 ◽  
Vol 3 (1) ◽  
pp. 14-21
Author(s):  
Dyah Ayu Sulistyaning Cipta ◽  
Trio Ageng Prayitno ◽  
Era Dewi Kartika

The purpose of holding counseling in the form of a talkshow with the theme Role of Families in Bridging the Affect of Rare Disease with Optimal Health Services is to increase public awareness of children with special needs, especially rare diseases, and foster parents' enthusiasm in bridging children with rare diseases with optimal health services Thus, it is expected that children with special needs will get support both physically and psychologically, so that they can develop their own potential, grow to become empowered individuals, and get the best quality of life. This event is also a form of our support for parents with children with special needs, especially with rare diseases. This ceremony was held at the 6th Floor Hall of RSI Aisyiyah Malang on Saturday, March 2, 2019.


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