scholarly journals Construction of depopulated area model of communication about dementia care

Impact ◽  
2020 ◽  
Vol 2020 (9) ◽  
pp. 40-42
Author(s):  
Mio Ito
Keyword(s):  
Long Term Care ◽  
Associate Professor ◽  
Dementia Care ◽  
Mountainous Areas ◽  
Term Care ◽  
Dementia Patients ◽  
People With Dementia ◽  
Medical Institutions ◽  
Long Term Care Insurance

In Japan there are remote villages, mountainous areas and islands where the population includes people who are extremely old. Owing to the remoteness of these places, there are very few long-term care insurance services and medical institutions meaning that the residents often have no choice but to support each other. This situation is particularly problematic for people with dementia. Caring for dementia patients requires specialised knowledge which is often beyond the residents of depopulated areas in Japan. It is with this in mind that Associate Professor Mio Ito has joined forces with Dr Chiho Shimada and Dr Ryo Hirayama to improve care and communication for persons with dementia in depopulated areas.

A new model of care for patients with dementia: the Japanese initiative for dementia care

2017 ◽  
pp. 1027-1032
Author(s):  
Yohko Maki ◽  
Takashi Sakurai ◽  
Kenji Toba
Keyword(s):  
Long Term Care ◽  
Dementia Care ◽  
Community Members ◽  
Term Care ◽  
Ageing Society ◽  
People With Dementia ◽  
The World ◽  
Long Term Care Insurance ◽  
Person With Dementia

Facing the unprecedented ageing society, Japan’s contribution to the world should be to lead worldwide discussion on dementia care. This chapter introduces the Japanese initiatives for dementia care. For realization of a society where people with dementia live well, the new concept of ‘prosocial relationship-based care’ for dementia has been introduced as the ethical background; community members are expected to reach out helping hands to each person with dementia to restore their participation in society. Based on this basic concept and the long-term care insurance system, various measures related to primary, secondary and tertiary preventive approaches for dementia have been promoted to achieve appropriate and seamless coordination of medical and long-term care. To establish prosocial relationships, it is critical to promote cooperation among various stakeholders, and develop community networks and social resources.

scholarly journals The Effect of Long Term Care Resources on Burdens for Caregiving People Living with Dementia in Taiwan

2021 ◽  
Author(s):  
Yang-Hao Ou ◽  
Ming-Che Chang ◽  
Wen-Fu Wang ◽  
Kai-Ming Jhang
Keyword(s):  
Caregiver Burden ◽  
Long Term Care ◽  
Dementia Care ◽  
Care Team ◽  
Control Group ◽  
Term Care ◽  
People With Dementia ◽  
Home Based ◽  
Caregiver Group

Abstract Background: There is an increasing awareness of caregiver's burden, especially in those caring for people with dementia. The caregiver burden has been studied extensively in Western countries; however, the interpretation of the results and replication of the intervention may deem unfit in the Chinese culture. Therefore, this study identifies the change in caregiver burden by interventional methods under current Taiwan's long-term care Act 2.0.Method: A total of 2,598 newly diagnosed dementia outpatients was evaluated by the Changhua Christian Hospital dementia care team. Eighty patients utilize one of the three care resources, including community-based services (n = 33), home-based services (n = 19), or taking care by foreign caregivers (n = 28). Participants in the control group were selected by matching their global CDR score, gender, age, and caregivers' age with a 1:4 ratio. All caregivers completed the Zarit Burden Interview (ZBI) questionnaires before and six months after utilizing the care resources. Results: The home-based and the foreign caregiver groups have the highest baseline ZBI scores with 37.63±16.14 and 36.57±17.14, respectively. The second ZBI score was assessed about six months after the baseline showing that the home-based group remained the highest caregiver burden (ZBI = 31.74±12.23) and the foreign caregiver group showed the lowest burden (ZBI = 25.68±12.09). The mean difference in the ZBI score confirmed that the foreign caregiver group had the most improvement, averaging a decrease of 17.99±31.08 points (adjust observation time). A linear regression model showed that home-based care and foreign caregiver contributes the most reduction in caregiver burden (-11.83 and -19,07 ZBI scores, respectively).Conclusion: Caring for people with dementia includes caring for their caregivers. Dementia care team should provide proper social resources, which are crucial in the alleviation of caregiver burden.

Low-threshold support services for people with dementia within the scope of respite care in Germany – A qualitative study on different stakeholders’ perspective

Dementia ◽  
2015 ◽  
Vol 16 (5) ◽  
pp. 576-590 ◽  
Author(s):  
Iris Hochgraeber ◽  
Milena von Kutzleben ◽  
Sabine Bartholomeyczik ◽  
Bernhard Holle
Keyword(s):  
Support Services ◽  
Long Term Care ◽  
Support Service ◽  
Professional Services ◽  
Family Carers ◽  
Term Care ◽  
People With Dementia ◽  
Long Term Care Insurance ◽  
Low Threshold

Low-threshold support services are provided within the basket of services of German long-term care insurance as a part of respite care to support family carers and people with dementia. This study investigates various stakeholders’ (providers, coordinators, volunteers, family carers and people with dementia) perspectives on low-threshold support service regarding its organisation and conceptualisation as well as how stakeholders and users value low-threshold support service using a qualitative approach. Twelve guided interviews and group discussions were conducted with 31 participants. Organisation and conceptualisation are characterised by the lowness of the service thresholds, which is perceived to be quick and simple forms of support with no user requirements. Multiple barriers such as the challenging behaviour of people with dementia and their initial refusal as well as their holding low-threshold support service in low esteem can hinder the utilisation of these services. Low-threshold support service within the scope of the long-term care insurance law can be separated into two types: low-cost (non-professional) services and high-cost services with comprehensive training for ‘employed’ volunteers (professional). Both types are constantly developing within the landscape of the German long-term care system, and low-threshold support service appears to be adapted to diverse needs. Therefore, it is important to avoid replacing non-professional services with professional services.

scholarly journals Health and long-term care of the elderly with dementia in rural Thailand: a cross-sectional survey through their caregivers

BMJ Open ◽  
2020 ◽  
Vol 10 (3) ◽  
pp. e032637
Author(s):  
Nalinee N Chuakhamfoo ◽  
Pudtan Phanthunane ◽  
Sirintorn Chansirikarn ◽  
Supasit Pannarunothai
Keyword(s):  
Long Term Care ◽  
Informal Caregivers ◽  
The Elderly ◽  
Dementia Care ◽  
Secondary Outcome ◽  
Cross Sectional ◽  
Term Care ◽  
Dementia Severity ◽  
People With Dementia

ObjectiveTo describe the circumstances of the elderly with dementia and their caregivers’ characteristics in order to examine factors related to activities of daily living (ADL) and household income to propose a long-term care policy for rural areas of Thailand.SettingA cross-sectional study at the household level in three rural regions of Thailand where there were initiatives relating to community care for people with dementia.ParticipantsCaregivers of 140 people with dementia were recruited for the study.Primary and secondary outcome measuresSocioeconomic characteristics including data from assessment of ADL and instrumental ADL and the Thai version of Resource Utilisation in Dementia were collected. Descriptive statistics were used to explain the characteristics of the elderly with dementia and the caregivers while inferential statistics were used to examine the associations between different factors of elderly patients with dementia with their dependency level and household socioeconomic status.ResultsEighty-six per cent of the dementia caregivers were household informal caregivers as half of them also had to work outside the home. Half of the primary caregivers had no support and no minor caregivers. The elderly with dementia with high dependency levels were found to have a significant association with age, dementia severity, chance of hospitalisation and number of hospitalisations. Though most of these rural samples had low household incomes, the patients in the lower-income households had significantly lower dementia severity, but, with the health benefit coverage had significantly higher chances of hospitalisation.ConclusionAs the informal caregivers are the principal human resources for dementia care and services in rural area, policymakers should consider informal care for the Thai elderly with dementia and promote it as the dominant pattern of dementia care in Thailand.

Micro-citizenship, dementia and long-term care

Dementia ◽  
2016 ◽  
Vol 15 (3) ◽  
pp. 289-303 ◽  
Author(s):  
Clive Baldwin ◽  
Michelle Greason
Keyword(s):  
Social Inclusion ◽  
Long Term Care ◽  
Dementia Care ◽  
Care Staff ◽  
Care Practice ◽  
Family Carers ◽  
Front Line ◽  
Term Care ◽  
People With Dementia

In recent years there has been an increasing interest in the concept of citizenship as a lens through which to understand dementia practice. This move from an individualist, personhood-based approach towards an understanding of people with dementia as a group facing social and structural discrimination parallels, in some ways, that previously seen in the realms of disability and mental health which have sought to politicize those experiences. In so doing, the debate has sought to reconfigure power relations, insisting that members of such discriminated groups are people with power entitled to the same from life as everyone else. Much of the discussion to date has, understandably, focused on the larger issues of social inclusion, rights and responsibilities – reflecting the traditional concern of citizenship of individuals’ relationship to the state or the society in which they live. More recently, there has been a move to conceptualising citizenship as a practice – something that is realised through action and in relationship – rather than a status bestowed. In this paper, we seek to contribute to the discussion by introducing the concepts of midi- and micro-citizenship, taken from organisation studies, as a further means by which to link the personal and the political, and as grounds to build citizenship-alliances between people with dementia living in long-term care (LTC) facilities and front-line dementia care staff. We will then seek to illustrate the usefulness of these concepts in understanding citizenship in practice in LTC facilities through analysis of data drawn from focus groups involving LTC staff, and interviews with family carers whose relatives live in LTC facilities. In conclusion, we will explore some of the possibilities that such an approach holds for dementia care practice.

PerCEN trial participant perspectives on the implementation and outcomes of person-centered dementia care and environments

2015 ◽  
Vol 27 (12) ◽  
pp. 2045-2057 ◽  
Author(s):  
Lynn Chenoweth ◽  
Yun-Hee Jeon ◽  
Jane Stein-Parbury ◽  
Ian Forbes ◽  
Richard Fleming ◽  
...  
Keyword(s):  
Long Term Care ◽  
Well Being ◽  
Dementia Care ◽  
Team Work ◽  
Care Staff ◽  
Trial Participant ◽  
Term Care ◽  
People With Dementia ◽  
Field Note

ABSTRACTBackground:Well-being and various forms of agitation in people with dementia can be improved in a person-centered long-term care setting. Data obtained during the Person-Centered Dementia Care and Environment (PerCEN) randomized controlled trial shed light on the factors that influenced the adoption and outcomes of person-centered interventions in long-term care from the perspective of study participants.Methods:Data were obtained from PerCEN participants: individual semi-structured interviews with care managers (29), nurses and care staff (70); telephone surveys with family members (73); staff reports of care approaches; and 131 field note entries recorded by the person-centered care and environment facilitators. Data were interpreted inductively using content analysis, code building, theme development, and synthesis of findings.Results:All data sources confirmed that, when adopted, the person-centered model increased the number and variety of opportunities for resident interaction, improved flexibility in care regimens, enhanced staff's attention to resident needs, reduced resident agitation, and improved their well-being. Barriers and enablers for the person-centered model related to leadership, manager, staff and family appreciation of the model, staff's capacity, effective communication and team work among direct care staff, care service flexibility, and staff education on how to focus care on the person's well-being.Conclusions:Successful knowledge translation of the person-centered model starts with managerial leadership and support; it is sustained when staff are educated and assisted to apply the model, and, along with families, come to appreciate the benefits of flexible care services and teamwork in achieving resident well-being. The Australian New Zealand Clinical Trials Registry number is ACTRN 12608000095369.

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