Desired Features of a Digital Technology Tool for Self-Management of Well-Being in a Nonclinical Sample of Young People: Qualitative Study

Background Adaptive coping behaviors can improve well-being for young people experiencing life stressors, while maladaptive coping can increase vulnerability to mental health problems in youth and into adulthood. Young people could potentially benefit from the use of digital technology tools to enhance their coping skills and overcome barriers in help-seeking behaviors. However, little is known about the desired digital technology use for self-management of well-being among young people in the general population. Objective This is a small, qualitative study aimed at exploring what young people desire from digital technology tools for the self-management of their well-being. Methods Young people aged 12-18 years were recruited from the general community to take part in semistructured interviews. Recorded data from the interviews were transcribed and analyzed using inductive thematic analysis. Results In total, 14 participants were recruited and completed the study, with a mean age of 14.6 years (female n=3). None of the participants reported using any digital tools specifically designed to manage well-being. However, as indicated through the emerged themes, young people used digital technology to reduce their stress levels and manage their mood, mainly through games, music, and videos. Overall, identified themes showed that young people were keen on using such tools and desired certain facets and features of an ideal tool for self-management of well-being. Themes related to these facets indicated what young people felt a tool should do to improve well-being, including being immersed in a stress-free environment, being uplifting, and that such a tool would direct them to resources based on their needs. The feature-based themes suggested that young people wanted the tool to be flexible and enable engagement with others while also being sensitive to privacy. Conclusions The young people interviewed in this study did not report engaging with digital technology specialized to improving well-being but instead used media already accessed in their daily lives in order to self-manage their psychological states. As a result, the variety of coping strategies reported and digital tools used was limited to the resources that were already being used for recreational and social purposes. These findings contribute to the scarce research into young people’s preferred use of digital technology tools for the self-management of their well-being. However, this was a small-scale study and the current participant sample is not representative of the general youth population. Therefore, the results are only tentative and warrant further investigation.

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Desired Features of a Digital Technology Tool for Self-Management of Well-Being in a Nonclinical Sample of Young People: Qualitative Study (Preprint)

10.2196/preprints.10067 ◽

2018 ◽

Author(s):

Camilla Babbage ◽

Georgina Margaret Jackson ◽

Elena Nixon

Keyword(s):

Young People ◽

Qualitative Study ◽

Digital Technology ◽

Technology Use ◽

Well Being ◽

The Self ◽

Digital Tools ◽

Self Management ◽

Small Scale ◽

Technology Tools

BACKGROUND Adaptive coping behaviors can improve well-being for young people experiencing life stressors, while maladaptive coping can increase vulnerability to mental health problems in youth and into adulthood. Young people could potentially benefit from the use of digital technology tools to enhance their coping skills and overcome barriers in help-seeking behaviors. However, little is known about the desired digital technology use for self-management of well-being among young people in the general population. OBJECTIVE This is a small, qualitative study aimed at exploring what young people desire from digital technology tools for the self-management of their well-being. METHODS Young people aged 12-18 years were recruited from the general community to take part in semistructured interviews. Recorded data from the interviews were transcribed and analyzed using inductive thematic analysis. RESULTS In total, 14 participants were recruited and completed the study, with a mean age of 14.6 years (female n=3). None of the participants reported using any digital tools specifically designed to manage well-being. However, as indicated through the emerged themes, young people used digital technology to reduce their stress levels and manage their mood, mainly through games, music, and videos. Overall, identified themes showed that young people were keen on using such tools and desired certain facets and features of an ideal tool for self-management of well-being. Themes related to these facets indicated what young people felt a tool should do to improve well-being, including being immersed in a stress-free environment, being uplifting, and that such a tool would direct them to resources based on their needs. The feature-based themes suggested that young people wanted the tool to be flexible and enable engagement with others while also being sensitive to privacy. CONCLUSIONS The young people interviewed in this study did not report engaging with digital technology specialized to improving well-being but instead used media already accessed in their daily lives in order to self-manage their psychological states. As a result, the variety of coping strategies reported and digital tools used was limited to the resources that were already being used for recreational and social purposes. These findings contribute to the scarce research into young people’s preferred use of digital technology tools for the self-management of their well-being. However, this was a small-scale study and the current participant sample is not representative of the general youth population. Therefore, the results are only tentative and warrant further investigation.

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“Technology Brings Learning to Life”: Planning Writing Opportunities through Multimodal and Digital Resources

Language and Literacy ◽

10.20360/langandlit29468 ◽

2019 ◽

Vol 21 (2) ◽

pp. 52-68

Author(s):

Carol Doyle-Jones

Keyword(s):

Qualitative Study ◽

Elementary Teachers ◽

Digital Technology ◽

New Literacies ◽

Learning Opportunities ◽

Digital Tools ◽

Digital Resources ◽

Writing Curriculum ◽

Life Planning ◽

Technology Tools

This paper illustrates how participating elementary teachers plan their literacy-based curriculum and create learning opportunities for writing through multimodal resources and digital technology tools in their classrooms. A theoretical lens of New Literacies (Coiro et al., 2008; Leu et al., 2013) guides this qualitative study. Through comprehensive interviews and an analysis of activity resources and digital tools, how teachers plan and design writing curriculum with a multimodal focus and create opportunities for collaboration and enhancing authorship are discussed.

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FRI0562 THE PERSPECTIVE OF YOUNG PEOPLE WITH INFLAMMATORY ARTHRITIS ON PATIENT REPORTED OUTCOME MEASURES: RESULTS OF A EUROPE-WIDE SURVEY

Annals of the Rheumatic Diseases ◽

10.1136/annrheumdis-2020-eular.4618 ◽

2020 ◽

Vol 79 (Suppl 1) ◽

pp. 883-883

Author(s):

A. Alunno ◽

E. Mosor ◽

T. Stamm ◽

P. Studenic

Keyword(s):

Young People ◽

Qualitative Study ◽

Personal Experience ◽

Large Scale ◽

Young Patients ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Self Management ◽

Research Support ◽

Patient Reported

Background:Although patient-reported outcome measures (PROMs) are widely used in clinical practice and research, it is unclear if these instruments adequately cover the perspective of young people (18-35 years) with inflammatory arthritis (IA). We recently performed focus groups on PROMs with 53 young IA patients from 4 European countries, but the perspective of these patients has never been explored on a large scale.Objectives:To explore personal experience, opinions and beliefs of young people with IA across Europe concerning PROMs content, characteristics and ways of administration in order to inform EULAR points to consider (PtC) for including the perspective of young patients with IA into PROMs.Methods:Based on the results of our previous qualitative study, a task force including patients, rheumatologists and health professionals developed an online survey. The survey covered personal experience, preferences and opinions concerning PROMs. After being pilot tested and revised accordingly, the survey was distributed through the EULAR people with arthritis and rheumatism in Europe (PARE), Young PARE networks and the Emerging EULAR Network (EMEUNET).Results:547 people (88% females) from 29 countries aged 18-35 years with a diagnosis of juvenile idiopathic arthritis, rheumatoid arthritis, Still’s disease, psoriatic arthritis or spondyloarthritis completed the survey (Figure 1). Thirty-seven percent of respondents reported they never filled a PROM. A North-South and West-East Europe gradient was observed (30.4% vs 56.3% and 25.5% vs 58.8% respectively). Figure 2 outlines key findings of our survey. Among respondents having filled PROMs (n=313), two thirds perceived their access to PROM results useful for self-management of their health. Discomfort while filling PROMs was an issue for nearly half of the respondents, as questions were perceived as scaring or not relevant. This discomfort, the fear of judgement, or inadequate assessed time frames were major reasons for difficulties in translating the health experience into a rating scale. Still 75% use their own experience in the past as reference. Among several reasons, people scored differently from what they felt to emphasize how much better or worse they felt from previous assessment. Concerning preferences of numerical rating scales (NRS) or visual analogue scales (VAS) explored in all respondents regardless having ever filled in PROMs, those in favour of VAS mainly reasoned this by having more possibilities to select and those favouring NRS by better readability and interpretation. Maintaining a sitting position, preparing food, doing physical activity, intimacy and sleep problems were the items selected most frequently in the survey as in the qualitative study to be included in PROMs. The implementation of discussion on self-management, education/work and support possibilities at regular clinic visits was considered important by over 60% of responders. Overall, electronic capturing of PROMs was preferred over paper-based questionnaires (57% vs 13%).Conclusion:Our survey explored for the first time the personal experience and opinions of young people with IA concerning PROMs on a large scale and confirmed the results obtained in the qualitative study. This survey informed the EULAR PtC for including the perspective of young patients with IA into PROMs.References:[1] Mosor E et al. Arthritis Rheumatol. 2019; 71 (suppl 10)Disclosure of Interests:Alessia Alunno: None declared, Erika Mosor: None declared, Tanja Stamm Grant/research support from: AbbVie, Roche, Consultant of: AbbVie, Sanofi Genzyme, Speakers bureau: AbbVie, Roche, Sanofi, Paul Studenic Grant/research support from: Abbvie

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Depression Survivors Among Emerging Adults: Their Healing Journey

Journal of Cognitive Sciences and Human Development ◽

10.33736/jcshd.3863.2021 ◽

2021 ◽

Vol 7 (2) ◽

pp. 47-65

Author(s):

Wei Zhe Pui ◽

Jamayah Saili

Keyword(s):

Qualitative Study ◽

Coping Strategies ◽

Emerging Adults ◽

Healing Process ◽

Well Being ◽

Building Blocks ◽

Structured Interview ◽

The Self ◽

Healing Journey

This qualitative study explored the healing process of depression survivors among emerging adults with effective coping strategies utilised by them. A semi-structured interview was conducted on participants aged between 18-28 years old. A theme narrating the experience of the depression survivors were identified: The journey of healing - Crawling out of the quicksand. The survivors emphasised that to achieve healing, everything starts from within the self, and they had been putting in a lot of their extra efforts in helping themselves heal. They all went beyond recovery, where their efforts illustrated their focus on healing, thriving, and achieving optimal well-being upon recovery. Significantly, the relevance and applicability of the building blocks of Seligman’s PERMA model of well-being towards those efforts taken were revealed in the study. .

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O002. Factors facilitating the self- and shared-management of Juvenile Idiopathic Arthritis

Rheumatology ◽

10.1093/rheumatology/keab723.001 ◽

2021 ◽

Vol 60 (Supplement_5) ◽

Author(s):

Simon Stones

Keyword(s):

Juvenile Idiopathic Arthritis ◽

Young People ◽

Paediatric Rheumatology ◽

The Self ◽

Self Management ◽

Management Support ◽

Children And Young People ◽

Realist Approach ◽

Shared Management ◽

Initial Question

Abstract Background Juvenile idiopathic arthritis (JIA) requires some form of lifelong management, with at least one third of children symptomatic in adulthood. Therefore, empowering children to competently self-manage their health and wellbeing across the lifecourse is logical, while supporting families in their shared-management role during childhood. However, there was a limited theoretical basis to the self- and shared-management of JIA across the lifecourse. The objective is to explore the factors facilitating the self- and shared-management of JIA using a realist approach to evaluation. Methods Guided by the Individual and Family Self-management Theory, a three-stage realist approach to evaluation was undertaken: 1) initial JIA self- and shared-management question theories were elicited from literature reviews and stakeholder insights [1]; 2) seven initial question theories were tested using teacher-learner cycle interviews with 20 participants; 3) findings were analysed using a theory-driven approach to thematic analysis, using deductive, inductive, and retroductive reasoning to extend or refute the initial question theories, in order to identify demi-regularities in the data. Results Six refined JIA self- and shared-management question theories emerged: 1) meaningful and bespoke self-management support across the life course for children and young people with JIA; 2) recognised and valued shared-management support for the families of children and young people with JIA, with autonomy in mind; 3) individual healthcare plans as a shared management communication tool to facilitate optimal management of JIA; 4) consistent recognition, value, and encourage of self- and shared-management support from the paediatric rheumatology multi-disciplinary team and associated professionals; 5) child, young-person, and family-focused paediatric rheumatology care and support services across the lifecourse; and 6) bespoke and inclusive approaches by education providers to enable children and young people with JIA to feel safe, supported, and able to fulfil their potential. Conclusion There is an increasing recognition of the importance of self- and shared-management of JIA and other paediatric-onset chronic conditions. However, there is a lack of an overall, cohesive approach to self- and shared-management between healthcare providers, education providers, and patient/parent organisations. The findings from this study illuminate the factors facilitating JIA self- and shared-management at individual, interpersonal, institutional and infrastructural levels, bearing relevance to individuals and organisations involved in caring for, and supporting children with JIA and their families.

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Rural finance and aquaculture.

10.1079/ac.66326.20203483779 ◽

2020 ◽

Author(s):

Md. Rahman

Keyword(s):

Well Being ◽

The Self ◽

Small Scale ◽

Rural Poor ◽

Rural Finance ◽

Self Employment ◽

Employment Sector ◽

Rural Aquaculture ◽

Lending Institutions ◽

Micro Credit

Abstract The aquaculture sector in Bangladesh has made an enormous and often under-recognized contribution to the well being of the nation; around 2 million t of food fish are produced for local consumption and export earnings. The sector is in transition from subsistence to a commercially oriented sector. Financing of aquaculture and other aquaculture-related activities has not yet attracted enough interest from banks and other money lending institutions in Bangladesh. To ensure the necessary credit flow to the aquaculture sector for dynamic growth, an annual programme-based credit monitoring support has been necessary. The rural aquaculture financial system is fragmented and does not meet the lending and saving needs of the rural poor. Commercial banks and other financial institutions have not responded significantly to the self-employment initiatives of the rural poor and to small-scale aquaculture farmers. The large numbers of micro-credit operating NGOs have played an important role in aquaculture with remarkable success. The disbursement and recovery of micro-credit support by NGOs in the self-employment sector is about twice as large as the disbursement of aquaculture credit by banks (BB, 2003).

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Liz Webster and Pat Broadhead 11 Their life, their choice: Ethical challenges for supporting children and young people in the self-management ofType 1 diabetes 197

Working with Children and Young People ◽

10.3726/978-3-0353-0094-9/15 ◽

2016 ◽

Keyword(s):

Young People ◽

The Self ◽

Self Management ◽

Ethical Challenges ◽

Children And Young People

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How psychosocial well-being and usage amount predict inaccuracies in retrospective estimates of digital technology use

Mobile Media & Communication ◽

10.1177/2050157920902830 ◽

2020 ◽

Vol 8 (3) ◽

pp. 379-399 ◽

Cited By ~ 3

Author(s):

Craig J. R. Sewall ◽

Todd M. Bear ◽

John Merranko ◽

Daniel Rosen

Keyword(s):

Social Media ◽

Life Satisfaction ◽

Digital Technology ◽

Technology Use ◽

Screen Time ◽

Well Being ◽

Ongoing Debate ◽

Actual Use

Using Apple’s Screen Time application to obtain reported actual iPhone and social media (SM) use, we examined the accuracy of retrospective estimates of usage, how inaccuracies bias associations between use and psychosocial well-being (depression, loneliness, and life satisfaction), and the degree to which inaccuracies were predicted by levels of well-being. Among a sample of 325 iPhone users, we found that (a) participants misestimated their weekly overall iPhone and SM use by 19.1 and 12.2 hours, respectively; (b) correlations between estimated use and well-being variables were consistently stronger than the correlations between reported actual use and well-being variables; and (c) the degree of inaccuracy in estimated use was associated with levels of participant well-being and amount of use. These findings suggest that retrospective estimates of digital technology use may be systematically biased by factors that are fundamental to the associations under investigation. We propose that retrospective estimates of digital technology use may be capturing the construct of perceived use rather than actual use, and discuss how the antecedents, correlates, and consequences of perceived use may be distinct from those of actual use. Implications of these findings are discussed in view of the ongoing debate surrounding the effects of digital technology use on well-being.

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Working with adolescents who display sexually harmful behaviour

Journal of Children s Services ◽

10.1108/jcs-07-2015-0022 ◽

2016 ◽

Vol 11 (3) ◽

pp. 191-203

Author(s):

Helena Russell ◽

Joel Harvey

Keyword(s):

Young People ◽

Clinical Supervision ◽

Interpretative Phenomenological Analysis ◽

Well Being ◽

Structured Interview ◽

The Self ◽

Youth Justice ◽

Content Type ◽

Client Group ◽

Positive Attitudes

Purpose The purpose of this paper is to explore the psychosocial experience of staff in a UK youth offending team (YOT) who work with adolescents displaying sexually harmful behaviour (SHB). Design/methodology/approach Eight participants were questioned by means of a semi-structured interview schedule about their experiences of working with adolescents displaying SHB. Subsequent data were analysed using Interpretative Phenomenological Analysis. Findings Three superordinate themes were identified: client-focused; challenges within the role; and looking after the self. Staff appreciate the factors contributing to SHB and they experience challenges within their role, but are also aware of the importance of maintaining their own well-being. They demonstrate positive attitudes towards young people displaying SHB, whilst contending with the challenge of misconceptions within society. When addressing the self, YOT practitioners are able to adopt both individual and group methods of coping with the nature of the work. Research limitations/implications The participant group could have included a wider range of disciplines as the YOT is a multi-agency service. A further study exploring staff from different professional backgrounds would be of value. Practical implications The findings will be valuable for both practitioners and policy makers working in the field of youth justice as they offer a unique insight into the role of youth justice staff and the complexities within their role when working with a group of young people often vulnerable to poor outcomes. It is important for practitioners and managers to be able to reflect on the challenges in the role in order for clinical supervision to be emphasised when working with this client group. Originality/value To the authors’ knowledge this is the first study to provide an in-depth exploration of the experience of UK YOT officers working with adolescents who have displayed SHB.

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