scholarly journals Patients’ Willingness to Share Information in Online Patient Communities: Questionnaire Study

10.2196/16546 ◽  
2020 ◽  
Vol 22 (4) ◽  
pp. e16546
Author(s):  
Panpan Zhu ◽  
Jiang Shen ◽  
Man Xu

Background Online patient communities provide new channels for users to access and share medical information. In-depth study of users’ willingness to share information in online patient communities is of great significance for improving the level of information sharing among the patient community and the long-term development of communities. Objective The aim of this study was to build a model of factors affecting patients’ willingness to share medical information from the perspective of both positive and negative utilities. Specifically, we aimed to determine the influence of online information support and privacy concerns, as well as the moderating effect of disease severity and information sensitivity of different patients on their willingness to share. Methods Data from 490 users with experience in online patient communities were collected through a questionnaire survey, and structural equations were applied to empirically verify the model hypotheses. Results Privacy concerns negatively affected the patients’ willingness to share information (P<.001), whereas online information support positively affected patients’ willingness to share information (P<.001), and information sensitivity negatively moderated the impact of online information support on sharing willingness (P=.01). Disease severity positively moderated the impact of privacy concerns on sharing willingness (P=.05). However, the hypotheses that information sensitivity is a negative moderator and disease severity is a positive moderator of the impact of privacy concerns on sharing willingness could not be supported. Conclusions To improve the level of user information sharing, the online patient community should design a safe user registration process, ensure the confidentiality of information, reduce the privacy concerns of users, and accurately identify the information needs of patients to provide personalized support services.

Author(s):  
Panpan Zhu ◽  
Jiang Shen ◽  
Man Xu

BACKGROUND Online patient communities provide new channels for users to access and share medical information. In-depth study of users’ willingness to share information in online patient communities is of great significance for improving the level of information sharing among the patient community and the long-term development of communities. OBJECTIVE The aim of this study was to build a model of factors affecting patients’ willingness to share medical information from the perspective of both positive and negative utilities. Specifically, we aimed to determine the influence of online information support and privacy concerns, as well as the moderating effect of disease severity and information sensitivity of different patients on their willingness to share. METHODS Data from 490 users with experience in online patient communities were collected through a questionnaire survey, and structural equations were applied to empirically verify the model hypotheses. RESULTS Privacy concerns negatively affected the patients’ willingness to share information (<i>P</i>&lt;.001), whereas online information support positively affected patients’ willingness to share information (<i>P</i>&lt;.001), and information sensitivity negatively moderated the impact of online information support on sharing willingness (<i>P</i>=.01). Disease severity positively moderated the impact of privacy concerns on sharing willingness (<i>P</i>=.05). However, the hypotheses that information sensitivity is a negative moderator and disease severity is a positive moderator of the impact of privacy concerns on sharing willingness could not be supported. CONCLUSIONS To improve the level of user information sharing, the online patient community should design a safe user registration process, ensure the confidentiality of information, reduce the privacy concerns of users, and accurately identify the information needs of patients to provide personalized support services.


Author(s):  
Katia Premazzi ◽  
Monica Grosso ◽  
Sandro Castaldo

The development of new technologies opens many opportunities for retailers. Nevertheless, the adoption of many such technologies requires retailers to address customers’ privacy concerns to encourage them to share information with the firm. Indeed, a large amount of customer information is required before a retailer can exploit the opportunities that new technologies offer. This chapter seeks to help retailers reach this goal by investigating the effects that two variables, which have emerged as relevant in the literature, have on information sharing: trust and compensation (as a form of incentive). The results of two experimental studies focusing on the online setting show the key role that trust plays in increased online information sharing. These results are a starting point for research on the privacy-related issues of new technologies, as the online setting could be perceived as very risky in terms of the invasion of privacy.


2021 ◽  
Vol 2021 ◽  
pp. 1-23
Author(s):  
Shanshan Wang ◽  
Tian Luo ◽  
Daofang Chang

This paper examines the influence of information forecast accuracy on the profits of the supply chain under the circumstance of a multichannel apparel supply chain. Due to the emergence of multichannel, customer showrooming behavior is becoming increasingly prevalent. For example, consumers usually buy garments online after experiencing the service in the traditional bricks and mortar in the clothing industry. Meanwhile, there are often information barriers between the manufacturer and the retailer, which will affect enterprise decision-making. To solve these problems, this paper mainly investigates the information sharing and customer showrooming phenomenon, which includes four models: no information sharing without showrooming model (NN), information sharing without showrooming model (SN), no information sharing with showrooming model (NS), and information sharing with showrooming model (SS). The numerical analysis shows that under the impact of the forecast error, information sharing between channel members is more favorable than no information sharing when parameters satisfy certain conditions. From the perspectives of the retailer, the manufacturer, and the whole supply chain, customer showrooming behavior will bring them less profit. These conclusions mean that the retailer should share information with the manufacturer and adjust their service level and sales price to alleviate the effect of showrooming.


2011 ◽  
pp. 199-219
Author(s):  
Terry Kaan

In the decades since its independence in 1965, the transformation of Singapore’s economy and its transition to a relatively developed economy has also in like manner transformed its health care system, and of the demands made of it. The emergence and availability of new medical technologies has put into sharp focus many novel legal, ethical as well as social issues. This chapter looks at how Singapore has attempted to respond to issues thrown up by genetic testing and screening technologies. A particular focus of this chapter will be the tension between privacy concerns, and the imperatives of access for biomedical research, given that biomedical research has been championed by the Singapore government as one of the future leading sectors of the economy of Singapore. This chapter also examines Singapore’s approach to the question of “genetic exceptionalism:” Does genetic information possess special qualities or attributes that remove it from the realm of ordinary personal information, and which thereby demands special treatment and protection? In this context, the impact of the doctrine of genetic exceptionalism on industry (in this case the insurance industry) is examined.


2017 ◽  
Vol 25 (1) ◽  
pp. 103-122 ◽  
Author(s):  
Valerie Priscilla Goby ◽  
Hamad Mohammed Ahmad Ali ◽  
Mohammed Ahmad Abdulwahed Lanjawi ◽  
Khalil Ibrahim Mohammed Ahmad Al Haddad

Purpose The aim of this study is to conduct an initial investigation of information sharing between the vast number of expatriate employees and the small minority of local employees in Dubai’s private sector workforce. Research on the impact of the workforce localization policy has highlighted the frequent marginalization of locals within the expatriate-dominated private sector. One form of this is the reluctance of expatriates to share information with local recruits, and the authors conducted this study to assess the reality and extent of this phenomenon. Design/methodology/approach The authors designed a brief interview survey to probe how Emirati employees secure workplace information and whether they experience information withholding on the part of expatriate colleagues. The authors also explored whether any such experience impacts on their attitudes to working in the private sector since this is a key factor in the success of the localization policy. Complete responses were received from 0.9 per cent of the total local private sector workforce. Findings A notable lack of information sharing emerged with 58 per cent of respondents reporting their expatriate colleagues’ and superiors’ reluctance to share information with them, and 63 per cent describing experiences of discriminatory behavior. Research limitations/implications The authors identify key cultural and communication issues relating to localization within Dubai’s multicultural workforce. These include the broader cultural factors that determine how Emiratis conceptualize information sharing. Future research can pursue this issue to help inform the development of supportive information sharing practices. Such practices are an essential part of the creation of a diversity climate, which is necessary to sustain localization. Originality/value This study is a pioneering attempt to empirically investigate the information sharing practices that Emirati private sector employees experience. It suggests that the exclusion of citizens from the workplace through practices such as “ghost Emiratization” reverberates in the workplace through a lack of information sharing.


2020 ◽  
Vol 12 (19) ◽  
pp. 8286
Author(s):  
Sangmi Chai

While social media has become a very popular tool for sharing information and news worldwide, the ethical culture of the users emerged as a significant issue in cyber space. This research investigates the role of perceived ethical culture and information privacy concerns on social media behaviors. More importantly, this study investigates the role of cultural difference in the relationship among those factors. Based on the study results of U.S. and Korean social media users, this study found ethical culture to be positively associated and information privacy concerns negatively associated with users’ information-sharing behavior on social media. In addition, the study results indicated that the size of the impact of the two facts are varied between the two countries. This study’s results direct that users’ perceived ethical culture and privacy concerns are important factors affecting social media users’ information sharing. However, these factors could have a different impact with cultural differences.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Nik Thompson ◽  
Atif Ahmad ◽  
Sean Maynard

Purpose It is a widely held belief that users make a rational cost-benefit decision when choosing whether to disclose information online. Yet, in the privacy context, the evidence is far from conclusive suggesting that strong and as-yet unmeasured influences on behaviour may exist. This paper aims to demonstrate one such link – the effect of internet addiction on information disclosure. Design/methodology/approach Data from 216 Web users was collected regarding their perceptions on privacy and information disclosure intentions as well as avoidance behaviour, an element of internet addiction. Using a research model based on the Privacy Calculus theory, structural equation modelling was applied to quantify the determinants of online disclosure under various conditions. Findings The authors show that not all aspects of privacy (a multi-dimensional construct) influence information disclosure. While concerns about data collection influence self-disclosure behaviour, the level of awareness about privacy does not. They next examine the impact of internet addiction on these relationships, finding that internet addiction weakens the influence of privacy concerns to the point of non-significance. Originality/value The authors highlight some of the influences of self-disclosure behaviour, showing that some but not all aspects of privacy are influential. They also demonstrate that there are powerful influences on user behaviour that have not been accounted for in prior work; internet addiction is one of these factors. This provides some of the first evidence of the potentially deleterious effect of internet addiction on the privacy calculus.


2021 ◽  
pp. 016555152110605
Author(s):  
Sawasn J Al-Husseini

Based on the theory of reasoned action, this study examined the impact of social capital and individual motivations on information sharing in the context of higher education. The research conducted an online survey of 277 academic technicians in five academic institutions in public university in Iraq. The model was developed using the structural equation modelling technique with AMOS v.27 and conditional hypotheses were tested. The findings suggest that social connection, trust, reciprocity, shared language, vision and a positive attitude towards assisting others influence technicians’ willingness to share information. It is also shown that attitude and subjective norms significantly affect information-sharing intentions. The results provide insights into understanding the social capital processes and individual motivations that contribute to information sharing among academic technicians in developing countries, particularly Iraq. Therefore, lab managers can implement practical plans to support these factors.


2011 ◽  
pp. 1853-1873
Author(s):  
Terry Kaan

In the decades since its independence in 1965, the transformation of Singapore’s economy and its transition to a relatively developed economy has also in like manner transformed its health care system, and of the demands made of it. The emergence and availability of new medical technologies has put into sharp focus many novel legal, ethical as well as social issues. This chapter looks at how Singapore has attempted to respond to issues thrown up by genetic testing and screening technologies. A particular focus of this chapter will be the tension between privacy concerns, and the imperatives of access for biomedical research, given that biomedical research has been championed by the Singapore government as one of the future leading sectors of the economy of Singapore. This chapter also examines Singapore’s approach to the question of “genetic exceptionalism:” Does genetic information possess special qualities or attributes that remove it from the realm of ordinary personal information, and which thereby demands special treatment and protection? In this context, the impact of the doctrine of genetic exceptionalism on industry (in this case the insurance industry) is examined.


Kybernetes ◽  
2020 ◽  
Vol 49 (11) ◽  
pp. 2683-2712 ◽  
Author(s):  
Junfei Ding ◽  
Wenbin Wang

Purpose The purpose of this paper is to investigate the retailer’s strategy of information sharing in a green supply chain with promotional effort, and the impact of information sharing on the decisions and profits of the manufacturer and the retailer. Design/methodology/approach The developed models aim to maximize the profits of the manufacturer, the retailer and the green supply chain system. The game theory is used to obtain the equilibrium solutions of both the manufacturer and the retailer. A two-part compensation (TPC) contract is designed to motivate the retailer to share information with the retailer. Numerical examples are used to show the impact of parameters on decisions by Matlab 2014. Findings The results show that the green degree increases while the promotional effort level decreases when the manufacturer receives the larger demand information from the retailer; information sharing leads to a profit increase to the manufacturer and a profit loss to the retailer, but can increase the profit of supply chain under a certain condition; information sharing reduces the expected consumer surplus. The TPC contract designed in this paper can not only motivate the retailer to share information but also increases the consumer surplus. Research limitations/implications The study has been done in a monopoly environment where only a retailer can forecast demand information. It is an interesting direction of future research when considering there are more retailers who can forecast such information in a supply chain. Originality/value There exist two main aspects that are different from the existing literature. The stochastic demand function related to the retail price, the green degree and the promotional effort have never appeared in previous literature. This paper considers a green product supply chain with a manufacturer who produces green products and a retailer who has an information advantage because of her promotional effort; this paper investigates the impact of information sharing on the consumer surplus and designs a contract to coordinate the green supply chain.


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