scholarly journals Help to Overcome Problems Effectively for Cancer Survivors: Development and Evaluation of a Digital Self-Management Program

10.2196/17824 ◽  
2020 ◽  
Vol 22 (5) ◽  
pp. e17824 ◽  
Author(s):  
Faith Martin ◽  
Hayley Wright ◽  
Louise Moody ◽  
Becky Whiteman ◽  
Michael McGillion ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Outcome Measures ◽  
Well Being ◽  
Management Program ◽  
Fear Of Recurrence ◽  
Self Management ◽  
Cancer Related Fatigue ◽  
Psychosocial Challenges ◽  
Living With Cancer ◽  
Mental Well Being

Background People living with cancer face numerous psychosocial challenges, including cancer-related fatigue, fear of recurrence, and depression. There is a lack of digital interventions tailored to the needs of people living with all types of cancer. We developed a 6-week, digital, peer-delivered, self-management program: iHOPE (Help to Overcome Problems Effectively; where ‘i’ indicates the digital version of the program). The program is underpinned by positive psychology and cognitive behavioral therapy to meet these psychosocial challenges. Objective This study aimed to assess the feasibility of the iHOPE program among people living with cancer. Program adherence and satisfaction along with changes in psychological distress and positive well-being were measured. Methods A pre-post, acceptability, and feasibility design was used. People living with cancer (N=114) were recruited via a national cancer charity in the United Kingdom and were given access to the iHOPE program. Demographic and other participant characteristics were recorded. Participants completed digital measures at baseline and the end of the 6-week program for depression, anxiety, cancer-related fatigue, cancer worry or fear of cancer recurrence, positive mental well-being, hope, gratitude, and health status. The website’s system recorded data on the usage of the program. Satisfaction with the program was also measured. Results A total of 114 participants completed the baseline questionnaires. Of these, 70 people (61.4%) participated in all 6 sessions. The mean number of sessions undertaken was 5.0 (SD 1.5). Moreover, 44.7% (51/114) of participants completed at least three sessions and end-of-program outcome measures. A total of 59 participants completed the satisfaction questionnaire, where ≥90% (54/58) of participants reported that the program was easy to navigate and was well managed by the peer facilitators, and that they found the social networking tools useful. Preliminary efficacy testing among the 51 participants who completed baseline and postprogram outcome measures showed that postprogram scores decreased for depression, anxiety, cancer-related fatigue, and fear of recurrence (all P<.001) and increased for positive mental well-being (P<.001), hope (both P<.001), and gratitude (P=.02). Conclusions The feasibility evidence is promising, showing that the peer-delivered digital iHOPE program is acceptable and practical. Implementation of the iHOPE program on a wider scale will incorporate further research and development to maximize the completion rates of the measures. Initial effectiveness data suggest positive impacts on important cancer-related quality of life and mental well-being outcomes. A randomized controlled trial design with a longer follow-up is needed to confirm the potential of the iHOPE program for improving mental and physical health outcomes for cancer survivors.

scholarly journals Help to Overcome Problems Effectively for Cancer Survivors: Development and Evaluation of a Digital Self-Management Program (Preprint)

2020 ◽  
Author(s):  
Faith Martin ◽  
Hayley Wright ◽  
Louise Moody ◽  
Becky Whiteman ◽  
Michael McGillion ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Outcome Measures ◽  
Well Being ◽  
Management Program ◽  
Fear Of Recurrence ◽  
Self Management ◽  
Cancer Related Fatigue ◽  
Psychosocial Challenges ◽  
Living With Cancer ◽  
Mental Well Being

BACKGROUND People living with cancer face numerous psychosocial challenges, including cancer-related fatigue, fear of recurrence, and depression. There is a lack of digital interventions tailored to the needs of people living with all types of cancer. We developed a 6-week, digital, peer-delivered, self-management program: iHOPE (Help to Overcome Problems Effectively; where ‘i’ indicates the digital version of the program). The program is underpinned by positive psychology and cognitive behavioral therapy to meet these psychosocial challenges. OBJECTIVE This study aimed to assess the feasibility of the iHOPE program among people living with cancer. Program adherence and satisfaction along with changes in psychological distress and positive well-being were measured. METHODS A pre-post, acceptability, and feasibility design was used. People living with cancer (N=114) were recruited via a national cancer charity in the United Kingdom and were given access to the iHOPE program. Demographic and other participant characteristics were recorded. Participants completed digital measures at baseline and the end of the 6-week program for depression, anxiety, cancer-related fatigue, cancer <i>worry</i> or fear of cancer recurrence, positive mental well-being, hope, gratitude, and health status. The website’s system recorded data on the usage of the program. Satisfaction with the program was also measured. RESULTS A total of 114 participants completed the baseline questionnaires. Of these, 70 people (61.4%) participated in all 6 sessions. The mean number of sessions undertaken was 5.0 (SD 1.5). Moreover, 44.7% (51/114) of participants completed at least three sessions and end-of-program outcome measures. A total of 59 participants completed the satisfaction questionnaire, where ≥90% (54/58) of participants reported that the program was easy to navigate and was well managed by the peer facilitators, and that they found the social networking tools useful. Preliminary efficacy testing among the 51 participants who completed baseline and postprogram outcome measures showed that postprogram scores decreased for depression, anxiety, cancer-related fatigue, and fear of recurrence (all <i>P</i>&lt;.001) and increased for positive mental well-being (<i>P</i>&lt;.001), hope (both <i>P</i>&lt;.001), and gratitude (<i>P</i>=.02). CONCLUSIONS The feasibility evidence is promising, showing that the peer-delivered digital iHOPE program is acceptable and practical. Implementation of the iHOPE program on a wider scale will incorporate further research and development to maximize the completion rates of the measures. Initial effectiveness data suggest positive impacts on important cancer-related quality of life and mental well-being outcomes. A randomized controlled trial design with a longer follow-up is needed to confirm the potential of the iHOPE program for improving mental and physical health outcomes for cancer survivors.

scholarly journals The Role of Self-Management Practices as Mechanisms for Re-Establishing Normality in Cancer Survivors

2016 ◽  
Vol 27 (4) ◽  
pp. 520-533 ◽  
Author(s):  
Catherine Henshall ◽  
Sheila Greenfield ◽  
Nicola Gale
Keyword(s):  
Cancer Survivors ◽  
Management Practices ◽  
Well Being ◽  
Self Management ◽  
Use Of Self ◽  
Lifestyle Activities ◽  
The Relationship ◽  
Static Concept

This article explores the relationship between cancer survivors’ use of self-management practices and their search for normality. Using Frank’s illness narratives and other theoretical literature on normality in chronic illness, it draws on findings from a qualitative study to explore different ways cancer survivors use self-management practices to re-establish normality in their lives post-cancer. The findings suggest that “normality” represents different things to cancer survivors. We suggest that normality in survivorship is not a static concept but is fluid, and at certain times, cancer survivors may display some or all of these different versions of normality. The findings show that self-management practices can help cancer survivors experiment with different health and lifestyle processes to help support their “normal” daily lifestyle activities, quality of life, and well-being.

Adapting a peer-led self-management program for breast cancer survivors in Switzerland using a co-creative approach

2020 ◽  
Vol 103 (9) ◽  
pp. 1780-1789
Author(s):  
Franziska Schmidt ◽  
Karin Ribi ◽  
Joerg Haslbeck ◽  
Corinne Urech ◽  
Karin Holm ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Management Program ◽  
Self Management

scholarly journals Correlates of Physical Activity in Persons with Arthritis: Review and Recommendations

2005 ◽  
Vol 2 (2) ◽  
pp. 230-252 ◽  
Author(s):  
Sara Wilcox ◽  
Cheryl Der Ananian ◽  
Patricia A. Sharpe ◽  
Jennifer Robbins ◽  
Theresa Brady
Keyword(s):  
Physical Activity ◽  
Psychological Health ◽  
Reference Lists ◽  
Well Being ◽  
Self Management ◽  
Inclusion Criteria ◽  
Barriers And Enablers ◽  
Health Related ◽  
Mental Well Being ◽  
Consistent Support

Background:Physical activity (PA) is important for arthritis self-management. A better understanding of the PA correlates in persons with arthritis will help inform interventions.Methods:Computer searches were conducted on PubMed, PsychInfo, Current Contents, and Cinahl databases. Reference lists of extracted articles were also searched. Thirty-six studies published between 1976 and February 2004 met inclusion criteria.Results:PA correlates are presented for sociodemographic, psychological, health-related, social, and environmental categories. Self-efficacy, perceived benefits and barriers, mental well-being, prior PA, and pain received the most consistent support as PA correlates, whereas sociodemographic, social, and environmental variables were the least studied. Too few studies were conducted to allow comparisons across arthritis type or study design.Conclusions:We recommend that additional qualitative research be conducted to understand factors influencing PA in persons with arthritis. Prospective studies, particularly in the context of a PA program or intervention, would also be useful to better understand how barriers and enablers change over time.

scholarly journals Examining the Acceptability of a Personalized Self-Management Lifestyle Program Using Mobile Technology for Improving the Health and Well-being of Cancer Survivors: A Nested Mixed-Methods Study within a Randomised Controlled Trial (The Moving On Study). (Preprint)

2020 ◽  
Author(s):  
Jenny M. Groarke ◽  
Janice Richmond ◽  
Jenny McSharry ◽  
AnnMarie Groarke ◽  
Owen Harney ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Weight Management ◽  
Controlled Trial ◽  
Significant Proportion ◽  
Strong Support ◽  
Well Being ◽  
Self Management ◽  
Behaviour Change Techniques ◽  
Quantitative Survey ◽  
Constructive Feedback

BACKGROUND A significant proportion of cancer survivors are overweight. However, weight management is not a standard component of oncology aftercare. A lifestyle self-management intervention using mobile health technology (mHealth) and behaviour change techniques (BCTs) was delivered to cancer survivors with a BMI of 25 or over. OBJECTIVE This study aimed to examine the acceptability of the Moving On intervention and gather constructive feedback from those who participated in the intervention. METHODS In the context of a two-arm RCT, semi-structured interviews were carried out to assess retrospective acceptability of the intervention from the perspective of the recipients. The theoretical framework of acceptability of healthcare interventions was used to inform a topic guide. Interviews were transcribed and analysed using thematic analysis. A quantitative survey was also used to determine the intervention’s acceptability. A total of 13 participants were interviewed and 36 participants completed the quantitative survey. RESULTS Qualitative and quantitative results suggest strong support for the acceptability of the intervention. Most participants held a positive attitude towards the intervention and enjoyed many of its elements. In particular, the mHealth components were rated positively. In terms of intervention coherence, participants’ understanding of the intervention’s aim was broader than weight management and more focused on ‘moving on’ psychologically from cancer. The intervention was perceived to have high efficacy and low burden. CONCLUSIONS Based on the coherence of responses with theorised aspects of intervention acceptability, we are confident that this intervention using mHealth and BCTs to improve health and wellbeing outcomes is acceptable to cancer survivors. Participants made a number of recommendations concerning additional provision of social support. Future studies are needed to assess the feasibility of delivery in clinical practice, and acceptability of the intervention to those delivering the intervention. CLINICALTRIAL ISRCTN Registry. Registration number: 18676721 https://doi.org/10.1186/ISRCTN18676721 INTERNATIONAL REGISTERED REPORT RR2-10.2196/13214

scholarly journals Evaluation of a Web-Based Self-Management Program for Patients With Cardiovascular Disease: Explorative Randomized Controlled Trial

10.2196/17422 ◽  
2020 ◽  
Vol 22 (7) ◽  
pp. e17422
Author(s):  
Marscha M Engelen ◽  
Sandra van Dulmen ◽  
Saskia Puijk-Hekman ◽  
Hester Vermeulen ◽  
Maria WG Nijhuis-van der Sanden ◽  
...  
Keyword(s):  
Outcome Measures ◽  
Intervention Group ◽  
Patient Reported Outcome ◽  
Management Program ◽  
Self Management ◽  
Web Based ◽  
Outcome Measurements ◽  
Patient Reported ◽  
Potential Benefits ◽  
Insight Into

Background Web-based self-management programs have the potential to support patients with cardiovascular disease (CVD) in their self-management (eg, by focusing on behavior change and improving physical activity). The intervention mapping framework was used to develop a web-based program called Vascular View. The Vascular View program contained 6 modules (coping with CVD, setting boundaries, lifestyle, healthy nutrition, being physically active, interaction with health professionals) aiming to increase self-management behavior by tailoring to the perceived problems and (support) needs of patients after CVD. Objective The aim was to test the effectiveness of Vascular View before embarking on a full-scale randomized clinical trial (RCT) by evaluating the potential effectiveness and effect sizes of the Vascular View program and identifying outcome measures most likely to capture the potential benefits. Methods An explorative RCT was performed. Both control and intervention groups received care as usual and, in addition, the intervention group received 12 months of access to a web-based self-management program. Assessment occurred at baseline, 6 months, and 12 months. Outcome measures included general patient-reported outcome measurements: Illness Perception Questionnaire (IPQ), Rand-36, Patient Activation Measure, and patient self-efficacy. Module-specific patient-reported outcome measurements were Beliefs about Medicines Questionnaire, International Physical Activity Questionnaire, Dutch Healthy Diet Index, Fagerström Test for Nicotine Dependence (FTND), Alcohol Use Disorders Identification Test, and Perceived Efficacy in Patient-Physician Interaction. Linear mixed models for repeated measures using intention-to-treat and per-protocol analysis were applied to study differences between the patients in the intervention and control groups. Floor and ceiling effects were explored to give insight into the outcome measures most likely to capture the potential benefits. Results A total of 105 patients in the control group and 103 patients in the intervention group participated in the study. A positive direction of change between baseline and 12 months was shown for most outcome measurements in favor of the intervention group, of which 2 out of 10 outcomes showed a significant effect: attribution of cause of the disease to risk factors and immunity factors (IPQ) and dependency of nicotine (FTND). Floor and ceiling effects were seen in the IPQ, Rand-36, and the self-efficacy questionnaire. Conclusions No conclusion for the efficacy of the Vascular View program or selection of outcome measurements can be taken yet. A process evaluation will be conducted to gain thorough insight into the working elements of the program, patient needs in eHealth, and the use of the program by patients. This can determine for whom web-based self-management programs will work and help to adapt the program. Trial Registration Dutch Trial Register NTR5412; https://www.trialregister.nl/trial/5303 International Registered Report Identifier (IRRID) RR2-10.2196/resprot.6352

Randomized Trial of a Low-Literacy Chronic Pain Self-Management Program: Analysis of Secondary Pain and Psychological Outcome Measures

2018 ◽  
Vol 19 (12) ◽  
pp. 1471-1479 ◽  
Author(s):  
Barbara J. Turner ◽  
Yuanyuan Liang ◽  
Natalia Rodriguez ◽  
Raudel Bobadilla ◽  
Maureen J. Simmonds ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Randomized Trial ◽  
Outcome Measures ◽  
Program Analysis ◽  
Management Program ◽  
Self Management ◽  
Low Literacy ◽  
Psychological Outcome

The Effects of Self-Management Interventions on the Health Outcomes of Individuals With Chronic Kidney Disease After Critical Illness: An Integrative Review

2019 ◽  
Vol 13 (3) ◽  
pp. 126-144
Author(s):  
Claudia Leung Ho Yau ◽  
Janita Chau Pak Chun
Keyword(s):  
Quality Of Life ◽  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Health Outcomes ◽  
English Language ◽  
Well Being ◽  
Management Program ◽  
Self Management ◽  
Management Interventions

BackgroundSelf-management is a crucial step towards achieving better physical and mental well-being and a better health-related quality of life for individuals with chronic kidney disease (CKD). Despite the high prevalence of CKD and the significant burdens faced by the individuals with CKD, their caregivers, and healthcare systems, very few studies have explored CKD and its consequences compared to other chronic diseases.ObjectiveTo synthesize and present the best available evidence on the effectiveness of CKD self-management interventions in terms of the biomedical, psychosocial, and behavioral aspects of health outcomes.MethodsThree electronic English-language literature databases were searched from inceptions to March 2018. Two reviewers independently selected articles according to pre-specified criteria, critically appraised and extracted data from relevant research. Narrative summaries were presented because the interventions and study features of the included articles were heterogeneous.ResultsOf the five included articles, three were interventional and two were systematic reviews. Effective self-management interventions have beneficial effects on biomedical outcomes such as blood pressure, psychosocial outcomes such as quality of life and self-efficacy, and behavioral outcomes such as CKD knowledge, self-management techniques, and adherence to self-care regimens and treatments.ConclusionsA self-management program that could provide better education and guidance for individuals with CKD is needed, as this would improve the provision of resources and preparations for foreseeable and avoidable CKD complications. The findings from the included articles demonstrate that limited amount of research has focused on CKD management. Additional randomized controlled trials that compare interventions with usual care are needed to determine the efficacy of CKD self-management programs.

scholarly journals Effects of the Community-Based Wellspring Cancer Exercise Program on Functional and Psychosocial Outcomes in Cancer Survivors

2017 ◽  
Vol 24 (5) ◽  
pp. 284-294 ◽  
Author(s):  
D. Santa Mina ◽  
D. Au ◽  
J. Brunet ◽  
J. Jones ◽  
G. Tomlinson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Initial Phase ◽  
Exercise Program ◽  
Well Being ◽  
Transition Phase ◽  
Community Based ◽  
Cancer Related Fatigue ◽  
Health Related

Purpose: In this study, we examined the effects of a 30-week community-based exercise program on cancer-related fatigue, quality of life, and other health-related outcomes in a sample of adults with mixed cancer diagnoses. Methods: This prospective cohort study looked at outcomes for participants involved in the Wellspring Cancer Exercise Program in southern Ontario. The program consisted of an initial phase of two supervised sessions weekly for 10 weeks and a transition phase of one supervised session weekly for the subsequent 20 weeks. Outcomes were measured at baseline and every 10 weeks throughout the intervention, as well as at 16 weeks after program completion. Results: During a period of 13 months, 229 of the 355 cancer survivors who enrolled in the exercise program consented to participate in the study. Participants attended 71% of the supervised exercise sessions in the initial phase and 49% in the transition phase. From baseline to the end of the initial phase, significant improvements in cancer-related fatigue, 6-minute walk test, social well-being, systolic blood pressure, balance, and physical activity volume were observed. During the transition phase, health-related quality of life and emotional well-being improved significantly. Conclusions: The Wellspring Cancer Exercise Program is associated with clinically meaningful improvements in cancer-related fatigue and functional aerobic capacity. Several other aspects of well-being in cancer survivors also improved for participants in the program. Community-based cancer exercise programs such as the Wellspring Cancer Exercise Program can improve well-being for cancer survivors and can provide an effective option that enhances sustainability and accessibility to exercise services for this population.

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