scholarly journals Online Information-Seeking About Potential Breast Cancer Symptoms: Capturing Online Behavior With an Internet Browsing Tracking Tool (Preprint)

2018 ◽  
Author(s):  
Afrodita Marcu ◽  
Cecile Muller ◽  
Emma Ream ◽  
Katriina L Whitaker

BACKGROUND People engage in health information-seeking online when experiencing unusual or unfamiliar bodily changes. It is not well understood how people consult the internet for health information after the onset of unfamiliar symptoms and before receiving a potential diagnosis and how online information-seeking can help people appraise their symptoms. This lack of evidence may be partly due to methodological limitations in capturing in real time the online information-seeking process. OBJECTIVE We explored women’s symptom attribution and online health information-seeking in response to a hypothetical and unfamiliar breast change suggestive of cancer (nipple rash). We also aimed to establish the feasibility of capturing in real time the online information-seeking process with a tool designed to track participant online searches and visited websites, the Vizzata browser tracker. METHODS An online survey was completed by 56 cancer-free women (mean age 60.34 [SD 7.73] years) responding to a scenario asking them to imagine noticing a red scaly rash on the nipple. Participants were asked to make symptom attributions when presented with the scenario (T1) and again after seeking information online (T2). The online tracking tool, embedded in the survey, was used to capture in real time participant search terms and accessed websites. RESULTS The tracking tool captured the search terms and accessed websites of most of the participants (46/56, 82%). For the rest (10/56, 18%), there was evidence of engagement in online information-seeking (eg, medical terminology and cancer attribution at T2) despite their searching activity not being recorded. A total of 25 participants considered cancer as a potential cause for the nipple rash at T1, yet only one of these used cancer as a search term. Most participants (40/46, 87%) used rash-related search terms, particularly nipple rash and rash on nipple. The majority (41/46, 89%) accessed websites containing breast cancer information, with the National Health Service webpage “Paget disease of the nipple” being the most visited one. At T2, after engaging in the internet search task, more participants attributed the nipple rash to breast cancer than at T1 (37/46, 66% vs 25/46, 45%), although a small number of participants (6/46) changed from making a cancer attribution at T1 to a noncancer one at T2. CONCLUSIONS Making a cancer attribution for an unfamiliar breast change did not necessarily translate into cancer-termed searches. Equally, not all internet searches led to a cancer attribution. The findings suggest that online information-seeking may not necessarily help women who experience unfamiliar breast cancer symptoms understand their condition. Despite some technical issues, this study showed that it is feasible to use an online browser tracking tool to capture in real time information-seeking about unfamiliar symptoms.

Crisis ◽  
2017 ◽  
Vol 38 (3) ◽  
pp. 207-209 ◽  
Author(s):  
Florian Arendt ◽  
Sebastian Scherr

Abstract. Background: Research has already acknowledged the importance of the Internet in suicide prevention as search engines such as Google are increasingly used in seeking both helpful and harmful suicide-related information. Aims: We aimed to assess the impact of a highly publicized suicide by a Hollywood actor on suicide-related online information seeking. Method: We tested the impact of the highly publicized suicide of Robin Williams on volumes of suicide-related search queries. Results: Both harmful and helpful search terms increased immediately after the actor's suicide, with a substantial jump of harmful queries. Limitations: The study has limitations (e.g., possible validity threats of the query share measure, use of ambiguous search terms). Conclusion: Online suicide prevention efforts should try to increase online users' awareness of and motivation to seek help, for which Google's own helpline box could play an even more crucial role in the future.


2020 ◽  
Author(s):  
Ramin Ravangard ◽  
Kefayat Chaman-Ara ◽  
Elham Bahrami ◽  
mohammad amin bahrami

Abstract Background: Breast cancer is the most common cancer of women worldwide. This study was aimed to review systematically the current literature on the health information seeking behavior of breast cancer patients and to conduct the qualitative analysis of findings. Methods: We searched PubMed, Web of Science, Science Direct, CINHAL, Embase, Google Scholar, Cochrane database of systematic review, PSYCINO, SID and Magiran databases. A total of 60 articles included in the study. Findings of all studies were extracted, the content analysis was conducted and a series of themes and categories were identified Results: 13 themes were identified in the published studies. The related findings of all themes are presented and discussed. Conclusion: We summarized and classified all the findings of studies on the health information seeking behavior of breast cancer patients. Our classification can be used for the comprehensive examination of the breast cancer patients’ health information seeking behavior to develop improvement policies.


2005 ◽  
Vol 60 (7) ◽  
pp. 1467-1478 ◽  
Author(s):  
Nicola J. Gray ◽  
Jonathan D. Klein ◽  
Peter R. Noyce ◽  
Tracy S. Sesselberg ◽  
Judith A. Cantrill

2016 ◽  
Vol 34 (7_suppl) ◽  
pp. 190-190 ◽  
Author(s):  
Enrique Soto Perez De Celis ◽  
Edgar Baltazar-Avalos ◽  
Lorena Ali Guadalupe Rocha-Rojo ◽  
Patricia Rojo-Castillo ◽  
Yanin Chavarri Guerra

190 Background: In order to improve the quality of the communication between the healthcare system and cancer survivors, it is fundamental to understand their preferred sources of health information. In low and middle-income countries (LMICs), little is known regarding which sources are used and trusted the most. This information is crucial to develop effective communication aimed at achieving high-quality equitable cancer care. Our objective was to explore the preferred sources of health information in Mexico, and to understand which factors influence these choices. Methods: We examined sources of health information among cancer survivors in Mexico City using questions from the Spanish Version of the Health Information National Trends Survey (HINTS). The characteristics of survivors who preferred the internet were compared with those who preferred other sources (doctors, printed materials, family members, organizations) using Fisher’s exact test. Logistic regression was used to assess the effects of patient characteristics on health information-seeking. Results: Of 148 participants, 82 (56%) had internet access. Of the 88 patients who had sought health information, 61 (69%) listed the internet as their preferred source. Those 65 and older were less likely to seek health information, regardless of the source (OR 0.17, p < 0.0001). Survivors who preferred the internet were more likely to be younger (p = 0.001), male (p = 0.003) and to have a higher educational level (p = 0.009). Comorbidities, stage, cancer type, and time from diagnosis had no effect on patient preferences. Doctors were the most trusted source of information (85%), followed by the internet (28%) and government agencies (23%). Conclusions: Mexican patients who seek health information online are more likely to be young educated males. Doctors represent the most trusted source of information, particularly for patients from vulnerable populations (such as older women with low educational levels). High-quality healthcare information programs in LMICs should be designed taking these behaviors into account, and patients should continue to receive health information via their most trusted sources.


2013 ◽  
Vol 3 (2) ◽  
pp. 69-87
Author(s):  
Eimi Lev

Abstract: In recent years, the internet has become a popular medium for pregnant women seeking pregnancy-related information (Gao et al., 2012; Lagan, Sinclair & Kernohan, 2010; Romano, 2007; Song, West, Lundy & Smith-Dahmen, 2012). This study which utilized a qualitative approach explores Israeli women’s online information seeking during pregnancy. Israel is an especially interesting and important case study for exploring pregnancy-related internet use, because Israel has the highest rate of prenatal testing in the world (Lavi, 2010). The findings of this study indicated that the most prominent type of information sought by Israeli pregnant women online was focused on prenatal tests. The internet as a source of pregnancy-related information seems to function not just as a means to fulfill personal informational needs, but also to represent a broader social phenomenon of a highly medicalized pregnancy that seem to intensify uncertainty and therefore, to increase the need to rely on the internet during pregnancy.


2020 ◽  
Vol 38 (1) ◽  
Author(s):  
Fatemeh KHademian ◽  
Mahsa Roozrokh Arshadi Montazer ◽  
Azam Aslani

Objective. This study aimed to assess web-based health information seeking and eHealth literacy among Iranian college students. Methods. The study was conducted in five colleges of the Shiraz University of Medical Sciences in Iran during 2018. The data were collected by a researcher-made questionnaire consisting of seven questions on a 4-point Likert-type scale, with scores ranging from 7 to 28. These questions were: ′I know how to use the Internet to answer my questions about health′, ′I think there is enough information about health-related issues on the Internet′, ′I know the vocabulary used in health issues on the Internet′, ′I can tell high-quality health resources from low-quality health resources on the Internet′, ′I know how to use the health information I find on the Internet to help me′, ′I feel confident in using information from the Internet to make health decisions′, and ′Searching for health-related information on the Internet will increase my knowledge in this field′. High eHealth literacy level is defined as above the total mean score and low eHealth literacy level is defined as lower than the total mean score. Results. In all, 386 college students participated in the study. The results showed that the mean score of eHealth literacy was 19.11 out of 28; 205 participants (54.4%) had low eHealth literacy. In addition, the students used the Internet to search for information regarding diseases symptoms (70%), physical illnesses (67.1%), existing treatments (65%), and diagnosis (63.1%). Conclusion. The results showed that participants in this study usually searched for illnesses, symptoms, and treatments after they got sick and paid little attention to other aspects related to integral health.How to cite this article: KHademian F, Roozrokh M, Aslani A. Web-based health Information Seeking and eHealth Literacy among College students. A Self-report study. Invest. Educ. Enferm. 2020. 38(1):e08.


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