scholarly journals Managing Potentially Intrusive Practices in the Browser: A User-Centered Perspective

2021 ◽  
Vol 2021 (4) ◽  
pp. 500-527
Author(s):  
Daniel Smullen ◽  
Yaxing Yao ◽  
Yuanyuan Feng ◽  
Norman Sadeh ◽  
Arthur Edelstein ◽  
...  

Abstract Browser users encounter a broad array of potentially intrusive practices: from behavioral profiling, to crypto-mining, fingerprinting, and more. We study people’s perception, awareness, understanding, and preferences to opt out of those practices. We conducted a mixed-methods study that included qualitative (n=186) and quantitative (n=888) surveys covering 8 neutrally presented practices, equally highlighting both their benefits and risks. Consistent with prior research focusing on specific practices and mitigation techniques, we observe that most people are unaware of how to effectively identify or control the practices we surveyed. However, our user-centered approach reveals diverse views about the perceived risks and benefits, and that the majority of our participants wished to both restrict and be explicitly notified about the surveyed practices. Though prior research shows that meaningful controls are rarely available, we found that many participants mistakenly assume opt-out settings are common but just too difficult to find. However, even if they were hypothetically available on every website, our findings suggest that settings which allow practices by default are more burdensome to users than alternatives which are contextualized to website categories instead. Our results argue for settings which can distinguish among website categories where certain practices are seen as permissible, proactively notify users about their presence, and otherwise deny intrusive practices by default. Standardizing these settings in the browser rather than being left to individual websites would have the advantage of providing a uniform interface to support notification, control, and could help mitigate dark patterns. We also discuss the regulatory implications of the findings.

BMJ Open ◽  
2019 ◽  
Vol 9 (4) ◽  
pp. e024621 ◽  
Author(s):  
Christian Heuser ◽  
Annika Diekmann ◽  
Nicole Ernstmann ◽  
Lena Ansmann

IntroductionA central instrument of multidisciplinary care is the multidisciplinary tumour conference (MTC). In MTCs, diagnosis and treatment of cancer patients are discussed, and therapy recommendations are worked out. As we found previously, patients participate in MTCs in some breast cancer centres in the state of North Rhine-Westphalia, Germany. However, studies on risks and benefits of patient participation have not provided substantiated findings. Therefore, the study’s objective is to analyse differences between MTCs with and without patient participation.Methods and analysisThis is an exploratory mixed-methods study. MTCs in six breast and gynaecological cancer centres in North Rhine-Westphalia, Germany, are examined. MTCs will be conducted with and without patient participation. First, interviews with providers concentrating on the feasibility of patient participation and quality of decision-making will be carried out, transcribed and analysed by means of content analysis. Second, videotaped or audiotaped participatory observations in MTCs will be executed. Video data or transcribed audio data from video and audio recordings will be coded using the established "Observational Assessment Rating Scale" for MTCs and analysed by comparing centres with and without patient participation. Third, all patients will fill out a questionnaire before and after MTC, including questions on psychosocial situation, decision-making and expectations before and experiences after MTC. The questionnaire data will be analysed by means of descriptive and multivariate statistics and pre-post-differences within and between groups.Ethics and disseminationConsultation and a positive vote from the ethics committee of the Medical Faculty of the University of Cologne have been obtained. For all collected data, relevant data protection regulations will be adhered to. All personal identifiers from patients and providers will be pseudonymised, except video recordings. Dissemination strategies include a discussion with patients and providers in workshops about topics such as feasibility, risks and benefits of patient participation in MTCs.Trial registration numberDRKS00012552.


2019 ◽  
Vol 28 (3) ◽  
pp. 660-672
Author(s):  
Suzanne H. Kimball ◽  
Toby Hamilton ◽  
Erin Benear ◽  
Jonathan Baldwin

Purpose The purpose of this study was to evaluate the emotional tone and verbal behavior of social media users who self-identified as having tinnitus and/or hyperacusis that caused self-described negative consequences on daily life or health. Research Design and Method An explanatory mixed-methods design was utilized. Two hundred “initial” and 200 “reply” Facebook posts were collected from members of a tinnitus group and a hyperacusis group. Data were analyzed via the LIWC 2015 software program and compared to typical bloggers. As this was an explanatory mixed-methods study, we used qualitative thematic analyses to explain, interpret, and illustrate the quantitative results. Results Overall, quantitative results indicated lower overall emotional tone for all categories (tinnitus and hyperacusis, initial and reply), which was mostly influenced by higher negative emotion. Higher levels of authenticity or truth were found in the hyperacusis sample but not in the tinnitus sample. Lower levels of clout (social standing) were indicated in all groups, and a lower level of analytical thinking style (concepts and complex categories rather than narratives) was found in the hyperacusis sample. Additional analysis of the language indicated higher levels of sadness and anxiety in all groups and lower levels of anger, particularly for initial replies. These data support prior findings indicating higher levels of anxiety and depression in this patient population based on the actual words in blog posts and not from self-report questionnaires. Qualitative results identified 3 major themes from both the tinnitus and hyperacusis texts: suffering, negative emotional tone, and coping strategies. Conclusions Results from this study suggest support for the predominant clinical view that patients with tinnitus and hyperacusis have higher levels of anxiety and depression than the general population. The extent of the suffering described and patterns of coping strategies suggest clinical practice patterns and the need for research in implementing improved practice plans.


Author(s):  
D. J. Sullivan ◽  
S. Labby ◽  
A. Koptelov ◽  
S. L. Sullivan

The purpose of this mixed methods study was to determine the barriers that special educator teachers encounter when using iPads within the Life Skills classroom. The research investigates the experiences, frustrations, and barriers through educators’ perceptions of iPad implementation. The influence of these issues suggests why iPad usage is not a device that special education classrooms are using in a widespread daily manner. Exploration of iPads as an educational tool and as a communication device is also discussed, along with considerations of other communications systems such as Picture Exchange Communication Systems and Alternative and Augmented Communication Devices is considered. Recommendations for further possible research are also discussed.


2020 ◽  
Author(s):  
Naomi Fulop ◽  
Estela Capelas Barbosa ◽  
Melissa Hill ◽  
Jean Ledger ◽  
Pei Li Ng ◽  
...  

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