Identifying the factors of public involvement in private charities

2017 ◽  
Vol 10 (9) ◽  
pp. 1076-1084
Author(s):  
M.Sh. Urazbaev ◽  
Keyword(s):  
Public Involvement

PART 6: Light Rail Transit: We Can’t Hear You! San Diego’s Techniques for Getting Balanced Community Input in Major Investment Studies

1997 ◽  
Vol 1571 (1) ◽  
pp. 195-207 ◽  
Author(s):  
Toni Botte Bates ◽  
Dennis J. Wahl
Keyword(s):  
Public Relations ◽  
Public Involvement ◽  
Public Works ◽  
Light Rail ◽  
Rail Transit ◽  
Project Design ◽  
State Laws ◽  
Public Meetings ◽  
Minimum Requirements ◽  
Community Input

Virtually all public works projects require a substantial planning effort to identify impacts, costs, and alternatives. Federal and state laws and regulations call for certain levels of public involvement during planning, but meaningful, collaborative public involvement entails doing more than the minimum requirements. This is particularly true when there appears to be an imbalance in public input, where one viewpoint is heard above others. The San Diego Metropolitan Transit Development Board (MTDB) has undertaken efforts on two corridor projects to expand its public involvement in ways that maximize the range of community views, enhance project design, and build support for the project. In addition to the traditional public meetings, newsletters, and open houses, MTDB has used public relations firms, neutral facilitators, and staff outreach to achieve expanded public involvement goals. MTDB has found that, while there are risks and costs associated with these approaches, they ultimately result in better projects that receive more widespread public and political acceptance.

Public Evaluation of Municipal Water Reuse Alternatives

1992 ◽  
Vol 26 (7-8) ◽  
pp. 1537-1543 ◽  
Author(s):  
W. H. Bruvold
Keyword(s):  
Water Reuse ◽  
Environmental Planning ◽  
Public Involvement ◽  
Intermediate Phase ◽  
Population Surveys ◽  
Short List ◽  
Municipal Water ◽  
Public Evaluation ◽  
Technical Planning ◽  
The One

Models recommended for public involvement in environmental planning call for: 1) early and full involvement with technical planners from the start, 2) involvement at an intermediate phase once technical planners have developed a short list of the most feasible alternatives, and 3) later involvement only by ratification of the one alternative selected and developed by technical planners. The present study reports results assessing public involvement in planning at the intermediate phase using results from three general population surveys of the greater San Diego area done in 1989, 1990, and 1991 which dealt with municipal water reuse alternatives. Feasibility of the intermediate approach was demonstrated by correspondence between survey and technical planning evaluations and by consistency between and within survey findings.

Vignettes

2018 ◽  
Author(s):  
Marc J. Stern
Keyword(s):  
Real World ◽  
Environmental Sustainability ◽  
National Park ◽  
Public Involvement ◽  
Energy Savings ◽  
Rapid Development ◽  
Environmental Problems ◽  
Persuasive Communications ◽  
For Profit ◽  
The Face

Chapter 9 contains five vignettes, each based on real world cases. In each, a character is faced with a problem and uses multiple theories within the book to help him or her develop and execute a plan of action. The vignettes provide concrete examples of how to apply the theories in the book to solving environmental problems and working toward environmental sustainability in a variety of contexts, including managing visitors in a national park, developing persuasive communications, designing more collaborative public involvement processes, starting up an energy savings program within a for-profit corporation, and promoting conservation in the face of rapid development.

scholarly journals Reflective insights from developing a palliative care children and young people’s advisory group

2021 ◽  
pp. 026921632097603
Author(s):  
Anna Roach ◽  
Debbie Braybrook ◽  
Steve Marshall
Keyword(s):  
Palliative Care ◽  
Young People ◽  
Health Research ◽  
School Health ◽  
Public Involvement ◽  
After School ◽  
Advisory Group ◽  
Research Projects ◽  
Children And Young People ◽  
Care Research

Background: The importance of actively involving patient and public members throughout the different stages of palliative care and health research projects is widely acknowledged, however patient and public involvement work rarely considers insight from children and young people. Although this is becoming increasingly recognised in other areas of research, there is currently no structured guidance on how to best involve children and young people in palliative care research. Aim: To plan and deliver a Young People’s Advisory Group in palliative care and health research at a secondary school. Findings: Attending an after-school ‘Health and Social Research Methods Club’ for 11 weeks benefitted children and researchers. Children were taught about data collection methods, data analysis and ethics in health research and used these skills to provide valuable feedback which has been implemented in current palliative care research projects. Children took part in considered discussions around palliative care topics and enjoyed attending the group. Conclusion: This project has equipped researchers with skills and provided a structured template for future Young People’s Advisory Groups, ensuring the unique voices of children and young people are considered and valued in future palliative care research.

scholarly journals PARE0007 PATIENT AND PUBLIC INVOLVEMENT IN CLINICAL TRIAL DESIGN

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1289.1-1290
Author(s):  
S. De Souza ◽  
R. Williams ◽  
E. Johansson ◽  
C. Zabalan ◽  
T. Esterine ◽  
...  
Keyword(s):  
At Risk ◽  
Lived Experience ◽  
Public Involvement ◽  
Clinical Trial Design ◽  
Patient And Public Involvement ◽  
Face To Face ◽  
Before And After ◽  
Extensive Consultation ◽  
New Perspective ◽  
The Eu

Background:Patient and public involvement (PPI) is gaining increasing recognition as important in ensuring research is relevant and acceptable to participants. Rheuma Tolerance for Cure (RTCure) is a 5 year international collaboration between academia and industry; focusing on earlier detection and prevention of rheumatoid arthritis (RA) through the use of immune-tolerising treatments.Objectives:To bring lived experience and insight into scientific discussions; and to evolve collaboration between lay representatives and academia/industry.Methods:9 Patient Research Partners (PRPs) from 5 European countries were recruited via the EULAR PARE Network and institutions within the RTCure Consortium (8 PRPs with RA and 1 ‘at risk’). They were asked to enter into a legal agreement with the Consortium. PRPs participated in teleconferences (TCs) and were invited to attend face-to-face (F2F) meetings at least annually. Requests for input/feedback were sent from researchers to PRPs via the project’s Patient Engagement Expert [SK].Results:PRP involvement has given researchers and industry partners a new perspective on patient priorities, and focused thought on the ethics of recruitment for and participation in clinical trials of people ‘at risk’ of developing RA. PRPs have helped define the target populations, given their thoughts on what types of treatments are acceptable to people ‘at risk’ and have aided the development of a survey (sent to EULAR PARE members) regarding the use of animal models in biomedical research. Positive informal feedback has been received from researchers and industry regarding the contribution of PRPs to the ongoing project (formal evaluation of PPI in RTCure will be carried out in 2020 and at the project end in 2022).Challenges:Legal agreements- Many PRPs refused to sign the Consortium’s complex PRP Agreement; feeling it unnecessary, incomprehensible and inequitable. After extensive consultation with various parties (including EULAR and the Innovative Medicines Initiative) no similar contract was found. Views for its requirement even varied between legal experts. After 2 years of intense discussion, a simple non-disclosure agreement was agreed upon. Ideally any contract, if required, should be approved prior to project onset.Meeting logistics- Other improvements identified were to locate the meeting venue and accommodation on the same site to minimise travel, and to make it easier for PRPs to take breaks when required. This also facilitates informal discussions and patient inclusivity. We now have agreed a policy to fund PRPs extra nights before and after meetings, and to bring a carer if needed.Enabling understanding– Future annual meetings will start with a F2F meeting between PRPs and Work Package Leads. Researchers will be encouraged to start presentations with a summary slide in lay language. Additionally, an RTCure Glossary is in development.Enabling participation– SK will provide monthly project updates and PRP TCs will be held in the evening (as some PRPs remain employed). PRPs will be invited to all project TCs and F2F meetings. Recruitment is underway to increase the number of ‘at risk’ PRPs as their viewpoint is vital to this study.Conclusion:Currently PPI in RTCure is an ongoing mutual learning process. Universal guidance regarding what types of contracts are needed for PPI would be useful. Communication, trust and fruitful discussions have evolved through F2F meetings (both formal and informal) between PRPs, academia and industry. It is important that all parties can be open with each other in order to make PPI more meaningful.Acknowledgments:This work has received support from the EU/EFPIA Innovative Medicines Initiative 2 Joint Undertaking RTCure grant number 777357.Disclosure of Interests:Savia de Souza: None declared, Ruth Williams: None declared, Eva Johansson: None declared, Codruta Zabalan: None declared, Tom Esterine: None declared, Margôt Bakkers: None declared, Wolfgang Roth: None declared, Neil Mc Carthy: None declared, Meryll Blake: None declared, Susanne Karlfeldt: None declared, Martina Johannesson: None declared, Karim Raza Grant/research support from: KR has received research funding from AbbVie and Pfizer, Consultant of: KR has received honoraria and/or consultancy fees from AbbVie, Sanofi, Lilly, Bristol-Myers Squibb, UCB, Pfizer, Janssen and Roche Chugai, Speakers bureau: KR has received honoraria and/or consultancy fees from AbbVie, Sanofi, Lilly, Bristol-Myers Squibb, UCB, Pfizer, Janssen and Roche Chugai

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