scholarly journals Home Education for Children with Newly Diagnosed Type-1 Diabetes-Exploring Needs and Experiences among Participants of Home Education Visits

2021 ◽  
Vol 8 (2) ◽  
Author(s):  
Truelsen MF ◽  
◽  
Christiansen SY ◽  
Lundby-Christensen L ◽  
Lehn SF ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Social Network ◽  
Focus Group ◽  
Diabetes Care ◽  
Health Care Professionals ◽  
Home Education ◽  
Newly Diagnosed ◽  
Focus Group Interviews ◽  
Group Interviews

Objective: Type 1-diabetes is increasing among younger age groups and type 1-diabetes has a major impact on daily life of both the children and their families. The aim of the current study was to explore a family and network centered intervention to children with newly diagnosed type-1 diabetes. Home education visits performed by health care professionals were evaluated using focus group interviews. Method: We conducted five focus group interviews with 21 home education attendants and two individual interviews with health care professionals. Employing inductive content analysis. Results: Families of children who have newly been diagnosed with type 1-diabetes struggle to comply with diabetes care and, thus, leaving the children to the care of others is a major concern. Lack of knowledge among members of family and social network, adhere to an anxiety of doing something wrong in relation to diabetes care. Home education visits educate the wider family and social network about diabetes care. Focus group participants and health professionals describe that the education visits constitute a major support for parents in the task of instructing family and social network members. Additionally, family and social network members report that they feel more confident to contribute more to the care of the child with type 1-diabetes. Conclusion: Existing prejudices and lack of knowledge leads to stress and worry among the social network of children with type-1 diabetes. Home education improves knowledge and feeling of confidence concerning diabetes care among family and social network, with the potential to strengthen and maintain close social relations.

scholarly journals Patients’ and Health Care Professionals’ Perceptions of the Potential of Using the Digital Diabetes Questionnaire to Prepare for Diabetes Care Meetings: Qualitative Focus Group Interview Study

10.2196/17504 ◽  
2020 ◽  
Vol 22 (8) ◽  
pp. e17504 ◽  
Author(s):  
Katarina Eeg-Olofsson ◽  
Unn-Britt Johansson ◽  
Ebba Linder ◽  
Janeth Leksell
Keyword(s):  
Health Care ◽  
Focus Group ◽  
Diabetes Care ◽  
Health Care Professionals ◽  
Digital Technology ◽  
Focus Group Interview ◽  
Diabetes Management ◽  
Focus Group Interviews ◽  
Group Discussions ◽  
Group Interviews

Background In effective diabetes management, it is important that providers and health care systems prioritize the delivery of patient-centered care and that they are respectful of and responsive to individual patient preferences and barriers. Objective The objective of the study was to conduct focus group interviews to capture patients’ and health care professionals’ perceptions and attitudes regarding digital technology and to explore how the digital Diabetes Questionnaire can be used to support patient participation in diabetes care, as a basis for an implementation study. Methods A qualitative study was conducted with six focus group discussions with diabetes specialist nurses and medical doctors (n=29) and four focus group discussions with individuals with diabetes (n=23). A semistructured focus group interview guide was developed, including probing questions. The data were transcribed verbatim, and qualitative content analysis was performed using an inductive approach. Results Two main categories were revealed by the qualitative analysis: perceptions of digital technology and the digital questionnaire in diabetes management and care and perceptions of participation in diabetes care. An overarching theme that emerged from the focus group interviews was patients’ and professionals’ involvement in diabetes care using digital tools. Conclusions The analysis identified important factors to consider when introducing the digital Diabetes Questionnaire in clinical use. Both professionals and patients need support and training in the practical implementation of the digital questionnaire, as well as the opportunity to provide feedback on the questionnaire answers.

scholarly journals Patients’ and Health Care Professionals’ Perceptions of the Potential of Using the Digital Diabetes Questionnaire to Prepare for Diabetes Care Meetings: Qualitative Focus Group Interview Study (Preprint)

2019 ◽  
Author(s):  
Katarina Eeg-Olofsson ◽  
Unn-Britt Johansson ◽  
Ebba Linder ◽  
Janeth Leksell
Keyword(s):  
Health Care ◽  
Focus Group ◽  
Diabetes Care ◽  
Health Care Professionals ◽  
Digital Technology ◽  
Focus Group Interview ◽  
Diabetes Management ◽  
Focus Group Interviews ◽  
Group Discussions ◽  
Group Interviews

BACKGROUND In effective diabetes management, it is important that providers and health care systems prioritize the delivery of patient-centered care and that they are respectful of and responsive to individual patient preferences and barriers. OBJECTIVE The objective of the study was to conduct focus group interviews to capture patients’ and health care professionals’ perceptions and attitudes regarding digital technology and to explore how the digital Diabetes Questionnaire can be used to support patient participation in diabetes care, as a basis for an implementation study. METHODS A qualitative study was conducted with six focus group discussions with diabetes specialist nurses and medical doctors (n=29) and four focus group discussions with individuals with diabetes (n=23). A semistructured focus group interview guide was developed, including probing questions. The data were transcribed verbatim, and qualitative content analysis was performed using an inductive approach. RESULTS Two main categories were revealed by the qualitative analysis: <i>perceptions of digital technology and the digital questionnaire in diabetes management and care</i> and <i>perceptions of participation in diabetes care</i>. An overarching theme that emerged from the focus group interviews was <i>patients’ and professionals’ involvement in diabetes care using digital tools.</i> CONCLUSIONS The analysis identified important factors to consider when introducing the digital Diabetes Questionnaire in clinical use. Both professionals and patients need support and training in the practical implementation of the digital questionnaire, as well as the opportunity to provide feedback on the questionnaire answers.

scholarly journals Patient Rounds With Video-Consulted Relatives: Qualitative Study on Possibilities and Barriers From the Perspective of Healthcare Providers (Preprint)

2018 ◽  
Author(s):  
Christina Østervang ◽  
Lene Vedel Vestergaard ◽  
Karin Brochstedt Dieperink ◽  
Dorthe Boe Danbjørg
Keyword(s):  
Health Care ◽  
Focus Group ◽  
Health Care Professionals ◽  
Health Care Systems ◽  
New Technology ◽  
Work And Family ◽  
Focus Group Interviews ◽  
Work Routines ◽  
Care Systems ◽  
Group Interviews

BACKGROUND In cancer settings, relatives are often seen as a resource as they are able to support the patient and remember information during hospitalization. However, geographic distance to hospitals, work, and family obligations are reasons that may cause difficulties for relatives’ physical participation during hospitalization. This provided inspiration to uncover the possibility of telehealth care in connection with enabling participation by relatives during patient rounds. Telehealth is used advantageously in health care systems but is also at risk of failing during the implementation process because of, for instance, health care professionals’ resistance to change. Research on the implications for health care professionals in involving relatives’ participation through virtual presence during patient rounds is limited. OBJECTIVE This study aimed to investigate health care professionals’ experiences in using and implementing technology to involve relatives during video-consulted patient rounds. METHODS The design was a qualitative approach. Methods used were focus group interviews, short open interviews, and field observations of health care professionals working at a cancer department. The text material was analyzed using interpretative phenomenological analysis. RESULTS Field observational studies were conducted for 15 days, yielding 75 hours of observation. A total of 14 sessions of video-consulted patient rounds were observed and 15 pages of field notes written, along with 8 short open interviews with physicians, nurses, and staff from management. Moreover, 2 focus group interviews with 9 health care professionals were conducted. Health care professionals experienced the use of technology as a way to facilitate involvement of the patient’s relatives, without them being physically present. Moreover, it raised questions about whether this way of conducting patient rounds could address the needs of both the patients and the relatives. Time, culture, and change of work routines were found to be the major barriers when implementing new technology involving relatives. CONCLUSIONS This study identified a double change by introducing both new technology and virtual participation by relatives at the same time. The change had consequences on health care professionals’ work routines with regard to work load, culture, and organization because of the complexity in health care systems.

scholarly journals Nursing staff’s experience of appearance issues in various nursing situations

BMC Nursing ◽  
2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Åsa Bringsén ◽  
Johanna Sjöbeck ◽  
Pia Petersson
Keyword(s):  
Health Care ◽  
Focus Group ◽  
Nursing Staff ◽  
Thematic Analysis ◽  
Health Care Professionals ◽  
Knowledge Development ◽  
Research Approach ◽  
Focus Group Interviews ◽  
Professional Nursing ◽  
Group Interviews

Abstract Background Health care professionals frequently interact with unknown patients in a process involving appearance-based judgements and priority-setting, all of which has an effect on health care equality. The healthcare provider–patient interaction is also highly relevant for the awareness and support of patients’ appearance concerns, with an associated possibility for improving patients’ satisfaction with their appearance and health. The aim was therefore to explore nursing staff’s experience of patients’ appearance issues in various nursing situations, with the purpose to facilitate awareness raising and knowledge development. Method A qualitative research approach with focus group interviews was chosen due to the exploratory aim of the study. Five semi-structured focus group interviews were conducted with 24 nursing staff in total (19 women and five men). The participants’ ages varied (20 to 45 years) as did their professional nursing experience. The interviews lasted approximately one hour, were digitally recorded, transcribed verbatim and analysed through thematic analysis. Results The thematic analysis resulted in the two themes Patient perspective and Professional nursing role, with associated subthemes. The findings showed the importance and impact of appearance issues in nursing situations and how these are linked to the health of the patients. Some groups of patients were identified as more vulnerable than others, which was associated with health care inequalities and health disparities. Value-based strategies along with knowledge, and skills for holistic person-centred care were identified as important resources for the development of appearance-related awareness and support in various nursing situations. Conclusion Strategies for improvement can be realised through the educational system for nursing staff, but mainly by using collective reflective learning forums in different workplaces. An empowerment approach is considered a useful framework for the implementation of holistic person-centred care, functioning as a resource for appearance-related awareness and support in various nursing situations. However, more research is needed on the complex and challenging phenomenon of appearance issues in nursing situations. Knowledge development related to successful person-centred strategies for appearance-related awareness and support is important, especially strategies with a salutogenic perspective.

scholarly journals Understanding Parents’ Experiences with Children with Type 1 Diabetes: A Qualitative Inquiry

2022 ◽  
Vol 19 (1) ◽  
pp. 554
Author(s):  
Justin A. Haegele ◽  
Steven K. Holland ◽  
Eddie Hill
Keyword(s):  
Type 1 Diabetes ◽  
Family Planning ◽  
Qualitative Inquiry ◽  
Internal Conflict ◽  
Diabetes Diagnosis ◽  
Focus Group Interviews ◽  
Group Interviews ◽  
The Impact ◽  
Parents Experiences

Parenting is often described as a stress-inducing experience, which can be further complicated or made more stressful and anxiety-inducing when parenting children with chronic conditions such as type 1 diabetes (T1D). The incidence of T1D among children has risen and continues to rise globally, resulting in a need to understand the experiences of parenting children with T1D. The purpose of this qualitative inquiry was to explore the lived experiences, and the meaning ascribed to those experiences, of being a parent of a child with T1D. This qualitative study was conducted through an interpretivist paradigm and includes the experiences of 29 parents (19 mothers and 10 fathers) of 24 children (aged 6 to 15 years) with T1D. Parents, and parent dyads, completed demographic questionnaires and written prompts, and participated in focus group interviews. Three themes were developed from the data, namely, a) the costs of T1D, b) the ultimate helicopter mom, and c) dealing with “being different”. Generally, the participants reported on the direct (e.g., financial and time) and indirect (e.g., family planning) costs associated with parenting children with T1D, their role as a primary provider and anxieties with relinquishing control and dealing with the stigma surrounding a diabetes diagnosis. Unique findings from this study included the impact a T1D diagnosis had on future family planning as parents navigated the fear and uncertainty of having additional children with T1D, as well as the internal conflict parents had with entrusting others to care for their child, especially if they deemed them to be unqualified or unnecessarily stigmatizing or ostracizing their child.

scholarly journals Informing the Children When a Parent Is Diagnosed as Having Multiple Sclerosis

2015 ◽  
Vol 17 (1) ◽  
pp. 42-48 ◽  
Author(s):  
Ylva Nilsagård ◽  
Katrin Boström
Keyword(s):  
Multiple Sclerosis ◽  
Health Care ◽  
Focus Group ◽  
Health Care Professionals ◽  
Health Care Services ◽  
Disease Course ◽  
Focus Group Interviews ◽  
Care Services ◽  
Disease Information ◽  
Group Interviews

Background: The aim of this study was to gain an understanding of how health-care services can support the empowerment of children when a parent is diagnosed as having multiple sclerosis (MS). The study focuses on what information parents with MS, their partners, and their children desire from health-care professionals. Methods: Focus group interviews were conducted with nine adolescents, nine parents with diagnosed MS, and five partners representing members of ten families. Results: The main finding was that parents with MS, their partners, and the adolescents stressed their need to be well informed about the disease. Information should be provided at the time of diagnosis and then offered regularly throughout the disease course. The information should be suited to the recipient's level of maturity and individualized to reflect the parent's clinical picture. Conclusions: It is usually beneficial for children if their parents feel informed about the illness and encourage their children to ask questions and discuss the situation. This knowledge, gained from several sources, is likely to be of value for health-care professionals and their ongoing efforts to improve services for parents with MS, their partners, and their children.

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