scholarly journals Quality of Life among Dialysis Patients in United Arab Emirates

2021 ◽  
Author(s):  
◽  
Abdelbasit Mohamad Abdelhadi Ayoub

<p>Background: Quality of Life (QOL) has emerged as an important parameter for evaluating the quality of health care for patients with renal failure. The QOL of dialysis patients in the United Arab Emirates (UAE) has not previously been studied. This research examined the cultural relevancy of two QOL tools and compared the QOL between dialysis patients and a sample from the community in UAE. Method: A descriptive comparative survey design was used to study the QOL of 161 dialysis patients and 350 participants from the community. Dialysis patients completed the SF-36 and the QOL Index dialysis version tool. Participants from the community completed the SF-36 and QOL Index generic version tool. Both samples also completed three open-ended questions about the cultural relevancy of the tools. Analysis using descriptive and inferential statistics was done within and between groups to establish similarities and differences in QOL scores. Open-ended questions were analysed thematically. Results: The overall QOL for dialysis patients was rated lower when self-assessed using the SF-36 compared with the community sample (58.92 vs. 75.02, p = <0.0001). Furthermore, the overall QOL for dialysis patients was rated almost the same when self-assessed using the QOL Index compared with the community sample (77.2 vs. 78.6, p = 0.421). Moreover, the total scores of both tools were higher in the community sample (75.02 vs. 78.6). The comparison between the statistically significant variables for both samples revealed contradictory results with the two tools. The majority of participants considered both tools culturally relevant in general. There were more questions that were not answered by participants in the QOL Index by both samples compared with the SF-36. Conclusion: In the UAE the SF 36 and the QOL Index capture different aspects of quality of life. Clinicians and researchers need to be aware of these differences when using these tools. An effective way of establishing the cultural relevancy of QOL tools involves comparing the QOL of a group with a health condition with a sample from the community, asking the participants about their views of the cultural relevancy of the tools, examining missing data, and asking participants open-ended questions about what they value in life.</p>

2021 ◽  
Author(s):  
◽  
Abdelbasit Mohamad Abdelhadi Ayoub

<p>Background: Quality of Life (QOL) has emerged as an important parameter for evaluating the quality of health care for patients with renal failure. The QOL of dialysis patients in the United Arab Emirates (UAE) has not previously been studied. This research examined the cultural relevancy of two QOL tools and compared the QOL between dialysis patients and a sample from the community in UAE. Method: A descriptive comparative survey design was used to study the QOL of 161 dialysis patients and 350 participants from the community. Dialysis patients completed the SF-36 and the QOL Index dialysis version tool. Participants from the community completed the SF-36 and QOL Index generic version tool. Both samples also completed three open-ended questions about the cultural relevancy of the tools. Analysis using descriptive and inferential statistics was done within and between groups to establish similarities and differences in QOL scores. Open-ended questions were analysed thematically. Results: The overall QOL for dialysis patients was rated lower when self-assessed using the SF-36 compared with the community sample (58.92 vs. 75.02, p = <0.0001). Furthermore, the overall QOL for dialysis patients was rated almost the same when self-assessed using the QOL Index compared with the community sample (77.2 vs. 78.6, p = 0.421). Moreover, the total scores of both tools were higher in the community sample (75.02 vs. 78.6). The comparison between the statistically significant variables for both samples revealed contradictory results with the two tools. The majority of participants considered both tools culturally relevant in general. There were more questions that were not answered by participants in the QOL Index by both samples compared with the SF-36. Conclusion: In the UAE the SF 36 and the QOL Index capture different aspects of quality of life. Clinicians and researchers need to be aware of these differences when using these tools. An effective way of establishing the cultural relevancy of QOL tools involves comparing the QOL of a group with a health condition with a sample from the community, asking the participants about their views of the cultural relevancy of the tools, examining missing data, and asking participants open-ended questions about what they value in life.</p>


1996 ◽  
Vol 7 (5) ◽  
pp. 763-773 ◽  
Author(s):  
K M Beusterien ◽  
A R Nissenson ◽  
F K Port ◽  
M Kelly ◽  
B Steinwald ◽  
...  

As a component of the open-label, multicenter National Cooperative Recombinant Human Erythropoietin (Epo) Study, the health-related quality-of-life effects of Epo therapy were assessed in 484 dialysis patients who had not previously been treated with Epo therapy (New-to-Epo) and 520 dialysis patients who were already receiving Epo therapy at the time of study enrollment (Old-to-Epo). Using scales from the Medical Outcomes Study 36-item Short Form Health Survey (SF-36), health-related quality of life was assessed on study enrollment (baseline) and at an average of 99 days follow-up. At baseline, SF-36 scores for Old- and New-to-Epo patients were well below those observed in the general population, reflecting substantial impairments in functional status and well-being among patients with chronic renal failure. Significant improvements from baseline to follow-up were observed among New-to-Epo patients in vitality, physical functioning, social functioning, mental health, looking after the home, social life, hobbies, and satisfaction with sexual activity (P < 0.05 for each). The mean improvements in hematocrit values among New-to-Epo and Old-to Epo patients were 4.6 and 0.3, respectively. At the time of follow-up, SF-36 scores for New-to-Epo patients were comparable with those observed among Old-to-Epo patients, whose scores did not change significantly from baseline to follow-up. Analysis of the relationship between Epo therapy, hematocrit values, and health-related quality of life suggest that some of the beneficial quality-of-life effects of Epo are mediated through a change in hematocrit level.


2021 ◽  
pp. bmjspcare-2021-003182
Author(s):  
Samira Raoofi ◽  
Fatemeh Pashazadeh Kan ◽  
Sima Rafiei ◽  
Zahra Hoseinipalangi ◽  
Sepide Rezaei ◽  
...  

BackgroundPatients with end-stage renal disease undergoing haemodialysis experience a variety of stressors leading to decreased level of quality of life (QoL). Thus, in this study, we aimed to review the current literature and identify factors affecting the health-related QoL (HRQoL) in these patients.MethodsA total of 147 studies were extracted from databases of Web of Science, PubMed, Scopus, Google Scholar, and Embase published between January 2000 and December 2020. Data were analysed using R software and results were reported with reference to Preferred Reporting Items for Systematic Reviews and Meta-Analyses standards.ResultsA total of 623 728 patients undergoing dialysis participated in 147 studies in which QoL was assessed by means of two valid questionnaires, including Short-Form 36 (SF-36) and Kidney Disease Quality of Life (KDQOL)-short form V.1.3. Total HRQoL score for patients undergoing dialysis measured by KDQOL was 64.25 (95% CI 55.67 to 72.82). Based on SF-36, the mean score of mental health items was higher than the mean score of physical health condition. Furthermore, meta-regression based on the geographical place of residence revealed that the highest QoL in patients was observed in Japan, 66.96 (95% CI 63.65 to 70.28) and Brazil, 58.03 (95% CI 53.45 to 62.6).ConclusionStudies conducted on HRQoL among patients undergoing dialysis recommend useful strategies to clinicians, letting them assess patients’ QoL in terms of a wide range of physical, mental and environmental aspects.


Nephron ◽  
2020 ◽  
Vol 145 (1) ◽  
pp. 44-54
Author(s):  
Rens J.R. Gadaen ◽  
Jeroen P. Kooman ◽  
Tom Cornelis ◽  
Frank M. van der Sande ◽  
Bjorn J. Winkens ◽  
...  

<b><i>Introduction:</i></b> It is widely known that dialysis patients have significantly impaired functional outcomes and arterial stiffness, but still few studies have investigated the effects of dialysis longitudinally by a multidimensional approach. We aimed to assess longitudinal patterns of physical activity (PA), physical functioning (PF), health-related quality of life (HrQoL), body composition (BC), and arterial stiffness in prevalent dialysis patients. <b><i>Materials and Methods:</i></b> Thirty-nine prevalent dialysis patients (23 conventional hemodialysis [CHD] and 16 peritoneal dialysis) with a mean vintage of 25.7 (±22.1) months were included in this observational prospective study with a 2-year follow-up, and at baseline 20 healthy controls were included. Measurements were performed every 6 months. HrQoL was assessed using the Short Form-36 (SF-36) questionnaire. PA was assessed using the SenseWear™ Pro3 accelerometer. PF was assessed by walking speed, the PF subscale of the SF-36, and handgrip strength (HGS). BC was assessed using the Body Composition Monitor® and arterial stiffness by measuring carotid-femoral pulse wave velocity (PWV). The longitudinal trend was assessed using linear mixed models, correcting for sex, age, and dialysis vintage. For PWV, the trend was additionally corrected for diabetes and systolic blood pressure. <b><i>Results:</i></b> After correction, no statistically significant changes over time were observed for the parameters of PA, PF, HrQoL, and BC. In the combined group and in the group of CHD patients only, a significant change was observed for PWV (overall trend: <i>p</i> = 0.007 and <i>p</i> = 0.008, respectively). A statistically significant difference at baseline was observed between dialysis patients and healthy controls in all parameters, except for HGS and PWV. <b><i>Discussion/Conclusion:</i></b> We observed no statistically significant changes in functional outcomes during a 2-year follow-up period, but a significant increase was observed for arterial stiffness. These results might suggest that after a certain period in time, a relatively stable course is present in functional outcomes, but an ongoing deterioration in arterial stiffness occurs, which might increase the risk of cardiovascular disease and all-cause mortality in these patients.


2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1437.2-1437
Author(s):  
M. Bogojevic ◽  
N. Miketic ◽  
S. Aligrudic ◽  
R. Medjedovic ◽  
D. Loncar ◽  
...  

Background:Number of patients with rheumatoid arthritis in Montenegro amounts around 3,000, while 8% of them are on biological therapy. This percent is similar, or even higher in comparison to countries that are highly comparable to Montenegro. However, the percentage is still lower than in European countries.Objectives:Objective of the study was to identify the differences between impact of biological and conventional therapy on quality of life of RA patients, their work ability and productivity, mental health, emotional state and social inclusion.Methods:The analysis was based on data gathered from the questionnaires filled by RA patients in Montenegro: 92 patients treated with biological therapy and 78 treated with conventional therapy. More insights and information from examined patients were gathered on two focus groups. Following indicators were used in the study: two indicators that measure work ability and productivity: one monetized – Work Productivity and Activity Impairment Questionnaire General Health V2.0 (WPAI-GH) and one non-monetized – RA Work Instability Scale (RA WIS), and two indicators that measure quality of life – Health Assessment Questionnaire (HAQ-DI) and RAND 36-Item Health Survey (SF-36).Results:WPAI-GH results are used in evaluation of absenteeism and presentism costs per RA patient per annum, which are caused exclusively by rheumatoid arthritis. WPAI-GH results are presented in the following figure. Total cost of absenteeism and presenteeism of RA patients in Montenegro amounts to 3.8 million EUR per annum. Results of RA WIS indicator suggest that patients treated with biological therapy are characterized by low to moderate level of work instability, and patients treated with conventional therapy by moderate level. Patients treated with biological therapy have shown 25% lower level of work instability. HAQ-DI indicator shows that both groups of patients are characterized by mild difficulties to moderate disability in performing everyday activities. However, patients treated with conventional therapy deal with higher level of difficulties, even though their level of RA progression is lower, on average. SF-36 indicator shows that patients treated with conventional therapy have lower level of physical functioning, followed by 26% higher pain intensity. They are 25% more exposed to limitations due to physical health problems caused by RA, and 20% more to limitations due to emotional problems. Patients treated with biological therapy, on average, rate their health with 50% higher rank in comparison to subjective health rate of patients treated with conventional therapy. They also feel that their health has improved during the past year, or stayed approximately the same, while patients treated with conventional therapy feel that their health condition has aggravated, or stayed unchanged.Conclusion:Results show that health condition, emotional state and life quality are better among the patients treated with biological therapy. Also, their productivity is higher compared to patients treated with conventional therapy. This conclusion is additionally supported by the fact that there is more progression of disease among RA patients treated with biological therapy, as well as by the fact that the average duration of RA is almost two times longer among examinees who are on biological therapy than among examinees who are on conventional therapy. Accordingly, access to biological therapy for greater number of patients in earlier stage of disease would result in reduction costs of lost productivity and work disability connected to RA, as well as in mitigation of RA impact on lives and functionality of patients.Figure 1.WPAI-GHDisclosure of Interests:None declared


2004 ◽  
Vol 171 (4S) ◽  
pp. 15-16
Author(s):  
Tatsuaki Yoneda ◽  
Shin Imai ◽  
Shinji Urakami ◽  
Hirofumi Kishi ◽  
Kazushi Shigeno ◽  
...  

Author(s):  
A. Babirad

Cerebrovascular diseases are a problem of the world today, and according to the forecast, the problem of the near future arises. The main risk factors for the development of ischemic disorders of the cerebral circulation include oblique and aging, arterial hypertension, smoking, diabetes mellitus and heart disease. An effective strategy for the prevention of cerebrovascular events is based on the implementation of large-scale risk control measures, including the use of antiagregant and anticoagulant therapy, invasive interventions such as atheromectomy, angioplasty and stenting. In this connection, the efforts of neurologists, cardiologists, angiosurgery, endocrinologists and other specialists are the basis for achieving an acceptable clinical outcome. A review of the SF-36 method for assessing the quality of life in patients with the effects of transient ischemic stroke is presented. The assessment of quality of life is recognized in world medical practice and research, an indicator that is also used to assess the quality of the health system and in general sociological research.


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