Decisional Support Algorithm for Collaborative Care Planning using the Participation and Environment Measure for Children and Youth (PEM-CY): A Mixed Methods Study

Background Patient-generated health data (PGHD) have been largely collected through mobile health (mHealth) apps and wearable devices. PGHD can be especially helpful in mental health, as patients’ illness history and symptom narratives are vital to developing diagnoses and treatment plans. However, the extent to which clinicians use mental health–related PGHD is unknown. Objective A mixed methods study was conducted to understand clinicians’ perspectives on PGHD and current mental health apps. This approach uses information gathered from semistructured interviews, workflow analysis, and user-written mental health app reviews to answer the following research questions: (1) What is the current workflow of mental health practice and how are PGHD integrated into this workflow, (2) what are clinicians’ perspectives on PGHD and how do they choose mobile apps for their patients, (3) and what are the features of current mobile apps in terms of interpreting and sharing PGHD? Methods The study consists of semistructured interviews with 12 psychiatrists and clinical psychologists from a large academic hospital. These interviews were thematically and qualitatively analyzed for common themes and workflow elements. User-posted reviews of 56 sleep and mood tracking apps were analyzed to understand app features in comparison with the information gathered from interviews. Results The results showed that PGHD have been part of the workflow, but its integration and use are not optimized. Mental health clinicians supported the use of PGHD but had concerns regarding data reliability and accuracy. They also identified challenges in selecting suitable apps for their patients. From the app review, it was discovered that mHealth apps had limited features to support personalization and collaborative care as well as data interpretation and sharing. Conclusions This study investigates clinicians’ perspectives on PGHD use and explored existing app features using the app review data in the mental health setting. A total of 3 design guidelines were generated: (1) improve data interpretation and sharing mechanisms, (2) consider clinical workflow and electronic health record integration, and (3) support personalized and collaborative care. More research is needed to demonstrate the best practices of PGHD use and to evaluate their effectiveness in improving patient outcomes.

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How Do Patients With Parkinson’s Disease Approach Advance Care Planning? A UK-Based Mixed Methods Study

Journal of Geriatric Psychiatry and Neurology ◽

10.1177/0891988720988917 ◽

2021 ◽

pp. 089198872098891

Author(s):

Deepta Churm ◽

Claire Dickinson ◽

Louise Robinson ◽

Paul Paes ◽

Thomas Cronin ◽

...

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Mixed Methods ◽

Advance Care Planning ◽

Mixed Methods Study ◽

Care Planning ◽

Structured Interviews ◽

The Future ◽

Explanatory Mixed Methods ◽

Advance Care

Background: Advance Care Planning (ACP) allows people the opportunity to plan for a time when they may lose capacity. The aim of this study was to determine the extent people with Parkinson’s disease (PD) were aware of ACP, existing plans they held and to explore their own views, as well as their relatives, on planning for the future. Methods: This was a sequential explanatory mixed methods study with a postal quantitative survey to establish awareness and engagement with planning for the future; and qualitative semi-structured interviews to explore the views of people with PD and their relatives on ACP and future plans. Results: 104 questionnaires were analyzed. 76% of respondents had not heard of ACP, while 69% expressed an interest in finding out more about ACP. 78% had a will, and 23% had appointed lasting power of attorneys. All interviewees acknowledged engaging in some aspect of planning. Plans were mostly practical as opposed to health-care related. Interviewees expressed a preference for ACP to be carried out by their PD team, at home, and at a time relevant to their condition. Conclusion: The awareness and understanding of ACP in people with PD is low. While there is desire to be better informed about ACP, this did not translate into desire to engage in ACP. Health professionals should identify people for whom ACP may serve a positive purpose, and proactively address ACP as a continuum with them, while ensuring awareness is raised about ACP, and there is access for who are interested.

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Building Capacity of Occupational Therapy Practitioners to Address the Mental Health Needs of Children and Youth: A Mixed-Methods Study of Knowledge Translation

American Journal of Occupational Therapy ◽

10.5014/ajot.2015.019182 ◽

2015 ◽

Vol 69 (6) ◽

pp. 6906180060p1 ◽

Cited By ~ 11

Author(s):

Susan Bazyk ◽

Louise Demirjian ◽

Teri LaGuardia ◽

Karen Thompson-Repas ◽

Carol Conway ◽

...

Keyword(s):

Mental Health ◽

Mixed Methods ◽

Occupational Therapy ◽

Knowledge Translation ◽

Mixed Methods Study ◽

Health Needs ◽

Children And Youth ◽

Mental Health Needs ◽

Building Capacity ◽

Occupational Therapy Practitioners

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O-32 Developing, implementing and evaluating advance care planning (ACP) in norwegian nursing homes (NHS) – a mixed methods study

BMJ Supportive & Palliative Care ◽

10.1136/bmjspcare-2015-000978.31 ◽

2015 ◽

Vol 5 (Suppl 2) ◽

pp. A10.2-A10

Author(s):

Tryge Johannes Lereim Sævareid ◽

L Lillemoen ◽

Lisbeth Thoresen ◽

E Gjerberg ◽

R Førde ◽

...

Keyword(s):

Mixed Methods ◽

Nursing Homes ◽

Advance Care Planning ◽

Mixed Methods Study ◽

Care Planning ◽

Advance Care

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Cross-Cultural Adaptation and Evaluation of the Participation and Environment Measure for Children and Youth to the Indian Context—A Mixed-Methods Study

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18041514 ◽

2021 ◽

Vol 18 (4) ◽

pp. 1514

Author(s):

Roopa Srinivasan ◽

Vrushali Kulkarni ◽

Sana Smriti ◽

Rachel Teplicky ◽

Dana Anaby

Keyword(s):

Mixed Methods ◽

Children With Disabilities ◽

Mixed Methods Study ◽

Children And Youth ◽

Cognitive Interviews ◽

Culturally Appropriate ◽

Indian Children ◽

Indian Context ◽

Item Level ◽

Test Retest Reliability

Culturally appropriate measures enable knowledge transfer and quality improvement of rehabilitation services in diverse contexts. The Applied Cultural Equivalence Framework (ACEF) was used in a two-phased mixed methods study to adapt and evaluate the Participation and Environment Measure-Children and Youth (PEM-CY) in India. Cognitive interviews with caregivers of children with disabilities (n = 15) aged 5–17 years established conceptual, item, semantic, and operational equivalence of the Indian PEM-CY. Construct validity was assessed by comparing PEM-CY scores of children with and without disabilities (n = 130) using a case-control design. Cognitive interviews resulted in operational (60.3%), semantic (26.4%), and item-level (13.2%) modifications in the PEM-CY with no changes at the conceptual level. Internal consistency (n = 130) was acceptable to excellent (0.61–0.87) on most scales. Test–retest reliability (n = 30) was good to excellent (ICC ≥ 0.75, Kappa 0.6–1.0) for most scales. Significant differences in all PEM-CY summary scores were found between children with and without disabilities, except for environmental supports. Children with disabilities had lower scores on frequency and involvement in activities across all settings; their caregivers desired greater change in participation and reported experiencing more environmental barriers across settings. Findings suggest the adapted PEM-CY is a valid and reliable measure for assessing the participation of Indian children.

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Developing the Patient Falls Risk Report: A mixed methods study on sharing falls-related clinical information from home care with primary care providers

10.21203/rs.3.rs-951329/v1 ◽

2021 ◽

Author(s):

Amanda Aguilar da Nova

Keyword(s):

Primary Care ◽

Mixed Methods ◽

Home Care ◽

Clinical Information ◽

Primary Care Providers ◽

Mixed Methods Study ◽

Care Planning ◽

Care Providers ◽

Falls Risk ◽

Patient Falls

Abstract Background: The interRAI home care (interRAI-HC) instrument is valid, reliable, and capable of enhancing integration across health settings. However, its uptake has been met with criticism. If interRAI-HC information were shared with primary care providers in a useable, actionable, and context-appropriate manner, evidence suggests that its implementation could enhance care provision and integration between these providers. The objective of this study was to co-develop an information sharing tool with primary care providers for sharing clinical information from the interRAI-HC (named the Patient Falls Risk Report). Methods: This mixed-methods study, conducted from December 2019 to May 2020, employed qualitative and quantitative methods to develop and test the usability of the Patient Falls Risk Report. After recruiting primary care providers via snowball and maximum variation sampling, we employed semi-structured interviews in-person and over the telephone. The interview transcripts were analyzed through iterative thematic analysis and informed development of the report. Next, online surveys based on the System Usability Scale instrument were completed by a voluntary response sample of primary care providers and residents and descriptively analyzed to test the usability of the report.Results: Of the interview sample (n=9), we found that most believed that the Patient Falls Risk Report could support patient care by sharing relevant and actionable falls-related information. However, criticisms were identified including insufficient detail, lack of clarity, and limited support for shared care planning. After incorporating participants’ suggestions for improvement, a sample of primary care providers and primary care residents (n=27) determined that the report had excellent usability with an overall usability score of 83.4 (95% CI = 78.7, 88.2). Conclusions: By emphasizing usability and utility, and prioritizing the needs of end-users, sustainable interRAI-HC interventions can be developed and implemented to support care planning in primary care.

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Findings from an evaluation of Family Finding: Experiences of Family Finders and older youth

International Social Work ◽

10.1177/0020872817742698 ◽

2017 ◽

Vol 62 (2) ◽

pp. 784-798 ◽

Cited By ~ 1

Author(s):

Elizabeth Jane Greeno ◽

Berenice Rushovich ◽

Sarah Catherine Williams ◽

Joshua Brusca ◽

Kantahyanee Murray

Keyword(s):

Mixed Methods ◽

Child Welfare ◽

Mixed Methods Study ◽

Children And Youth ◽

Child Welfare Workers ◽

Significant Difference ◽

Relational Permanence ◽

Older Youth ◽

Welfare Workers ◽

Qualitative Analyses

The purpose of this mixed methods study was to assess the experiences of child welfare workers trained in Family Finding and to assess the experiences of the youth who participated in Family Finding. Findings from this study suggest the efficacy of Family Finding in establishing relational permanence for youth. Findings from qualitative analyses indicate that Family Finders modified the actual steps of the model. Both youth-recommended and Family Finders-recommended Family Finding services begin when children and youth enter child welfare. However, quantitative findings suggest there is not any significant difference in Family Finding outcomes for younger and older youth.

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