scholarly journals Conceptualisations of wellbeing and quality of life: A systematic review of participatory studies

2021 ◽  
Author(s):  
Kate Sollis ◽  
Mandy Yap ◽  
Paul Campbell ◽  
Nicholas Biddle

There is a growing movement across the world to make better use of wellbeing measures to guide policy. This stems from the realisation that reliance on economic indicators, such as income, GDP, and unemployment, may not be adequately capturing the aspects of life that people value. But how should we be measuring wellbeing or quality of life? A mounting body of research over the past two decades has highlighted the value of participatory wellbeing frameworks, which are created by consulting with the target population and asking the question “What does wellbeing mean for you?”. However, up to now there is very little consolidated understanding of the work conducted in this space. This systematic review seeks to fill this gap, identifying 130 participatory wellbeing studies which span every region of the world and all life stages. The review identifies a wide range of theories, methods, and participatory techniques that have been utilised to develop participatory wellbeing frameworks which can be replicated for similar studies going forward. By thematically analysing understandings of wellbeing into 30 overarching areas, the findings show that communities and population groups throughout the world have wide-ranging and diverse conceptualisations of wellbeing. In sum, we highlight that while there are some similarities in what wellbeing means to people from different population groups, nuances exist within every group. Given this diverse understanding of wellbeing throughout the world, it is vital that research, policy and development initiatives take this into account. Doing so will help support policy and programs to address the aspects of life that are important to individuals, and subsequently improve the lives of people throughout the world in a more meaningful way.

Author(s):  
Nazri Nordin ◽  
Mohamed Azmi Ahmad Hassali ◽  
Azmi Sarriff

Objective: Aims of this review were to identify actual or potential extended services performed in community pharmacy settings, perceptions among community pharmacists (CPs), general practitioners (GPs), consumers and policymakers of these extended services and barriers towards its performance.Methods: A literature review was conducted, using Google Scholar and PubMed as a searching engine.Results: Identifying eight quality full texts to review which fulfil the inclusion searching criteria, revealing a wide range of actual or potential extended services performed by CPs such as counselling on asthma, cardiovascular disease, breast cancer, diabetes, smoking cessation and self-medication. GPs’ perceptions towards these extended services were varied, not or in favour of CPs to perform some actual or potential extended services. Customers were in favour of CPs to perform these actual or potential extended services whereas CPs indicated a few barriers towards the performance of these actual or potential extended services.Conclusion: As a conclusion, CPs in Malaysia were in the right position to perform the actual or potential extended services, collaborating with GPs to promote better medication use and enhance patients’ quality of life. Some barriers towards these extended services must be intervened in order to enhance the quality of the services.


Medicines ◽  
2019 ◽  
Vol 6 (3) ◽  
pp. 73 ◽  
Author(s):  
Raveena Khanna ◽  
Emily Boozalis ◽  
Micah Belzberg ◽  
John G. Zampella ◽  
Shawn G. Kwatra

Background: Chronic pruritus is a debilitating condition associated with a wide range of dermatologic, systemic and psychogenic etiologies. In patients with chronic pruritus that is refractory to conventional therapy, symptoms can significantly decrease quality of life by contributing to anxiety, sleep disturbances, and in many cases depression. Recent studies have demonstrated the effectiveness of mirtazapine in relieving chronic itch that is refractory to standard first-line therapies. Methods: We searched PubMed for English-language articles containing the words (“pruritus” or “itch”) AND “antidepressant” and then conducted a systematic review of the current literature to summarize the efficacy of mirtazapine in treating chronic itch. Results: All studies reported a reduction in itch intensity following the administration of mirtazapine. Conclusion: Collectively, these studies suggest the potential for mirtazapine to relieve chronic itch attributed to dermatological causes and malignancies. As, such mirtazapine may be an option for patients with chronic pruritus that is refractory to typical first-line treatments.


2014 ◽  
Vol 10 (1) ◽  
pp. 1-61
Author(s):  
Helen Elsey ◽  
Rachel Bragg ◽  
Cathy Brennan ◽  
Marjolein Elings ◽  
Jenny Murray ◽  
...  

2021 ◽  
Vol 12 ◽  
Author(s):  
Sophia Kristina Rupp ◽  
Andreas Stengel

Background: Gastric cancer (GC) is one of the leading causes of death worldwide. It is associated with several disease-related impairments contributing to the psycho-social burden of those patients, such as deterioration of well-being and overall quality of life (QOL). The aim of this study is to present the wide range of factors potentially impacting patients' overall well-being and possible preventive interventions.Methods: This systematic review was conducted in October 2020 with a search in the PubMed, MedLine, PsycInfo, and Google Scholar databases. We used the keywords “gastric cancer,” “gastric neoplasm,” and each of them combined with “quality of life,” “depression,” and “anxiety” to identify all relevant articles reporting about potential impact factors influencing the overall well-being of patients suffering from gastric cancer.Results: Finally, 125,490 articles were found, of which 125,431 were excluded in several steps of screening. Inclusion criteria were studies carried out on human ≥18 years of age, studies in English or German language, clinical trials, registry-based studies, cohort studies, population-based studies, and certain titles and abstracts. After screening for eligibility 35 potential factors influencing overall well-being in patients with GC were identified and classified into 9 important categories: genetic condition, treatment method, blood markers, nutritional status, daily living, state of health, mental state, supportive care, and alternative treatment.Conclusion: Since various factors are involved in the development of patients' overall well-being, timely treatment of psycho-social impairments by physicians and psychologists is of enormous importance. Preventing psycho-social burden by improving patients' QOL should be of high importance in the treatment regimen of patients with GC.


2020 ◽  
Vol 32 (4) ◽  
pp. 119-132
Author(s):  
Łukasz Robert Karski ◽  
Joanna Danuta Jedel

The UEFA European Football Championship, held in 2012 in Poland, has brought a wide range of benefits, including the development of the recreation infrastructure and hotel facilities across the country. The championship has changed the way Poland and Poles are perceived by Europeans and has also contributed to improving the standard of living for inhabitants of many Polish towns and cities. The aim of this article is to evaluate the impact of Euro 2012 on the development of the Sports and Conference Centre in Gniewino and how it has affected the quality of life of its residents. The study is based on the analysis of literature and source documents as well as opinions collected in a survey of 450 respondents who answered a questionnaire consisting of 9 closed questions in December 2012. The findings indicate that the Sports and Conference Centre in Gniewino is currently one of the leading training centres for major football clubs from countries around the world. It can also be concluded that the organization of the Euro championship has had a positive impact on the quality of life of residents of Gniewino.


2018 ◽  
Vol 9 (4) ◽  
pp. 1-11
Author(s):  
Roy I. Brown ◽  
Alice Schippers

This article introduces the concepts of quality of life and family quality of life and shows how they have developed in the field of intellectual and developmental disabilities in terms of concepts and principles. The article underscores the relevance of many of the principles and practices to a wide range of disabilities and challenges in the broad field of human development. Finally, the article provides an introduction to the other articles in this special issue, and considers their relationship to the broader areas of research, practice, and policy.


2007 ◽  
Vol 86 (8) ◽  
pp. 482-486 ◽  
Author(s):  
William C. Kinney ◽  
Michael S. Benninger

We conducted a survey to measure patient quality of life with the Rhinosinusitis Disability Index adapted for the Internet. Our target population was patients who were seeking information on sinonasal disease on the World Wide Web. Usable responses were obtained from 896 patients with self-diagnosed sinonasal disease. According to the survey responses, patients with chronic rhinosinusitis were significantly more bothered by their condition than were patients with allergic rhinitis. Also, women were significantly more impaired by recurrent acute sinusitis and chronic rhinosinusitis than were men. Our findings are consistent with the results of previous surveys conducted by means other than the Internet. This project represents the first quality-of-life survey of an unsolicited group of individuals with sinonasal disease. We believe that use of the Internet will allow researchers to obtain larger patient populations than is now typical with traditional means of survey dissemination.


2019 ◽  
Vol 15 (4) ◽  
Author(s):  
Jenni Murray ◽  
Nyantara Wickramasekera ◽  
Marjolein Elings ◽  
Rachel Bragg ◽  
Cathy Brennan ◽  
...  

2021 ◽  
Author(s):  
Glenn Jennings ◽  
Ann Monaghan ◽  
Feng Xue ◽  
David Mockler ◽  
Román Romero-Ortuño

Objective | To compare the two phases of long COVID, namely ongoing symptomatic COVID-19 (OSC; signs and symptoms from 4 to 12 weeks from initial infection) and post-COVID-19 syndrome (PCS; signs and symptoms beyond 12 weeks) with respect to symptomatology, abnormal functioning, psychological burden, and quality of life. Design | Systematic review. Data Sources | Electronic search of EMBASE, MEDLINE, ProQuest Coronavirus Research Database, LitCOVID, and Google Scholar between January and April 2021, and manual search for relevant citations from review articles. Eligibility Criteria | Cross-sectional studies, cohort studies, randomised control trials, and case-control studies with participant data concerning long COVID symptomatology or abnormal functioning. Data Extraction | Studies were screened and assessed for risk of bias by two independent reviewers, with conflicts resolved with a third reviewer. The AXIS tool was utilised to appraise the quality of the evidence. Data were extracted and collated using a data extraction tool in Microsoft Excel. Results | Of the 1,145 studies screened, 39 were included, all describing adult cohorts with long COVID and sample sizes ranging from 32 to 1,733. Studies included data pertaining to symptomatology, pulmonary functioning, chest imaging, cognitive functioning, psychological disorder, and/or quality of life. Fatigue presented as the most prevalent symptom during both OSC and PCS at 43% and 44%, respectively. Sleep disorder (36%; 33%), dyspnoea (31%; 40%), and cough (26%; 22%) followed in prevalence. Abnormal spirometry (FEV1 <80% predicted) was observed in 15% and 11%, and abnormal chest imaging observed in 34% and 28%, respectively. Cognitive impairments were also evident (20%; 15%), as well as anxiety (28%; 34%) and depression (25%; 32%). Decreased quality of life was reported by 40% of patients with OSC and 57% by those with PCS. Conclusions | The prevalences of OSC and PCS were highly variable. Reported symptoms covered a wide range of body systems, with general overlap in frequencies between the two phases. However, abnormalities in lung function and imaging seemed to be more common in OSC, whilst anxiety, depression, and poor quality of life seemed more frequent in PCS. In general, the quality of the evidence was moderate and further research is needed to better understand the complex interplay of somatic versus psychosocial drivers in long COVID. Systematic Review Registration | Registered with PROSPERO with ID #CRD42021247846.


Author(s):  
Cecilie Delphin Amdal ◽  
Madeline Pe ◽  
Ragnhild Sørum Falk ◽  
Claire Piccinin ◽  
Andrew Bottomley ◽  
...  

Abstract Purpose This systematic review was performed to identify all relevant health-related quality of life (HRQoL) issues associated with COVID-19. Methods A systematic literature search was undertaken in April 2020. In four teams of three reviewers each, all abstracts were independently reviewed for inclusion by two reviewers. Using a pre-defined checklist of 93 criteria for each publication, data extraction was performed independently by two reviewers and subsequently compared and discussed. If necessary, a third reviewer resolved any discrepancies. The search was updated in February 2021 to retrieve new publications on HRQoL issues including issues related to the long-term consequences of COVID-19. Results The search in April 2020 identified 3342 potentially relevant publications, and 339 publications were selected for full-text review and data extraction. We identified 75 distinct symptoms and other HRQoL issues categorized into 12 thematic areas; from general symptoms such as fever, myalgia, and fatigue, to neurological and psychological issues. The updated search revealed three extra issues experienced during active disease and long-term problems with fatigue, psychological issues and impaired cognitive function. Conclusion This first comprehensive systematic review provides a detailed overview of the wide range of HRQoL issues experienced by patients with COVID-19 throughout the course of the disease. It demonstrates the devastating impact of the disease and provides critically important information for clinicians, to enable them to better recognize the disease and to provide knowledge important for treatment and follow-up. The results provided the foundation for the international development of a COVID-19 specific patient-reported HRQoL questionnaire.


Sign in / Sign up

Export Citation Format

Share Document