scholarly journals The Effect of Baseline Patient and Caregiver Mindfulness on Dementia Outcomes

2021 ◽  
pp. 1-23
Author(s):  
Ashley D. Innis ◽  
Magdalena I. Tolea ◽  
James E. Galvin
Keyword(s):  
Quality Of Life ◽  
Cognitive Performance ◽  
Rating Scales ◽  
Present Moment ◽  
Health Related Quality ◽  
Targeted Interventions ◽  
Related Quality ◽  
Health Related ◽  
Caregiver Rating

Background: Mindfulness is the practice of awareness and living in the present moment without judgment. Mindfulness-based interventions may improve dementia-related outcomes. Before initiating interventions, it would be beneficial to measure baseline mindfulness to understand targets for therapy and its influence on dementia outcomes. Objective: This cross-sectional study examined patient and caregiver mindfulness with patient and caregiver rating scales and patient cognitive performance and determined whether dyadic pairing of mindfulness influences patient outcomes. Methods: Individuals (N = 291) underwent comprehensive evaluations, with baseline mindfulness assessed using the 15-item Applied Mindfulness Process Scale (AMPS). Correlation, regression, and mediation models tested relationships between patient and caregiver mindfulness and outcomes. Results: Patients had a mean AMPS score of 38.0±11.9 and caregivers had a mean AMPS score of 38.9±11.5. Patient mindfulness correlated with activities of daily living, behavior and mood, health-related quality of life, subjective cognitive complaints, and performance on episodic memory and attention tasks. Caregiver mindfulness correlated with preparedness, care confidence, depression, and better patient cognitive performance. Patients in dyads with higher mindfulness had better cognitive performance, less subjective complaints, and higher health-related quality of life (all p-values<0.001). Mindfulness effects on cognition were mediated by physical activity, social engagement, frailty, and vascular risk factors. Conclusion: Higher baseline mindfulness was associated with better patient and caregiver outcomes, particularly when both patients and caregivers had high baseline mindfulness. Understanding the baseline influence of mindfulness on the completion of rating scales and neuropsychological test performance can help develop targeted interventions to improve well-being in patients and their caregivers.

scholarly journals Health-related Quality of Life, Cognitive Performance, and Incident Dementia in a Community-based Elderly Cohort

2019 ◽  
Vol 33 (3) ◽  
pp. 240-245
Author(s):  
Ali Ezzati ◽  
Andrea R. Zammit ◽  
Mindy J. Katz ◽  
Carol A. Derby ◽  
Molly E. Zimmerman ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cognitive Performance ◽  
Health Related Quality ◽  
Community Based ◽  
Incident Dementia ◽  
Related Quality ◽  
Health Related ◽  
Elderly Cohort

Resident health-related quality of life in Swiss nursing homes

2015 ◽  
Vol 30 (5) ◽  
pp. 549-554 ◽  
Author(s):  
L. Chouiter ◽  
W.P. Wodchis ◽  
C. Abderhalden ◽  
A. von Gunten
Keyword(s):  
Quality Of Life ◽  
Cognitive Impairment ◽  
Nursing Homes ◽  
Cognitive Performance ◽  
Nursing Home Residents ◽  
Health Related Quality ◽  
Data Set ◽  
Related Quality ◽  
Health Related

AbstractBackgroundHealth-related quality of life (HRQOL) levels and their determinants in those living in nursing homes are unclear. The aim of this study was to investigate different HRQOL domains as a function of the degree of cognitive impairment and to explore associations between them and possible determinants of HRQOL.MethodFive HRQOL domains using the Minimum Data Set - Health Status Index (MDS-HSI) were investigated in a large sample of nursing home residents depending on cognitive performance levels derived from the Cognitive Performance Scale. Large effect size associations between clinical variables and the different HRQOL domains were looked for.ResultsHRQOL domains are impaired to variable degrees but with similar profiles depending on the cognitive performance level. Basic activities of daily living are a major factor associated with some but not all HRQOL domains and vary little with the degree of cognitive impairment.LimitationsThis study is limited by the general difficulties related to measuring HRQOL in patients with cognitive impairment and the reduced number of variables considered among those potentially influencing HRQOL.ConclusionHRQOL dimensions are not all linearly associated with increasing cognitive impairment in NH patients. Longitudinal studies are required to determine how the different HRQOL domains evolve over time in NH residents.

scholarly journals B-60 Resilience is Associated with Overall Health-related Quality of Life in Caregivers of Service Members and Veterans Following Traumatic Brain Injury.

2019 ◽  
Vol 34 (6) ◽  
pp. 1006-1006
Author(s):  
T Brickell ◽  
L French ◽  
S Lippa ◽  
R Lange
Keyword(s):  
Quality Of Life ◽  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Perceived Stress ◽  
Service Members ◽  
Health Related Quality ◽  
Targeted Interventions ◽  
Related Quality ◽  
Health Related

Abstract Objective To examine the influence of caregiver resilience on health-related quality of life (HRQOL) in caregivers of service members/veterans (SMVs) following a traumatic brain injury (TBI). Methods Caregivers (N = 346, Female = 96.2%; Spouse = 91.0%%; Age: M = 40.6 years) of SMVs following a mild, moderate, severe, or penetrating TBI were recruited from Walter Reed National Military Medical Center and via community outreach to participate in the Defense and Veterans Brain Injury Center 15-Year Longitudinal TBI Study (Sec721 NDAA FY2007). Caregivers completed the Caregiver Appraisal Scale and 15 HRQOL measures. Caregivers were divided into three groups using the Resilience scale from the TBI-QOL: (1) Low Resilience [n = 125], (2) Moderate Resilience [n = 122], and (3) High Resilience [n = 99]. Results There were significant main effects across groups for all HRQOL measures (ps < .001). The Low Resilience group had consistently worse scores compared to both the Moderate and High Resilience groups (d = .50-1.60). The largest effect sizes were found for the Caregiving Satisfaction, Anxiety, Depression, Anger, Social Isolation, Perceived Stress, Caregiver Strain, and Feelings of Loss-Self scales (d = .91-1.60). Step-wise regression analyses revealed that Perceived Stress was the most significant predictor of resilience (R2 = 33.3%), with Caregiver Satisfaction (R2change = 5.0%), Depression (R2change = 1.8%), Caregiver Mastery (R2change = 1.7), Caregiver Specific Anxiety (R2change = 1.2) and Feelings of Loss-Self (R2change = 1.1%) contributing some additional variance in subsequent steps. Conclusions There was a moderate to high relationship between resilience and overall HRQOL in caregivers of SMVs following TBI. Targeted interventions to increase caregiver resilience may be warranted to ensure that burden of care does not undermine the caregiver’s heath and impact the SMV’s recovery and reintegration.

Health-related quality of life of people with multimorbidity at a community-based, interprofessional student-assisted clinic: Implications for assessment and intervention

2017 ◽  
Vol 14 (3) ◽  
pp. 169-181 ◽  
Author(s):  
Zephanie Tyack ◽  
Suzanne Kuys ◽  
Petrea Cornwell ◽  
Kerrie-Anne Frakes ◽  
Steven McPhail
Keyword(s):  
Quality Of Life ◽  
Health Clinic ◽  
Health Related Quality ◽  
Community Based ◽  
Targeted Interventions ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Objective This study examined the relationship between the number of comorbidities and health-related quality of life (HRQoL) and between select physical conditions and HRQoL. Differences in HRQoL in comparison to a normative sample were also examined. Method A cross-sectional study among people with multimorbidity ( n = 401) attending a community-based, interdisciplinary health clinic was conducted. HRQoL was measured using the eight dimensions of the SF-36. Multiple linear regression and t-tests were used to analyse the data. Results A downward trend in HRQoL continued from 2 to 14 concurrent comorbidities. Patients with a higher number of comorbidities reported greater deficits in HRQoL, when age, gender, education and perceived social support were controlled for (beta = −0.11 to −0.31). The impact of the number of comorbidities was greatest for the bodily pain dimension of the SF-36 (beta = −0.31). Deficits were greatest for people with gastrointestinal conditions and back pain or sciatica. Moderate to large deficits in HRQoL compared to a normative population were found (Cohen’s d = 0.54–1.16). Discussion Understanding associations between the number and type of physical comorbidities and HRQoL may assist clinical services to design broad but targeted interventions to optimize HRQoL in this group of people.

Health-related quality of life and time from diagnosis among young adult colorectal cancer survivors.

2021 ◽  
Vol 39 (3_suppl) ◽  
pp. 34-34
Author(s):  
Kimberly Ann Miller ◽  
Julia Stal ◽  
Phuong Gallagher ◽  
Jonathan N Kaslander ◽  
David R. Freyer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Colorectal Cancer ◽  
Online Survey ◽  
Well Being ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Targeted Interventions ◽  
Related Quality ◽  
Health Related

34 Background: Incidence of colorectal cancer (CRC) in patients under 50 years of age is rising. Quality of life in survivorship is not well-described in this population. We compared health-related quality of life (HRQoL) in CRC survivors ≤ 50 years old who were 6-18 months or 19-36 months from initial diagnosis or relapse. Methods: A cross-sectional online survey was administered in collaboration with a national organization for young CRC survivors. The Functional Assessment of Cancer Therapy (FACT-C) was used to measure HRQoL, which assesses HRQoL globally, including a CRC specific scale, and emotional, physical, social, and functional well-being domains. T-tests were conducted to compare HRQoL between survivors who were 6-18 months versus 19-36 months from diagnosis/relapse. Results: This sample (n=308) had a mean age of 33.76 SD±6.68; 201 (65.3%) were male; tumor location was colon or rectal in 41.7% and 58.3%, respectively. The majority (55.23%) were diagnosed with stage 2 disease; 98.0% were non-metastatic. 42.2% experienced relapse; 25% had an ostomy. Most survivors were 6-18 months (N=189; 61.4%) from diagnosis/relapse, and key demographics and disease characteristics did not significantly differ between those who were shorter versus longer time from diagnosis/relapse. The mean global HRQoL score was 67.3 out of a possible score of 136. Across domains, scores were low, with social well-being the highest (15.15/28) and emotional well-being the lowest (11.44/24). Social well-being was significantly higher among survivors who were 6-18 months from diagnosis/relapse compared to those 19-36 months (15.98 for 6-18 months vs. 13.83 for 19-36; p<0.01), as was functional well-being (13.20 for 6-18 months vs. 11.12 for 19-36; p<0.01). Emotional well-being and physical well-being did not significantly differ between groups. Conclusions: Overall HRQoL scores were low among younger CRC survivors, and social and functional well-being were significantly worse for those longer from diagnosis. Appropriate counseling and other targeted interventions are necessary to maintain HRQoL over time in this at-risk population. [Table: see text]

Health Related Quality of Life in Patients with Bladder Exstrophy: A Call for Targeted Interventions

2014 ◽  
Vol 191 (5S) ◽  
pp. 1553-1557 ◽  
Author(s):  
Melanie C. Pennison ◽  
Lauren Mednick ◽  
Ilina Rosoklija ◽  
Rosemary Grant ◽  
Diane Price ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Bladder Exstrophy ◽  
Health Related Quality ◽  
Targeted Interventions ◽  
Related Quality ◽  
Health Related

The English Version of the Gilles de la Tourette Syndrome–Quality of Life Scale for Children and Adolescents (C&A-GTS-QOL)

2016 ◽  
Vol 32 (1) ◽  
pp. 76-83 ◽  
Author(s):  
Merina T. Su ◽  
Fiona McFarlane ◽  
Andrea E. Cavanna ◽  
Cristiano Termine ◽  
Imogen Murray ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Tourette Syndrome ◽  
Rating Scales ◽  
Health Related Quality ◽  
Quality Of Life Scale ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related

Gilles de la Tourette syndrome is a chronic neuropsychiatric disorder that can have a detrimental impact on the health-related quality of life of children with the condition. To date no patient-reported health-related quality of life measures have been developed for children and adolescents in the English language. This study validated the first disease-specific scale for the quantitative assessment of health-related quality of life in 118 children and adolescents with Gilles de la Tourette syndrome (C&A-GTS-QOL) following language adaptation from Italian to English in the United Kingdom. Standard statistical methods were used to test the psychometric properties of the rating scale. Principal component factor analyses led to the identification of six health-related quality of life domains (cognitive, copro-phenomena, psychological, physical, obsessive-compulsive, and activities of daily living), explaining 66.7% of the overall variance. The C&A-GTS-QOL demonstrated satisfactory scaling assumptions and acceptability; validity was supported by interscale correlations (range 0.2-0.7), confirmatory factor analysis, and correlation patterns with other rating scales and clinical variables.

Sign in / Sign up

Export Citation Format

Share Document