scholarly journals Case Report: Visual Rehabilitation in Hemianopia Patients. Home-Based Visual Rehabilitation in Patients With Hemianopia Consecutive to Brain Tumor Treatment: Feasibility and Potential Effectiveness

2021 ◽  
Vol 12 ◽  
Author(s):  
Monica Daibert-Nido ◽  
Yulia Pyatova ◽  
Kyle Cheung ◽  
Camilus Nayomi ◽  
Samuel N. Markowitz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Virtual Reality ◽  
Brain Tumor ◽  
Rehabilitation Program ◽  
Visual Rehabilitation ◽  
Potential Effectiveness ◽  
Audiovisual Stimulation ◽  
Home Based ◽  
Pediatric Brain

Background/Objectives: Visual field loss is frequent in patients with brain tumors, worsening their daily life and exacerbating the burden of disease, and no supportive care strategies exist. In this case series, we sought to characterize the feasibility and potential effectiveness of a home-based visual rehabilitation program in hemianopia patients using immersive virtual-reality stimulation.Subjects/Methods: Two patients, one with homonymous hemianopia and the other with bitemporal hemianopia, consecutive to pediatric brain tumors, with no prior visual rehabilitation performed 15 min of home-based audiovisual stimulation every 2 days for 6 weeks (case 2) and 7 weeks (case 1) between February and August 2020. Patients used a virtual-reality, stand-alone, and remotely controlled device loaded with a non-commercial audiovisual stimulation program managed in real time from the laboratory. Standard visual outcomes assessed in usual care in visual rehabilitation were measured at the clinic. Following a mixed method approach in this pragmatic study of two cases, we collected quantitative and qualitative data on feasibility and potential effectiveness and compared the results pre- and post-treatment.Results: Implementation and wireless delivery of the audiovisual stimulation, remote data collection, and analysis for cases 1 and 2 who completed 19/20 and 20/20 audiovisual stimulation sessions at home, respectively, altogether indicated feasibility. Contrast sensitivity increased in both eyes for cases 1 and 2. Visual fields, measured by binocular Esterman and monocular Humphrey full-field analyses, improved in case 1. A minor increase was observed in case 2. Cases 1 and 2 enhanced reading speed. Case 2 strongly improved quality of life scores.Conclusion: This is the first report of a home-based virtual-reality visual rehabilitation program for adult patients with hemianopia consecutive to a pediatric brain tumor. We show the feasibility in real-world conditions and potential effectiveness of such technology on visual perception and quality of life.

scholarly journals QOL-51. LISTENING BEFORE WE SPEAK: A PATIENT-CENTERED APPROACH TO DEVELOPING RESOURCES FOR PEDIATRIC BRAIN TUMOR SURVIVORS AND THEIR FAMILIES

2020 ◽  
Vol 22 (Supplement_3) ◽  
pp. iii440-iii440
Author(s):  
Kathy Riley
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
United States ◽  
Brain Tumor ◽  
Mental Health Professionals ◽  
Pediatric Brain Tumor ◽  
The United States ◽  
Physical And Mental Health ◽  
Pediatric Brain

Abstract In the United States, more than 28,000 children and teenagers live with the diagnosis of a primary brain tumor (Porter, McCarthy, Freels, Kim, & Davis, 2010). In 2017, an estimated 4,820 new cases of childhood primary brain and other central nervous system tumors were expected to be diagnosed in children ages 0 – 19 in the United States (Central Brain Tumor Registry of the United States, 2017). Survivors suffer from lifelong side effects caused by their illness or by various treatments. Commonly identified late effects of treatment include a decline in intellectual functioning and processing speed, performance IQ deficits, memory deficits, psychological difficulties, deficits in adaptive functioning (daily life skills), and an overall decrease in health-related quality of life (Castellino, Ullrich, Whelen, & Lange, 2014). To address the ongoing challenges these survivors and their families face, the Pediatric Brain Tumor Foundation (PBTF) met extensively with working groups comprised of survivors and caregivers to develop the outline for a comprehensive Survivorship Resource Guidebook. In 2019, the PBTF published the guidebook which categorizes survivor and caregiver needs into three primary areas: physical and mental health, quality of life, and working the system. Expert authors included survivors and caregivers themselves in addition to medical and mental health professionals. Key outcomes discovered during the creation and production of this resource highlight how caregivers, survivors and professionals can collaborate to provide needed information and practical help to one segment of the pediatric cancer population who experience profound morbidities as a result of their diagnosis and treatment.

A randomized control intervention trial to improve social skills and quality of life in pediatric brain tumor survivors

2017 ◽  
Vol 27 (1) ◽  
pp. 91-98 ◽  
Author(s):  
Maru Barrera ◽  
Eshetu G. Atenafu ◽  
Lillian Sung ◽  
Ute Bartels ◽  
Fiona Schulte ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Social Skills ◽  
Pediatric Brain Tumor ◽  
Intervention Trial ◽  
Control Intervention ◽  
Randomized Control ◽  
Pediatric Brain

Quality of life improvement after hospital- based rehabilitation or home-based physical training in intermittent claudication

VASA ◽  
2006 ◽  
Vol 35 (3) ◽  
pp. 178-184 ◽  
Author(s):  
Imfeld ◽  
Singer ◽  
Degischer ◽  
Aschwanden ◽  
Thalhammer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Study Groups ◽  
Arterial Disease ◽  
Rehabilitation Program ◽  
Open Label ◽  
Home Based ◽  
Group 2 ◽  
Peripheral Arterial

Background: The magnitude of potential changes in Quality-of-Life (QoL) after structured institution-based or home-based peripheral arterial disease (PAD) rehabilitation programs are largely unknown at present. This pilot study provides first QoL data after PAD rehabilitation or a home-based PAD training. Patients and methods: In a non-randomized, open-label pilot study three groups of out-patients were compared: group 1 (n = 18) PAD rehabilitation; group 2 (n = 17) PAD rehabilitation + clopidogrel 75 mg once daily; group 3 (n = 20) home-based training. The training period was 3 months, which was followed by a 3-month observation phase (without prescribed training). The institution-based rehabilitation program consisted of 3 training hours per week whereas patients training at home were instructed to walk for 1 hour per day on an outdoor track. QoL assessment was performed using MOS SF-36, PAVK-86 and PAD-WIQ questionnaires. Results: At baseline background variables, demographics and claudication distances were comparable between groups. After three months of training the percentage changes for the initial and the absolute claudication distance (ICD, ACD) for groups 1, 2, and 3 amounted to 164%, 201%, 44% (ICD) and 83%, 131%, 5% (ACD), respectively. Statistically significant QoL improvements were recorded for physical functions, pain and disease related anxiety in all three study groups; statistically significant inter-group differences were not found. Conclusions: In sharp contrast to the development of the claudication distances the improvement in QoL, found after 3months of training, was comparable and not consistently different between the groups.

Impact of brain tumor and its treatment on the physical and psychological well-being, and quality of life amongst pediatric brain tumor survivors

2019 ◽  
Vol 41 ◽  
pp. 104-109 ◽  
Author(s):  
Ankie Tan Cheung ◽  
William Ho Cheung Li ◽  
Laurie Long Kwan Ho ◽  
Ka Yan Ho ◽  
S.Y. Chiu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Pediatric Brain Tumor ◽  
Well Being ◽  
Psychological Well Being ◽  
Pediatric Brain

Efficacy of musical training on psychological outcomes and quality of life in Chinese pediatric brain tumor survivors

2018 ◽  
Vol 28 (1) ◽  
pp. 174-180 ◽  
Author(s):  
Ankie Tan Cheung ◽  
William Ho Cheung Li ◽  
Ka Yan Ho ◽  
Katherine Ka Wai Lam ◽  
Laurie Long Kwan Ho ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Musical Training ◽  
Pediatric Brain Tumor ◽  
Psychological Outcomes ◽  
Pediatric Brain
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