scholarly journals Expanding Neonatal Bloodspot Screening: A Multi-Stakeholder Perspective

2021 ◽  
Vol 9 ◽  
Author(s):  
Tessa van Dijk ◽  
Adriana Kater ◽  
Marleen Jansen ◽  
Wybo J. Dondorp ◽  
Maartje Blom ◽  
...  
Keyword(s):  
Health Gain ◽  
Structured Interviews ◽  
Policy Makers ◽  
Life Planning ◽  
Stakeholder Perspectives ◽  
Societal Challenges ◽  
Uncertain Significance ◽  
Reproductive Life ◽  
Stakeholder Perspective ◽  
Multi Stakeholder

Neonatal bloodspot screening (NBS) aims to detect treatable disorders in newborns. The number of conditions included in the screening is expanding through technological and therapeutic developments, which can result in health gain for more newborns. NBS expansion, however, also poses healthcare, ethical and societal challenges. This qualitative study explores a multi-stakeholders' perspective on current and future expansions of NBS. Semi-structured interviews were conducted with 22 Dutch professionals, including healthcare professionals, test developers and policy makers, and 17 parents of children with normal and abnormal NBS results. Addressed themes were (1) benefits and challenges of current expansion, (2) expectations regarding future developments, and (3) NBS acceptance and consent procedures. Overall, participants had a positive attitude toward NBS expansion, as long as it is aimed at detecting treatable disorders and achieving health gain. Concerns were raised regarding an increase in results of uncertain significance, diagnosing asymptomatic mothers, screening of subgroups (“males only”), finding untreatable disorders, along with increasingly complex consent procedures. Regarding the scope of future NBS expansions, two types of stakeholder perspectives emerged. Stakeholders with a “targeted-scope” perspective saw health gain for the neonate as the exclusive NBS aim. They thought pre-test information could be limited, and parents should be protected against too much options or information. Stakeholders with a “broad-scope” perspective thought the NBS aim should be formulated broader, for example, also taking (reproductive) life planning into account. They put more emphasis on individual preferences and parental autonomy. Policy-makers should engage with both perspectives when making further decisions about NBS.

scholarly journals Mega-events brand meaning co-creation: the Olympic case

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Nathalia Christiani Tjandra ◽  
Ivana Rihova ◽  
Sarah Snell ◽  
Claire S. Den Hertog ◽  
Eleni Theodoraki
Keyword(s):  
Qualitative Methodology ◽  
Brand Identity ◽  
Structured Interviews ◽  
Historical Sources ◽  
Content Type ◽  
Brand Meaning ◽  
Stakeholder Perspective ◽  
Multi Stakeholder ◽  
Mega Event ◽  
Purposive Sample

Purpose This paper aims to explore a multi-stakeholder perspective on brand meaning co-creation in the context of the Olympic Games as a unique mega sports event brand with a strong brand identity, to understand how the brand manager may integrate such co-created meanings in a negotiated brand identity. Design/methodology/approach Using a qualitative methodology, the paper provides a tentative framework of co-created Olympic brand meanings by exploring the narratives of stakeholders’ brand experiences of the brand. Sixteen semi-structured interviews with a purposive sample of Olympic stakeholders were conducted and analysed to identify key meanings associated with the Olympic brand. Findings Through their transformational and social experiences of the Olympic brand, stakeholders co-create brand meanings based on Olympic values of excellence, friendship and respect. However, at the same time, they offer their own interpretations and narratives related to competing meanings of spectacle, exclusion and deceit. Alternative brand touchpoints were identified, including blogs; fan and sports community forums; educational and academic sources; and historical sources and literature. Practical implications The brand manager must become a brand negotiator, facilitating multi-stakeholder co-creation experiences on a variety of online and offline engagement platforms, and exploring how alternative brand touchpoints can be used to access co-created brand meanings. Originality/value The study contributes to tourism branding literature by providing exploratory evidence of how brand meanings are co-created in the relatively under-researched multi-stakeholder sports mega-event context.

Fighting Ecomafias

Biotechnology ◽  
2019 ◽  
pp. 1322-1338
Author(s):  
Nadia Di Paola ◽  
Rosanna Spanò ◽  
Adele Caldarelli ◽  
Roberto Vona
Keyword(s):  
Sustainable Development ◽  
Potential Role ◽  
Critical Discussion ◽  
Social Implications ◽  
Socially Responsible ◽  
Policy Makers ◽  
Biotechnology Research ◽  
Stakeholder Perspectives ◽  
Multi Stakeholder ◽  
Innovation Processes

Innovation processes are becoming increasingly central, and newer industries have become already less resource-intensive in comparison with the traditional ones. Nevertheless, this alone does not assure sustainability, which requires a step further towards economically viable, environmentally compatible, and socially responsible behaviours. This chapter addresses the issues relating to sustainable development to provide a critical discussion on the potential role played by networking relationships in the biotech field. For the purposes of the study, we employ the co-management and multi-stakeholder perspectives. We demonstrate that the biotechnology research results may be enhanced thanks to cooperation dynamics and interactions among heterogeneous actors, with undeniable cultural and social positive impacts. Also, we discuss social implications and open concerns, both with regard to the relationships within innovative networks and between institutional professional actors, allowing the identification of any grey areas and limitations, especially relevant to policy makers.

scholarly journals Delivering Climate-Development Co-Benefits through Multi-Stakeholder Forestry Projects in Madagascar: Opportunities and Challenges

Land ◽  
2020 ◽  
Vol 9 (5) ◽  
pp. 157 ◽  
Author(s):  
Nicola Favretto ◽  
Stavros Afionis ◽  
Lindsay C. Stringer ◽  
Andrew J. Dougill ◽  
Claire H. Quinn ◽  
...  
Keyword(s):  
Local Development ◽  
Theory Of Change ◽  
Climate Mitigation ◽  
Structured Interviews ◽  
Community Needs ◽  
Stakeholder Perspectives ◽  
Reporting Systems ◽  
Ecological Conservation ◽  
Project Deliverables ◽  
Multi Stakeholder

This paper explores multi-stakeholder perspectives on the extent to which forestry projects that pursue ecological restoration and rehabilitation in Madagascar engage with local communities and can co-deliver climate-development benefits. Drawing on mixed methods (policy analysis, semi-structured interviews, participatory site visits and focus groups) in two different forestry contexts, we show that by strengthening access to capital availability, projects can enhance local adaptive capacity and mitigation and deliver local development. We show that active consideration of ecological conservation and action plans early in project design and implementation can co-develop and support monitoring and reporting systems, needed to progress towards integrated climate-compatible development approaches. Climate mitigation benefits remain poorly quantified due to limited interest in, and low capacity to generate, carbon revenues. Monitoring alone does not ensure carbon benefits will materialize, and this research stresses that institutional considerations and strengthened engagement and cooperation between practitioners and communities are key in achieving both climate mitigation and community development impacts. Multiple benefits can be fostered by aligning objectives of multiple landscape actors (i.e., community needs and project developers) and by systematically linking project deliverables, outputs, outcomes and impacts over time, grounded in a theory of change focused on ensuring community buy-in and planning for delivery of tangible benefits.

Fighting Ecomafias

2016 ◽  
pp. 295-311
Author(s):  
Nadia Di Paola ◽  
Rosanna Spanò ◽  
Adele Caldarelli ◽  
Roberto Vona
Keyword(s):  
Sustainable Development ◽  
Potential Role ◽  
Critical Discussion ◽  
Social Implications ◽  
Socially Responsible ◽  
Policy Makers ◽  
Biotechnology Research ◽  
Stakeholder Perspectives ◽  
Multi Stakeholder ◽  
Innovation Processes

Innovation processes are becoming increasingly central, and newer industries have become already less resource-intensive in comparison with the traditional ones. Nevertheless, this alone does not assure sustainability, which requires a step further towards economically viable, environmentally compatible, and socially responsible behaviours. This chapter addresses the issues relating to sustainable development to provide a critical discussion on the potential role played by networking relationships in the biotech field. For the purposes of the study, we employ the co-management and multi-stakeholder perspectives. We demonstrate that the biotechnology research results may be enhanced thanks to cooperation dynamics and interactions among heterogeneous actors, with undeniable cultural and social positive impacts. Also, we discuss social implications and open concerns, both with regard to the relationships within innovative networks and between institutional professional actors, allowing the identification of any grey areas and limitations, especially relevant to policy makers.

Understanding refugee entrepreneurship incubation – an embeddedness perspective

2019 ◽  
Vol 25 (5) ◽  
pp. 1065-1092 ◽  
Author(s):  
Alexander Dominik Meister ◽  
René Mauer
Keyword(s):  
Host Country ◽  
Structured Interviews ◽  
Business Incubation ◽  
Content Type ◽  
Study Approach ◽  
Stakeholder Perspective ◽  
Multi Stakeholder ◽  
The Impact

Purpose Recent years have seen a wave of immigration in western countries. Entrepreneurship can foster refugees’ integration in the labour market. Hence, the authors observe an emergence of incubators with social purpose, addressing the key challenges of refugee entrepreneurs. The purpose of this paper is to look at the particularities and the impact of business incubation on entrepreneurial development and embeddedness of refugee entrepreneurs in the host country by applying the theoretical lens of mixed embeddedness theory. Design/methodology/approach This paper is based on a qualitative case study approach exploring one business incubation model for refugee entrepreneurs in Germany. For a multi-stakeholder perspective, the data were collected through a participatory focus group workshop and semi-structured interviews of refugee entrepreneurs and incubator stakeholders (e.g. incubator management, mentors and partners) contributing to the incubation. The data collection extends over the duration of five months of the incubation programme. Findings The empirical results emphasise the impact of the business incubator on refugee entrepreneur’s development and embeddedness. In this analysis, the authors identify key themes of a particular incubation process addressing the lack of embeddedness and barriers to refugee entrepreneurs in the host country. From the results, the authors elaborate a particular business incubation process framework of refugee entrepreneurs. Originality/value The findings enhance the understanding how business incubation contributes to the embeddedness of refugee entrepreneurs in their new hosting environment. Thus, this research contributes to the existing literature by extending incubation model frameworks towards refugee entrepreneurship and embeddedness perspectives. Furthermore, the study emphasises the role of the incubator in the context of the dimensions of the mixed embeddedness of the refugee entrepreneurs.

scholarly journals Encouraging older people to engage in resistance training: a multi-stakeholder perspective

2018 ◽  
Vol 39 (8) ◽  
pp. 1806-1825 ◽  
Author(s):  
SIMONE PETTIGREW ◽  
ELISSA BURTON ◽  
KAELA FARRIER ◽  
ANNE-MARIE HILL ◽  
LIZ BAINBRIDGE ◽  
...  
Keyword(s):  
Resistance Training ◽  
Older People ◽  
Later Life ◽  
Training Programme ◽  
Policy Makers ◽  
Individual Interviews ◽  
Stakeholder Perspective ◽  
Multi Stakeholder ◽  
Training Programmes ◽  
Motivation To Participate

AbstractResistance training is an important aspect of healthy ageing, yet participation rates are especially low among older people. Strategies are needed to ensure resistance training programmes are attractive to and appropriate for this target group. To inform the development of such strategies, individual interviews (N = 42) and focus groups (four groups, N = 37) were conducted with 79 Western Australians representing four stakeholder groups: instructors who deliver resistance training programmes to older people, health practitioners, policy makers and seniors. Results indicate that the need for personalised attention in the establishment and maintenance phases of a resistance training programme can constitute both a positive and negative aspect of older people's experiences. The negative aspects were identified as a series of tensions between the need for personalised attention and (a) the desire to participate in physical activity within social groups, (b) a preference for activity variation, (c) a dislike for large centres where personalised guidance is often available yet the surroundings can be considered unappealing, (d) cost issues and (e) the need for flexibility in attendance. Recommended strategies for overcoming these tensions include disseminating information about the benefits of resistance training in later life to increase motivation to participate, identifying additional methods of integrating resistance training into group exercise formats, making gyms more attractive to older people and providing non-gym alternatives for resistance training.

scholarly journals Implementation of a standard outcome set in perinatal care: a qualitative analysis of barriers and facilitators from all stakeholder perspectives

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Anne L. Depla ◽  
Neeltje M. Crombag ◽  
Arie Franx ◽  
Mireille N. Bekker
Keyword(s):  
Thematic Analysis ◽  
Perinatal Care ◽  
Barriers And Facilitators ◽  
Care Practice ◽  
Successful Implementation ◽  
Structured Interviews ◽  
Policy Makers ◽  
Stakeholder Perspectives ◽  
Outcome Set ◽  
Patient Reported

Abstract Background To improve their quality, healthcare systems are increasingly focused on value delivered to patients. For perinatal care, the International Consortium for Health Outcomes Measurement (ICHOM) proposed a patient-centred outcome set with both clinical and patient-reported measures for pregnancy and childbirth (PCB set). This study aimed to identify factors that affect the implementation of the PCB set at the pre-implementation stage, using the consolidated framework for implementation research (CFIR). Methods In this qualitative study, we conducted semi-structured interviews amongst a purposive sample of key stakeholders within an obstetric care network (OCN): 1) patients, 2) perinatal care professionals involved in the full cycle of perinatal care, and 3) policy makers, including hospital managers, administrative staff and health care insurers. While the CFIR guided data capture and structuring, thematic analysis revealed overarching themes that best reflected the barriers and facilitators from different stakeholder perspectives. Within these overarching themes, the CFIR constructs were maintained. Results Interviews were conducted with 6 patients, 16 professionals and 5 policy makers. Thematic analysis supported by the CFIR framework identified four main themes: the instrument and its implementation process, use in individual patient care, use in quality improvement, and the context of the OCN. Important barriers included professional workload, data reliability, and interprofessional and interorganizational collaboration. Potential facilitators were the PCB set’s direct value in individual care, interprofessional feedback and education, and aligning with existing systems. Prominent variations between stakeholder groups included the expected patient burden, the level of use, transparency of outcomes and the degree of integrated care. Conclusions This study clarified critical factors that affect successful implementation of the PCB set in perinatal care. Practice recommendations, suggested at multiple levels, can enable structural patient-centred care improvement and may unite stakeholders towards integrated birth care.

scholarly journals Smart Cities in Turkey: Approaches, Advances and Applications with Greater Consideration for Future Urban Transport Development

Energies ◽  
2019 ◽  
Vol 12 (12) ◽  
pp. 2308 ◽  
Author(s):  
Can Bıyık
Keyword(s):  
Urban Areas ◽  
Planning Process ◽  
Smart Cities ◽  
Radical Change ◽  
Urban Transport ◽  
Transport Systems ◽  
Structured Interviews ◽  
Policy Makers ◽  
Comprehensive Survey ◽  
Future Vision

The smart city transport concept is viewed as a future vision aiming to undertake investigations on the urban planning process and to construct policy-pathways for achieving future targets. Therefore, this paper sets out three visions for the year 2035 which bring about a radical change in the level of green transport systems (often called walking, cycling, and public transport) in Turkish urban areas. A participatory visioning technique was structured according to a three-stage technique: (i) Extensive online comprehensive survey, in which potential transport measures were researched for their relevance in promoting smart transport systems in future Turkish urban areas; (ii) semi-structured interviews, where transport strategy suggestions were developed in the context of the possible imaginary urban areas and their associated contextual description of the imaginary urban areas for each vision; (iii) participatory workshops, where an innovative method was developed to explore various creative future choices and alternatives. Overall, this paper indicates that the content of the future smart transport visions was reasonable, but such visions need a considerable degree of consensus and radical approaches for tackling them. The findings offer invaluable insights to researchers inquiring about the smart transport field, and policy-makers considering applying those into practice in their local urban areas.

Value assessment of antimicrobials and the implications for development, access, and funding of effective treatments: Australian stakeholder perspective

2020 ◽  
pp. 1-7
Author(s):  
Nadine T. Hillock ◽  
Tracy L. Merlin ◽  
Jonathan Karnon ◽  
John Turnidge ◽  
Jaklin Eliott
Keyword(s):  
Cost Effectiveness ◽  
Healthcare Resource ◽  
Economic Evaluations ◽  
Value Assessment ◽  
Antimicrobial Drugs ◽  
Policy Makers ◽  
Stakeholder Perspective ◽  
Definition Of ◽  
The Impact ◽  
Potential Use

Abstract Background The frameworks used by Health Technology Assessment (HTA) agencies for value assessment of medicines aim to optimize healthcare resource allocation. However, they may not be effective at capturing the value of antimicrobial drugs. Objectives To analyze stakeholder perceptions regarding how antimicrobials are assessed for value for reimbursement purposes and how the Australian HTA framework accommodates the unique attributes of antimicrobials in cost-effectiveness evaluation. Methods Eighteen individuals representing the pharmaceutical industry or policy-makers were interviewed. Interviews were transcribed verbatim, coded, and thematically analyzed. Results Key emergent themes were that reimbursement decision-making should consider the antibiotic spectrum when assessing value, risk of shortages, the impact of procurement processes on low-priced comparators, and the need for methodological transparency when antimicrobials are incorporated into the economic evaluation of other treatments. Conclusions Participants agreed that the current HTA framework for antimicrobial value assessment is inadequate to properly inform funding decisions, as the contemporary definition of cost-effectiveness fails to explicitly incorporate the risk of future resistance. Policy-makers were uncertain about how to incorporate future resistance into economic evaluations without a systematic method to capture costs avoided due to good stewardship. Lacking financial reward for the benefits of narrower-spectrum antimicrobials, companies will likely focus on developing broad-spectrum agents with wider potential use. The perceived risks of shortages have influenced the funding of generic antimicrobials in Australia, with policy-makers suggesting a willingness to pay more for assured supply. Although antibiotics often underpin the effectiveness of other medicines, it is unclear how this is incorporated into economic models.

scholarly journals Co-Creation Facilitates Translational Research on Upper Limb Prosthetics

Prosthesis ◽  
2021 ◽  
Vol 3 (2) ◽  
pp. 110-118
Author(s):  
Hannah Jones ◽  
Sigrid Dupan ◽  
Maxford Coutinho ◽  
Sarah Day ◽  
Deirdre Desmond ◽  
...  
Keyword(s):  
Upper Limb ◽  
Rehabilitation Centre ◽  
Stakeholder Collaboration ◽  
Policy Makers ◽  
Academic Knowledge ◽  
Upper Limb Prosthesis ◽  
The People ◽  
User Data ◽  
Multi Stakeholder ◽  
Upper Limb Prosthetics

People who either use an upper limb prosthesis and/or have used services provided by a prosthetic rehabilitation centre, hereafter called users, are yet to benefit from the fast-paced growth in academic knowledge within the field of upper limb prosthetics. Crucially over the past decade, research has acknowledged the limitations of conducting laboratory-based studies for clinical translation. This has led to an increase, albeit rather small, in trials that gather real-world user data. Multi-stakeholder collaboration is critical within such trials, especially between researchers, users, and clinicians, as well as policy makers, charity representatives, and industry specialists. This paper presents a co-creation model that enables researchers to collaborate with multiple stakeholders, including users, throughout the duration of a study. This approach can lead to a transition in defining the roles of stakeholders, such as users, from participants to co-researchers. This presents a scenario whereby the boundaries between research and participation become blurred and ethical considerations may become complex. However, the time and resources that are required to conduct co-creation within academia can lead to greater impact and benefit the people that the research aims to serve.

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