scholarly journals Is Self-Efficacy Related to the Quality of Life in Elite Athletes after Spinal Cord Injury?

2021 ◽  
Vol 18 (20) ◽  
pp. 10866
Author(s):  
Agata Goraczko ◽  
Alina Zurek ◽  
Maciej Lachowicz ◽  
Katarzyna Kujawa ◽  
Grzegorz Zurek
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Self Efficacy ◽  
World Health ◽  
World Health Organization Quality ◽  
Cord Injury ◽  
Quality Of Life Scale ◽  
General Self Efficacy

Background: A spinal cord injury (SCI) is a traumatic event that affects every aspect of life: physical, mental, economic, and social. The main aim of this study was to investigate self-efficacy, quality of life, and their correlations among outstanding athletes who have suffered spinal cord injuries, and to determine whether these individuals have specific psychological characteristics that contribute to a better quality of life. Methods: The study involved nine athletes with at least national-level achievements in sports prior to an SCI. Participation in the study consisted of an interview via an online communicator, followed by an online questionnaire consisting of a personal questionnaire and two scales: The World Health Organization Quality of Life Scale (WHOQoL-BREF), and the General Self-Efficacy Scale (GSES). Results: Spearman’s correlation showed a correlation between general self-efficacy, perception of quality of life, and satisfaction with own physical health, as well as psychological resources and environmental support. Conclusions: Involvement in an environment that was important to the injured person before the accident, in either a passive (in the absence of functional capacity) or active form, promotes a greater sense of self-efficacy and good QoL, regardless of the time that has passed since the accident, and despite high levels of pain or secondary health issues. To fill the gap in professional long-term healthcare services for athletes after SCIs, intervention programs should be considered that support self-efficacy, which is an important factor that can be subject to improvement.

Quality of Life and Self-Care Ability Among Individuals With Spinal Cord Injury

2020 ◽  
pp. 105477382097662
Author(s):  
Nesrin N. Abu-Baker ◽  
Ne’ma H. Al-Zyoud ◽  
Ali Alshraifeen
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Self Care ◽  
World Health ◽  
Related Factors ◽  
Convenience Sample ◽  
World Health Organization Quality ◽  
Cord Injury

This study aimed to identify self-care ability, quality of life (QOL), and their related factors in individuals with spinal cord injury (SCI). A cross-sectional design and a convenience sample of 152 individuals with SCI from four SCI units and clinics in Jordan were used. Modified Barthel Index of Activities of Daily Living and the World Health Organization Quality of Life-BREF instruments were used. About 55.3% of participants reported moderate dependence on others to support their self-care ability, 48.0% reported good QOL, 65.8% were satisfied with their health after SCI, and physical and environmental domains received the highest scores. Having incomplete injury or paraplegia significantly predicted higher self-care ability. Being male, having a higher level of education, incomplete injury, paraplegia, and no pressure injury significantly predicted higher QOL ( p < .000). Collaboration is needed among health institutions, families, and communities to improve self-care ability and QOL after SCI.

scholarly journals Half man, half prosthesis: the rehabilitation of people with hemicorporectomy – case series

F1000Research ◽  
2021 ◽  
Vol 10 ◽  
pp. 298
Author(s):  
André Tadeu Sugawara ◽  
Milton Seigui Oshiro ◽  
Eduardo Inglez Yamanaka ◽  
Ronaldo Meneghetti ◽  
Dayrin Vanessa Tarazona Carvajal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Social Inclusion ◽  
Functional Independence ◽  
The Body ◽  
World Health ◽  
World Health Organization Quality ◽  
Rehabilitation Process ◽  
Cord Injury

Hemicorporectomy is a procedure where the lumbar spine and spinal cord, pelvic bones and contents, lower extremities and external genitalia are surgically removed. The rehabilitation process, in addition to being prolonged and costly, is challenging. This article reports the rehabilitation process for hemicorporectomy and shows the innovative solutions for mobility for this disability for two cases of paraplegic patients: case 1 due to traumatic spinal cord injury due to firearm injury and case 2 due to lumbosacral myelomeningocele. They presented chronic pressure ulcer which evolved to neoplastic transformation. (squamous cell carcinoma - Marjolin's ulcer). The cases were submitted to L4 hemicorporectomy and were rehabilitated to ensure the right to mobility independence for activities of daily living; social inclusion; prevention of comorbidities and pluralization of disabilities. The rehabilitation involved the elaboration of a new prosthesis for the hemibody and improvement of functional capacity, within a gain of 6 - 11 points in the Functional Independence Measure (FIM). The principal changes happened in social interaction, locomotion and transfers to a bed/chair and toilet. Despite the body transformation, patients show gains in quality of life mainly for the social domain of World Health Organization Quality of Life instrument-brief version (WHOQOL-bref). In general, there is an increase in the scores of this instrument from 1.78% -19.25%. The evolution of social inclusion through the International Classification of Functioning, Disability and Health (ICF) reveals that patients are able to resume social, working, academic-professional life and recreation and leisure activities, reducing the number of severe and complete qualifiers from 90.91 to 60% when using the products appropriate assistive devices. Hemicorporectomy can be a therapeutic option for those in need, as it provides functionality without the need for caregivers and resumes educational, professional, economic and social aspects with gains in quality of life.

scholarly journals Factors Associated with Quality of Life among Caregivers of People with Spinal Cord Injury

2021 ◽  
Vol 2021 ◽  
pp. 1-10
Author(s):  
Ata Farajzadeh ◽  
Malahat Akbarfahimi ◽  
Saman Maroufizadeh ◽  
Negar Miri Lavasani
Keyword(s):  
Quality Of Life ◽  
Risk Factors ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Caregiver Burden ◽  
World Health ◽  
Life Questionnaire ◽  
Factors Associated ◽  
Cord Injury

Purpose. Often people with spinal cord injury (SCI) require help from their caregivers to carry out activities of daily living. Such assistance may affect caregiver quality of life (QoL). This study investigates the QoL and its associated risk factors among caregivers of people with SCI to find possible ways to increase their QoL. Material and Method. A convenience sample of 135 Iranian caregivers of people with SCI participated in a cross-sectional study from the Brain and Spinal Injury Repair Research Center of Tehran (BASIR), Iran, from June 2018 to October 2019. The World Health Organization’s Quality of Life Questionnaire (WHOQoL-BREF), the Beck Depression Inventory-II (BDI-II), the Caregiver Burden Scale (CBS), and a demographic questionnaire were administered. Hierarchical multiple linear regression analysis was then applied to identify risk factors associated with caregiver QoL. Results. Moderate to highly significant negative correlations were observed between all domains of the WHOQoL scale and subscales of the CBS and the BDI-II. After controlling for demographic and clinical variables, depression, burden, and level of injury were found to predict caregiver QoL significantly. Furthermore, QoL was lower in caregivers of people with quadriplegia than paraplegia ( p < 0.05 ). Conclusions. The level of injury, self-perceived caregiver burden, and depression are associated with QoL for the caregivers of people with SCI. A holistic approach incorporating caregiver training, psychological interventions, and adequate support may enable better QoL for these caregivers.

scholarly journals Long term outcome of functional independence and quality of life after traumatic SCI in Germany

Spinal Cord ◽  
2021 ◽  
Author(s):  
Florian Möller ◽  
Rüdiger Rupp ◽  
Norbert Weidner ◽  
Christoph Gutenbrunner ◽  
Yorck B. Kalke ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Functional Independence ◽  
Term Outcome ◽  
Long Term Outcome ◽  
Cord Injury ◽  
Over Time

Abstract Study design Multicenter observational study. Objective To describe the long-term outcome of functional independence and quality of life (QoL) for individuals with traumatic and ischemic SCI beyond the first year after injury. Setting A multicenter study in Germany. Methods Participants of the European multicenter study about spinal cord injury (EMSCI) of three German SCI centers were included and followed over time by the German spinal cord injury cohort study (GerSCI). Individuals’ most recent spinal cord independence measure (SCIM) scores assessed by a clinician were followed up by a self-report (SCIM-SR) and correlated to selected items of the WHO short survey of quality of life (WHO-QoL-BREF). Results Data for 359 individuals were obtained. The average time passed the last clinical SCIM examination was 81.47 (SD 51.70) months. In total, 187 of the 359 received questionnaires contained a completely evaluable SCIM-SR. SCIM scores remained stable with the exception of reported management of bladder and bowel resulting in a slight decrease of SCIM-SR of −2.45 points (SD 16.81). SCIM-SR scores showed a significant correlation with the selected items of the WHO-QoL-BREF (p < 0.01) with moderate to strong influence. Conclusion SCIM score stability over time suggests a successful transfer of acquired independence skills obtained during primary rehabilitation into the community setting paralleled by positively related QoL measurements but bladder and bowel management may need special attention.

Excretory dysfunction and quality of life after a spinal cord injury: A cross‐sectional study

2021 ◽  
Vol 30 (9-10) ◽  
pp. 1394-1402
Author(s):  
De Gong ◽  
Yingmin Wang ◽  
Lirong Zhong ◽  
Mengmeng Jia ◽  
Ting Liu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Cord Injury
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