scholarly journals National Survey Assessment of the United States’ Pediatric Residents’ Knowledge, Attitudes, and Practices Regarding Newborn Screening

2018 ◽  
Vol 5 (1) ◽  
pp. 3
Author(s):  
Shipra Bansal ◽  
Kannan Kasturi ◽  
Vivian Chin

A pediatrician’s approach to newborn screening (NBS) impacts patient care. Some physicians have reported not being well prepared to inform families about a positive NBS and recommend further follow-up. The knowledge and approach of categorical pediatric residents (RES) in the United States regarding NBS is not known. They were anonymously surveyed via listserv maintained by American Academy of Pediatrics. A total of 655 responses were analyzed. The mean composite knowledge score (CKS) was 17.7 (SD 1.8), out of maximum 21. Training level (p = 0.001) and completing NICU rotation (p < 0.001) predicted higher CKS. Most RES agreed that NBS is useful and pediatricians play an important role in the NBS process, however, only 62% were comfortable with counseling. Higher level RES were more likely to follow NBS results in clinic (p = 0.0027) and know the contact agency for results (p < 0.001). Most RES wanted more NBS training during residency and were not aware of clinical algorithms like ACTion sheets developed by American College of Medical Genetics. We concluded that although RES have sufficient knowledge about NBS, there is a need for earlier RES education on available tools for NBS to enhance their comfort level and improve practices such as educating parents about the NBS process.

2021 ◽  
Vol 4 (1) ◽  
Author(s):  
Akash John ◽  
Muhammad Saleem Rana ◽  
Asif Hanif ◽  
Tallat Anwar Faridi ◽  
Sofia Noor ◽  
...  

Human immunodeficiency virus (HIV) is a subgroup of retrovirus causing HIV infection which if prolongs turns into a progressive failure of the immune system called as acquired immunodeficiency syndrome. It is commonly prevalent in Male Transgenders who are born male and disobeys the cultural defined social norms and identify themselves as a female. The objective was to assess knowledge, Attitudes and Practices of Transgender Community regarding Transmission of Human Immunodeficiency Virus in Lahore, Pakistan. A Descriptive Cross-sectional Survey was conducted in Nine Towns of Lahore. A sample size of 79 was calculated and data was collected in duration of 9 months. A self-administered survey-based questionnaire was developed using WHO and National AIDS control Programme guidelines followed and pilot tested. Data was collected after Informed consent.The mean age of Respondents was 29.56 ± 8.27 years with minimum and maximum age as 19 and 50. In this study the mean knowledge score of the transgender about HIV Transmission was 2.804±0.32, the mean score of attitudes of transgender were 3.25±0.19 and the mean practice score was 2.931±0.28.Majority of the transgender have insufficient knowledge, and bad attitude towards their health. They have unsafe sexual practice and Drug Interventions playing a significant role in HIV epidemic. Majority of them are uneducated, unemployed and found sex selling and dancing an easiest way of earning. Their knowledge about HIV screening, transmission, and antiretroviral therapy is low.


2019 ◽  
Vol 30 (3) ◽  
pp. 391-408 ◽  
Author(s):  
Pamela A. Royer ◽  
Lenora M. Olson ◽  
Brandi Jackson ◽  
Lana S. Weber ◽  
Lori Gawron ◽  
...  

It is crucial for refugee service providers to understand the family planning knowledge, attitudes, and practices of refugee women following third country resettlement. Using an ethnographic approach rooted in Reproductive Justice, we conducted six focus groups that included 66 resettled Somali and Congolese women in a western United States (US) metropolitan area. We analyzed data using modified grounded theory. Three themes emerged within the family planning domain: (a) concepts of family, (b) fertility management, and (c) unintended pregnancy. We contextualized these themes within existing frameworks for refugee cultural transition under the analytic paradigms of “pronatalism and stable versus evolving family structure” and “active versus passive engagement with family planning.” Provision of just and equitable family planning care to resettled refugee women requires understanding cultural relativism, social determinants of health, and how lived experiences influence family planning conceptualization. We suggest a counseling approach and provider practice recommendations based on our study findings.


10.2196/19924 ◽  
2020 ◽  
Vol 3 (2) ◽  
pp. e19924
Author(s):  
Todd Caze II ◽  
Gregory P Knell ◽  
John Abt ◽  
Scott O Burkhart

Background Approximately 2 million children in the United States sustain a concussion annually, resulting in an economic impact as high as US $20 billion. Patients who receive treatment at concussion specialty clinics, versus primary care, experience faster recovery, thereby reducing patient burden and subsequent medical-related costs. Accessibility to specialty clinics is typically limited by the availability of in-office visits. This is particularly relevant in light of the severe acute respiratory syndrome coronavirus 2 pandemic and subsequent guidance to eliminate all non–medically necessary in-clinic visits. Telehealth has been used to effectively deliver in-clinic care across several disciplines including psychiatry, psychology, and neuropsychology. However, a model of telehealth delivered concussion assessment, treatment, and management has not been established. Objective The purposes of this paper are to describe a pediatric concussion specialty clinic’s experiences in delivering telehealth concussion services and to provide preliminary descriptive data on a sample of pediatric telehealth patients with concussions. Methods The specialty pediatric concussion clinic described here began providing telehealth services in 2019 and is part of the largest and fastest-growing telehealth hospital network in the United States. The clinical care process will be described, including accessing the telehealth platform, assessment during the initial appointment, injury management including communication with relevant patient stakeholders (eg, parent or guardians, athletic trainers), dissemination of rehabilitation exercises, and nature of follow-up visits. Descriptive data will include patient demographics, the radius of care, the time between the date of injury and initial visit, the average number of follow-up visits, and days until medically cleared for return-to-learn and return-to-play. Results The analytic sample included 18 patients with concussions who were seen for all of their visits via telehealth between August 2019 and April 2020. The mean age of the sample was 14.5 (SD 2.5) years. The radius of care was a median of 17 (IQR 11.0-31.0) miles from the clinic with a median time between injury and the first visit of 21 (IQR 6.0-41.5) days. The mean number of visits was 2.2 (SD 0.8) with a median days between visits of 5.4 (IQR 3.0-9.3) to manage and treat the concussion. Of the 18 patients, 55.6% (n=10) were medically cleared for return-to-learn or -play in a median of 15.5 (IQR 11.0-29.0) days. Conclusions Limited access to health care is a well-understood barrier for receiving quality care. Subsequently, there are increasing demands for flexibility in delivering concussion services remotely and in-clinic. This is the first paper to provide a clinically relevant framework for the assessment, management, and treatment of acute concussion via telehealth in a pediatric population.


2018 ◽  
Vol 40 (3) ◽  
pp. 268-275 ◽  
Author(s):  
Evan M. Loewy ◽  
Thomas H. Sanders ◽  
Arthur K. Walling

Background: Limited intermediate and no real long-term follow-up data have been published for total ankle arthroplasty (TAA) in the United States. This is a report of clinical follow-up data of a prospective, consecutive cohort of patients who underwent TAA by a single surgeon from 1999 to 2013 with the Scandinavian Total Ankle Replacement (STAR) prosthesis. Methods: Patients undergoing TAA at a single US institution were enrolled into a prospective study. These patients were followed at regular intervals with history, physical examination, and radiographs; American Orthopaedic Foot & Ankle Society (AOFAS) Ankle-Hindfoot Scale scores were obtained and recorded. Primary outcomes included implant survivability and functional outcomes scores. Secondary outcomes included perioperative complications such as periprosthetic or polyethylene fracture. Between 1999 and 2013, a total of 138 STAR TAAs were performed in 131 patients; 81 patients were female. The mean age at surgery was 61.5 ± 12.3 years (range, 30-88 years). The mean duration of follow-up for living patients who retained both initial components at final follow-up was 8.8±4.3 years (range 2-16.9 years). Results: The mean change in AOFAS Ankle-Hindfoot scores from preoperative to final follow-up was 36.0 ± 16.8 ( P < .0001). There were 21 (15.2%) implant failures that occurred at a mean 4.9 ± 4.5 years postoperation. Ten polyethylene components in 9 TAAs (6.5%) required replacement for fracture at an average 8.9 ± 3.3 years postoperatively. Fourteen patients died with their initial implants in place. Conclusion: This cohort of patients with true intermediate follow-up after TAA with the STAR prosthesis had acceptable implant survival, maintenance of improved patient-reported outcome scores, and low major complication rates. Level of Evidence: Level IV, case series.


2019 ◽  
Vol 133 (1) ◽  
pp. 137S-138S
Author(s):  
Muhammad Shoaib Khan ◽  
Theresa N. Jackson ◽  
Nasir Mushtaq ◽  
Nelson A. Royall ◽  
Barbara H. Miller ◽  
...  

2020 ◽  
Author(s):  
Satyajit Kundu ◽  
Abu Sayeed ◽  
Hasan Al Banna ◽  
Musammet Rasheda Begum ◽  
Tapos Kormoker ◽  
...  

The novel coronavirus (SARS-CoV-2/ COVID-19) rapidly infects people across the world, leading to a massive public reaction. Peoples’ knowledge, attitudes, and practices (KAP) towards measures for prevention of the spread of COVID-19 are the most important for the control and prevention of the pandemic infectious disease. This study aimed to assess the knowledge, attitude &amp; practices (KAP) towards measures for prevention of the spread of COVID-19 among Bangladeshi residents during the COVID-19 pandemic. An online survey of 1765 respondents was conducted through the social media networks of authors. The respondents were older than 18 years, with an average age of 24.88 years (SD: 6.30). Approximately 15% of our participants received online training. The mean knowledge score was 14.49 (SD: 1.8, ranging: 0-17), and the overall correct response rate on this knowledge test was 85%. About 67.2 % scored well (above the mean: 4.5, range: 1-5) regarding the practices. To avoid the infection, 96.6% wear mask outside the home, and 98.7% washed hand with soap when came back. COVID-19 knowledge score was significantly associated with a lower risk of (OR: 0.87, 95% CI: 0.79-0.92) of negative attitudes. Again, the awareness score was associated with a lower likelihood of (OR: 0.94, 95% CI: 0.87-0.98) of poor practices. Online health education programs focusing on young people, housewife and people with less education may potentially improve the attitudes and practices to control the COVID-19 pandemic in long term in such a low resource setting.


2019 ◽  
Vol 5 (1) ◽  
pp. 4-13
Author(s):  
Elina Khatri ◽  
SB Mahabharata ◽  
RK Yadav ◽  
N Devkota

Background: Hypertension is a leading cause of cardiovascular diseases in both developed and developing countries. In recent time the epidemiological transition of countries from communicable diseases to non-communicable diseases had increased its importance. Hypertension had been ranked as a top five cause of mortality in Nepal. Assessment of knowledge, attitudes, and practices (KAP) is a crucial element ofhypertension control, but little information is available from developing countries where hypertension has lately been recognized as a major health problem. Objectives: To assess knowledge level, attitude and preventive practices regarding hypertension among 40 years and above population residing in Mahadevsthan, Kathmandu. Methodology: A cross sectional analytical study was conducted using Probability Proportionate Sampling (PPS) in 9 wards of Mahadevsthan, Kathmandu. Interview was done with closed ended Questionnaire for data collection among 165 respondents aged 40 years and above. Results:The study shows that the distribution of hypertension among respondents to be 22.4%. The mean age of respondents was 55 years with maximum of 97 years. The average knowledge score was 12.9 out of total 41 score. More than half of respondents i.e. 52.1% had a good knowledge on hypertension.


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