scholarly journals Queering Dementia

2021 ◽  
Vol 27 (2-3) ◽  
pp. 76-101
Author(s):  
Margit Shildrick
Keyword(s):  
Communicative Competence ◽  
Sense Of Self ◽  
Dementia Care

In dementia care, it is rarely questioned that the condition signals a breakdown in normative communicative competence that diminishes and finally renders the subjectivity of the sufferer beyond reach. More radical approaches may explore beyond verbal capacity to elicit a recognisable interaction through the use of music, touch, and movement, but could queering dementia offer a more flourish- ing scenario? In recent years there has been an upsurge in potential biotechno- logical interventions in the form of prostheses that claim to offer to those with dementia some tools for maintaining contact with their previous sense of self. Some of these are purely mechanical aids, such as robotic carers or quasi-animal companions, but I want to look too at the significance of some of the more organ- ic dimensions – such as the microbiome and microchimerism – that I also classas prostheses in the sense that they augment an existing materiality. I understand dementia not as an exceptional state marked by a loss of independence, but in terms of the prosthetic nature of all embodiment. What makes that queer is that the entanglement of all bodies with an array of external and internal prosthetic elements is irreducible and unstable, and already constitutes the assemblage that is identified as a person.

scholarly journals Development of Professional Care Program for Nurses in Dementia Wards and Its Educational Effects

2020 ◽  
Vol 35 ◽  
pp. 153331752095092
Author(s):  
Yoko Takeuchi ◽  
Mayumi Kato ◽  
Tatsuru Kitamura ◽  
Daisuke Toda ◽  
Yoshimi Taniguchi ◽  
...  
Keyword(s):  
Usual Care ◽  
Knowledge Acquisition ◽  
Self Efficacy ◽  
Usual Care Group ◽  
Intervention Program ◽  
Sense Of Self ◽  
Professional Knowledge ◽  
Dementia Care ◽  
Care Group ◽  
Post Intervention

Purpose: To develop an education program for nurses specializing in dementia care, and to investigate its effects. Methods: An intervention study of nurses was conducted using a quasi-experiment with 3 randomly assigned groups. Participants were 51 nurses from a psychiatric hospital dementia ward, divided into an intervention program group (17 nurses), a knowledge-acquisition-only group (16 nurses), and a usual-care group (18 nurses) as controls. The program group intervention comprised 3 frameworks: motivation for achieving the task, acquisition of professional knowledge required for dementia care, and sharing of successful experiences based on professional knowledge. The knowledge-acquisition-only group received only the acquisition of professional knowledge framework, and the usual-care group received only the usual-care framework. The intervention period was 3 months. Results: Post-intervention, the program group had a significantly greater sense of self-efficacy associated with professional knowledge and significantly greater self-efficacy associated with practice compared with the knowledge-acquisition-only and the usual-care groups. Professional knowledge was acquired by 80% of the program group, compared with 70% of the knowledge-acquisition-only group. A co-occurrence network diagram of the multivariate analysis results produced by text mining of the descriptive data indicated that nurses provided care for symptoms specific to different diseases based on their pathological mechanisms. Conclusion: Program implementation led to the acquisition of deeper knowledge and greater self-efficacy by sharing expertise-based practices and successful experiences, compared with desk-based learning in a single workshop lecture, suggesting the program’s usefulness in clinical practice.

scholarly journals Photo-Elicited Conversations about Therapy Dogs as a Tool for Engagement and Communication in Dementia Care: A Case Study

Animals ◽  
2019 ◽  
Vol 9 (10) ◽  
pp. 820
Author(s):  
Lena Nordgren ◽  
Margareta Asp
Keyword(s):  
Sense Of Self ◽  
Dementia Care ◽  
Inner Life ◽  
Therapy Dog ◽  
Video Recordings ◽  
People With Dementia ◽  
Video Observations ◽  
Person With Dementia

Understanding the inner life of people with dementia can be challenging and there is a need for new and different approaches. Previous research shows that people with dementia can experience emotions such as harmony, closeness, and joy as well as sadness and concern when interacting with a therapy dog. Simultaneously, memories of past episodes are brought back to life when the person interacts with the dog. This raises questions about whether photos of interaction with a dog can evoke memories or support people with dementia in communicating emotions in a corresponding way. The aim of this study was to explore photo-elicited conversations as a tool for engagement and communication in dementia care. Repeated video observations of photo-elicited conversations between a woman with dementia and a dog handler/assistant nurse were used to collect data. The video recordings were analyzed with a phenomenological hermeneutical method. The role of photo-elicited conversations as a tool for engagement and communication in dementia care is that the conversations can help the person with dementia to feel a sense of being situated and recall feelings of liveliness and belongingness, and thus supporting the person’s sense of self. The results can be used to deepen nursing staff’s understanding of using photo-elicited conversations in dementia care.

scholarly journals Resilience and Service Needs Among African American Caregivers of People With Dementia: A Pilot Mixed-Methods Study

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 353-353
Author(s):  
Heehyul Moon ◽  
Sunshine Rote ◽  
Hallie Decker ◽  
Burton Kelsey ◽  
Chelsea Burton ◽  
...  
Keyword(s):  
African American ◽  
Family Relationships ◽  
Sense Of Self ◽  
Health Care Systems ◽  
Well Being ◽  
Dementia Care ◽  
Service Needs ◽  
Dementia Caregivers ◽  
People With Dementia ◽  
African American Caregivers

Abstract African American caregivers face unique challenges and strengths in addressing the needs of dementia care recipients. The purpose of the current study was to explore the roles of the familism and faith and service preferences and needs for African American dementia caregivers. Through collaborative partnerships among the research team, Alzheimer’s’ Association, Area Agency on Aging, and local churches, we obtained focus group and survey data (N=30) from African American dementia caregivers. Most caregivers were female (90%) and older than 51 years and had provided care more than 3 years. CGs showed strong cultural reasons (e.g., faith, duty, paying back) for providing care (range 0-40;M= 34.5; SD= 5.2). Focus groups data, which was audio taped, transcribed, and analyzed by three researchers using content analysis, revealed three major themes related to dementia care experiences and needs. First, caregivers explained positive aspects of caregiving for both the individual caregiver and family (growth in faith, sense of self -efficacy, feeling of gratefulness). Second, caregivers also described negative aspects that pose substantial challenges such as lack of services, lack of balance in life, family conflicts over care, and mistrust based on their previous experiences with existing health care systems. Third, caregivers described their knowledge of dementia and shared their self-care and coping strategies and a need for support group services. The findings show an urgent need to implement culturally responsive services, especially in undeserved areas and populations, for caregivers to maintain or improve their emotional well-being and quality of care as well as family relationships.

scholarly journals Dignity-preserving dementia care

2013 ◽  
Vol 20 (8) ◽  
pp. 861-880 ◽  
Author(s):  
Oscar Tranvåg ◽  
Karin A Petersen ◽  
Dagfinn Nåden
Keyword(s):  
Sense Of Self ◽  
Theory Model ◽  
Dementia Care ◽  
International Code ◽  
Cultural Contexts ◽  
Making Choices ◽  
Vital Component ◽  
Professional Perception ◽  
Individual Choices

Research indicates the essentiality of dignity as a vital component for quality of life, reconfirming the emphasis on dignity preservation in the international code of nursing ethics. Applying Noblit and Hare’s meta-ethnography, the aim of the study was to develop a theory model by synthesizing 10 qualitative articles from various cultural contexts, exploring nurse and allied healthcare professional perception/practice concerning dignity-preserving dementia care. “Advocating the person’s autonomy and integrity,” which involves “having compassion for the person,” “confirming the person’s worthiness and sense of self,” and “creating a humane and purposeful environment,” was identified as a primary foundation for dignity-preserving dementia care. “Balancing individual choices among persons no longer able to make sound decisions, against the duty of making choices on behalf of the person,” which involves “persuasion” and/or “mild restraint,” was considered a crucial aspect in certain situations. “Sheltering human worth—remembering those who forget” was identified as a comprehensive motive and core value within dignity-preserving dementia care.

Lessons Learned From Coaching Postsecondary Students With Traumatic Brain Injury

2020 ◽  
Vol 5 (1) ◽  
pp. 88-96
Author(s):  
Mary R. T. Kennedy
Keyword(s):  
College Students ◽  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Sense Of Self ◽  
Scientific Evidence ◽  
Sudden Onset ◽  
Lessons Learned ◽  
Speech Language Pathologists ◽  
The Brain ◽  
Exhaustive List

Purpose The purpose of this clinical focus article is to provide speech-language pathologists with a brief update of the evidence that provides possible explanations for our experiences while coaching college students with traumatic brain injury (TBI). Method The narrative text provides readers with lessons we learned as speech-language pathologists functioning as cognitive coaches to college students with TBI. This is not meant to be an exhaustive list, but rather to consider the recent scientific evidence that will help our understanding of how best to coach these college students. Conclusion Four lessons are described. Lesson 1 focuses on the value of self-reported responses to surveys, questionnaires, and interviews. Lesson 2 addresses the use of immediate/proximal goals as leverage for students to update their sense of self and how their abilities and disabilities may alter their more distal goals. Lesson 3 reminds us that teamwork is necessary to address the complex issues facing these students, which include their developmental stage, the sudden onset of trauma to the brain, and having to navigate going to college with a TBI. Lesson 4 focuses on the need for college students with TBI to learn how to self-advocate with instructors, family, and peers.

Teaching Partners to Support Communication for Adults with Acquired Communication Impairment

2013 ◽  
Vol 22 (1) ◽  
pp. 4-15 ◽  
Author(s):  
Laura J. Ball ◽  
Joanne Lasker
Keyword(s):  
Practice Patterns ◽  
Communicative Competence ◽  
Communication Disorders ◽  
Communication Impairment ◽  
Communication Partner ◽  
Communication Partners ◽  
Selection For ◽  
Communication Needs ◽  
End Of Life Communication ◽  
Lateral Sclerosis

Abstract For adults with acquired communication impairment, particularly those who have communication disorders associated with stroke or neurodegenerative disease, communication partners play an important role in establishing and maintaining communicative competence. In this paper, we assemble some evidence on this topic and integrate it with current preferred practice patterns (American Speech-Language-Hearing Association, 2004). Our goals are to help speech-language pathologists (SLPs) identify and describe partner-based communication strategies for adults with acquired impairment, implement evidence-based approaches for teaching strategies to communication partners, and employ a Personnel Framework (Binger et al., 2012) to clarify partners? roles in acquiring and supporting communication tools for individuals with acquired impairments. We offer specific guidance about AAC techniques and message selection for communication partners involved with chronic, degenerative, and end of life communication. We discuss research and provide examples of communication partner supports for person(s) with aphasia and person(s) with amyotrophic lateral sclerosis who have complex communication needs.

Die Dementia Care Mapping Methode (DCM)

Pflege ◽  
2005 ◽  
Vol 18 (01) ◽  
pp. 0067-0067
Author(s):  
Christina Anthea
Keyword(s):  
Dementia Care ◽  
Care Mapping ◽  
Dementia Care Mapping
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