scholarly journals Go to Fight! parents' experiences in caring for their disabled child / Ir à Luta! vivências dos pais nos cuidados do filho com deficiência

2022 ◽  
Vol 7 (12) ◽  
pp. 121646-121662
Author(s):  
Hilda Rosa Moraes de Freitas Rosário ◽  
Marcelo Medeiros ◽  
Simone Souza Costa Silva
Keyword(s):  
Grounded Theory ◽  
Children With Disabilities ◽  
Multiple Disabilities ◽  
Social Disadvantage ◽  
Methodological Framework ◽  
Social Perspective ◽  
Family Adaptation ◽  
Care Practices ◽  
The Universe ◽  
Parents Experiences

The objective was to understand the experience of parents in caring for children with disabilities. The Grounded Theory was adopted as a methodological framework, 9 parents of children and adults with intellectual or multiple disabilities were interviewed, between August/2015 and June/2016. The categories were obtained: Pre, peri, post-natal aspects, Posture assumed by the professional, Go to Fight! and Another world. It is, therefore, a parenting that is configured as these parents enter the Another world, which leads them to adjust their practices and beliefs about their child, about themselves and the universe of disability, sometimes under a perception of disability as a social disadvantage and incapacity, having as an intervening factor the Posture assumed by the professional, thus knowing these experiences from the GT allows: the improvement of care practices for these parents and their children, the planning of actions psychoeducational from a social perspective of disability in order to empower them and guide them about aspects of their children's development, enabling a look beyond the diagnosis and a more positive family adaptation.

scholarly journals Socio-Demographic Factors Influencing the Use of Assistive Technology among Children with Disabilities in Malawi

2021 ◽  
Vol 18 (6) ◽  
pp. 3062
Author(s):  
Monica Jamali-Phiri ◽  
Ikenna D. Ebuenyi ◽  
Emma M. Smith ◽  
Juba Alyce Kafumba ◽  
Malcolm MacLachlan ◽  
...  
Keyword(s):  
Assistive Technology ◽  
Urban Areas ◽  
Structural Equation ◽  
Children With Disabilities ◽  
Unmet Need ◽  
Demographic Factors ◽  
Multiple Disabilities ◽  
Equation Modeling ◽  
Persons With Disabilities ◽  
Socio Demographic Factors

This paper aims to address the information gap on the influence of socio-demographic factors on access and utilization of Assistive Technology (AT) among children with disabilities in Malawi. Thus, it contributes towards the realization of the recommendations of the UN Convention on the Rights of Persons with disabilities and the development of a framework for creating an effective national AT policy. The paper used two statistically matched datasets, namely, the 2017 survey on Living conditions among persons with disabilities in Malawi and the 2015-16 Malawi Demographic and Health survey. Logistic regression and structural equation modeling techniques were utilized to assess the influence of socio-demographic factors on the use of AT among children with disabilities. The results indicate that there is a high level of unmet need for AT among young children aged 2 to 9 and those living in urban areas. The results further indicate that children with multiple disabilities have lower odds (OR = 0.924) of using AT for personal mobility compared to children with a single functional difficulty. These results entail that AT needs for children with multiple disabilities are not adequately addressed. Therefore, when developing policies on AT, younger children and those with multiple disabilities need to be specifically targeted.

Bridging Conversations

2021 ◽  
Author(s):  
Simon van der Weele
Keyword(s):  
Multiple Disabilities ◽  
Judith Butler ◽  
Paradigm Case ◽  
Actual Care ◽  
Care Practices ◽  
Heuristic Devices

Both Judith Butler and Eva Kittay have formulated an ethics centered around concepts of dependency and vulnerability. However, they take these concepts into divergent normative directions. I trace these differences back to the contrasting empirical examples that inform their respective takes on dependency. Borrowing the words of Eva Kittay, I analyze their arguments in terms of “paradigm cases” of dependency. For Kittay, the paradigm case supporting her thought is a person with profound intellectual and multiple disabilities; for Butler, it is a refugee. Drawing out these paradigm cases brings the theoretical tensions between Butler and Kittay into sharp relief. Rather than resolving them, I suggest using the paradigm cases as heuristic devices to examine dependency in actual care practices.

scholarly journals Formation and disruption of bonds between caregivers and institutionalized children

2018 ◽  
Vol 71 (suppl 6) ◽  
pp. 2650-2658 ◽  
Author(s):  
Ruth Irmgard Bärtschi Gabatz ◽  
Eda Schwartz ◽  
Viviane Marten Milbrath ◽  
Hudson Cristiano Wander de Carvalho ◽  
Celmira Lange ◽  
...  
Keyword(s):  
Qualitative Research ◽  
Grounded Theory ◽  
Child Care ◽  
Attachment Theory ◽  
Theoretical Framework ◽  
Active Listening ◽  
Methodological Framework ◽  
Negative Effects ◽  
Institutionalized Children ◽  
South Of Brazil

ABSTRACT Objective: to understand the perspective of caregivers about the formation and disruption of bonds with institutionalized children. Method: a qualitative research that used as a theoretical framework the Attachment Theory and the Symbolic Interactionism, and the Grounded Theory as methodological framework. Participating in the study were 15 female caregivers of children aged zero to three years, from a child care institution in the south of Brazil, from April to July 2015. Results: three categories were elaborated: "Experiencing the formation of bond and attachment"; "Disrupting with the established bonds and detaching"; "Learning how to work with formation and disruption of bond". Final considerations: we need to think of ways to minimize the negative effects formation and disruption of bonds. In this sense, active listening and the offer of psychological support favor the sharing of experiences and the emotional strengthening of the female caregivers.

scholarly journals Computational Grounded Theory: A Methodological Framework

2017 ◽  
Vol 49 (1) ◽  
pp. 3-42 ◽  
Author(s):  
Laura K. Nelson
Keyword(s):  
Grounded Theory ◽  
Language Processing ◽  
Methodological Framework ◽  
Human Knowledge ◽  
Processing Power ◽  
Interpretive Approach ◽  
Computational Exploration ◽  
Field Notes ◽  
Research Questions ◽  
Processing Techniques

This article proposes a three-step methodological framework called computational grounded theory, which combines expert human knowledge and hermeneutic skills with the processing power and pattern recognition of computers, producing a more methodologically rigorous but interpretive approach to content analysis. The first, pattern detection step, involves inductive computational exploration of text, using techniques such as unsupervised machine learning and word scores to help researchers to see novel patterns in their data. The second, pattern refinement step, returns to an interpretive engagement with the data through qualitative deep reading or further exploration of the data. The third, pattern confirmation step, assesses the inductively identified patterns using further computational and natural language processing techniques. The result is an efficient, rigorous, and fully reproducible computational grounded theory. This framework can be applied to any qualitative text as data, including transcribed speeches, interviews, open-ended survey data, or ethnographic field notes, and can address many potential research questions.

scholarly journals Caring for children with disabilities in a foreign land: Experiences and perceptions of a group of Korean parents and professionals

2017 ◽  
Vol 29 (4) ◽  
pp. 61-73 ◽  
Author(s):  
Clara Choi ◽  
Hong-Jae Park ◽  
Michael O'Brien
Keyword(s):  
New Zealand ◽  
Cultural Values ◽  
Children With Disabilities ◽  
Service Providers ◽  
Cultural Barriers ◽  
Immigrant Parents ◽  
Korean Immigrant ◽  
Aotearoa New Zealand ◽  
Korean Parents ◽  
Parents Experiences

INTRODUCTION: This article aims to provide an overview of the experiences of Korean immigrant parents raising children with disabilities in Aotearoa New Zealand, primarily focusing on their experience of disability services and systems.METHODS: As the present exploratory study aimed to gain a deeper understanding of immigrant parents’ experiences and perceptions, a qualitative approach was employed to collect rich and lived information from participants. Ten participants were recruited and interviewed among Korean parents of children with disabilities and professionals working with those families.FINDINGS: Lack of trust among Korean parents living in Aotearoa New Zealand was frequently discussed by the participants in the present study. Lack of information around available services and alternative support and cultural barriers were often identified to have a significant impact on Korean parents’ experiences with services. A sense of obligation to integrate into the host society and the services provided was also evident. Further, there was a contradictory perception between parents and associated professionals in relation to services’ expectations of Korean parents. CONCLUSIONS: From analysis of the findings, three main themes emerged: experiences of services and its relations with trust, cultural values and expectations, and looking to the future. The study suggests that there is a need for professionals, service providers and government to consider ways to build trusting relationships with Korean parents and their children with disabilities, and makes a number of recommendations.  

scholarly journals Art therapy techniques in psychological correction of child-parent relations in substitute families raising children with disabilities

2020 ◽  
pp. 10-23
Author(s):  
Kseniya Vladimirovna Novikova
Keyword(s):  
Art Therapy ◽  
Children With Disabilities ◽  
Practical Significance ◽  
Methodological Framework ◽  
Psychological Experiment ◽  
Foster Families ◽  
Emotional Closeness ◽  
Raising Children ◽  
The Subject ◽  
Structure And Functions

The subject of this research is the child-parent relations in substitute families raising children with disabilities. The goal is to determine the areas of possible application of art therapy techniques in psychological correction of child-parent relations in substitute families raising children with disabilities. The theoretical-methodological framework contains subject-activity and systemic approaches, as well as provisions on the structure and functions of child-parent relations, views on child-parent relations of N. Y. Sinyagina; the concept of systemic art therapy by A. I. Kopytin. In the course of this study, the author applies the methods of testing, interview, psychological experiment, and observation. The theoretical importance of this work consists in systematization of theoretical provisions on the problem and substantiation of possibilities of application of art therapy techniques in psychological correction of child-parent relations in substitute families raising children with disabilities. The acquired results obtained can be valuable for psychologists dealing with foster families that raise children with disabilities, which defines the practical significance of this research. The scientific novelty lies in development of the program of art therapy classes for correction of child-parent relations in substitute families raising children with disabilities. The research results may significantly contribute to the extension of representations on capabilities of psychological correction of child-parent relations in substitute families raising children with disabilities via implementation of art therapy techniques. The author indicates the improvement in child-parent relations: alleviation of child’s the sense of deprivation; better emotional contact between parent and child; emotional closeness; increase of the authoritative strategy of family upbringing; higher level of parents’ acceptance; optimization of parenting

scholarly journals Deliberate Self-Harm Among Chinese Children with Different Types and Severity of Disabilities

2019 ◽  
Vol 16 (17) ◽  
pp. 3149
Author(s):  
Huiping Zhu ◽  
Xiayidanmu Abudusaimaiti ◽  
Joe Xiang ◽  
Qi Gao
Keyword(s):  
Children With Disabilities ◽  
Pediatric Population ◽  
Multiple Disabilities ◽  
Chinese Children ◽  
Deliberate Self Harm ◽  
Logistic Regression Models ◽  
Different Types ◽  
Severity Of Disability ◽  
Self Harm ◽  
Level 1

Background: The aims of this study were to determine the prevalence of deliberate self-harm (DSH) and to compare the risk of self-harm in Chinese children with different types and severity of disabilities. Methods: Participants were 1300 children aged 6–17 years in Beijing, China; 650 children with disabilities and 650 healthy peers matched on age, gender and residence district. Questionnaires were completed anonymously by parents or children if the age or disability made it necessary. The associations between the disability type, severity and DSH were examined using the Chi-square testing and logistic regression models. Results: Children with a single disability or multiple disabilities had statistically higher rates of DSH than children without disabilities (15.6% and 39.7% compared to 10.9%). The prevalence of DSH was associated with the severity of disability, being 36.2% among children with level 1 (the most severe) disability, 19.8% among children with level 2 disability, and 9.2% among children with level 3 + 4 disability. The multivariable odds ratio (OR) of DSH among children with any disability was statistically higher than that among children without a disability (OR = 2.40; 95% CI = 1.71, 3.36; p < 0.05). Children with multiple disabilities (OR = 6.89; 95% CI: 4.24–11.20) and level 1 severity of disability (OR = 6.11; 95% CI: 3.91–9.56) had the highest risk of DSH. Conclusions: This study clearly demonstrated associations between the severity and type of disability and DSH. This finding highlights the importance of DSH in children with disabilities, and underlines the importance of the prevention of DSH among a vulnerable pediatric population in China.

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