scholarly journals Improving the perspectives on quality of life for adolescents with cerebralpalsy by medical textile

2020 ◽  
Vol 71 (01) ◽  
pp. 81-90
Author(s):  
CORINA SPOREA ◽  
MARGARETA STELA FLORESCU ◽  
OLGUTA ANCA ORZAN ◽  
IOAN CRISTESCU

The quality of life (QoL) can be defined as the individual’s perception of his own existence, both from the point of viewof the physical integrity of the body’s structures and of functionality too, as well as of the activity, respectively thecapability of performing tasks, and of the participation, regarded as the involvement in the life situations.From a medical perspective, the quality of life assessment is an indicator that provides important information, closelyrelated to the improvement of the health status and the effectiveness of the therapeutic-rehabilitative interventions. Thetextile sector by research-development activities and by its numerous projects and accomplishments in the bio-materials, biotechnologies and medical device, showed a steady focus, in close relation to the medical field, on disabledpersons’ quality of life and on the facilitation of their social and professional integration. The aim of rehabilitative interventions is to obtain the best possible physical and mental health, allowing each patient tobuild social relationships with family and community and, on the other hand, to acquire professional skills for being ableto find a suitable job which will improve his wellbeing and quality of life.This paper presents how adolescents with cerebral palsy and their parents/caregivers perceive the quality of life of theadolescent taking into consideration the activity limitations and the participation restrictions.The results of the study showed the existence of discrepancies between adolescents’ and parents’ reports regarding theQoL, with adolescents’ reporting a higher QoL than did their parents.Optimism and positive thinking can be seen as augmentation factors of the therapeutic interventions’ effects byincreasing the adolescent’s involvement in the rehabilitation process, having as direct benefit early and better results.

2015 ◽  
Vol 6 (3) ◽  
pp. 1123-1133
Author(s):  
Lertchai Charerntanyarak ◽  
Karnchanasri Singhpoo ◽  
Roongtiwa Chobchuen ◽  
Chananya Kasinpila ◽  
Ratchada Ngamroop ◽  
...  

Stroke is a chronic disease requiring patients to be treated for a long period of time. Patients need to been given close and attentive care, and this has an impacton the health and daily lives of caregivers. The aim of this cross-sectional descriptive study was to investigate the quality of life of stroke patient caregivers at Srinagarind Hospital, Khon Kaen Province, Thailand. The subjects were 166 caregivers of all stroke patients who received treatment at Srinagarind Hospital during the period 1 July 10 September, 2011. The research tool was a questionnaire which was intwo parts: Part 1 was designed to collect baseline data about the patients and their caregivers, and Part 2 was the Thai version of the brief WHO quality of life assessment instrument (WHOQOL-BREF-THAI). Data were collected from the patients medical histories and from interviews conducted by the researchers and were analyzed using descriptive statistics. The results showed that the overall quality of life of caregivers was at a moderate level with a mean score of92.5. In terms of each component domain of the quality of lifeinstrument, the mean scores for physical health, mental health, social relationships, and the environment were24.1, 21.3, 10.7, and 29.3 points, respectively.Even though the quality of life of caregivers was moderatelyhigh, medical professionals who provide care for stroke patients should assist and support caregivers in various ways by, for example, giving advice on sources of information which are useful to the caregivers themselves and for the physical and mental health care of the patients in. They should also provide assistance to families when they require help in continuing to care for the patients in their own homes.


2014 ◽  
Vol 22 (4) ◽  
pp. 576-581 ◽  
Author(s):  
Thalyne Yurí Araújo Farias Dias ◽  
Isabelle Katherinne Fernandes Costa ◽  
Márjorie Dantas Medeiros Melo ◽  
Sandra Maria da Solidade Gomes Simões de Oliveira Torres ◽  
Eulália Maria Chaves Maia ◽  
...  

OBJECTIVES: to compare the quality of life of patients with chronic venous disease with and without ulcer and to identify the most affected aspects.METHOD: cross-sectional study with a sample of 204 patients with chronic venous disease. The quality of life was assessed with the help of the SF-36 questionnaire. To compare the scores between the groups, the Mann-Whitney test was used, considering a statistically significant difference when p<0.05.RESULTS: the quality of life score of patients with ulcer was lower when compared to that of patients without ulcer, in all domains and dimensions of the SF-36, particularly in the domains physical aspect and functional capacity, with very low scores.CONCLUSION: all aspects of quality of life were more compromised in people with ulcers. These findings can contribute towards a better understanding of the effects of chronic venous disease on the quality of life and towards a better orientation of therapeutic interventions in this population.


Author(s):  
Makarova E. V. ◽  
◽  
Krysanov I. S. ◽  
Vasilyeva T. P. ◽  
Alexandrova O. Yu. ◽  
...  

Author(s):  
М.Р. Оразов ◽  
В.Е. Радзинский ◽  
М.Б. Хамошина ◽  
Е.Н. Носенко ◽  
Э.С. Токаева ◽  
...  

Цель исследования - изучение особенностей обмена гистамина при хронической тазовой боли у пациенток с наружным генитальным эндометриозом. Методика. В сыворотке крови 100 пациенток методом высокоточного (в нг/мл) иммуноферментного твердофазного анализа определяли концентрацию гистамина. Использованы реактивы «Histamine ЕLISA», аппарат BAE-1000 Гистамин (Labor Diagnostika Nord - LDN, Германия). Оценка выраженности болевого синдрома осуществлялась по шкале ВАШ, оценка качества жизни - на основании опросника для оценки качества жизни при эндометриозе (EHR-30), оценка тревожности - опросника Спилбергера-Ханина. Результаты. Показано статистически значимое повышение уровня гистамина у пациенток с высокой интенсивностью болевого синдрома. Женщины с наружным генитальным эндометриозом, сопровождающимся интенсивным болевым синдромом в 100% случаев обнаруживали высокие уровни ситуативной и личностной тревожности, тогда как, лишь у 40% женщин (n = 16) контрольной группы выявлен умеренный уровень тревожности. Депрессивные расстройства выявлены у 58,3% женщин с хронической тазовой болью (n = 35), из них основную часть (n = 20) составили женщины с выраженной степенью болевого синдрома по ВАШ. Заключение. Психоэмоциональное состояние женщин с тазовой болью, ассоциированной с наружным генитальным эндометриозом, характеризуется высокими уровнями депрессивных и тревожных расстройств, значительным снижением уровня качества жизни. Выявлена прямая связь между интенсивностью болевого синдрома и уровнем гистамина в периферической крови пациенток с наружным генитальным эндометриозом. Objective. To study features of histamine metabolism in patients with chronic pelvic pain associated with external genital endometriosis. Methods. For quantitative assessment of histamine level in peripheral blood was taken from 100 patients which than was centrifuged. In blood serum histamine concentration was determined by enzyme-linked immunosorbent assay method with reagents «Histamine ЕLISA» on the machine BAE-1000 Histamine (Labor Diagnostika Nord - LDN, Hermany). A pain syndrome was assessed by Visual Analog Scale (VAS), quality of life assessment - by Endometriosis Health Profile Questionnaire (EHR-30), level of anxiety was determined by Spielberger-Khanin questionnaire. The results. Showed statistically higher histamine level in patients with severe pain according to VAS. After assessment of results obtained from Spielberger-Khanin questionnaire 100% experimental group’s women with external genital endometriosis (n = 60) were noted to be have high level of state and trait anxiety, then 40% women of control group (n = 16) have moderate level of anxiety. The incidence of depression in women with chronic pelvic pain was 58.3% (n = 35) and the main part (n = 20) were women with severe stage of pelvic pain according to VAS. Conclusions. Psycho emotional condition of women with external genital endometriosis associated pelvic pain characterized by higher depression and anxiety levels, with significant decrease quality of life. Direct relationship also was found between pain syndrome intensity and histamine level in peripheral blood in patients with external genital endometriosis.


2019 ◽  
Vol 10 (3) ◽  
Author(s):  
Larissa Giovanna Cazella ◽  
Letícia Yamawaka De Almeida ◽  
Jaqueline Lemos De Oliveira ◽  
Ana Carolina Guidorizzi Zanetti ◽  
Jacqueline De Souza

Objetivo: analisar as características sociodemográficas associadas à percepção da qualidade de vida de mulheres atendidas na atenção primária. Metodologia: estudo transversal, quantitativo, desenvolvido com 113 mulheres em uma unidade de saúde do interior de São Paulo. Utilizou-se um questionário sociodemográfico e a versão abreviada do instrumento de avaliação de qualidade de vida. Para análise dos dados, foram empreendidos testes de associação. Resultados: a maioria das participantes era de classes sociais menos favorecidas e apresentava boa percepção de qualidade de vida e saúde. Os fatores renda, escolaridade e idade foram os mais relevantes na associação com a qualidade de vida. Conclusão: Apesar de mencionarem boa qualidade de vida e saúde, foram identificados piores resultados nos domínios físicos, psicológicos e meio ambiente.  Os achados reforçam a necessidade de que as ações de saúde estejam contextualizadas aos aspectos sociais/territoriais e vinculadas a políticas mais amplas de redução da vulnerabilidade social. WOMEN'S QUALITY OF LIFE AND ASSOCIATED SOCIO DEMOGRAPHIC CHARACTERISTICSObjective: to analyze the sociodemographic characteristics associated to the perception of the quality of life of the women attended in the Primary Health Care. Methodology: this cross-sectional quantitative study was carried out with 113 women aged 20 to 65 years in a health unit in the interior of São Paulo. A sociodemographic questionnaire and the abbreviated version of the WHOQOL-bref quality of life assessment instrument were used. For data analysis, association tests were undertaken. Results: the majority of participants were from less favored social classes and had a good perception of quality of life and health. The factors income, schooling and age were the most relevant in the association with quality of life. Conclusion: in view of the sociodemographic characteristics associated with quality of life in the present study, it is emphasized that health actions should be linked to broader policies to reduce social vulnerability, enabling empowerment strategies and, above all, increasing women's access to education and income.Descriptors: Quality of Life; Health Centers; Social Vulnerability; Women; Primary Health Care.CALIDAD DE VIDA DE LAS MUJERES Y LAS CARACTERÍSTICAS SOCIODEMOGRÁFICAS ASSOCIADASObjetivo: analizar las características sociodemográficas asociadas a la percepción de la calidad de vida de mujeres que acuden a atención primaria. Métodos: este estudio cuantitativo transversal se realizó con 113 mujeres de 20 a 65 años en una unidad de salud en el interior de São Paulo. Se utilizó un cuestionario sociodemográfico y la versión abreviada del instrumento de evaluación de calidad de vida WHOQOL-bref. Para el análisis de los datos, se realizaron pruebas de asociación. Resultados: la mayoría de los participantes provenían de clases sociales más bajas y tenían una buena percepción de la calidad de vida y la salud. Los factores ingresos, educación y edad fueron los más relevantes en asociación con la calidad de vida. Conclusión: en vista de las características sociodemográficas asociadas con la calidad de vida en el presente estudio, se enfatiza que las acciones de salud están vinculadas a políticas más amplias para reducir la vulnerabilidad social, permitiendo estrategias de empoderamiento y, sobre todo, aumentando el acceso de las mujeres a educación e ingresos.Descriptores: Calidad de Vida; Centros de Salud; Vulnerabilidad Social; Mujeres; Atención Primaria de Salud.


Author(s):  
Adeleh Sadeghloo ◽  
Parna Shamsaee ◽  
Elham Hesari ◽  
Golbanhar Akhondzadeh ◽  
Hamid Hojjati

Abstract Introduction Thalassemia, as the most common chronic hereditary blood disorder in humans, can impose many adverse effects on parents and their affected children. On the other hand, positive thinking is the method or the result of a positive focus on a constructive issue, so by teaching positive thinking, we can improve physical and social function, and promote emotional health and overall quality of life. The aim of this study was to determine the effect of positive thinking training on the quality of life of parents of adolescents with thalassemia. Methods This quasi-experimental study was performed on 52 parents of adolescents with thalassemia who attended Taleghani Hospital in Golestan province, Iran in 2017. Samples were randomly assigned into two groups of intervention and control. The positive thinking training (based on the theory of Martin Seligman) was carried out in the intervention group in 10 (45–60 min) sessions over a 5-week period. Data collection tools in this study were the World Health Organization (WHO) quality of life questionnaire (WHOQOL-BREF) and a demographic information questionnaire. Data were analyzed by SPSS-16 software using independent t-test, the paired t-test and a covariance test. Results The results of paired t-test showed a significant difference in the score of quality of life in intervention group before and after the intervention (p < 0.001). However, this test did not show any significant difference in the control group (p = 0.11). The covariance test, after removing the pre-test score, showed a significant difference between the intervention and control groups in terms of the score of quality of life, so that 13% of the changes after the intervention were due to the intervention (p = 0.009, η = 0.13). Conclusion The positive thinking training increased the quality of life of parents of adolescents with thalassemia. Therefore, using this program can be an effective way of improving the quality of life of parents. Thus, positive thinking training is suggested to be used as an effective strategy for increasing the quality of life of parents with ill children.


Author(s):  
Ricardo Amorim Corrêa ◽  
Monica Corso Pereira ◽  
Mariana Ferreira Bizzi ◽  
Rafael W. R. de Oliveira ◽  
Camila Farnese Rezende ◽  
...  

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