Psychological Problems of Pediatric Patients with Thalassemia

2021 ◽  
Vol 1 (3) ◽  
pp. 53-62
Author(s):  
Fenny Pranandita
Keyword(s):  
Quality Of Life ◽  
Pediatric Patients ◽  
Psychosocial Problems ◽  
Thalassemia Major ◽  
Self Esteem ◽  
Mentoring Programs ◽  
Literature Study ◽  
Psychological Burden ◽  
Psychosocial Experiences

Pediatric patients with thalassemia experience various psychosocial problems that have an impact on the decreased quality of life resulting in depression. The purpose of this study was to look at psychosocial problems and things that happen to children and adolescents with thalassemia related psychosocial experiences. The literature study was made by analyzing scientific articles published from 2015-2020 and in English. Data were obtained from the Scopus, Wiley, Pumbed, and Proquest databases with the keywords psychosocial, pediatric, thalassemia, and quality of life. The results of the literature study found 11 articles that matched the inclusion and exclusion criteria. The course of the disease from thalassemia that requires intense treatment, the patient faces a considerable psychological burden. Social isolation, decreased self-esteem, poor academic performance, contribute to psychological stress. This will have an impact on decreasing the quality of life. The results of the review of the literature review can be used as basic data in the development of counseling and mentoring programs for pediatric and adolescent patients with thalassemia major.

Psychological Problems of Pediatric Patients with Thalassemia

2021 ◽  
Vol 1 (3) ◽  
pp. 53-62
Author(s):  
Fenny Pranandita
Keyword(s):  
Quality Of Life ◽  
Pediatric Patients ◽  
Psychosocial Problems ◽  
Thalassemia Major ◽  
Self Esteem ◽  
Mentoring Programs ◽  
Literature Study ◽  
Psychological Burden ◽  
Psychosocial Experiences

Pediatric patients with thalassemia experience various psychosocial problems that have an impact on the decreased quality of life resulting in depression. The purpose of this study was to look at psychosocial problems and things that happen to children and adolescents with thalassemia related psychosocial experiences. The literature study was made by analyzing scientific articles published from 2015-2020 and in English. Data were obtained from the Scopus, Wiley, Pumbed, and Proquest databases with the keywords psychosocial, pediatric, thalassemia, and quality of life. The results of the literature study found 11 articles that matched the inclusion and exclusion criteria. The course of the disease from thalassemia that requires intense treatment, the patient faces a considerable psychological burden. Social isolation, decreased self-esteem, poor academic performance, contribute to psychological stress. This will have an impact on decreasing the quality of life. The results of the review of the literature review can be used as basic data in the development of counseling and mentoring programs for pediatric and adolescent patients with thalassemia major.

scholarly journals Overactive bladder in children

2017 ◽  
Vol 11 (1-2S) ◽  
pp. 74 ◽  
Author(s):  
Sophie Ramsay ◽  
Stéphane Bolduc
Keyword(s):  
Quality Of Life ◽  
Overactive Bladder ◽  
Pediatric Patients ◽  
Pediatric Population ◽  
Treatment Options ◽  
Self Esteem ◽  
Behavioural Therapy ◽  
Stepwise Approach ◽  
Pediatric Use

Overactive bladder (OAB) is a highly prevalent disorder in the pediatric population. This condition is especially troublesome for pediatric patients and their families when associated with incontinence, since it negatively affects self-esteem and impairs children’s development. From the patient’s perspective, urgency and urge incontinence can have a significant impact, negatively affecting their quality of life. For a therapy to have true benefit, changes must not only be statistically significant, but must also be perceived as meaningful by the patient. A stepwise approach is favoured to treat this pathology, starting with behavioural therapy, followed by medical management, and eventually more invasive procedures.Antimuscarinic agents are the mainstay of medical treatment for OAB. Oxybutynin is the most commonly used antimuscarinic in the pediatric population. However, some patients have a suboptimal response to antimuscarinics and many experience bothersome side effects, which have been documented with all antimuscarinics to a significantly higher degree than placebo. Although there have been reports about the use of tolterodine, fesoterodine, trospium, propiverine, and solifenacin in children, to date, only oxybutynin has been officially approved for pediatric use by medical authorities in North America.This review will address alternative treatment options for pediatric patients presenting with OAB, from conservative measures to more invasive therapies.

Critical issues of the biopsychosocial treatment of Parkinson’s disease

2015 ◽  
Vol 156 (12) ◽  
pp. 472-478 ◽  
Author(s):  
Péter Kincses ◽  
Norbert Kovács ◽  
Kázmér Karádi ◽  
János Kállai
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Psychological Health ◽  
Interdisciplinary Approach ◽  
Cognitive Status ◽  
Psychological Burden ◽  
Her Family ◽  
Critical Issues

This paper is a summary report on the basic questions of the biopsychosocial approach to Parkinson’s disease. It deals with cognitive, affective and psychological health issues which significantly influence the outcome of the physical rehabilitation. In spite of the unchanged cognitive status, the psychological burden of the changes in the quality of life, the obstruction, the change in the affective tone, and the shrinking ability to fulfil social roles decrease the patient’s quality of life. An interdisciplinary approach is best suited for mitigating these effects. Not only the patient but also his/her family and environment is seriously affected by the disease and its consequences. Treatment and rehabilitation options for increasing or maintaining the quality of life of the affected patients are diverse, and significantly depend on the features of the health care system. The authors believe that the following review emphasizing health psychological principles may contribute to the work of professionals working in clinical and rehabilitational fields and through them may increase the quality of life of patients and their family. Orv. Hetil., 2015, 156(12), 472–478.

Mental Health Status and Health-Related Quality of Life among Systemic Lupus Erythematosus (SLE) Patients in Thailand: A Multi-Site Study

2020 ◽  
Vol 103 (11) ◽  
pp. 1185-1193
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Health Status ◽  
Lupus Erythematosus ◽  
Self Esteem ◽  
Mental Health Status ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background: The systemic lupus erythematosus (SLE) patients oftentimes suffer from both physical and psychosocial challenges that may lead to low health-related quality of life (HRQoL). However, limited research has been done in this area. Objective: To examined mental health status and HRQoL among SLE patients in Thailand. Materials and Methods: The present study was a cross-sectional study conducted at the rheumatology clinic of four major hospitals in Thailand. The paper-based questionnaire consisted of demographic, health history such as depression, anxiety, stress Scale (DASS-21), and the Rosenberg self-esteem scale (RSE), and the disease-specific Lupus Quality of Life scale (LupusQoL). Depending on the variable’s level of measurement such as categorical or continuous, Spearman’s Rho or Pearson’s product moment correlation coefficients were used to explore the relationships among the variables. Hierarchical multiple regression was used to identify the predictors of LupusQoL. Results: Among the 387 participants, many might have experienced depression, anxiety, and stress (30%, 51%, and 29%, respectively). Self-esteem among the participants was good (31.8 out of 40). All eight domains of LupusQoL were affected with intimate relationship domain being impacted the most. The overall LupusQoL was significantly associated with the number of prescribed medications (r=–0.23), depression (r=–0.70), anxiety (r=–0.58), stress (r=–0.67), and self-esteem (r=0.59), p<0.001. Significant predictors of the overall LupusQoL were mental health status (depression, anxiety, and stress) and self-esteem, F (3, 81)=43.10, p<0.001, adjusted R²=0.60. Conclusion: SLE patients should be holistically assessed in both physical and psychological aspects. In addition to proper medical treatments, healthcare providers should use a multidisciplinary team approach to resolve the patients’ psychosocial issues, which in turn, may increase the patients’ quality of life. Self-care education may be necessary to help the patients manage the condition and decrease the number of medications. Keywords: Mental health, Quality of life, SLE, Thailand

PSYCHOLOGICAL REHABILITATION AND SCREENING OF EMOTIONAL STRESS IN CANCER PATIENTS

2017 ◽  
Vol 63 (2) ◽  
pp. 316-319 ◽  
Author(s):  
Valentina Chulkova ◽  
Tatyana Semiglazova ◽  
Margarita Vagaytseva ◽  
Andrey Karitskiy ◽  
Yevgeniy Demin ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Patient ◽  
Cancer Patients ◽  
Emotional Stress ◽  
Self Esteem ◽  
Breast Cancer Patients ◽  
Psychological Study ◽  
Psychological Assistance

Psychological rehabilitation is an integral part of rehabilitation of a cancer patient. Psychological rehabilitation is aimed at a patient adaptation in the situation of the disease and improvement his quality of life. Understanding of an oncological disease is extreme and (or) crisis situation and monitoring dynamics of the psychological statement of a patient allows using differentiated approach in the provision of professional psychological assistance. The modified scale of self-esteem level of distress (IPOS) was used for screening of mental and emotional stress of cancer patients. There were selected groups of cancer patients who were most in need of professional psychological assistance. Results of a psychological study of one of these groups - breast cancer patients - are presented.

Distress, proinflammatory cytokines and self-esteem as predictors of quality of life in breast cancer survivors

2021 ◽  
Vol 230 ◽  
pp. 113297
Author(s):  
Joana Perez-Tejada ◽  
Ibane Aizpurua-Perez ◽  
Ainitze Labaka ◽  
Oscar Vegas ◽  
Gurutze Ugartemendia ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Survivors ◽  
Proinflammatory Cytokines ◽  
Breast Cancer Survivors ◽  
Self Esteem

scholarly journals Quality of life and perceived health status in surviving adults with univentricular heart

Heart ◽  
2001 ◽  
Vol 86 (1) ◽  
pp. 69-73
Author(s):  
Z Saliba ◽  
G Butera ◽  
D Bonnet ◽  
P Bonhoeffer ◽  
E Villain ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Normal Population ◽  
Psychosocial Problems ◽  
Perceived Health ◽  
Univentricular Heart ◽  
Cross Sectional ◽  
Clinical Variables ◽  
Health Measures ◽  
The Impact

OBJECTIVETo evaluate the quality of life in patients with univentricular heart and to determine the impact of sociodemographic and clinical characteristics.DESIGN AND SETTINGRetrospective, cross sectional study conducted in a regional paediatric cardiology centre.PATIENTSThe health records of 89 survivors with univentricular heart (median age 21 years; range 17–49 years) were reviewed. Sixty seven answered the Duke questionnaire. Sociodemographic and clinical variables were similar in the responders and non-responders. The impact of sociodemographic and clinical variables on individual Duke's measures was assessed.RESULTSThe Duke scores of adults with univentricular heart were similar to the normal population. Cyanosis predicted a worse score for physical (p = 0.05) and perceived health measures (p = 0.02). A higher educational level predicted a better score for physical (p = 0.004), mental (p = 0.01), and general health measures (p = 0.02). Orthopaedic problems worsened the social score (p = 0.05). Psychosocial problems worsened the pain score (p = 0.04). In comparison with the other anatomical types, mitral atresia worsened the perceived health score (p = 0.02). Patients younger than 23 years scored better for almost all health and dysfunction measures.CONCLUSIONSDespite repeated interventions and other disease related everyday stresses, a selected group of adults with univentricular heart had a satisfying quality of life.

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