scholarly journals Raising Awareness About Autism and Empowering Individuals with Autism

2020 ◽  
pp. 25-38
Author(s):  
Shemaila Saleem ◽  
Foyasal Khan
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Care Delivery ◽  
Autism Spectrum ◽  
Autism Research ◽  
Government Organizations ◽  
Care Services ◽  
Raising Awareness ◽  
Spectrum Disorders ◽  
Middle Class Families

Purpose – This paper aims to study whether Muslim philanthropy is Autism Aware. The purpose of this paper is to assess the potentials of Zakat Funds in the provision of health care services of autistic children and funding autism research.  Design/methodology/approach – This is mainly a desk review of academic, peer-reviewed literature as well as reports published by international organizations and information provided online by governments and non-government organizations. Findings – A family with Autism Spectrum Disorders (ASD) needs to deploy human and financial resources for the remaining lifetime of the child. Many poor and middle-class families are unable to meet such huge economic burden. Also, ASD research is lacking due to the dearth of research funds. As philanthropic institution, zakat institutions can potentially respond to the autism issue in terms of funding autism research as well as health care delivery to autistic individuals. Originality/value – In recent years, in the discourse of Muslim value-based public and social policy, Zakat has emerged as one of the important topics. However, no research has been produced on the potentials of zakat in solving autism issue to the best of the researchers’ knowledge.

Specialty Care Programme for Autism Spectrum Disorders in an Urban Population: A Case-Management Model for Health Care Delivery in an asd Population

2011 ◽  
Vol 28 (2) ◽  
pp. 102-109 ◽  
Author(s):  
M. Parellada ◽  
L. Boada ◽  
C. Moreno ◽  
C. Llorente ◽  
J. Romo ◽  
...  
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorders ◽  
Case Management ◽  
Health Care Delivery ◽  
Health Care Services ◽  
Care Delivery ◽  
Autism Spectrum ◽  
Care Programme ◽  
Care Services ◽  
Spectrum Disorders

AbstractSubjects with autism spectrum disorders (ASD) have more medical needs and more difficulties accessing health care services than the general population. Their verbal and non-verbal communication difficulties and particular behaviors, along with lack of expertise on the part of physicians and failure of the services to make adjustments, make it difficult for them to obtain an appropriate health care.PurposeTo describe a model for health care delivery in an ASD population.MethodReview of relevant literature and a discussion process with stakeholders leading to the design of a service to meet the specialty health needs of subjects of all ages with ASD for a region with a population of 6,000,000.ResultsA service was designed centred around the concepts of case management, individualization, facilitation, accompaniment, continuous training and updating, and quality management. Five hundred and thirteen patients with ASD have been seen over a period of 18 months. The programme generated 1566 psychiatric visits and 1052 visits to other specialties (mainly Nutrition, Stomatology, Neurology, and Gastroenterology) in the same period.ConclusionPersons with ASD may benefit from adjustments of health care services in order to improve their access to adequate health care at the quality level of the rest of the population.

scholarly journals Analysis of Facilitators and Barriers to the Delivery of Routine Care during the COVID-19 Global Pandemic: A Systematic Review

Healthcare ◽  
2021 ◽  
Vol 9 (5) ◽  
pp. 528
Author(s):  
Cristian Lieneck ◽  
Brooke Herzog ◽  
Raven Krips
Keyword(s):  
Systematic Review ◽  
Health Care ◽  
Health Care Services ◽  
Care Delivery ◽  
Routine Care ◽  
Future Research ◽  
Healthcare Organizations ◽  
Care Services ◽  
Global Pandemic ◽  
Facilitators And Barriers

The delivery of routine health care during the COVID-19 global pandemic continues to be challenged as public health guidelines and other local/regional/state and other policies are enforced to help prevent the spread of the virus. The objective of this systematic review is to identify the facilitators and barriers affecting the delivery of routine health care services during the pandemic to provide a framework for future research. In total, 32 articles were identified for common themes surrounding facilitators of routine care during COVID-19. Identified constructed in the literature include enhanced education initiatives for parents/patients regarding routine vaccinations, an importance of routine vaccinations as compared to the risk of COVID-19 infection, an enhanced use of telehealth resources (including diagnostic imagery) and identified patient throughput/PPE initiatives. Reviewers identified the following barriers to the delivery of routine care: conservation of medical providers and PPE for non-routine (acute) care delivery needs, specific routine care services incongruent the telehealth care delivery methods, and job-loss/food insecurity. Review results can assist healthcare organizations with process-related challenges related to current and/or future delivery of routine care and support future research initiatives as the global pandemic continues.

Revising the ERDs for the 21st Century

2021 ◽  
Vol 46 (8) ◽  
pp. 1-2
Author(s):  
John F. Brehany ◽  
Keyword(s):  
United States ◽  
Health Care ◽  
21St Century ◽  
Health Care Services ◽  
Care Delivery ◽  
The United States ◽  
Care Services ◽  
Moral Tradition ◽  
Modern Health Care ◽  
Catholic Health Care

Since their inception in 1948, The Ethical and Religious Directives for Catholic Health Care Services (ERDs) have guided Catholic health care ministries in the United States, aiding in the application of Catholic moral tradition to modern health care delivery. The ERDs have undergone two major revisions in that time, with about twenty years separating each revision. The first came in 1971 and the second came twenty-six years ago, in 1995. As such, a third major revision is due and will likely be undertaken soon.

scholarly journals Adults on the Autism Spectrum Face Significant Challenges Accessing Health Care Services

2021 ◽  
Vol 14 (1) ◽  
pp. 53
Author(s):  
Setareh Ghahari ◽  
Megan Widmer ◽  
Tom Heneghan ◽  
Methuna Naganathan ◽  
Thanusha Kathiravel
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Health Care Services ◽  
Quality Care ◽  
Autism Spectrum ◽  
Service Access ◽  
Care Providers ◽  
Spectrum Access ◽  
Health Service Access ◽  
Care Services

Autism Spectrum Disorder (ASD) is a neurodevelopmental condition characterized by difficulties with social skills, verbal and non-verbal communication, repetitive behaviours and atypical sensory processing. Individuals on the autism spectrum face a higher prevalence of health conditions and have a higher mortality rate than the general population. There is a critical need to understand adults’ experiences on the autism spectrum when accessing health care services to understand how to improve accessibility to health care for these individuals. The purpose of this scoping review was to investigate how adults on the autism spectrum access and experience health care services. Four databases, including Embase, MEDLINE, CINAHL, and PsycInfo, were systematically searched for literature exploring how individuals on the autism spectrum access and experience health care. Results were extracted and categorized into five determinants based on the accessibility framework described by Levesque et al. (2013). Results indicated adults on the autism spectrum experience numerous barriers when accessing health care services. The dimension of access most frequently cited was the appropriateness of care, followed by the acceptability of care. It is essential to explore access as it is often conceptualized as the availability and affordability of services; however, results of this study indicate the broader experience of quality care provision and acceptance of the individual are important in understanding the complex experience individuals on the autism spectrum face. Based on these findings, there is a need to provide comprehensive education and clinical practice guidelines for health care providers to help reduce barriers to providing appropriate care for adults on the autism spectrum. Efforts to destigmatize intrapersonal and extra-personal perceptions of individuals on the autism spectrum will help overcome the barriers that affect care acceptability. Further research must understand how to design and implement strategies to maximize health service access for adults on the autism spectrum.

When Clock Time Governs Interaction: How Time Influences Health Professionals’ Intersectoral Collaboration

2018 ◽  
Vol 28 (13) ◽  
pp. 2059-2070 ◽  
Author(s):  
Anne Bendix Andersen ◽  
Kirsten Beedholm ◽  
Raymond Kolbæk ◽  
Kirsten Frederiksen
Keyword(s):  
Health Care ◽  
Elderly Patients ◽  
Health Care Delivery ◽  
Health Professionals ◽  
Health Care Services ◽  
Care Delivery ◽  
Intersectoral Collaboration ◽  
Clock Time ◽  
Care Services ◽  
Patient Pathways

When setting up patient pathways that cross health care sectors, professionals in emergency units strive to fulfill system requirements by creating efficient patient pathways that comply with standards for length of stay. We conducted an ethnographic field study, focusing on health professionals’ collaboration, of 10 elderly patients with chronic illnesses, following them from discharge to their home or other places where they received health care services. We found that clock time not only governed the professionals’ ways of collaborating, but acceleration of patient pathways also became an overall goal in health care delivery. Professionals’ efforts to save time came to represent a “monetary value,” leading to speedier planning of patient pathways and consequent risks of disregarding important issues when treating and caring for elderly patients. We suggest that such issues are significant to the future planning and improvement of patient pathways that involve elderly citizens who are in need of intersectoral health care delivery.

iKure Techsoft: Providing Technology Enabled Affordable Health Care in Rural India

2018 ◽  
Vol 22 (02) ◽  
pp. 385-411
Author(s):  
Atanu Chaudhuri ◽  
Venkatramanaiah Saddikutti ◽  
Thim Prætorius
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Health Workers ◽  
Care Delivery ◽  
Rural India ◽  
Medical Team ◽  
Hub And Spoke ◽  
Care Services ◽  
Primary Health ◽  
Care Delivery Model

iKure Techsoft was established in 2010 with the main objective to provide affordable and high quality primary health care to the rural population in India and to build a sustainable for-profit business model. To that end, iKure’s cloud based, and patent pending, Wireless Health Incident Monitoring System (WHIMS) technology along with their hub-and-spoke operating model are central, but also essential to exploit and explore further if iKure is to scale-up. iKure provides primary health care services through three hub clinics and 28 rural health centres (RHCs). Each hub clinic employs between one and up to six medical teams (each consisting of 1 doctor, 1 nurse, 1 paramedic and 2 health workers stationed at the hub) & 1 mobile medical team (1 doctor, 1 paramedic, 2 health workers) for catering to the RHCs). Each medical team manages six RHCs. Paramount in iKure’s health care delivery model is their self-developed software called WHIMS, which is a cloud-based award-winning application that runs on low internet bandwidths. WHIMS allow for (a) centralized monitoring of key metrics such as doctor’s attendance, treatment prescribed, patient record management, pharmacy stock management, and (b) supports effective communication, integration and contact that connects RHCs with hub clinics, but also city-based multi-specialty hospitals with whom iKure has formal tie-ups. iKure, moreover, also works extensively with Non-Governmental Organizations (NGOs). Collaboration with local NGOs in the target areas helps to build trust with the rural villagers and their local knowledge and access helps to assess service demand. NGOs also provide the necessary local logistical support and basic infrastructure in the rural areas where iKure works. Moreover, collaboration, for example, with corporate organizations are central as they contribute with part of their corporate social responsibility (CSR) funds to support iKure initiatives. At present, iKure is planning to add diagnostic services to its six hub clinics as well as expand its presence in other parts of West Bengal and other states across India. Expanding rural health care services even with the technology support of WHIMS is challenging because, for example, health is a very local issue (due to, among other things, local customs and languages) and it requires investing significant amount of time and resources to build relationship with the rural people as well as collaborators such as NGOs and corporates. The accompanying case describes iKure’s journey so far in terms of understanding: (a) the state of health care and government health care services provided in rural India, (b) the establishment and evolution of the iKure business and health care model, (c) iKure’s operations and health care delivery model including the WHIMS technology solution and hub-and-spoke set-up of operations, (d) the collaborative model which relies on NGOs and private corporates, and (e) finally iKure’s challenges related to scaling-up.

Light Still Shines in the Darkness

2010 ◽  
Vol 28 (4) ◽  
pp. 266-274 ◽  
Author(s):  
Ted Karpf ◽  
J. Todd Ferguson ◽  
Robin Y. Swift
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Care Delivery ◽  
Care Services ◽  
Care Giving ◽  
Basic Care ◽  
The People ◽  
British Military ◽  
Health Care Models ◽  
Care Models

Health care is in crisis at the global, national, and local levels, with hundreds of millions living without basic care, or with insufficient care. Current health care models seem to have ignored, muted, or excluded the voices of the people they were intended to serve, resulting in health systems and care delivery models that do not respond to the needs of the people. This article describes a values-based approach to health and health care services in which the voices of the people are heard and listened to, and in which individuals and communities are informed participants in their own care. We draw parallels between contemporary concerns for decency in care giving to Florence Nightingale’s path-breaking work, first with the British military medical system and then Great Britain as a whole.

scholarly journals Participative management in health care services

Curationis ◽  
1995 ◽  
Vol 18 (1) ◽  
Author(s):  
M. Muller
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Care Delivery ◽  
Inductive Reasoning ◽  
Participative Management ◽  
Management Approach ◽  
Health Care Organisation ◽  
Care Services ◽  
Care Organisation ◽  
Interactive Decision Making

The need and demand for the highest-quality management of all health care delivery activities requires a participative management approach. The purpose with this article is to explore the process of participative management, to generate and describe a model for such management, focusing mainly on the process of participative management, and to formulate guidelines for operationalisation of the procedure. An exploratory, descriptive and theory-generating research design is pursued. After a brief literature review, inductive reasoning is mainly employed to identify and define central concepts, followed by the formulation of a few applicable statements and guidelines. Participative management is viewed as a process of that constitutes the elements of dynamic interactive decision-making and problem-solving, shared governance, empowerment, organisational transformation, and dynamic communication within the health care organisation. The scientific method of assessment, planning, implementation and evaluation is utilised throughout the process of participative management.

Social enterprises, health-care provision and ethical capital

2014 ◽  
Vol 10 (2) ◽  
pp. 105-120 ◽  
Author(s):  
Lucy Frith
Keyword(s):  
Health Care ◽  
Health Care Delivery ◽  
Health Care Services ◽  
Care Delivery ◽  
Social Enterprises ◽  
Ethical Perspective ◽  
Content Type ◽  
Care Services ◽  
The Relationship

Purpose – The aim of this paper is to advance a conceptual understanding of the role of social enterprises in health care by developing the concept of ethical capital. Social enterprises have been an important part of both the coalition and the previous government’s vision for improving health-care delivery. One of the central arguments for increasing the role of social enterprises in health care is they can provide the benefits of a public service ethos with the efficiencies and innovatory strategies of a business. Social enterprises are well placed to promote the type of values that should underpin health care delivery. Design/methodology/approach – This paper explores the conceptual issues raised by using social enterprises to provide health-care services that were previously provided by the National Health Service (NHS) from an ethical perspective. Findings – It will be argued that conceptualising social enterprises as organisations that can and should produce ethical capital could be a useful way of developing the debate over social enterprises in health care. Practical implications – The paper provides suggestions on how ethical capital might be produced and monitored in social enterprises. Originality/value – This paper advances the debate over the use of the concept of ethical capital in social enterprises and explores the relationship between ethical and social capital – both under researched areas. It also contributes to the emerging discussions of social enterprises in current health policy and their role in the radically reformed English NHS.

scholarly journals A Context-Aware Machine-to-Machine-Enabled Pervasive Cardiac Telemetry for Personalizing Health Care Delivery

2019 ◽  
Author(s):  
Thierry Oscar Dr. Edoh ◽  
Aude-Elvis ODELOUI
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Care Delivery ◽  
Heart Diseases ◽  
Remote Communication ◽  
Machine To Machine ◽  
Personalized Care ◽  
Care Services ◽  
Services Delivery ◽  
Access To Health

Personalized health care in coming and shows promise to improve the health care services delivery.Internet of Things (IoT) enabled personalized care enables patient-centric care delivery wheremedical doctors provide care based on data emanated from the patient and on the patientmedical/health record.Cardiovascular diseases, known as non-communicable diseases, are a leading death causeworldwide. Developing countries are bearing the heaviest heart diseases burden. Additionally,these countries are facing numerous challenges such as poor access to health care services delivery,lack of adequate medicine, lack of health insurance that aggravate the poor care accessibility issues.Several outpatients living in rural are severely facing the accessibility issues due to the remoteresidence. They are living very far from specialized hospitals or clinics.This paper aims at presenting a novel cardiac telemetry approach combining the paradigm ofcontext awareness and the IoT Technology to provide personalized care to remote outpatient and,thus, improve on one hand the patient monitoring and on other increase access to health careservices as well as provide personalized care, which shows promise to improve the quality of thecare.Regarding the telecommunication issues facing most developing, especially the rural regions, storeand forward approach is adopted for data exchanges and machine-to-machine (M2M)communication is selected to support communication in the entire system since M2Mcommunication is technology independent, interoperable, and enable remote communication.

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