Personal Health Information in the Age of Ubiquitous Health

2010 ◽  
pp. 166-189
Author(s):  
David Wiljer ◽  
Sara Urowitz ◽  
Erin Jones
Keyword(s):  
Health Care ◽  
Health Information ◽  
New Technologies ◽  
Personal Health Information ◽  
Organizational Level ◽  
Information Communication ◽  
The Public ◽  
Basic Infrastructure ◽  
Privacy Issues ◽  
New Strategies

We have long passed through the information age into an information perfusion in health care, and new strategies for managing it are emerging. The ubiquity of health information has transformed the clinician, the public, and the patient, forever changing the landscape of health care in the shift toward consumerism and the notion of the empowered patient. This chapter explores essential issues of ubiquitous health information (UHI), beginning with its origins in the explosion of health information and the advent of new technologies. Challenges of UHI include privacy issues, change management, and the lack of basic infrastructure. However, benefits for patients include improvements in access to information, communication with providers, prescription renewals, medication tracking, and the ability to self-manage their conditions. Benefits at the organizational level include increased patient satisfaction, continuity of care, changes in costing models and improved standardization of care as organizations streamline processes to address this change in clinical practice.

Personal Health Information in the Age of Ubiquitous Health

2011 ◽  
pp. 50-72
Author(s):  
David Wiljer ◽  
Sara Urowitz ◽  
Erin Jones
Keyword(s):  
Health Care ◽  
Health Information ◽  
New Technologies ◽  
Personal Health Information ◽  
Organizational Level ◽  
Information Communication ◽  
The Public ◽  
Basic Infrastructure ◽  
Privacy Issues ◽  
New Strategies

We have long passed through the information age into an information perfusion in health care, and new strategies for managing it are emerging. The ubiquity of health information has transformed the clinician, the public, and the patient, forever changing the landscape of health care in the shift toward consumerism and the notion of the empowered patient. This chapter explores essential issues of ubiquitous health information (UHI), beginning with its origins in the explosion of health information and the advent of new technologies. Challenges of UHI include privacy issues, change management, and the lack of basic infrastructure. However, benefits for patients include improvements in access to information, communication with providers, prescription renewals, medication tracking, and the ability to self-manage their conditions. Benefits at the organizational level include increased patient satisfaction, continuity of care, changes in costing models and improved standardization of care as organizations streamline processes to address this change in clinical practice.

Will Privacy Concerns Derail the Electronic Health Record? Balancing the Risks and Benefits

2010 ◽  
pp. 178-196 ◽  
Author(s):  
Candace J. Gibson ◽  
Kelly J. Abrams
Keyword(s):  
Health Care ◽  
Health Information ◽  
Information Technologies ◽  
New Technologies ◽  
Resistance To Change ◽  
Hospital Setting ◽  
Electronic Record ◽  
Personal Health Information ◽  
Personal Health ◽  
Barriers And Challenges

The introduction of information technologies and the electronic record in health care is thought to be a key means of improving efficiencies and effectiveness of the health care system; ensuring critical information is readily available at the point of care, decreasing unnecessary duplication of tests, increasing patient safety (particularly from adverse drug events), and linking providers and patients spatially and temporally across the continuum of care as health care moves out of the traditional hospital setting to the community and home. There is a steady movement in many countries towards eHealth and a fully implemented, in some cases, pan-regional or pan-national electronic heath record. A number of barriers and challenges exist in EHR implementation. These include lack of resources (both capital and human resources), resistance to change and adoption of new technologies, and lack of standards to ensure interoperability across separate applications and systems. From the public’s perspective, maintaining the security, privacy, and confidentiality of personal health information is a prominent concern and privacy of personal health information still looms as a potential stumbling block for the implementation of a omprehensive, shared electronic record. There are some steps that can be taken to increase the public’s comfort level and to ensure that these new systems are designed and used with security and privacy in mind.

scholarly journals Development and Evaluation of a New Security and Privacy Track in a Health Informatics Graduate Program: Multidisciplinary Collaboration in Education (Preprint)

2017 ◽  
Author(s):  
Leming Zhou ◽  
Bambang Parmanto ◽  
James Joshi
Keyword(s):  
Health Care ◽  
Health Information ◽  
Health Care Providers ◽  
Health Informatics ◽  
Graduate Program ◽  
New Technologies ◽  
Security And Privacy ◽  
Care Providers ◽  
Widespread Application ◽  
Mobile Health Apps

BACKGROUND The widespread application of technologies such as electronic health record systems, mobile health apps, and telemedicine platforms, has made it easy for health care providers to collect relevant data and deliver health care regimens. While efficacious, these new technologies also pose serious security and privacy challenges. OBJECTIVE The training program described here aims at preparing well-informed health information security and privacy professionals with enhanced course materials and various approaches. METHODS A new educational track has been built within a health informatics graduate program. Several existing graduate courses have been enhanced with new security and privacy modules. New labs and seminars have been created, and students are being encouraged to participate in research projects and obtain real-world experience from industry partners. Students in this track receive both theoretical education and hands-on practice. Evaluations have been performed on this new track by conducting multiple surveys on a sample of students. RESULTS We have succeeded in creating a new security track and developing a pertinent curriculum. The newly created security materials have been implemented in multiple courses. Our evaluation indicated that students (N=72) believed that receiving security and privacy training was important for health professionals, the provided security contents were interesting, and having the enhanced security and privacy training in this program was beneficial for their future career. CONCLUSIONS The security and privacy education for health information professionals in this new security track has been significantly enhanced.

scholarly journals Differences in Perceptions of Health Information Between the Public and Health Care Professionals: Nonprobability Sampling Questionnaire Survey (Preprint)

2019 ◽  
Author(s):  
Anat Gesser-Edelsburg ◽  
Nour Abed Elhadi Shahbari ◽  
Ricky Cohen ◽  
Adva Mir Halavi ◽  
Rana Hijazi ◽  
...  
Keyword(s):  
Health Care ◽  
Social Networks ◽  
New Media ◽  
Health Information ◽  
Health Care Professionals ◽  
Questionnaire Survey ◽  
General Public ◽  
The Public ◽  
Search For Information

BACKGROUND In the new media age, the public searches for information both online and offline. Many studies have examined how the public reads and understands this information but very few investigate how people assess the quality of journalistic articles as opposed to information generated by health professionals. OBJECTIVE The aim of this study was to examine how public health care workers (HCWs) and the general public seek, read, and understand health information and to investigate the criteria by which they assess the quality of journalistic articles. METHODS A Web-based nonprobability sampling questionnaire survey was distributed to Israeli HCWs and members of the public via 3 social media outlets: Facebook, WhatsApp, and Instagram. A total of 979 respondents participated in the online survey via the Qualtrics XM platform. RESULTS The findings indicate that HCWs find academic articles more reliable than do members of the general public (44.4% and 28.4%, respectively, P<.001). Within each group, we found disparities between the places where people search for information and the sources they consider reliable. HCWs consider academic articles to be the most reliable, yet these are not their main information sources. In addition, HCWs often use social networks to search for information (18.2%, P<.001), despite considering them very unreliable (only 2.2% found them reliable, P<.001). The same paradoxes were found among the general public, where 37.5% (P<.001) seek information via social networks yet only 8.4% (P<.001) find them reliable. Out of 6 quality criteria, 4 were important both to HCWs and to the general public. CONCLUSIONS In the new media age where information is accessible to all, the quality of articles about health is of critical importance. It is important that the criteria examined in this research become the norm in health writing for all stakeholders who write about health, whether they are professional journalists or citizen journalists writing in the new media.

The public’s trust and information brokers in health care, public health and research

2019 ◽  
Vol 33 (7/8) ◽  
pp. 929-948 ◽  
Author(s):  
Jodyn Platt ◽  
Minakshi Raj ◽  
Sharon L.R. Kardia
Keyword(s):  
Public Health ◽  
Health Care ◽  
Health System ◽  
Information Sharing ◽  
Health Information ◽  
Health Care Providers ◽  
Care Providers ◽  
Content Type ◽  
The Public ◽  
Information Brokers

Purpose Nations such as the USA are investing in technologies such as electronic health records in order to collect, store and transfer information across boundaries of health care, public health and research. Health information brokers such as health care providers, public health departments and university researchers function as “access points” to manage relationships between the public and the health system. The relationship between the public and health information brokers is influenced by trust; and this relationship may predict the trust that the public has in the health system as a whole, which has implications for public trust in the system, and consequently, legitimacy of involved institutions, under circumstances of health information data sharing in the future. This paper aims to discuss these issues. Design/methodology/approach In this study, the authors aimed to examine characteristics of trustors (i.e. the public) that predict trust in health information brokers; and further, to identify the factors that influence trust in brokers that also predict system trust. The authors developed a survey that was administered to US respondents in 2014 using GfK’s nationally representative sample, with a final sample of 1,011 participants and conducted ordinary least squares regression for data analyses. Findings Results suggest that health care providers are the most trusted information brokers of those examined. Beliefs about medical deceptive behavior were negatively associated with trust in each of the information brokers examined; however, psychosocial factors were significantly associated with trust in brokers, suggesting that individual attitudes and beliefs are influential on trust in brokers. Positive views of information sharing and the expectation of benefits of information sharing for health outcomes and health care quality are associated with system trust. Originality/value This study suggests that demonstrating the benefits and value of information sharing could be beneficial for building public trust in the health system; however, trust in brokers of information are variable across the public; that is, knowledge, attitudes and beliefs are associated with the level of trust different individuals have in various health information brokers – suggesting that the need for a personalized approach to building trust.

scholarly journals Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA

BMJ Open ◽  
2020 ◽  
Vol 10 (9) ◽  
pp. e037016 ◽  
Author(s):  
Liz Salmi ◽  
Selina Brudnicki ◽  
Maho Isono ◽  
Sara Riggare ◽  
Cecilia Rodriquez ◽  
...  
Keyword(s):  
Health Information ◽  
Medical Records ◽  
New Technologies ◽  
International Standards ◽  
Personal Health Information ◽  
Personal Health ◽  
Care Partners ◽  
Six Nations ◽  
The Usa

In the absence of international standards, widely differing attitudes and laws, medical and social cultures strongly influence whether and how patients may access their medical records in various settings of care. Reviewing records, including the notes clinicians write, can help shape how people participate in their own care. Aided at times by new technologies, individual patients and care partners are repurposing existing tools and designing innovative, often ‘low-tech’ ways to collect, sort and interpret their own health information. To illustrate diverse approaches that individuals may take, six individuals from six nations offer anecdotes demonstrating how they are learning to collect, assess and benefit from their personal health information.

scholarly journals Patient portals and personal health information online: perception, access, and use by US adults

2016 ◽  
Vol 24 (e1) ◽  
pp. e173-e177 ◽  
Author(s):  
Sue Peacock ◽  
Ashok Reddy ◽  
Suzanne G Leveille ◽  
Jan Walker ◽  
Thomas H Payne ◽  
...  
Keyword(s):  
Health Care ◽  
Health Information ◽  
Health Care Providers ◽  
Race And Ethnicity ◽  
Personal Health Information ◽  
Personal Health ◽  
Care Providers ◽  
Patient Portals ◽  
The Past ◽  
Patient Race

Background: Access to online patient portals is key to improving care, but we have limited understanding of patient perceptions of online portals and the characteristics of people who use them. Methods: Using a national survey of 3677 respondents, we describe perceptions and utilization of online personal health information (PHI) portals. Results: Most respondents (92%) considered online PHI access important, yet only 34% were offered access to online PHI by a health care provider, and just 28% accessed online PHI in the past year. While there were no differences across race or ethnicity in importance of access, black and Hispanic respondents were significantly less likely to be offered access (P = .006 and &lt;.001, respectively) and less likely to access their online PHI (P = .041 and &lt;.001, respectively) compared to white and non-Hispanic respondents. Conclusion: Health care providers are crucial to the adoption and use of online patient portals and should be encouraged to offer consistent access regardless of patient race and ethnicity.

Algorithmic governance in public sector: is digitization a key to effective management

2020 ◽  
Vol 11 (9) ◽  
pp. 2149
Author(s):  
Aurelija Pūraitė ◽  
Vaiva Zuzevičiūtė ◽  
Daiva Bereikienė ◽  
Tetyana Skrypko ◽  
Leonid Shmorgun
Keyword(s):  
Public Sector ◽  
New Technologies ◽  
Human Resources Management ◽  
Digital Transformation ◽  
Ethical Standards ◽  
Effective Management ◽  
Resources Management ◽  
The Public ◽  
Strategic Actions ◽  
New Strategies

While algorithmic governance in the public sector can lead to increased efficiency and cost-effectiveness, the implementation of those digital innovations can also result in multiple forms of harm: data bias can lead to reinforcement of inequality, discrimination, and criminalization of already marginalized populations; lack of accountability and transparency in decision-making can lead to injustices; societal trust and the legitimacy of public sector institutions may suffer; privacy and fundamental human rights may be threatened, ethical standards challenged. Digital transformation, leading to algorithmic governance, may be challenged in times of crisis, such as the recent pandemic outbreak, as new technologies in public sector institutions and forms of data-driven surveillance and intrusive monitoring are introduced in the name of public security and social need.  This research focuses in affirming the assumption that the effective management in the public sector, first of all, is determined by the ability of this sector to transform the perception of the services delivered; secondly, it requires strategic actions to enable the systemic and coherent digital transformation of the public sector; and lastly, the new strategies of human resources management in the public sector should be considered. The focus is concentrated on understanding how the implementation of digital tools to the public sector and public services correlate with algorithmic governance concept and what impact digitization has on the effectiveness of management in the public sector.

The HIPAA Privacy Rule: Reviewing the Post-Compliance Impact on Public Health Practice and Research

2003 ◽  
Vol 31 (S4) ◽  
pp. 70-72 ◽  
Author(s):  
Lora Kutkat ◽  
James G. Hodge ◽  
Thomas Jeffry ◽  
Diana M. Bontá
Keyword(s):  
Public Health ◽  
Health Care ◽  
Health Information ◽  
Public Health Practice ◽  
Personal Health Information ◽  
Personal Health ◽  
Health Plans ◽  
Privacy Rule ◽  
Public Health Officials ◽  
Hipaa Privacy Rule

Current economic conditions have coincided with the implementation of the Health Insurance Portability and Accountability Act (HIPAA) and forced public health officials to consider how to ethically incorporate compliance into their already strained budgets, while maintaining the integrity and intent of the legislation.As of April 14, 2003, the HIPAA Privacy Rule provides a new federal floor of protections for personal health information. The Privacy Rule establishes standards for the protection of health information held by many physicians’ offices, health plans, and health care clearinghouses. The Rule protects personal health information by establishing conditions regulating the use and disclosure of individually identifiable health information by these entities, also referred to as covered entities. The Rule does not prevent the daily operations of health care establishments (i.e., the treatment of patients and the collection of payment).

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