Medical Social Networks, Epidemiology and Health Systems

2021 ◽  
pp. 1827-1838
Author(s):  
Patrícia C. T. Gonçalves ◽  
Ana S. Moura ◽  
M. Natália D. S. Cordeiro ◽  
Pedro Campos
Keyword(s):  
Social Networks ◽  
Information Systems ◽  
Data Privacy ◽  
Health Information Systems ◽  
Health Data ◽  
Medical Doctor ◽  
Medical Data ◽  
Patients Rights ◽  
Medical Software ◽  
New Models

The increasing use of medical software as an interface between patients and medical staff has raised alarming questions on the safety of data privacy and assurance of patients' rights. This issue has reached a new level with the emergent use of medical social networks in Health Information Systems. Medical networks, which work as an interface between the patient medical data and geographical and/or social connections, as well as between the patient individual needs and the attending medical doctor, can allow feasible and fast visualization/information systems. As new models for medical social networks and health data visualization and information systems are planned and presented, the need for protocols regarding data privacy in this context is becoming a subject of analysis and discussion. This chapter reviews the evolution and status quo of prospective medical social networks within data privacy and patients' rights, and discusses the ideal model and its future venues and interaction with ethics in the areas of Law, Health Policies, and Human Rights.

Privacy and Security: Are Your Health Information Systems up to Standard?

1996 ◽  
Vol 26 (4) ◽  
pp. 197-201 ◽  
Author(s):  
Tina Magennis ◽  
Jennifer Mitchell
Keyword(s):  
Health Care ◽  
Information Systems ◽  
Health Information ◽  
Health Information Systems ◽  
Health Data ◽  
Human Behaviour ◽  
Personal Health ◽  
Privacy And Security ◽  
Patient Health ◽  
Privacy And Confidentiality

As electronic patient health information systems become more fully developed and widespread, there are persistent concerns about the privacy and confidentiality of the personal health data being stored and disseminated. Standards Australia has released two Standards which provide useful guidelines for the organisational, technological and human behaviour solutions required to protect privacy and confidentiality in health care organisations. The major requirements of these Standards are outlined and the implications of the Standards for health information managers are discussed.

scholarly journals Cloud Data Privacy Preserving Model for Health Information Systems Based on Multi Factor Authentication

2020 ◽  
Vol 9 (3) ◽  
pp. 360-367
Keyword(s):  
Cloud Computing ◽  
Information Systems ◽  
Health Information ◽  
Data Privacy ◽  
Clinical Information System ◽  
Health Information Systems ◽  
Healthcare Services ◽  
Cost Utility ◽  
Personal Health Information ◽  
Patient Side

With cloud computing (CC) becoming popular in recent years, variety of institutions, organizations, businesses and individual users are creating interest. They are adopting the technology in order to take advantage of shared web applications, low infrastructure cost, utility and distributed computing, cluster computing as well as reliable IT architecture. In the area of health, Cloud Health Information Systems (CHIS) play a key role not only on the healthcare businesses but patients as well. On the patient side, CHIS aid in sharing of medical data and health information, timely access of critical patient information and coordination of clinical services. Patients, who continue to demand for instantaneous and quality healthcare services are now able to access the services from experts even when they are not necessarily in the same physical location. This is being aided by proliferation of telemedicine through hosted cloud architecture. From the business perspective, CC has helped to cut down operational expenses by way of cost-effective clinical information system infrastructure through the implementation of a distributed platform. The platform has therefore saved businesses millions of dollars that would have gone to infrastructural and human resource investment. Even with these immense opportunities, cloud computing uptake has been serious inhibited by the privacy and security concerns. Due to the sensitivity of personal health information, businesses and individuals are apprehensive when it comes to adopting the technology or releasing the data to the cloud. This study is a results discussion of an enhanced model for attainment of data privacy on the cloud through use of multi factor authentication.

scholarly journals Patient Perspectives on Health Data Privacy and Management: “Where Is My Data and Whose Is It?”

2018 ◽  
Vol 2018 ◽  
pp. 1-6 ◽  
Author(s):  
Mart Wetzels ◽  
Eva Broers ◽  
Peter Peters ◽  
Loe Feijs ◽  
Jos Widdershoven ◽  
...  
Keyword(s):  
Focus Groups ◽  
Data Storage ◽  
Data Privacy ◽  
Patient Perspective ◽  
New Technologies ◽  
Data Access ◽  
Health Data ◽  
Medical Data ◽  
Added Value ◽  
Insurance Companies

New technologies are increasingly evaluated for use within the clinical practice to monitor patients’ medical and lifestyle data. This development could contribute to a more personalized approach to patient care and potentially improve health outcomes. To date, patient perspective on this development has mostly been neglected in the literature. Hence, this study aims to shed more light on the patient perspective on health data privacy and management. Focus groups with cardiac patients were done at the Elizabeth TweeSteden Ziekenhuis (ETZ) in the Netherlands as part of the DoCHANGE project. The focus groups were conducted using a semistructured protocol which was organized around three themes: privacy regulations, data storage, and transparency and privacy management. Five focus groups with a total of 23 patients were conducted. The majority of the patients preferred to have access to their medical data; however, the knowledge on who has access to data was limited. Patients indicated that they do not want to share their medical data with health insurance companies or the pharmaceutical industry. Furthermore, most patients do not see the added value of supplementing their medical dossier with lifestyle data. Current findings showed patients prefer access to and control over own data but that the knowledge concerning data privacy and management is limited. Sharing of non-medical health data (e.g.,, physical activity) was considered unnecessary. Future studies should address patient preferences and develop infrastructure which facilitates medical data access for patients.

scholarly journals Mission impossible? Harmonising migration health data across countries

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
D Zenner
Keyword(s):  
Information Systems ◽  
Health Information ◽  
Data Sharing ◽  
Health Information Systems ◽  
Health Data ◽  
Potential Solution ◽  
International Borders ◽  
Health Related ◽  
The Eu

Abstract Despite significant efforts, for example within the EU/ EEA, there are currently only few Health information systems (HIS) which are standardized across international borders, and even within countries there can be significant variations. Modalities, technologies and terminologies differ. In the field of migration health, challenges and variations can be more significant. This talk will explore the specific challenges in migration health related HIS, provide an overview of the current HIS landscape pertaining to migration health and sketch out some potential solution to achieve greater harmonization and data sharing across countries.

scholarly journals Section 3: Health Information Systems: Health Information Systems: Between Shared Care and Body Area Networks

2006 ◽  
Vol 15 (01) ◽  
pp. 53-56
Author(s):  
O. J. Bott ◽  
Keyword(s):  
Information Systems ◽  
Health Information ◽  
Data Privacy ◽  
New Technologies ◽  
Patient Empowerment ◽  
Chronically Ill ◽  
Health Information Systems ◽  
Data Types ◽  
Wearable Systems ◽  
Excellent Research

SummaryTo summarize current excellent research in the field of health information systems (HIS).Synopsis of the articles selected for the IMIA Yearbook 2006.Current research in the field of HIS is focused on supporting transinstitutional health care processes including health record systems, integration of new data types and knowledge based decision support, patient empowerment, the utilization of new technologies like wearable systems or ubiquitous computing in home and personal care, and methods and tools for the analysis, development, management, and evaluation of HIS.The best paper selection of articles on HIS comprises examples of excellent research on integration of HIS based on standards for electronic health records, methods and tools for HIS oriented change management, the use of wearable systems for telemedical surveillance of chronically ill patients, technology driven home care concepts for the elderly and physically disabled, and data privacy issues arising from the emergence of new clinical data types in the context of biomedicine. Besides successful research concerning important aspects of HIS, achieving interoperability and integration of health information subsystems and technology remains an important field of work.

scholarly journals Availability and integration of health data on refugee and migrants in health information systems

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
K Bozorgmehr ◽  
R Jahn ◽  
L Biddle ◽  
S Rohleder ◽  
S Puthopparambil
Keyword(s):  
Information Systems ◽  
Data Collection ◽  
Health Information ◽  
Health Information Systems ◽  
Migrant Health ◽  
Health Data ◽  
Data Availability ◽  
Network Synthesis ◽  
Synthesis Report ◽  
Integration Data

Abstract This presentation discusses the findings of a Health Evidence Network synthesis report on availability and integration of refugee and migrant health data in health information systems in the WHO European Region. Based on an analysis of 41 full-text studies and 696 abstracts, the report found that refugee and migrant health data were available in less than half of the Region's Member States, and that data availability and integration, data collection systems, as well as indicators on migration varied markedly between states. From these findings, the report derived key policy considerations regarding the strengthening and harmonization of migrant health data collection, as well as governance and monitoring of health information systems.

scholarly journals Patient perspectives on health data privacy and management: �Where is my data and whose is it?� (Preprint)

2018 ◽  
Author(s):  
Mart Wetzels ◽  
Eva Broers ◽  
Peter Peters ◽  
Loe Feijs ◽  
Jos Widdershoven ◽  
...  
Keyword(s):  
Focus Groups ◽  
Data Storage ◽  
Data Privacy ◽  
Patient Perspective ◽  
New Technologies ◽  
Data Access ◽  
Health Data ◽  
Medical Data ◽  
Added Value ◽  
Insurance Companies

UNSTRUCTURED **Background**: New technologies are increasingly evaluated for use within the clinical practice to monitor patients’ medical and lifestyle data. This development could contribute to a more personalised approach towards patient care and potentially improve health outcomes. To date, patient perspective on this development has largely been neglected in the literature. Hence, this study aims to shed more light on the patient perspective on health data privacy and management. **Methods**: Focus groups with cardiac patients were conducted at the Elizabeth Tweesteden Ziekenhuis (ETZ) in the Netherlands as part of the DoCHANGE project. The focus groups were conducted using a semi-structured protocol which was organised around three themes: privacy regulations, data storage, and transparency and privacy management. **Results**: Five focus groups with a total of 23 patients were conducted. The majority of the patients preferred to have access to their medical data however the knowledge on who has access to data was limited. Patients indicated that they do not want to share their medical data with health insurance companies or the pharmaceutical industry. Furthermore, most patients do not see the added value of supplementing their medical dossier with lifestyle data. **Discussion**: Current findings showed patients prefer access to and control over own data but that the knowledge concerning data privacy and management is limited. Sharing of non-medical health data (e.g. physical activity) was considered unnecessary. Future studies should address patient preferences and develop infrastructure which facilitates medical data access for patients.

scholarly journals A call to strengthen data in response to COVID-19 and beyond

2020 ◽  
Author(s):  
Natasha Azzopardi-Muscat ◽  
Hans Henri P Kluge ◽  
Samira Asma ◽  
David Novillo-Ortiz
Keyword(s):  
Information Systems ◽  
Health Information Systems ◽  
Health Data ◽  
Coordination Mechanism ◽  
Data Driven ◽  
National Data ◽  
Data Governance ◽  
Monitoring And Forecasting ◽  
Data Culture ◽  
Political Decisions

Abstract The COVID-19 (coronavirus disease 2019) pandemic has underscored the critical need for all countries to strengthen their health data and information systems and ensure the routes the data travel, from submission to use, are unobstructed. Timely, credible, reliable, and actionable data are key to ensuring that political decisions are data driven and facilitate understanding, monitoring, and forecasting. To ensure that critical decisions related to the wider health and socioeconomic effects of this pandemic are data driven, each country needs to develop or enhance a national data governance plan that includes a clear coordination mechanism, well-defined and documented data processes (manual or electronic), the exchange of data, and a data culture to empower users. In addition, countries should now more than ever invest and enhance their data and health information systems to ensure that all decisions are data driven and that they are prepared for what is next.

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