scholarly journals Building communities of trust: Challenges for disability

2014 ◽  
Vol 3 (2) ◽  
Author(s):  
Alexander M. Phiri
Keyword(s):  
Human Rights ◽  
Civil Society ◽  
International Research ◽  
Research Agenda ◽  
Research Programme ◽  
Development Research ◽  
Research Partnerships ◽  
People With Disability ◽  
The Disabled ◽  
Disability Research

This article asks questions about power and partnership in disability research in Africa. Research has been located too much in one type of organisation or another and not sufficiently in the interaction between a range of legitimate stakeholders. Across Africa and Europe, and government and civil society dialogues, the African development research agenda must be owned by Africans. Fully inclusive national and international research partnerships are crucial, but they must be driven from Africa. European constructions of and interventions concerning people with disability have often been inhumane, seeking to eliminate them from society. African cultures have also stigmatised people with disability. I call for a new African-driven research agenda that promotes the human rights of people with disability, and has people with disability not only participating in this research, but directing it. The Southern African Federation of the Disabled (SAFOD) Research Programme (SRP) is breaking new ground in this regard by allowing ‘the researched’ to become ‘the researcher’.

scholarly journals Where have all the radicals gone?

2017 ◽  
Vol 13 (02) ◽  
pp. 163-179 ◽  
Author(s):  
Peter Francis Wheeler
Keyword(s):  
Longitudinal Study ◽  
Independent Living ◽  
Research Agenda ◽  
Social Enterprise ◽  
Social Enterprises ◽  
Disabled People ◽  
Content Type ◽  
The Disabled ◽  
Disability Research ◽  
Insight Into

Purpose This paper aims to track the operations of a radical social enterprise, “New Horizon”, which attempted to provide a different approach to improve the independent living and employment opportunities for disabled people. The longitudinal study covers a period from the new labour project in the late 1990s to current austerity measures. Design/methodology/approach The project applied an emancipatory disability research agenda which places both the social and material relations of knowledge in the hands of the disabled participants. Findings Under the neo-liberal marketisation of public services, the radical nature of the organisation needed to be tempered, as different stakeholder groupings required different and not always complementary approaches to be undertaken to maintain legitimacy. Neo-institutional pressures tended to drive the organisation towards conformity with similar more mainstream rivals meaning the radical approach which assisted the formation of the organisation became less observable. Social/implications This research provides a unique insight into the systemic challenges faced by a social enterprise attempting to improve the independent living/employment prospects of disabled people. The longitudinal nature of the study illustrates how similar radical social enterprises, policymakers and researchers can understand how normative forces act in opposition to radical agendas. Originality/value This longitudinal study of a radical disability organisation which is undertaken through an emancipatory disability research agenda provides a unique insight into a marginalised and largely disenfranchised group in society. The paper provides a voice for the disabled stakeholders of New Horizon and hence differs from the majority of social research in that interpretations and analyses arise from the knowing subjects of research as opposed to the more traditional non-disabled academic research community.

scholarly journals Community Action Research in Disability (CARD): An inclusive research programme in Uganda

2017 ◽  
Vol 28 (1) ◽  
pp. 5-92
Author(s):  
Sally Hartley ◽  
Aisha Yousafzai ◽  
Maria Goretti Kaahwa ◽  
Harry Finkenflugel ◽  
Angie Wade ◽  
...  
Keyword(s):  
Action Research ◽  
Local Community ◽  
Service Providers ◽  
Research Programme ◽  
Research Process ◽  
Community Action ◽  
Community Based ◽  
Research Teams ◽  
People With Disability ◽  
Disability Research

The ideology of Emancipatory Disability Research (EDR) reflected in the phrase ‘Nothing about us without us’, was first put forward in the 1990s. Although it aimed to place research control in the hands of the ‘researched’, i.e., people with disability, this rarely happens even today, 25 years later.The Community Action Research on Disability (CARD) programme in Uganda embraced and modified the EDR approach, recognising the need for including people with disability in the research process from concept to outcome, and nurturing participation and collaboration between all the stakeholders in achieving action-based research. The research teams always included people with disability and staff from Disability People’s Organisations (DPOs) as well as academics and service providers. It endeavoured to generate and carry out research around issues that mattered to people with disability and their families. Leadership roles were assigned by team members. The objectives of the CARD programme were: (1) to fund teams to carry out action-based research on disability in Uganda; (2) to develop research and administrative capacity to manage the initiative within the academic registrar’s office at Kyambogo University; (3) to incorporate new knowledge generated from the studies into the ongoing local community-based rehabilitation and special education courses; and, (4) to ensure wide dissemination of research findings to all stakeholder groups.CARD ran for 5 years, commissioning 21 action research studies in the field of disability and community-based services. This paper describes the process, presents the 12 completed studies, examines the extent to which the objectives were achieved and evaluates the experiences of the participating research teams, particularly in relation to the inclusion of its members with disability. It concludes with recommendations for future initiatives designed to promote validity, good value and inclusive approaches in disability research. 

scholarly journals A Rights-Holder View on Human Rights Provisions in Olympic Bidding and Hosting Regulations

AJIL Unbound ◽  
2020 ◽  
Vol 114 ◽  
pp. 356-361
Author(s):  
Daniela Heerdt
Keyword(s):  
Human Rights ◽  
Civil Society ◽  
Olympic Games ◽  
International Olympic Committee ◽  
Winter Olympics ◽  
Potential Benefits

The Paris 2024 Summer Olympics will be the first Olympic Games for which human rights provisions were added to the Host City Contract (HCC). The Milano/Cortina 2026 Winter Olympics will be the first edition of the Games that were awarded with human rights requirements forming part of the candidature process. The inclusion of human rights provisions into hosting and bidding regulations can be seen as a reaction of the International Olympic Committee (IOC) to the increasing pressure from civil society to address adverse human rights impacts of these events. This essay provides an analysis of the benefits and shortcomings of this development and reveals that from a rights-holder perspective, the benefits are meaningless. More specifically, it argues that potential benefits are cancelled out by the shortcomings and most importantly that there is a mismatch between intended and actual beneficiaries of these provisions.

scholarly journals COVID-19 and Children’s Well-Being: A Rapid Research Agenda

2021 ◽  
Author(s):  
Rebecca N. Dudovitz ◽  
Shirley Russ ◽  
Mary Berghaus ◽  
Iheoma U. Iruka ◽  
Jessica DiBari ◽  
...  
Keyword(s):  
Nonprofit Organizations ◽  
Research Agenda ◽  
Well Being ◽  
Research Network ◽  
Negative Effects ◽  
Research Partnerships ◽  
Data Infrastructure ◽  
Community Based Research ◽  
National Measurement ◽  
Resilient Response

Abstract Purpose Understanding the full impact of COVID-19 on U.S. children, families, and communities is critical to (a) document the scope of the problem, (b) identify solutions to mitigate harm, and (c) build more resilient response systems. We sought to develop a research agenda to understand the short- and long-term mechanisms and impacts of the COVID-19 pandemic on children’s healthy development, with the goal of devising and ultimately testing interventions to respond to urgent needs and prepare for future pandemics. Description The Life Course Intervention Research Network facilitated a series of virtual meetings that included members of 10 Maternal and Child Health (MCH) research programs, their research and implementation partners, as well as family and community representatives, to develop an MCH COVID-19 Research Agenda. Stakeholders from academia, clinical practice, nonprofit organizations, and family advocates participated in four meetings, with 30–35 participants at each meeting. Assessment Investigating the impacts of COVID-19 on children’s mental health and ways to address them emerged as the highest research priority, followed by studying resilience at individual and community levels; identifying and mitigating the disparate negative effects of the pandemic on children and families of color, prioritizing community-based research partnerships, and strengthening local, state and national measurement systems to monitor children’s well-being during a national crisis. Conclusion Enacting this research agenda will require engaging the community, especially youth, as equal partners in research co-design processes; centering anti-racist perspectives; adopting a “strengths-based” approach; and integrating young researchers who identify as Black, Indigenous, and People of Color (BIPOC). New collaborative funding models and investments in data infrastructure are also needed.

A National Treasure? The Role of Civil Society in Promoting and Enforcing Human Rights in the United Kingdom

2020 ◽  
Author(s):  
Harriet Samuels
Keyword(s):  
Human Rights ◽  
United Kingdom ◽  
Civil Society ◽  
Negative Attitude ◽  
Civil Society Organizations ◽  
Economic Rights ◽  
The United Kingdom ◽  
The Impact ◽  
Social And Economic Rights

Abstract The article investigates the negative attitude towards civil society over the last decade in the United Kingdom and the repercussions for human rights. It considers this in the context of the United Kingdom government’s implementation of the policy of austerity. It reflects on the various policy and legal changes, and the impact on the campaigning and advocacy work of civil society organizations, particularly those that work on social and economic rights.

scholarly journals Legal and human rights-based approaches to healthy diets and sustainable food systems

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
D W Patterson ◽  
K Buse ◽  
R Magnusson ◽  
B C A Toebes
Keyword(s):  
Human Rights ◽  
Civil Society ◽  
Global Health ◽  
Food Systems ◽  
Business Models ◽  
Sustainable Food Systems ◽  
Sustainable Food ◽  
Healthy Diets ◽  
Health And Development ◽  
The Right

Abstract Issue Malnutrition in all its forms poses daunting challenges to global health and development. The agriculture sector is a significant contributor to global warming. COVID-19 has pushed many people into poverty, including food poverty. A radical rethink of business models, food systems, civil society involvement, and national and international governance is required to address the interlinked crises of COVID-19, obesity, undernutrition, and climate change. International human rights law, institutions and mechanisms provide important opportunities for norm setting, advocacy and accountability. Yet these pathways are under-utilised by both governments and civil society. Description The global AIDS response demonstrated the power of a human rights-based approach. United Nations' HIV/AIDS and Human Rights Guidelines greatly influenced the global consensus for effective, evidence-based approaches. The Guidelines also informed resolutions of the UN General Assembly and its Human Rights Council, contributing to more affordable medicines, an unprecedented increase in people on treatment, less stigmatising health services, the empowerment of marginalised groups, and the institutionalisation of norms, including “no one left behind.” Human rights-based approaches have also been successfully utilised in tobacco control. Results In 2019, 180 experts from 38 countries published an open call on WHO and the UN Office of the High Commissioner for Human Rights (OHCHR) to initiate an inclusive process to develop guidelines on human rights, healthy diets and sustainable food systems. Most signatories were from the health and development sectors, demonstrating the increasingly broad interest in using human rights mechanisms to address global health challenges. Lessons Opportunities exist to transform food systems and create healthier food environments and a healthier planet by clarifying existing international obligations to progressively realise the right to food and the right to health. Key messages Market forces, alone, are failing to deliver healthy diets and sustainable food systems. International legal frameworks and accountability mechanisms provide opportunities for engagement and action. Human rights guidelines can help mobilize multisectoral action, strengthen State and private sector accountability, and deepen community engagement in the urgent task of achieving Agenda 2030.

scholarly journals The Implications of and Responses to COVID-19: Localizing Human Rights in the City of York (UK)

2020 ◽  
Vol 12 (2) ◽  
pp. 250-259
Author(s):  
Paul Gready
Keyword(s):  
Human Rights ◽  
Civil Society ◽  
City Council ◽  
Right To Life ◽  
Thick Description ◽  
The Right ◽  
The City ◽  
Dimensional Picture

Abstract This essay attempts to capture the human rights implications of COVID-19, and responses to it, in the city of York (UK). Three human rights contributions are identified: ensuring that responses enhance dignity, the right to life, non-discrimination, and protect the most vulnerable; using human rights when balancing priorities and making difficult decisions; and optimizing the link between disease and democracy. The overarching aim is to localize and contextualize human rights in a meaningful way in the city, and thereby to provide meaningful guidance to the City Council and statutory agencies when implementing the difficult measures required by the pandemic, and to support civil society advocacy and monitoring. This work, led by the York Human Rights City (YHRC) network, illustrates the value of a localized ‘thick description’ of human rights and the multi-dimensional picture of challenges, innovations and solutions facilitated by such an approach.

Sign in / Sign up

Export Citation Format

Share Document