scholarly journals Caregiver satisfaction with a multidisciplinary community-based rehabilitation programme for children with cerebral palsy in South Africa

2017 ◽  
Vol 59 (2) ◽  
pp. 48
Author(s):  
Magugu Ngubane ◽  
Verusia Chetty
Keyword(s):  
South Africa ◽  
Health Professionals ◽  
Parental Satisfaction ◽  
Rehabilitation Programme ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Community Based ◽  
Community Based Rehabilitation ◽  
Children With Cerebral Palsy ◽  
The Impact

This study sought to determine the levels of satisfaction and experiences of caregivers with a multidisciplinary rehabilitation programme. A total of 26 caregivers were recruited at 3 health settings in South Africa. A survey based on the Multidimensional Assessment of Parental Satisfaction for Children with Special Needs and focus-group discussions were conducted at the end of programme. The majority of the respondents were mothers and unemployed. The participants were generally satisfied with the rehabilitation. However, participants held on to myths, stereotypes, and beliefs about the cause of disability and explained the impact of stigma on having a disabled child in their communities. Caregivers perceived the benefit of rehabilitation but believed that lack of communication and consultation with health professionals limited the care. (Full text of the research articles are available online at www.medpharm.tandfonline.com/ojfp) S Afr Fam Pract 2017; DOI: 10.1080/20786190.2016.1254929

scholarly journals Setting the global research agenda for community-based HIV service delivery through the faith sector

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Martha T. Ndlovu-Teijema ◽  
Maarten O. Kok ◽  
Sabine L. van Elsland ◽  
Hilleen Smeets ◽  
David Barstow ◽  
...  
Keyword(s):  
South Africa ◽  
Focus Group ◽  
Research Agenda ◽  
Primary Research ◽  
Focus Group Discussions ◽  
Online Questionnaire ◽  
Group Discussions ◽  
Community Based ◽  
Faith Leaders ◽  
Global Research

Abstract Background While leading AIDS organizations expect faith and health collaborations to play a crucial role in organizing and scaling up community-based HIV services, it is unclear how this can be realized. Little primary research has been conducted into which strategies for collaboration and service provision are most effective, efficient, scalable and sustainable. Seeking to align research with urgent needs, enhance coordination and increase the likelihood that results are used, this study aimed to set an inclusive global research agenda that reflects priority research questions from key stakeholders at the intersection of HIV healthcare and faith. Methods In order to develop this global research agenda, we drew from document analyses, focus group discussions, interviews with purposively selected key informants from all continents (policy-makers, healthcare providers, faith leaders, academics and HIV activists), an online questionnaire, and expert meetings at several global conferences. We carried out focus group discussions and interviews with faith leaders in South Africa. Other stakeholder focus groups and interviews were carried out online or in person in France, Switzerland, the Netherlands and South Africa, and virtual questionnaires were distributed to stakeholders worldwide. Respondents were purposively sampled. Results We interviewed 53 participants, and 110 stakeholders responded to the online questionnaire. The participants worked in 54 countries, with the majority having research experience (84%), experience with policy processes (73%) and/or experience as a healthcare provider (60%) and identifying as religious (79%). From interviews (N = 53) and questionnaires (N = 110), we identified 10 research themes: addressing sexuality, stigma, supporting specific populations, counselling and disclosure, agenda-setting, mobilizing and organizing funding, evaluating faith-health collaborations, advantage of faith initiatives, gender roles, and education. Respondents emphasized the need for more primary research and prioritized two themes: improving the engagement of faith communities in addressing sexuality and tackling stigma. Conclusions A wide range of respondents participated in developing the research agenda. To align research to the prioritized themes and ensure that results are used, it is essential to further engage key users, funders, researchers and other stakeholders, strengthen the capacity for locally embedded research and research uptake and contextualize priorities to diverse religious traditions, key populations and local circumstances.

scholarly journals Endogenous conflict resolution mechanisms of the San people at Platfontein

2014 ◽  
Vol 10 (4) ◽  
Author(s):  
M Y Gebregeorgis
Keyword(s):  
South Africa ◽  
Conflict Resolution ◽  
Focus Group ◽  
Thematic Analysis ◽  
The State ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
The Impact ◽  
Inductive Thematic Analysis

The objective of this study was to explore the endogenous conflict resolution mechanisms and practices of the San people at Platfontein, South Africa. To this end, data were collected from 304 interviews and 26 focus group discussions. The collected data were analysed through Inductive Thematic Analysis. The findings show that the San people have endogenous conflict resolution mechanisms which basically aim at restoring peace and harmony within the community. The endogenous mechanisms were found to be fairly participatory and supplementary to the state machineries that work for justice, peace and harmony. However, the conflict resolution mechanisms of the San people are currently weakening due to the impact of modernisation and the leadership dispute among the sub-groups of the community.

scholarly journals Outcomes of people with psychotic disorders in a community-based rehabilitation programme in rural India

2009 ◽  
Vol 195 (5) ◽  
pp. 433-439 ◽  
Author(s):  
Sudipto Chatterjee ◽  
Aravind Pillai ◽  
Sumeet Jain ◽  
Alex Cohen ◽  
Vikram Patel
Keyword(s):  
Formal Education ◽  
Psychotic Disorders ◽  
Bipolar Affective Disorder ◽  
Rehabilitation Programme ◽  
Intervention Package ◽  
Community Based ◽  
Low Resource ◽  
Resource Setting ◽  
Community Based Rehabilitation ◽  
The Impact

BackgroundThere is little evidence of the feasibility, acceptability and impact of services for the care of people with psychotic disorders in low- and middle-income countries.AimsTo describe the scaling up and impact of a community-based rehabilitation programme for people with psychotic disorders in a very-low-resource setting.MethodsLongitudinal study of people with psychotic disorders who had been ill for an average of 8 years in a rural Indian community. All individuals received a community-based intervention package comprising psychotropic medications, psychoeducation, adherence management, psychosocial rehabilitation and support for livelihoods. The primary outcome was change in disability scores.ResultsThe cohort consisted of 256 people with psychotic disorders (schizophrenia, bipolar affective disorder and other psychosis) of whom 236 people completed the end-point assessments (92%), with a median follow-up of 46 months. There were significant reductions (P<0.05) in the levels of disability for the cohort, the vast majority (83.5%) of whom engaged with the programme. On multivariate analyses, lower baseline disability scores, family engagement with the programme, medication adherence and being a member of a self-help group were independent determinants of good outcomes. Lack of formal education, a diagnosis of schizophrenia and dropping out of the programme were independent determinants of poor outcomes.ConclusionsCommunity-based rehabilitation is a feasible and acceptable intervention with a beneficial impact on disability for the majority of people with psychotic disorders in low-resource settings. The impact on disability is influenced by a combination of clinical, programme and social determinants.

scholarly journals Malaysian Stakeholder Perspectives on Suicide-Related Reporting: Findings From Focus Group Discussions

2021 ◽  
Vol 12 ◽  
Author(s):  
Yin Ping Ng ◽  
Kai Shuen Pheh ◽  
Ravivarma Rao Panirselvam ◽  
Wen Li Chan ◽  
Joanne Bee Yin Lim ◽  
...  
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Focus Group ◽  
Mental Health Professionals ◽  
Health Professionals ◽  
Stakeholder Engagement ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Reporting Practices ◽  
The Impact

Media guidelines on safe suicide-related reporting are within the suicide prevention armamentarium. However, implementation issues beleaguer real-world practice. This study evaluated the perspectives of the Malaysian media community, persons with lived experience of suicidal behavior (PLE), and mental health professionals (MHP) on suicide-related reporting in terms of the impact, strategies, challenges, and the implementation of guidelines on safe reporting. Three focus group discussions of purposively sampled Malaysian media practitioners (n = 8), PLE (n = 6), and MHP (n = 7) were audio-recorded, transcribed, coded and thematically analyzed. Inclusion criteria were: English fluency, no clinical depression or suicidal ideation (current), no recent previous suicide attempts or suicide bereavement. Three major themes emerged: (1) Unsafe Reporting; (2) Impact; and (3) Safe Reporting. Most described current reporting as unsafe by being potentially triggering to media users and may contribute to contagion effect. Positive impacts identified included raised awareness toward suicide and its prevention. Unsafe reporting was attributed to inadequate awareness, knowledge, and guidance, lack of empathy and accountability, job-related factors, popularity-seeking, lack of monitoring and governance, and information source(s) with unsafe content. Majority agreed on how suicide stories should be framed to produce a safe report. The media community diverged on how detailed a suicide story should be. Safe reporting challenges included difficulties in balancing beneficial versus harmful details, social media ubiquity and its citizen reporters. Participants suggested these safe reporting strategies: stakeholder engagement, educational approaches, improving governance and surveillance, and guidelines revision. Most acknowledged the relevance of guidelines but were unaware of the existence of local guidelines. Implementation challenges included the dilemma in balancing media industry needs vis-à-vis safe reporting requirements, stakeholder engagement difficulties and social media regulation. There is poor awareness regarding safe suicide-related reporting across all groups. PLE and MHP were negatively impacted by current unsafe messaging which aggravated trauma and grief reactions. Postvention support gaps for mental health professionals were highlighted. Safe reporting promotion strategies should include stakeholder engagement to increase awareness on minimizing Werther and maximizing Papageno effects. Strategic re-examination and dissemination of local media guidelines to address new media issues, and effective surveillance mechanisms, are crucial in sustainable improvement of safe reporting practices.

scholarly journals Efficacy of a brief online mindfulness-based intervention on the psychological well-being of health care professionals and trainees during the COVID-19 pandemic: A mixed method design

2021 ◽  
Vol 26 ◽  
Author(s):  
Iram Osman ◽  
Shaista Hamid ◽  
Veena S. Singaram
Keyword(s):  
South Africa ◽  
Health Care ◽  
Mixed Method ◽  
Health Professionals ◽  
Health Care Professionals ◽  
Well Being ◽  
Personal Accomplishment ◽  
Intervention Analysis ◽  
Health Crisis ◽  
The Impact

Background: During the coronavirus disease 2019 (COVID-19) pandemic, health professionals were pushed to the front line of a global health crisis unprepared and resource constrained, which affected their mental well-being.Aim: This study aimed to investigate the effectiveness of a brief online mindfulness-based intervention (MBI) on stress and burnout for health professionals training and working in South Africa during the COVID-19 crisis.Setting: The context of the study is the overburdened, under-resourced health care system in South Africa during a global pandemic.Methods: A mixed method framework was adopted for this study. The quantitative data was analysed using descriptive analysis and the participants’ qualitative experiences were interpreted using interpretative phenomenological analysis.Results: Forty-seven participants took part in this study. The study found a statistically significant (p 0.05) reduction in stress levels and emotional exhaustion as well as an increase in mindful awareness and feelings of personal accomplishment after the intervention. The participants’ shared experiences were analysed in two parts. The pre-intervention analysis presented with central themes of loss of control and a sense of powerlessness because of COVID-19. The post-intervention analysis comprised themes of a sense of acquired control and empowerment through increased mindfulness.Conclusions: The study found that a brief online MBI can be associated with reduced levels of stress and burnout as well as an increased sense of control and empowerment, felt both personally and professionally, during a global crisis.Contribution: The impact of an online MBI for health care professionals amidst a pandemic has not been previously documented.

scholarly journals Addressing the challenges and relational aspects of index-linked HIV testing for children and adolescents: insights from the B-GAP study in Zimbabwe

2020 ◽  
Author(s):  
Chido Dziva Chikwari ◽  
Sarah Bernays ◽  
Stefanie Dringus ◽  
Victoria Simms ◽  
Helen A Weiss ◽  
...  
Keyword(s):  
Hiv Testing ◽  
Children And Adolescents ◽  
Negative Impact ◽  
Discrete Event ◽  
Routine Care ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Community Based ◽  
Testing Uptake ◽  
Sexual Contacts

Abstract Introduction Index-linked HIV testing, targeted at sexual contacts or children of individuals with HIV, may improve yield and efficiency. The B-GAP study evaluated index-linked testing approaches in health facility and community-based settings. This paper reports on a qualitative study to understand factors that affect uptake of index-linked HIV testing for children and adolescents. Methods We conducted four focus group discussions (FGDs) with caregivers who had their children tested through B-GAP and one FGD with providers who offered index-linked HIV testing to indexes. We aimed to understand enabling and inhibiting factors in the decision-making process. Translated and transcribed transcripts were read for familiarisation. Following initial coding, analytical memos were written to identify emerging key themes across the data. Results Our findings showed there was inadequate emphasis on paediatric HIV in routine care which had a negative impact on subsequent uptake of testing for children. Once the decision to test had been made, access to facilities was sometimes challenging, and alleviated by community-based testing. A key finding was that HIV testing is not a discrete event but a process that was influenced by relationships with other family members and children themselves. These relationships raised complex issues that could prevent or delay the testing process. Conclusion There is a need to improve messaging on the importance of HIV testing for children and adolescents and to provide support to caregivers and their families in order to improve testing uptake. Addressing access barriers through the provision of community-based testing and implementing a family centred approach can optimize index-linked testing.

scholarly journals Exploration of undergraduate preservice teachers' experiences learning advocacy: A mixed-methods study

2014 ◽  
pp. 75-93 ◽  
Author(s):  
Kelley Erin Carpenter Massengale ◽  
Cherese Childers-McKee ◽  
Aerin Benavides
Keyword(s):  
Preservice Teachers ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Letter Writing ◽  
College Instruction ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Meaningful Activity ◽  
Teachers Experiences ◽  
The Impact

Abstract: Applying transformational critical advocacy research in college instruction can be a powerful way to engage students in challenging inequity in society and promoting positive changes. Few studies systematically measure the impact of such pedagogy on the development of college students’ beliefs about advocacy. In this mixed methods study, we worked with 21 preservice teachers through advocacy letter writing activities and collected data from pre/post surveys and focus group discussions to explore the impact of such pedagogy. The findings indicated that advocacy letter writing was a meaningful activity for preservice teachers, allowing them a professional opportunity to voice their concerns about personally meaningful issues to entities in power. A significant correlation was found between baseline advocacy experiences and baseline advocacy beliefs, suggesting that the teaching of advocacy, when combined with opportunities for meaningful practice, can contribute to shifts in belief about the importance of advocating. 

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