scholarly journals Ethical issues relating to qualitative research

2005 ◽  
Vol 61 (1) ◽  
Author(s):  
J. Jelsma ◽  
S. Clow

Qualitative research or naturalistic research has moved from the sidelines into the mainstream of health research and an increasing number of qualitative research proposals are being presented for ethical review Qualitative research presents ethical problems that which are unique to the intensive hands-on paradigm which characterises naturalistic research. This paper briefly outlines the most common methodologies used in this research. The four ethical principles of benevolence, non-maleficence, autonomy and justice will be used as a framework to explore specific ethical issues related to this form of inquiry. The need for scientific rigour will also be explored as research that is scientifically unsound can never be ethical.

2021 ◽  
pp. 9-16
Author(s):  
Oleg Letov ◽  

The article is an analytical review of English-language articles on contemporary ethical issues related to the coronavirus epidemic. Such principles of biomedical ethics as respect for the freedom of the patient, non-harm are analyzed. A precautionary approach is formulated, the main norms of which are practicality, impartiality, proportionality and justification. It is emphasized that public health advice and action should be part of a broader effort to gain and maintain confidence in the action taken. Reasonable trust requires a serious attitude to the ethical problems associated with the implementation of the intended ethical principles.


Encuentro ◽  
2010 ◽  
pp. 55-66 ◽  
Author(s):  
Daniel Wikler

That medical research with human subjects presents ethical issues and problems is well known. I will talk about some of these in what follows. But it is worth emphasizing beforehand that if there is one overwhelming problem involving research that is of great of ethical importance, it is that there is not enough research. So the purpose of this presentation is not to point to ethical problems in research in order to discourage research. It is exactly the opposite: it is because of the importance of research that we want to make sure that our purpose is not blocked by ethical problems which we could have avoided if we thought about these things well before hand. 


2016 ◽  
Vol 13 (3-4) ◽  
pp. 128-138 ◽  
Author(s):  
Julie Mooney-Somers ◽  
Anna Olsen

It is difficult to consider, describe or address the ethical issues particular to qualitative research without experience and understanding of the technicalities of qualitative methodologies. The Australian National Statement on the Ethical Conduct of Research Involving Humans charges researchers with a responsibility to demonstrate that they have the appropriate experience, qualifications and competence for their proposed research. Ethical review committees have the responsibility to judge claimed research competence. This article provides practical guidance to researchers and review committees on using formal qualifications and training, explicit claims of competence, and markers of in/competence to assess qualitative research competence.


2010 ◽  
Vol 90 (4) ◽  
pp. 615-628 ◽  
Author(s):  
Anne Townsend ◽  
Susan M. Cox ◽  
Linda C. Li

BackgroundIncreasing challenges to health care systems and the prominence of patient-centered care and evidence-based practice have fostered the application of qualitative approaches in health care settings, prompting discussions of associated ethical issues in a range of disciplines.ObjectivesThe purposes of this work were to identify and describe the application and value of qualitative health research for physical therapy and to identify ethical considerations in a qualitative research study.DesignThis was a qualitative interview study with telephone follow-ups.MethodsForty-six participants were interviewed about their early experiences with rheumatoid arthritis. They also were asked what motivated them to volunteer for the study. To inform the discussion of ethics in qualitative health research, this study drew on the in-depth interviews, took a descriptive approach to the data, and applied the traditional ethical principles of autonomy, justice, and beneficence to the study process.ResultsEthical issues emerged in this qualitative health research study that were both similar to and different from those that exist in a positivist paradigm (eg, clinical research). With flexibility and latitude, the traditional principle approach can be applied usefully to qualitative health research.ConclusionsThese findings build on previous research and discussion in physical therapy and other disciplines that urge a flexible approach to qualitative research ethics and recognize that ethics are embedded in an unfolding research process involving the role of the subjective researcher and an active participant. We suggest reflexivity as a way to recognize ethical moments throughout qualitative research and to help build methodological and ethical rigor in research relevant to physical therapist practice.


2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
◽  

Abstract About 90% of the biomedical data accessible to researchers was created in the last two years. These data have a very meaningful impact both in creating public policies on health, as well as public health research. This certainly implies complex technical problems on how to store, analyse and distribute data, but it also brings relevant epistemological issues. In this workshop we will present some of such problems and discuss how epistemic innovation is key in order to tackle ethical issues related to the use of big data in public health research. Databases implied in public health research are so huge that they rise relevant questions about how scientific method is applied, such as what counts as evidence of a hypothesis when data can not be directly apprehended by humans, how to distinguish correlation from causation, or in which cases the provider of a database can be considered co-author of a research paper. To consider such issues nowadays, current protocols do not hold, and we need innovation in methodological and epistemic procedures. At the same time, due to the fact that a relevant deal of such biomedical data is linked to individual people, and how medical data can be used to predict and transform human behavior, there are ethical questions difficult to solve as they imply new challenges. Some of them are related to communication issues, so patients and citizens understand these new ethical problems that didn't arise before the development of big data; others relate to the way in which public health researchers can and can't store, analyse and distribute information, and some others relate to the limits on which technologies are ethically, safe and which ones bring erosion of basic human rights. The four contributions in the workshop analyse these questions in some detail. During the workshop we will present a coherent understanding on what is epistemic innovation, some logical tools necessary for its development, and then we will discuss several cases on how epistemic innovation applies to different aspects of public health research, also commenting its relevance when tackling ethical problems that may arise. Key messages The workshop deepens the ethical and epistemological innovations involved in public health policies and research, specially related to big data. The workshop analyses novel aspects of public health ethics


1995 ◽  
Vol 2 (3) ◽  
pp. 223-232 ◽  
Author(s):  
Immy Holloway ◽  
Stephanie Wheeler

This article is concerned with ethical issues that have to be considered when under taking qualitative research. Some of the issues - such as informed consent, the dignity and privacy of the research subjects, voluntary participation and protection from harm - are the same as in other types of research and have their basis in moral and ethical principles. Qualitative research, however, generates specific ethical problems because of the close relationship that researchers form with participants. Qualitative research with patients is especially difficult because of their vulnerability and lack of power in the clinical situation. Therefore the potential conflict between the dual role of the nurse - the professional and the research roles - has to be solved. Researchers also learn how to cope with the tension of subjective and objective elements of the research. Nurses who attempt qualitative research have to consider a variety of complex ethical issues, which are addressed in this paper.


2001 ◽  
Vol 8 (4) ◽  
pp. 340-349 ◽  
Author(s):  
Henry A Akinsola

The concern for ethical principles and values is not limited to health professionals alone. However, ethical principles in nursing act as safety valves for social control to prevent professional misconduct and abuse of the rights of clients. As a result of colonial experience, developing countries like Botswana usually follow the European lead, especially examples from the UK. This article examines the ethical problems and dilemmas associated with rural nursing practice in Botswana, a developing country in sub-Saharan Africa. The major ethical problems identified are related to the distribution of and access to health resources in rural communities. It is proposed that nurses must assume responsibility in the field of access and allocation by working collaboratively with governments and other professional bodies, and that nurses as a global community must work together as a team to support each other.


2012 ◽  
Vol 20 (1) ◽  
pp. 30-40 ◽  
Author(s):  
Anne Kari T Heggestad ◽  
Per Nortvedt ◽  
Åshild Slettebø

The aim of this article is to show the importance of moral sensitivity when including persons with dementia in research. The article presents and discusses ethical challenges encountered when a total of 15 persons with dementia from two nursing homes and seven proxies were included in a qualitative study. The examples show that the ethical challenges may be unpredictable. As researchers, you participate with the informants in their daily life and in the interviews, and it is not possible to plan all that may happen during the research. A procedural proposal to an ethical committee at the beginning of a research project based on traditional research ethical principles may serve as a guideline, but it cannot solve all the ethical problems one faces during the research process. Our main argument in this article is, therefore, that moral sensitivity is required in addition to the traditional research ethical principles throughout the whole process of observing and interviewing the respondents.


2005 ◽  
Vol 1 (3) ◽  
pp. 90-96 ◽  
Author(s):  
J. Walker ◽  
I. Holloway ◽  
S. Wheeler

In recognition of the important ethical issues posed by qualitative research in health care, the authors present key questions to aid ethical review. The purpose is to assist lay and professional members of research ethics committees in their assessment of applications involving qualitative research methods and to inform researchers intending to submit such applications for ethical approval. For the benefit of those less familiar with this type of research, the authors include an overview of different types of qualitative research, together with an explanation of terms commonly used by qualitative researchers.


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