scholarly journals Patient Expectations on How Doctors Deliver Bad News (Case Study of Cancer Patients in Jambi City)

2021 ◽  
Vol 2 (3) ◽  
pp. 755-766
Author(s):  
Leila Mona Ganiem ◽  
Hasanah Suryani Utami

Abstract: Research related to patient expectations has existed, but not specifically in Indonesia, especially in Jambi. For this reason, this study is aimed, firstly, to find out the patient's opinion on how doctors deliver bad news according to the SPIKES stage. The second objective was to explore patients' opinions regarding their expectations about the way doctors communicate bad news, namely cancer diagnosis and prognosis in breast cancer patients, taking into account the SPIKES protocol. This case study research uses a qualitative approach. Research in the city of Jambi in January - November 2019, used interviews with eight informants, namely female patients who saw an oncologist (cancer). Interviews were conducted with each informant and also to the group. Doctors only use some stages, namely stages, interview, giving knowledge, strategy, and summary. The patients studied think that the doctor passes through stages, perception, and invitation. There was a large tendency in the Emotions with the empathic response stage, patients who felt that they were given attention to the patient's emotional condition with an empathetic response, only a small proportion did not feel the doctor's empathic response. Expectations of patients, doctors pay attention to the stages of SPIKES as well as the dimensions of content and dimensions of relationships in delivering bad news about a diagnosis of the disease.

2020 ◽  
Vol 8 (2) ◽  
pp. 95
Author(s):  
Ni Made Merlin ◽  
Antonius Rino Vanchapo

<p align="center"><strong>ABSTRACT</strong></p>Breast cancer is the disease that many women fear the most. Breast cancer significantly affects the psychological states of the patients, including self-concept. Patients with breast cancer commonly experience a negative self-concept due to the disease and side effects of the treatment. However, problems of self-concept among patients with breast cancer are rarely investigated by nurses. Furthermore, no measurement tool specifically measures the self-concept of breast cancer patients. The purpose of this study was to examine the validity and reliability of the self-concept questionnaire. This study used a case study research design to measure the self-concept of breast cancer patients using a newly developed questionnaire, namely the Merlin Breast Cancer Self-Concept Questionnaire. This questionnaire will be tested on breast cancer patients undergoing treatment in the hospital. The result showed a Cronbach’s alpha value of 0.909 for the validity and 0.500-0.790 for the reliability of the instrument. Merlin Breast Cancer Self-Concept Questionnaire was evident to be a valid and reliable instrument to measure self-concept among breast cancer patients. This questionnaire is feasible for use to measure self-concept among breast cancer patients. Implication for practice: This questionnaire will greatly help the clinic nurse in measuring the patient's self concept. Psychological problems especially self-concept can be examined to improve


2018 ◽  
Author(s):  
Paul K Mohabir ◽  
Preethi Balakrishnan

Delivering bad news is a critical part of the patient-physician relationship. Historically, physicians have withheld or incompletely related the diagnosis and prognosis of a patient’s disease. However, the trajectory of medical practice and patient expectations mandates a change in communicating bad news. Poor communication of bad news also affects physician job satisfaction and increases burnout. Empathy is crucial to communicating bad news well. It is a very complex emotion that requires the physician to identify the patient’s reaction to the news being delivered and to react to the patient in a supportive manner. Patients do not find it helpful when the physician underplays the bad part of the news. Emerging research shows that patients prefer pairing of bad news with hope to provide anchors in the overwhelming conversation but not to take away from the gravity of the news. Family and friends can help ameliorate or, unfortunately, augment patient anxiety. Physicians have to be cognizant of the dynamics family and friends bring to the interaction as well. A patient-centered approach—a combination of evidence-based medicine and patient goal-oriented medicine—to delivering bad news is most likely to benefit the patient-physician relationship and decision-making process. The SPIKES and the Expanded Four Habits Model can be used as guidelines for communicating bad news. This review contains 1 figure and 38 references. Key words: communicating bad news, empathy, Expanded Four Habits Model, patient-centered care, SPIKES


2020 ◽  
Vol 58 (9) ◽  
pp. 1841-1862 ◽  
Author(s):  
Francesca Dal Mas ◽  
Helena Biancuzzi ◽  
Maurizio Massaro ◽  
Luca Miceli

PurposeThe paper aims to contribute to the debate concerning the use of knowledge translation for implementing co-production processes in the healthcare sector. The study investigates a case study, in which design was used to trigger knowledge translation and foster co-production.Design/methodology/approachThe paper employs a case study methodology by analysing the experience of “Oncology in Motion”, a co-production program devoted to the recovery of breast cancer patients carried on by the IRCCS C.R.O. of Aviano, Italy.FindingsResults show how design could help to translate knowledge from various stakeholders with different skills (e.g. scientists, physicians, nurses) and emotional engagement (e.g. patients and patients' associations) during all the phases of a co-production project to support breast cancer patients in a recovery path. Stewardship theory is used to show that oncology represents a specific research context.Practical implicationsThe paper highlights the vast practical contribution that design can have in empowering knowledge translation at different levels and in a variety of co-production phases, among different stakeholders, facilitating their engagement and the achievement of the desired outcomes.Originality/valueThe paper contributes to the literature on knowledge translation in co-production projects in the healthcare sector showing how design can be effectively implemented.


2016 ◽  
Vol 10 ◽  
pp. CMO.S40479 ◽  
Author(s):  
Nikita Consul ◽  
Xiaotao Guo ◽  
Courtney Coker ◽  
Sara Lopez-Pintado ◽  
Hanina Hibshoosh ◽  
...  

Cachexia, a wasting syndrome associated with advanced cancer and metastasis, is rarely documented in breast cancer patients. However, the incidence of cachexia in breast cancer is now thought to be largely underestimated. In our case report of a breast cancer patient with bone metastasis monitored during the course of her treatment, we document the development of cachexia by image analysis in relation to her metastatic burden. Elucidation of the link between metastatic burden and cachexia could unveil a highly specific screening process for metastasis, by assessing true muscle mass loss. Our patient was a 49-year-old premenopausal woman, with metastatic invasive ductal breast carcinoma in the vertebral and iliac bones on presentation, which progressed with new metastases to her hips, thigh bones, and vertebrae. In the two-year period, that is between her diagnosis and death, she lost >10% of her baseline weight. During these two years, we retrospectively identified a decrease in paraspinal muscle (PM) at the third lumbar vertebra followed by a sharp decline in weight. The increased tumor burden over time in metastatic sites was accompanied by a decrease in abdominal muscle and visceral and subcutaneous fat and was followed by the patient's demise. The increasing tumor burden in the patient was correlated with the mass of other tissues to determine the tissue that could best serve as a surrogate marker to cachexia and tumor burden. We noted a strong negative correlation between PM area and metastatic tumor area at the third lumbar vertebral level, with PM loss correlating to increasing tumor burden. The monitoring of PM wasting may serve as a marker, and therefore a prognostic factor, for both cachexia and extent of metastatic disease, especially in breast cancer, where metastasis to bone is frequent. Based on our data and review of the literature in this case study, longitudinal monitoring of cachexia in the selected muscle groups can give clinicians early indications of the extent of cachexia in metastatic breast cancer patients.


Semiotica ◽  
2019 ◽  
Vol 2019 (227) ◽  
pp. 187-210
Author(s):  
John Tredinnick-Rowe

AbstractThis paper analyses the immunological response of breast cancer patients through the lens of medical semiotics. From this perspective both psychological and physiological symptoms are treated as a set of transitive signs. The symptomatic journey of breast cancer patients was documented through an ethnographic engagement with a breast cancer charity. This journey consists of diagnosis, treatment and remission, where both the physical and psychological trauma maybe irreversible. Equally the genetic disposition of each patient and the variability of the treatment give rise to a plethora of possible immunological responses. The case study organization provided both therapeutic treatment but also sold oncology products to its patients, matching the products’ composition to the specific immunological responses caused by breast cancer treatment, e.g., brittle skins or hair loss, etc. This paper explores how the varied and transient nature of immunological semiosis is identified and commoditized into an economic process. This challenging social context is of interest from a semiotic stand point because it offers a singular paradigm to explain the evolution of signs and symptoms into sales.


2019 ◽  
Author(s):  
Elya Khunazatus Shima ◽  
Dwi Listyorini ◽  
Hendra Susanto ◽  
J. D. P. Wisnubroto ◽  
Patricia Karin Himawan Praceptin ◽  
...  

2017 ◽  
Vol 20 (7) ◽  
pp. 906-911 ◽  
Author(s):  
M. Wang ◽  
S. Ji ◽  
G. Shao ◽  
J. Zhang ◽  
K. Zhao ◽  
...  

2021 ◽  
Vol 9 (T6) ◽  
pp. 138-142
Author(s):  
Aat Sriati ◽  
Laili Rahayuwati ◽  
Maria Komariah ◽  
Hendrawati Hendrawati ◽  
Iceu Amira ◽  
...  

Background. The high prevalence and incidence of breast cancer in Indonesia remains a disheartening issue, for it has turned out to be a threat for the quality of Indonesian women’s life. Let alone the fact that the patients and their families often lose interest in recognizing the issue of breast cancer, both benign and malignant. Besides, the problem faced by breast cancer patients in determining which kind of diagnosis or best therapy is still overlooked by the patients as well as their family members. This includes their indifference toward the patients’ nutrition during chemotherapy, which now thus must be taken into consideration. Purpose. This research aims at observing the needs in general breast cancer patients during their chemotherapy and post-therapy period. Methods. This research is the result of qualitative data collected by case study on 17 breast cancer patients undergoing chemotherapy in Al-Ihsan Hospital, Bandung District and Hasan Sadikin Hospital, Bandung City. These patients have undergone an in-depth interview either on their own or accompanied by a family member. Results. The result of the qualitative research is obtained through content analysis observation, showing a shallow understanding about therapy, both generally and specifically, regarding the importance of increasing spiritual support besides nutrition and the escalation of its amount on the patient and their families. In fact, one of the things that support the patient’s immune system during their chemotherapy is the sufficient condition of nutrition. Not only that, the result shows that cancer survivors claim they keep spiritual aspect and a balanced intake of nutrition during and after therapy. Conclusion. Therefore, it is necessary to make a formula about spiritual and nutritional needs of breast cancer patients, in the preparatory, momentary, and preempting stage of chemotherapy.


2021 ◽  
Vol 11 ◽  
Author(s):  
Kangdi Li ◽  
Ting Liu

PurposeThere is an urgent need to identify oncogenes that may be beneficial to diagnose and develop target therapy for breast cancer.MethodsBased on the GEO database, DECenter was used to screen the differentially overexpressed genes in breast cancer samples. Search Tool for the Retrieval of Interacting Genes and Cytoscape were performed to construct the PPI network to predict the hub gene. Functional and pathway enrichment were performed based on GO analysis. GEO2R, Oncomine, human tissue microarray staining, and western blot were applied to confirm the expression of NUP37. The association between NUP37 expression and prognosis in patients with breast cancer were assessed using the Kaplan–Meier plotter online tool and OncoLnc. siRNAs were used to knock down NUP37 and evaluate proliferation, migration, and stemness in breast cancer cells.ResultsWe found that 138 genes were differentially upregulated in breast cancer samples, mainly comprising components of the nucleus and involved in the cell cycle process. NUP37 was identified as a hub gene that is upregulated in breast cancer patients related to a significantly worse survival rate. Furthermore, we confirmed that the downregulation of NUP37 in breast cancer cells results in the inhibition of cell growth, migration, and stemness.ConclusionsHigh expression of NUP37 in breast cancer patients is associated with a poorer prognosis and promotion of cell growth, migration, and stemness. The multiple bioinformatics and experimental analysis help provide a comprehensive understanding of the roles of NUP37 as a potential marker for diagnosis and prognosis and as a novel therapeutic target in breast cancer.


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