scholarly journals My Body, My Stigma: Body Interpretations in a Sample of People Living with HIV/AIDS in Puerto Rico

Author(s):  
Nelson Varas-Díaz ◽  
José Toro-Alfonso ◽  
Irma Serrano-García

AIDS related stigma continues to impact the lives of People Living With HIV/AIDS (PLWHA) negatively. Although the consequences of stigmatization have been widely documented, certain areas of study need to be further addressed in order to better understand their implications for PLWHA; such is the case of the perceptions of the bodys role in AIDS stigma. A qualitative study was implemented including 30 in-depth interviews of PLWHA in Puerto Rico in order to explore their perceptions of the bodys role in the process of stigmatization. Results include: participants perceptions on how their bodies evidence their serostatus, description of past body marks, personal experiences with body marks, meanings attributed to their bodies with HIV/AIDS, and personal criteria used to describe the perfect body. These issues are described in the context of the social stigma faced by PLWHA in Puerto Rico and individual perceptions of bodys role in the process of self-stigmatization. Recommendations for intervention and research are described.

Author(s):  
Marcos Reyes-Estrada ◽  
Nelson Varas-Díaz ◽  
Richard Parker ◽  
Mark Padilla ◽  
Sheilla Rodríguez-Madera

HIV-related stigma among nurses can impact health care services for people with HIV/AIDS (PWHA). health care professionals’ religious views can potentially foster stigmatizing attitudes. There is scarce scientific literature exploring the role of religion on HIV/AIDS stigma among nurses. This study aimed to explore the role of religion in the stigmatization of PWHA by nurses in Puerto Rico. We conducted an exploratory study using qualitative techniques. We conducted 40 in-depth interviews with nurses who provided services to PWHA. Three main factors emerged in the analysis as contributors to HIV/AIDS stigmatization: (1) nurses’ personal religious experiences, (2) religion as a rationale for HIV-related stigma, and (3) religious practices during health care delivery. The results show that religious beliefs play a role in how nurses understood HIV/AIDS and provided service. Results point toward the need for interventions that address personal religious beliefs while reducing HIV/AIDS stigma among nurses.


Koneksi ◽  
2020 ◽  
Vol 3 (2) ◽  
pp. 405
Author(s):  
Leo Sukarno ◽  
Roswita Oktaviani

HIV / AIDS has become a phenomenon in the social environment of society for the last few years. Fear of stigma and discrimination from local people makes PLWHAs reluctant to reveal themselves. People with HIV who have revealed themselves must face the risk of discrimination and stigma that must be experienced in everyday life. This study aims to explain interpersonal communication among PLWHA who have done self-disclosure. The method that’s being used is a qualitative approach with case study method. The case study was conducted at ODHA Berhak Sehat Community. The data collection is done by conducting in-depth interviews with informants. Subjects in this study were people living with HIV/AIDS (PLWHA) who had opened their status for some time. In addition interviews were also conducted with specialists in sexually transmitted diseases as a research triangulator. It was found that PLWHA who have revealed status with the closest people cause a sense of trust. PLWHA do not receive discrimination, but rather supportiveness. And, an open - minded attitude from the closest person. Furthermore, the results of the study are discussed in this article. HIV/AIDS telah menjadi fenomena di lingkungan sosial masyarakat selama beberapa tahun terakhir. Orang dengan HIV/AIDS (ODHA) cenderung mendapat stigma dan diskriminasi dari masyarakat setempat. Hal ini membuat ODHA enggan mengungkapkan diri. Penelitian ini bertujuan untuk mengetahui bagaimana komunikasi antarpribadi ODHA yang sudah melakukan pengungkapan diri (self-disclosure). Penelitian ini menggunakan pendekatan kualitatif, dengan metode studi kasus. Studi kasus dilakukan pada Komunitas ODHA Berhak Sehat. Pengumpulan data dilakukan menggunakan wawancara mendalam dengan tiga ODHA yang sudah mengungkapkan status kesehatannya. Selain itu wawancara juga dilakukan kepada dokter spesialis penyakit menular seksual sebagai triangulator penelitian. Penelitian ini menemukan bahwa komunikasi antarpribadi ODHA yang sudah mengungkapkan status dengan orang terdekat menimbulkan rasa kepercayaan. ODHA tidak mendapat diskriminasi, melainkan sikap suportif. ODHA juga mendapati sikap terbuka dari orang terdekat.


2016 ◽  
Vol 21 (3) ◽  
pp. 766-782 ◽  
Author(s):  
John A. Maluccio ◽  
Fan Wu ◽  
Redwan B. Rokon ◽  
Rahul Rawat ◽  
Suneetha Kadiyala

Author(s):  
Hema Malini

Community-level stigma and discrimination towards people living with HIV is found all over the world, with people forced to leave their home, change their daily activities such as shopping, socializing or schooling, face rejection and verbal and physical abuse. The objective of the study was to assess the HIV/AIDS stigma among the general public. Quantitative approach  and descriptive research design was adopted for the  present study. The study was conducted in Vallancherry a selected rural village of Kattankulathur . The sample size for the present study was 300. Three point rating scale  was used to assess the HIV/STIGMA and discrimination.The present study findings revealed that among 300 samples none of them reported severe stigma ,50 (16.7%)  participants reported moderate stigma and 250 (83.3%)  participants reported  low stigma. Stigma blocks access to HIV testing and treatment services, making onwards transmission more likely. The removal of barriers to these services is key to end the global HIV epidemic.Key Words : HIV, AIDS, Stigma, Discrimination, Rejection


Author(s):  
Jacquelyn Slomka

This chapter discusses the palliative care needs of people living with HIV (PLWH). Now considered a chronic condition, HIV presents specific challenges both for individuals who are long-term survivors and for those adults who are recently diagnosed. The initial diagnosis of a chronic condition can be devastating for anyone, but a diagnosis of HIV may be especially stressful and challenging due to the social stigma and history associated with it. For PLWH whose condition is well-controlled, the development of comorbidities associated with disease characteristics, medication, or the aging process speaks to the need for palliative care throughout the disease trajectory. This chapter focuses on the social context impinging on those needs. It provides palliative care content that can facilitate nurses’ collaborations with patients, as well as with physicians and other healthcare team members who care for adults with HIV.


2019 ◽  
Vol 24 (9) ◽  
pp. 1100-1110 ◽  
Author(s):  
Wei Wang ◽  
Ningxi Yang ◽  
Xiaoyan Li ◽  
Han Xiao ◽  
Mengting Gao ◽  
...  

2001 ◽  
Vol 12 (10) ◽  
pp. 670-676 ◽  
Author(s):  
Jeffrey Grierson ◽  
Richard de Visser ◽  
Michael Bartos

The aim of this study was to assess whether the lives of Australian people living with HIV/AIDS (PLWHA) have improved to the extent hoped for following the introduction of new antiretroviral (ARV) drugs for HIV. In 1997, 925 Australian PLWHA completed the first national survey of the social impacts of HIV/AIDS. In 1999, 924 Australian PLWHA were recruited for a repeat of the survey. Study participants completed an anonymous self-administered questionnaire. The data revealed that although new ARV drugs have improved the clinical profiles of many PLWHA, there have not been corresponding improvements in the physical well-being, levels of employment, or financial circumstances of many PLWHA. Nevertheless, PLWHA express favourable attitudes toward ARV drugs. Australian PLWHA have a complex relationship with their ARV medication that is likely to change over time as their HIV disease progresses and new treatments become available.


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