scholarly journals Unmet basic needs and family functions gaps in diabetes management practice among Indonesian communities with uncontrolled type 2 diabetes: A qualitative study

2021 ◽  
Vol 16 (3) ◽  
pp. 23-35
Author(s):  
Rian Adi Pamungkas ◽  
Kanittha Chamroonsawasdi ◽  
Andi Mayasari Usman

Family members play a vital role in both helping and undermining diabetes mellitus self-management practices. This qualitative study aimed to explore the potentially unmet needs of family function to support diabetes self-management (DSM) practices. In-depth interviews and focus group discussions (FGDs) were conducted among different key informants, including uncontrolled T2DM patients, caretakers and healthcare providers (HCPs) at community health centres. An open-ended approach was applied to elicit responses from the key informants. A total of 22 participants were involved in this study. All interview and FGD processes were audio-recorded and transcribed verbatim. The results found that all key informants addressed six core themes, with sub-themes to describe the unmet needs of family function to support DSM practice. The critical unmet needs of family function include: 1) Lack of problem-solving skills to deal with poor diabetes management; 2) Ineffective communication and refusal to share the burden of diabetes management; 3) Lack of affective responsiveness to encourage patients’ compliance; 4) Lack of affective involvement in DSM; 5) Insufficient family roles in supporting patients; 6) Poor behaviour control of T2DM. Our findings provide insights into how family function may influence the adoption and maintenance of healthy behaviours among diabetic patients. Since health providers seek new approaches to improve DSM practices, this valuable finding was essential to understand how family function can improve and empower patients in DSM practice.

Hypertension ◽  
2012 ◽  
Vol 60 (suppl_1) ◽  
Author(s):  
Xiang Y Chen ◽  
Peng Yue ◽  
Yong L Wang ◽  
Shu Q Xiao ◽  
Xin W Feng ◽  
...  

Background: Self-management has become a key strategy for caring chronic patients in community. However, little is known about peoples’ self-management experiences and their perceived cues and barriers to engagement in self-management. Objective: To explore issues patients with type 2 diabetes experienced in their self-management practices,to understand cues and barriers to engagement in self-management. Design: Qualitative study (Semi-structured interviews) Setting: 11 communities in Beijing, China Participants: Type 2 diabetes patients in community, aged >18, no admission in past 90 days. Methods: 40 critical incident interviews were run during Apr to Sep in 2011 using purposive sampling (20 interviews with patients whose HbA1c well-controlled (<6.5%), while 20 badly-controlled (≥8%)).Themes from interviews were identified using content analysis, which revealed cues and barriers to self-modification for diabetes management. Results: Implications for self- management practice included objectively understanding on the severity and complications of diabetes. In addition to family support such as supervision in family and fully-use of family resource, desires/duties to be responsible for whole family life as a breadwinner was emerged as a key cue to engagement in self-control. Barriers to engagement in self-management stemmed from financial burden to monitor blood glucose daily, dissatisfaction of HbA1c level after efforts, and malignant life events. It is worth mentioning that starving experience of difficult time with natural disasters in1960s- 1970s in China was identified also as a key barrier to engagement in diet management. Discussion and Conclusion: There was a strong desire for Chinese patients to comply with Chinese cultural norms; particularly those relating to family value. It was the patients’ power to be involved in self-management that they could devote their healthy life to family duty. Everyone had his/her own history so experiences in past shaped patients’ behaviors now. The findings highlighted the importance of understanding the family value and the personal experiences as facilitators and barriers to self-management of Chinese patients with type 2 diabetes living in community.


PLoS ONE ◽  
2020 ◽  
Vol 15 (5) ◽  
pp. e0232524
Author(s):  
Dereje Chala Diriba ◽  
Tariku Tesfaye Bekuma ◽  
Firew Tekle Bobo

Author(s):  
Hilda Shilubane ◽  
Lizzy Netshikweta ◽  
Tshinyadzo Ralineba

Background: Diabetes mellitus (DM) is a chronic condition affecting over 18 million people worldwide. It can lead to debilitating complications and premature death if not effectively controlled. South Africa, like any sub-Saharan countries and the world at large, is no exception. The prevalence of diabetes among South African adults has increased by 50% from 2009 to date, and an increase of some 11 million new diabetes diagnoses is expected by the year 2020.Purpose: The purpose of this study was to describe the beliefs and management practices of patients with DM in Vhembe district, Limpopo province.Setting: The study was conducted at Vhembe district clinics. Methods: A probability, purposive sampling was used to sample 100 diabetic patients. Data were collected using a pre-tested questionnaire. Data were analysed using the Statistical Package for Social Sciences version 19.0. Descriptive statistics, frequencies, and percentages were used to summarise the data from the study.Results: The majority of the respondents had poor management practice of feet care and annual eye examinations. Twenty four (24.0%) of the respondents believed that DM can be cured and 22 (22.0%) did not believe that diet helps in the management of DM.Conclusion: The belief that DM is curable can have a negative effect as patients can quit taking treatment once the disease is under control. This happens irrespective of the national guidelines for the management of DM. Therefore, some strategies should be sought that could enhance the implementation of the guidelines in order to combat the disease.


2006 ◽  
Vol 2 (2) ◽  
pp. 77-85 ◽  
Author(s):  
Javier E. Garcia de Alba Garcia ◽  
Florence J. Dallo ◽  
Ana L. Salcedo Rocha ◽  
Cecilia Colunga Rodriguez ◽  
Noe Perez ◽  
...  

2020 ◽  
Vol 14 (6) ◽  
pp. 2161-2167
Author(s):  
Prabhath Matpady ◽  
Arun G. Maiya ◽  
Pallavi Prakash Saraswat ◽  
Shreemathi S. Mayya ◽  
Mamatha S. Pai ◽  
...  

2021 ◽  
pp. 105477382110640
Author(s):  
Eeeseung Byun ◽  
Susan M. McCurry ◽  
Boeun Kim ◽  
Suyoung Kwon ◽  
Hilaire J. Thompson

Subarachnoid hemorrhage (SAH) survivors often experience sleep disturbances. Little is known about sleep-management practices used to improve their sleep. The purpose of this qualitative study was to explore interest in and engagement with self-management practices to promote sleep health in SAH survivors. We conducted a cross-sectional qualitative study using semi-structured interviews with a convenience sample of 30 SAH survivors recruited from a university hospital. We conducted content analysis of interview transcripts. Three themes and 15 subcategories were identified: (1) sleep disturbances (difficulties falling asleep, wake after sleep onset, daytime sleepiness, too much or insufficient sleep, and poor sleep quality); (2) sleep-management practices (exercise, regular sleep schedule, relaxation, keeping busy and staying active, changing beverage intake, taking supplements, taking medications, recharging energy, and barriers to sleep management); and (3) consulting with healthcare providers (discussing sleep problems with healthcare providers). Self-management strategies focusing on health-promoting behaviors may improve SAH survivors’ sleep health.


2017 ◽  
Vol 29 (2) ◽  
pp. 118 ◽  
Author(s):  
Temidayo Ogunrinu ◽  
Thelma Gamboa-Maldonado ◽  
R. Ndinda Ngewa ◽  
Jasmine Saunders ◽  
Jamie Crounse ◽  
...  

2020 ◽  
Vol 10 (1) ◽  
pp. 11-19
Author(s):  
Maja Hykkelbjerg Nielsen ◽  
Annesofie Lunde Jensen ◽  
Anne Bo ◽  
Helle Terkildsen Maindal

Background: Adults with early-onset Type 2 Diabetes Mellitus (T2DM) are an emerging high-risk population who may experience social challenges related to diabetes management. Objective: To explore the disclosure of T2DM and how disclosure affects diabetes self-management and the psychosocial adjustment to life with diabetes among adults with early-onset T2DM. Methods: A qualitative study was conducted using Systematic Text Condensation (STC). Data was derived from semi-structured interviews with 15 individuals with T2DM ≤ 46 years (10 women and 5 men) recruited from diverse settings using purposeful sampling. Results: Most informants disclosed their diabetes to a close relative shortly after receiving the diagnosis. This led to immediate emotional support and overall positive disclosure experiences. However, informants often hesitated to disclose their condition to others due to shame, fear of negative judgement or social exclusion. Over time, the majority of informants became more open about their condition, which often resulted in emotional and practical self-management support. Those most reluctant to disclosing their diabetes struggled with shame and negative diabetes-related emotions, which had negative effects on their diabetes self-management. Conclusion: Disclosure of T2DM seemed important for the social, emotional and practical management of diabetes among adults with early-onset T2DM. The disclosure was most often accompanied by feelings of shame and fear of condemnation. Professional guidance to support disclosure and interventions to address stigma may improve well-being and diabetes self-management in this population.


2020 ◽  
Author(s):  
Alaa Abd-Alrazaq ◽  
Noor Suleiman ◽  
Khaled Baagar ◽  
Noor Jandali ◽  
Ibrahem Abdalhakam ◽  
...  

BACKGROUND Diabetes mellitus (DM) is highly prevalent in Qatar and the Middle East and North Africa (MENA) region. Mobile health (m-health) can improve communications between diabetic patients and medical teams and this, in turn, may enhance engagement and self-management. Droobi is a multi-language mobile application designed to support self-management of patients with DM. OBJECTIVE The study aimed to explore experiences of patients and educators about their communication before and after implementation of Droobi, a diabetes management app. METHODS We interviewed a convenience sample consisting of 9 patients and 5 nurse educators. Before interviews, Droobi was downloaded to participants’ mobile phone, and their profile on the application was created. To ensure optimum usage experience, all participants received education on how to use Droobi. Participants used Droobi for 6 to 12 weeks. All interviews were audio recorded, transcribed by professionals, and thematically analyzed. RESULTS Two main themes were generated from participants’ responses. The first theme relates to experiences of patients and educators about their communication before Droobi and consists of 3 sub-themes: (1) how patients communicated with medical team before Droobi (previous methods), (2) adoption of previous communication methods, and (3) shortcomings of previous communication methods. The second theme relates to experiences of patients and educators about their communication after Droobi and consists of 4 sub-themes: (1) adoption of Droobi, (2) advantages of Droobi, (3) shortcomings of Droobi, and (4) improvements suggested by educators and patients. Findings suggest that Droobi provided a more efficient and convenient way for communication between health workers and patients, yet multiple shortcomings and several suggestions for improvements were noted. CONCLUSIONS Droobi has the potential to overcome disadvantages of previous communication methods, thereby increasing diabetic patient self-management. However, continuing use of Droobi is a factor for continuing its long-term viability and eventual success. Future work should continue on evaluating the Droobi app and to include a number of different stakeholders (e.g., diabetic patients, educators, doctors, researchers) when developing the upcoming Droobi version taking into account the limitations and suggestions put forth by the end-users. Further studies are needed to assess the clinical and cost effectiveness of Droobi in Qatar and the MENA region together with investigating factors affecting its initial and continued use.


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