Feasibility and Acceptability of a Real-Time Telerehabilitation Intervention for Children and Young Adults with Acquired Brain Injury During the COVID-19 Pandemic: An Experience Report

This study examined the feasibility and acceptability of a telerehabilitation intervention during the COVID-19 pandemic in a sample of children and young adults with Acquired Brain Injury (ABI). Thirteen patients and/or their families agreed to participate in the speech and neuropsychological telerehabilitation sessions. The treatment was synchronous, patient centered and aimed at improving specific abilities. Sessions were held twice a week over a 10-week period. Two questionnaires were completed both by parents and therapists to assess feasibility and acceptability. Neither technical issues nor clinical obstacles were found. The quality of the therapeutic relationship played a key role in the intervention. Synchronous telerehabilitation provided several advantages both for patients and therapists. Moreover, the patient centered intervention eased the burden of the caregivers at a time of high stress. The real-time telerehabilitation treatments were deemed suitable for children and young adults with ABI. Further studies are needed to support the use of telerehabilitation as an integral part of their standard care.

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Participation Restrictions among Children and Young Adults with Acquired Brain Injury in a Pediatric Outpatient Rehabilitation Cohort: The Patients’ and Parents’ Perspective

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18041625 ◽

2021 ◽

Vol 18 (4) ◽

pp. 1625

Author(s):

Florian Allonsius ◽

Arend de Kloet ◽

Gary Bedell ◽

Frederike van Markus-Doornbosch ◽

Stefanie Rosema ◽

...

Keyword(s):

Young Adults ◽

Brain Injury ◽

Acquired Brain Injury ◽

Outpatient Rehabilitation ◽

Rank Test ◽

Limited Participation ◽

Rehabilitation Treatment ◽

Paired Samples ◽

Participation Restrictions ◽

Children And Young Adults

Improving participation is an important aim in outpatient rehabilitation treatment. Knowledge regarding participation restrictions in children and young adults with acquired brain injury (ABI) is scarce and little is known regarding the differences in perspectives between patients and parents in the outpatient rehabilitation setting. The aims are to describe participation restrictions among children/young adults (5–24 years) with ABI and investigating differences between patients’ and parents’ perspectives. At admission in 10 rehabilitation centers, patients and parents were asked to complete the Child and Adolescent Scale of Participation (CASP; score 0–100; lower score = more restrictions) and injury/patient/family-related questions. CASP scores were categorized (full/somewhat-limited/limited/very-limited participation). Patient/parent-reported outcomes were compared using the Wilcoxon signed-rank test. 223 patients and 245 parents participated (209 paired-samples). Median patients’ age was 14 years (IQR; 11–16), 135 were female (52%), 195 had traumatic brain injury (75%). The median CASP score reported by patients was 82.5 (IQR: 67.5–90) and by parents 91.3 (IQR: 80.0–97.5) (difference = p < 0.05). The score of 58 patients (26%) and 25 parents (10%) was classified as ‘very-limited’. Twenty-six percent of children and young adults referred for rehabilitation after ABI had “very-limited” participation. Overall, parents rated their child’s participation better than patients themselves. Quantifying participation restrictions after ABI and considering both perspectives is important for outpatient rehabilitation treatment.

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Fatigue, Participation and Quality of Life in Adolescents and Young Adults with Acquired Brain Injury in an Outpatient Rehabilitation Cohort

Developmental Neurorehabilitation ◽

10.1080/17518423.2019.1692948 ◽

2019 ◽

Vol 23 (5) ◽

pp. 328-335

Author(s):

Frederike van Markus-Doornbosch ◽

Menno van der Holst ◽

Arend J. de Kloet ◽

Thea P. M. Vliet Vlieland ◽

Jorit J. L. Meesters

Keyword(s):

Quality Of Life ◽

Young Adults ◽

Brain Injury ◽

Acquired Brain Injury ◽

Adolescents And Young Adults ◽

Outpatient Rehabilitation

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Parent-reported family impact in children and young adults with acquired brain injury in the outpatient rehabilitation setting

Brain Injury ◽

10.1080/02699052.2021.1891287 ◽

2021 ◽

pp. 1-10

Author(s):

F. Allonsius ◽

A.J. De Kloet ◽

F. Van Markus-Doornbosch ◽

J.J.L. Meesters ◽

C.H. Kromme ◽

...

Keyword(s):

Young Adults ◽

Brain Injury ◽

Acquired Brain Injury ◽

Outpatient Rehabilitation ◽

Family Impact ◽

Children And Young Adults

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Acquired Brain Injury Quality of Life Scale

PsycTESTS Dataset ◽

10.1037/t76369-000 ◽

2019 ◽

Author(s):

María Fernández ◽

Laura E. Gómez ◽

Víctor B. Arias ◽

Virginia Aguayo ◽

Antonio M. Amor ◽

...

Keyword(s):

Quality Of Life ◽

Brain Injury ◽

Acquired Brain Injury ◽

Quality Of Life Scale ◽

Life Scale

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Faculty Opinions recommendation of Long-term risk of epilepsy after traumatic brain injury in children and young adults: a population-based cohort study.

Faculty Opinions – Post-Publication Peer Review of the Biomedical Literature ◽

10.3410/f.1157052.619308 ◽

2009 ◽

Author(s):

Patrick Ray

Keyword(s):

Traumatic Brain Injury ◽

Young Adults ◽

Cohort Study ◽

Brain Injury ◽

Population Based ◽

Children And Young Adults

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Physical Activity and Sport for Acquired Brain Injury (PASABI): A Non-Randomized Controlled Trial

Medicina ◽

10.3390/medicina57020122 ◽

2021 ◽

Vol 57 (2) ◽

pp. 122

Author(s):

Marta Pérez-Rodríguez ◽

Saleky García-Gómez ◽

Javier Coterón ◽

Juan José García-Hernández ◽

Javier Pérez-Tejero

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Brain Injury ◽

Functional Capacity ◽

Intervention Group ◽

Chronic Phase ◽

Acquired Brain Injury ◽

Control Group ◽

Wide Range

Background and objectives: Acquired brain injury (ABI) is the first cause of disability and physical activity (PA) is a key element in functional recovery and health-related quality of life (HRQoL) during the subacute and chronic phases. However, it is necessary to develop PA programs that respond to the heterogeneity and needs of this population. The aim of this study was to assess the effectiveness of a PA program on the HRQoL in this population. Materials and Methods: With regard to recruitment, after baseline evaluations, participants were assigned to either the intervention group (IG, n = 38) or the control group (CG, n = 35). Functional capacity, mood, quality of life and depression were measured pre- and post-intervention. The IG underwent the “Physical Activity and Sport for Acquired Brain Injury” (PASABI) program, which was designed to improve HRQoL (1-h sessions, two to four sessions/week for 18 weeks). The CG underwent a standard rehabilitation program without PA. Results: Results for the IG indicated significant differences and large effect sizes for the physical and mental dimensions of quality of life, as well as mood and functional capacity, indicating an increase in HRQoL. No significant differences were found for the CG across any variables. Conclusions: The PASABI program was feasible and beneficial for improving physiological and functionality variables in the IG. The wide range of the activities of the PASABI program allow its application to a large number of people with ABI, promoting health through PA, especially in the chronic phase.

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