scholarly journals SURVEILLANCE FOR INDEPENDENCE: DISCURSIVE FRAMEWORKS IN SMART CARE FOR DEMENTIA

Author(s):  
Christine Hine ◽  
Payam Barnaghi

Smart technologies promise a future in which the care needed by vulnerable people can be delivered at a distance, informed by Internet of Things-enabled remote sensing and by artificial intelligence used to identify problematic patterns in physiological readings and behavioural data. In this context, surveillance is widely portrayed as a means to maintain the independence of those being monitored. This paper examines the promise of smart care through analysis of documentation from policy, from research and development settings and from marketing materials aimed at carers, people living with dementia and social care agencies in the UK. For informal carers, the monitoring carried out by smart care systems is predominantly framed as reassurance for the carer, while for the person living with dementia a reassurance is offered that there will be help at times of need. For healthcare professionals, lack of knowledge is positioned as a limiting factor on providing optimal care and hence the monitoring offered by smart care becomes an ethical responsibility in the search for improved care as well as a means to increased efficiency. While smart care aims to promote independence, this form of surveillance and the AI-generated predictions that are built upon it can offer imperatives to action that may act against autonomy. To evaluate ethical implications more fully we need to move beyond the promotional discourse to find out more about how people live with such systems and how these systems become a part of the relations of expertise and responsibility that pervade care.

2020 ◽  
Vol 33 (4) ◽  
pp. 351-363
Author(s):  
John Duncan Edmonstone

Purpose This paper aims to make the case that there is a need to move beyond a focus on an approach to leadership development which is confined to health care only. It argues that, given the economic, financial, social and organisational context within which health and social care organisations in the UK operate, there is a need to develop leadership within health and social care systems, rather than within the existing “siloed” sectors. Design/methodology/approach The paper considers the context within which health and social care organisations in the UK operate; examines the nature of those organisations; makes the case for focusing on the health and social car system through systems leadership; and identifies the need for leadership, rather than leader development. Findings There is a danger of health and social care organisations “walking backwards into the future” with eyes fixed on the past. The future lies with treating health and social care as a system, rather than focusing on organisations. The current model is individual leader focused, but the emerging model is one of collective multi-agency teams. Originality/value The paper seeks to go beyond a health-care-only focus, by asserting that there is a need to regard health and social care as a single system, delivered by a multiplicity of different organisations. This has implications for the kind of leadership involved and for how this might be developed.


BMJ Leader ◽  
2018 ◽  
Vol 2 (3) ◽  
pp. 110-114 ◽  
Author(s):  
Alison Tweed ◽  
Andrew Singfield ◽  
Julia R A Taylor ◽  
Lucy Gilbert ◽  
Paul Mount

BackgroundWithin the UK National Health Service (NHS) the move to Sustainable Transformation Plans/Partnerships and Integrated Care Systems reflect the increasing need and expectation for transformational change at a system level across both health and social care boundaries. Transformational change is complex, emergent and dynamic requiring new, non-traditional forms of leadership which are highly relational and persuasive.Aim of the studyThe current study aimed to explore a small number of NHS senior leaders’ experiences of undertaking transformational change within their localities over a period of a year following participation in a national transformational change programme designed to enhance personal capabilities.MethodFour pairs of leaders working on different change programmes took part in the study and were interviewed at three time points about their approach to their change work. The data were analysed qualitatively using template analysis.ResultsA core theme of Creating Allegiance to an Emergent Future World was developed. The senior leaders created allegiance to the transformational change through a process of Connecting on three levels: relational, with purpose and vision and through practice. Allegiance creation was attempted even if the transformational change work at the year-end was deemed successful or not.ConclusionsThe study highlights the types of leadership behaviours employed by the participants reflecting the complexity and social construction of their transformational work. The findings provide further evidence to the existing system leadership literature as well as emphasising the importance of creating stakeholder, multilevel buy-in to healthcare transformation.


Rheumatology ◽  
2020 ◽  
Vol 59 (Supplement_2) ◽  
Author(s):  
Andrew Oliver ◽  
Graham Raftery ◽  
David Coady

Abstract Background Britain is becoming an increasingly sedentary society; public health statistics tell us our health is being affected by our everyday lifestyle choices with reduced levels of physical activity and increasing levels of obesity contributing to increased demands on health and social care systems. On average, the UK workforce spends 9 hours sitting down per day. This is particularly prominent amongst GPs and certain senior physician roles in hospital, where clinics contribute to a large amount of the workload. Standing has been shown to put less stress on the lower back and other joints, burn more energy than sitting down and increase productivity and energy levels. Thus, evidence shows it is healthier to stand more during the day, but is it feasible in a healthcare setting? The aim of this study was to investigate whether patients would prefer to sit or stand for their consultations and the reasoning behind their choices. Methods A consultation room within the rheumatology outpatient department in Sunderland Royal Hospital was fitted with an adjustable standing desk. During clinics, patients were offered a standing consultation on entry to the room. A focused questionnaire was created and given to patients, consisting of 6 questions on the demographics of the patients, whether they wanted a standing consultation or not and what their reasoning was for their decision. This was an opportunistic study that included 39 patients over a 3-week period. Results In total, 39 questionnaires were given out, with each patient being offered a standing consultation. The results found that 13 patients opted for a standing consultation and 23 patients preferred to sit down. Not wanting to stand due to an MSK problem was the most prevalent answer with 16 patients using that as their reasoning. Conclusion In an increasingly sedentary population, the introduction of standing desks could help to reduce this behaviour in healthcare professionals and contribute positively to health. This study also highlights the question of positive modelling of patient behaviours, by healthcare professionals demonstrating the benefits of standing, it could encourage patients to begin to integrate it into their own lives. If we remove the 16 patients that did not want to stand due to an MSK problem, then the results show that 13/23 (56%) of patients wanted a standing consultation, so why not offer the choice? Increasing the sample size and trialling the desk in another department, where MSK problems are less prevalent, is the logical next step to develop this research. Following further investigation, the implementation of standing desks throughout more healthcare departments could help to reduce sedentary behaviour, increase productivity, lessen sick days amongst staff and demonstrate healthy living to patients. Disclosures A. Oliver None. G. Raftery None. D. Coady None.


2015 ◽  
Vol 44 (3) ◽  
pp. 549-566 ◽  
Author(s):  
BENEDICT E. SINGLETON ◽  
GARY FRY

AbstractCarers make a considerable contribution to the health and social care of sick or disabled people, reducing the strain on health and social care systems. This has been recognised through support mechanisms, including (in the UK) a payment for caring (Carer's Allowance – CA). This article draws upon data from a study of carers receiving CA. Utilising a citizenship perspective, it examines respondents’ perspectives on their role in the UK and shows how CA provides not only financial support but also contributes to normative conceptualisations of citizenship. The data highlight the primacy of paid work in UK citizenship, as well as the stigma associated with receiving welfare benefits. The article concludes by claiming that changes to the UK benefit system need to take into account a ‘recognition’ aspect, reformulating what is considered a worthwhile contribution to society.


2005 ◽  
Vol 25 (5) ◽  
pp. 769-783 ◽  
Author(s):  
IRENE HARDILL ◽  
JACQUI SPRADBERY ◽  
JUDY ARNOLD-BOAKES ◽  
MARIA LUISA MARRUGAT

In recent years, there has been a growth in academic interest in international retirement migration in Europe, particularly north-south retirement migration to destinations like Spain. In this paper we focus on those members of the British community who have lived in Spain for a considerable time and for whom familial, social and institutional ties with Britain are weak or disrupted. Age Concern España was established by members of the British community to provide information and services on healthcare, benefits and local services in Spain. Four indicative case studies of those requesting assistance and classified as being of ‘serious need’ are presented. They illustrate the ways in which happy and fulfilling lives in Spain were abruptly changed as the person's resources (bodily, economic, social and skills) for independent living diminished, and in which institutions and friendship networks played a key role in supporting life. The paper is the product of collaboration between researchers and practitioners in Spain and the UK, and brings together previous research with new qualitative case studies. Whilst policy-makers, practitioners and gerontologists have an increasing awareness of the needs of older migrants and the challenges they pose for public policy, particularly for health and social care systems in Spain, there have been little sustained analysis and cross-country debate.


BMJ Leader ◽  
2020 ◽  
Vol 4 (4) ◽  
pp. 185-188 ◽  
Author(s):  
Rene Wiedner ◽  
Charlotte Croft ◽  
Gerry McGivern

BackgroundCrises, such as the COVID-19 pandemic, risk overwhelming health and social care systems. As part of their responses to a critical situation, healthcare professionals necessarily improvise. Some of these local improvisations have the potential to contribute to important innovations for health and social care systems with relevance beyond the particular service area and crisis in which they were developed.FindingsThis paper explores some key drivers of improvised innovation that may arise in response to a crisis. We highlight how services that are not considered immediate priorities may also emerge as especially fertile areas in this respect.ConclusionHealth managers and policymakers should monitor crisis-induced improvisations to counteract the potential deterioration of non-prioritised services and to identify and share useful innovations. This will be crucial as health and social care systems around the world recover from the COVID-19 pandemic and head into another potential crisis: a global economic recession.


2014 ◽  
Vol 13 (4) ◽  
pp. 609-621 ◽  
Author(s):  
Ian McLoughlin ◽  
Sanaz Bayati-Bojakhi ◽  
Karthyeni Purushothaman ◽  
Amrik Sohal

Client and patient-centred care have become watchwords in policies to transform social and health care systems in both Australia and the UK. In this article we argue that much of the success of moves towards client-centred social care will rest on the creation of appropriate informational environments to support new conversations between clients and those who commission and provide care services. We draw upon original research within an existing state-level insurance-based scheme covering citizens who acquire a disability in transport accidents to illustrate the problems faced by the absence of such a framework. We highlight some of the insights emerging from our work concerning the challenge of developing appropriate informational environments to support client-centred care and indicate the potential of co-design when focused on new conversations of care.


Author(s):  
Kirstein Rummery

This chapter will focus on the impact that the post 2008 austerity regime has had on the lives of disabled people in the UK. It will trace the way in which previous hard- fought for rights in social care and welfare that have been developing since 1997 have been stripped back under austerity. It will focus on the stigmatisation of disabled people as ‘shirkers’, welfare conditionality and budget cuts. Looking at social care, direct payments and self-directed support, and the move from Disability Living Allowance to Personal Independence Payments and the impact of other changes in the benefits system, it will examine how these changes have created a ‘perfect storm’ of welfare cutbacks. It will also look at how disability intersects with gender and age to reduce rights and support further, particularly with the reduction of support available to informal carers. Looking forward, this chapter will examine the impact of the 2014 Scottish independence referendum and the devolution of universal credit and DLA to see whether there is likely to be some divergence in disability rights between Scotland the rest of the UK, and speculate about the possible outcomes of Brexit and our withdrawal from the EU.


2016 ◽  
Vol 80 (2) ◽  
pp. 132-138 ◽  
Author(s):  
Kate Hamblin

Introduction Telecare is increasingly part of the United Kingdom (UK)’s health and social care arrangements, and therefore occupational therapists’ practice. Understanding factors which influence telecare’s acceptance and usage is important to ensure optimal outcomes, both for service users and health and social care systems. Method This paper uses data collected by a qualitative, multi-method, longitudinal research study ( n = 60) to explore whether an American model of ‘obtrusiveness’ is applicable to the UK context by examining what factors influence older adults’ acceptance and use of telecare. Findings The obtrusiveness model is broadly applicable to the UK context, but there are also two further issues which affected the acceptance and use of telecare: the degree of control a service user feels they have and the information and support they receive in using their devices. Conclusion The obtrusiveness model, plus the two additions (control and information), highlight important issues which could assist professionals working with telecare, including occupational therapists, in ensuring telecare is both accepted and well used.


BMJ Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. e047353
Author(s):  
Henry Aughterson ◽  
Alison R McKinlay ◽  
Daisy Fancourt ◽  
Alexandra Burton

ObjectivesTo explore the psychosocial well-being of health and social care professionals working during the COVID-19 pandemic.DesignThis was a qualitative study deploying in-depth, individual interviews, which were audio-recorded and transcribed verbatim. Thematic analysis was used for coding.ParticipantsThis study involved 25 participants from a range of frontline professions in health and social care.SettingInterviews were conducted over the phone or video call, depending on participant preference.ResultsFrom the analysis, we identified 5 overarching themes: communication challenges, work-related stressors, support structures, personal growth and individual resilience. The participants expressed difficulties such as communication challenges and changing work conditions, but also positive factors such as increased team unity at work, and a greater reflection on what matters in life.ConclusionsThis study provides evidence on the support needs of health and social care professionals amid continued and future disruptions caused by the pandemic. It also elucidates some of the successful strategies (such as mindfulness, hobbies, restricting news intake, virtual socialising activities) deployed by health and social care professionals that can support their resilience and well-being and be used to guide future interventions.


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