scholarly journals Health education in physiotherapy for spinocerebelar ataxia

2021 ◽  
Author(s):  
Isabela Virgílio Cleto ◽  
Guilherme Silva Guimarães ◽  
Leticia Poloni dos Santos ◽  
Carolina Miguel Nôga ◽  
Leticia Moraes Aquino

Introduction: Ataxia is a symptom of several degenerative medical conditions; the most common in Brazil being Spinocerebelar ataxia (SCA). These patients have difficulty performing fine coordination motors activities, altered body balance and gait. The treatment is based on multidisciplinar rehabilitation, to improve quality of life and mantain general health. Health education (HE) can benefit these patients, but there are few reports about it, especially in SCA patients. Objectives: To search the literature for evidence of the use of HE in phyisiotherapy for SCA patients in Brazil. Design and settings: Study carried out at Centro Universitario São Camilo. Methodology: Literature review in the databases: Scielo, UNIFESP and LILACS, Key words: “SCA”, ”rehabilitation”, “HE” and “physiotherapy”, in Portuguese, English or Spanish . Results: 27 articles were found, of which 16 were eligible. Studies demonstrates the need for more evidence for HE to be part of the physiotherapist’s routine, encouraging the participation and autonomy of the patient and family in the rehabilitation process. It is possible to develop educational materials that complement the health guidelines for these patients. Conclusion: There is a literary gap about the direct role of the physiotherapist as a HE agent, with responsibilities beyond rehabilitation; within the scope of prevention, health promotion and self-management of the patient and family.

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
E Renzi ◽  
G Gasperini ◽  
V Baccolini ◽  
C Marzuillo ◽  
C De Vito ◽  
...  

Abstract Background Promoting self-care is one of the most promising strategies to manage people with chronic conditions and to improve the Public Health System resilience. In this context, the use of e-Health could facilitate self-care promotion, assure continuity of care and save time. Methods We performed an umbrella review on Cochrane, Scopus, Medline, PsychInfo, CINAHL to analyse e-Health self-care promoting intervention in patients with Type- 2 Diabetes Mellitus (T2DM), Cardiovascular Diseases (CVD) and Chronic Obstructive Pulmonary Disease (COPD) compared to traditional intervention. AMSTAR-2 was used for quality appraisal. Results 10 systematic reviews were included for an amount of 376 RCTs and 3 quasi-experimental studies. All the e-Health interventions retrieved were categorized in 4 subgroups: Phone Reminder, Telemonitoring, Psychoeducational intervention supported by PCs/Apps and Combined Intervention. Nurses (271/379 studies) and physicians (149/379 studies) were the healthcare workers mostly involved in the administration of e-Health interventions. T2DM (5 reviews; 175 studies) and CVD (7 reviews; 164 studies) patients gained more progresses in self-management than COPD patients (3 reviews; 8 studies). E-Health appeared effective both in promoting self-management and disease awareness. Globally, all the e-Health interventions seemed to improve Quality of Life and clinical outcomes. Phone reminders were most effective to increase Medication Adherence. All Causes Mortality registered a positive effect through Telemonitoring. Hospital Admission and Cost-Efficacy were explored only by telemonitoring and it did not show differences with traditional intervention. Conclusions E-Health is an effective strategy to promote self-care in patients with chronic conditions and to improve quality of life and clinical outcomes. Further research is required to test e-Health intervention in COPD patients and to examine if there is different efficacy among e-Health subgroups. Key messages E-Health should be integrated in Primary Care strategies to improve Public Health systems resilience. Nurses, as frontline Primary Health Care workers, should be advised for e-Health administration.


Pteridines ◽  
2018 ◽  
Vol 29 (1) ◽  
pp. 124-163 ◽  
Author(s):  
Hina Makkar ◽  
Mark A. Reynolds ◽  
Abhishek Wadhawan ◽  
Aline Dagdag ◽  
Anwar T. Merchant ◽  
...  

AbstractPrevious evidence connects periodontal disease, a modifiable condition affecting a majority of Americans, with metabolic and cardiovascular morbidity and mortality. This review focuses on the likely mediation of these associations by immune activation and their potential interactions with mental illness. Future longitudinal, and ideally interventional studies, should focus on reciprocal interactions and cascading effects, as well as points for effective preventative and therapeutic interventions across diagnostic domains to reduce morbidity, mortality and improve quality of life.


2010 ◽  
Vol 28 (2) ◽  
pp. 134-140 ◽  
Author(s):  
D. McCahon ◽  
E. T. Murray ◽  
K. Murray ◽  
R. L. Holder ◽  
D. A. Fitzmaurice

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
S Marini ◽  
A Masini ◽  
P Maietta Latessa ◽  
T Sanna ◽  
A Raggi ◽  
...  

Abstract Background Osteoporosis is a major health burden worldwide and require a multi-modal approach including exercise. Fractures have a substantial impact on quality of life (QoL) so exercise programs may to be conducted by trainers able to deal with this condition, because exercise alone, even if in the right dosage, seems to be not enough to improve QoL. A quasi-experimental pilot study performed to determine the feasibility and safety of an Adapted Physical Activity (APA) protocol specifically designed for osteoporotic women with vertebral fractures and its effect on QoL, with a specific focus on trainer's role. Methods The Experimental Group (EG) performed APA protocol 1hour twice a week for 6 months, while the Control Group (CG) received standard care. QoL was assessed at baseline and follow-up with ECOS-16 questionnaire and semi structured interviews to understand women perceptions regarding trainer's role. Using mixed-methods quantitative and qualitative data were analyzed using SPSS 5 and NVivo 12, respectively. Results 40 post-menopausal women (mean age: 67.6±4.6) divided in 2 groups EG = 22 and CG = 18, completed the study. At follow-up, EG improved significantly QoL (EG: -0.5±0.5 vs CG: 0.0±0.3 p = 0.02). The APA intervention had a significant effect on all the components of QoL, as measured by the disease-specific ECOS-16 questionnaire: Physical Component Summary (PCS) (EG: -0.4±0.5 vs CG: 0.0±0.4 p = 0.06) and Mental Component Summary (MCS) (EG: -0.5±0.6 vs CG: 0.1±0.5 p = 0.02). The interviews confirmed this result, emphasizing the key role of the trainer in improving their QoL. The adherence calculated as number of sessions performed compared to the sessions proposed was 75.8%. No injuries were observed. Conclusions The feasibility, the safety, and the positive effect of the proposed exercise protocol on QoL confirmed also by the interviews, show that principles of exercise education applied by trainers should be extended also to patients with other chronic condition. Key messages Trainers specifically educated, could be a means of achieving the goal improving people’s QoL, as they occupy the role of exercise experts and also an educational, relational and support role. The management of osteoporosis is multi-modal and includes exercise, often recommended as a beneficial non-pharmacological treatment to slow the rate of bone loss and improve quality of life.


Author(s):  
Cheryl Gore-Felton ◽  
Lawrence McGlynn ◽  
Andrei Kreutzberg ◽  
David Spiegel

Many individuals seek relief from symptoms associated with HIV infection through the use of integrative medicine. Symptoms include neuropsychiatric problems such as anxiety, depression, cognitive dysfunction, and headaches, as well as somatic disorders related to viral infection and immunodysregulation, such as fatigue, diarrhea, and cardiovascular problems. As antiretroviral treatments have become increasingly effective, symptom management with minimal side effects has become more important. A variety of integrative treatments, including botanicals, vitamins, minerals, probiotics, and herbs, have been utilized, and mind–body approaches such as mindfulness, hypnosis, and movement therapy have been found to reduce symptoms and improve quality of life. This chapter examines widely used integrative medicine approaches to alleviating distressing HIV-related symptoms. Implications for clinical practice are discussed. Integrative approaches emphasize self-management of symptoms and are widely sought after and accepted, even by patients who resist other forms of medical treatment.


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