Evaluation of the relationship between sociodemographic characteristics, quality of life, depression, drug compliance and biochemical parameters in patients with thalassemia major in Isparta

2021 ◽  
Vol 28 (8) ◽  
pp. 1500
Author(s):  
Aslihan Badur ◽  
Demircan Ozbalci ◽  
Emine Alanoglu
2021 ◽  
Vol 12 ◽  
Author(s):  
Hanlin Zhang ◽  
Zihan Yang ◽  
Keyun Tang ◽  
Qiuning Sun ◽  
Hongzhong Jin

Psoriasis is a chronic and recurrent immune-related skin disease that often causes disfigurement and disability. Due to the visibility of lesions in patients and inadequate understanding of dermatology knowledge in the general public, patients with psoriasis often suffer from stigma in their daily lives, which has adverse effects on their mental health, quality of life, and therapeutic responses. This review summarized the frequently used questionnaires and scales to evaluate stigmatization in patients with psoriasis, and recent advances on this topic. Feelings of Stigmatization Questionnaire, Questionnaire on Experience with Skin Complaints, and 6-item Stigmatization Scale have been commonly used. The relationship between sociodemographic characteristics, disease-related variables, psychiatric disorders, quality of life, and stigmatization in patients with psoriasis has been thoroughly investigated with these questionnaires. Managing the stigmatization in patients with psoriasis needs cooperation among policymakers, dermatologists, psychologists, psychiatrists, researchers, and patients. Further studies can concentrate more on these existing topics, as well as other topics, including predictors of perceived stigmatization, stigmatization from non-patient groups, influence of biologics on stigmatization, and methods of coping with stigmatization.


Author(s):  
Amir Ataollah Hiradfar ◽  
Seyyed Gholamreza Noorazar

Background: Thalassemia is the most common hemoglobinopathy, worldwide. Chronicity and complications of thalassemia can affect the quality of life in these patients. Psychological aspects of transfusion-dependent forms of thalassemia (major and intermediate) are well-known, especially in adults. Aim of this study was to investigate the prevalence of mental disorders in thalassemia major and intermediate who were under 15 years old. This study was organized in thalassemia clinic in Tabriz Children’s Hospital from June 2014 to August 2014. Methods: Sixty transfusion-dependent thalassemia patients were eligible in our study. Twenty-six patients were boys and 34 were girls. Mean age of the participants were 9 ±1. A standard questionnaire called K-SADS was used to collect the data during interview by patients and their parents. In this research, the data have been analyzed to demonstrate the prevalence of psychologic disorders and the relationship between psychologic disorders and demographic characteristics. Results: The prevalence of psychological disorders in our study was: ODD (37%), social phobia (20%), depression (18%), conduct disorders (10%), and enuresis (5%). Also, psychologic disorders had a significant relationship with age and education. Conclusion: Our study confirmed that about 80% of the participants had one of the psychological disorders. Therefore, a regular psychologic consulting for children and their parents in thalassemia clinics is required.


2002 ◽  
Author(s):  
R. Arnold ◽  
A. V. Ranchor ◽  
N. H. T. ten Hacken ◽  
G. H. Koeter ◽  
V. Otten ◽  
...  

2020 ◽  
Vol 17 (6) ◽  
pp. 76-91
Author(s):  
E. D. Solozhentsev

The scientific problem of economics “Managing the quality of human life” is formulated on the basis of artificial intelligence, algebra of logic and logical-probabilistic calculus. Managing the quality of human life is represented by managing the processes of his treatment, training and decision making. Events in these processes and the corresponding logical variables relate to the behavior of a person, other persons and infrastructure. The processes of the quality of human life are modeled, analyzed and managed with the participation of the person himself. Scenarios and structural, logical and probabilistic models of managing the quality of human life are given. Special software for quality management is described. The relationship of human quality of life and the digital economy is examined. We consider the role of public opinion in the management of the “bottom” based on the synthesis of many studies on the management of the economics and the state. The bottom management is also feedback from the top management.


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